BILL ANALYSIS                                                                                                                                                                                                    






                           SENATE JUDICIARY COMMITTEE
                        Senator Ellen M. Corbett, Chair
                           2007-2008 Regular Session


          AB 1192                                                A
          Assemblymember Evans                                   B
          As Amended July 3, 2007
          Hearing Date: July 10, 2007                            1
          Welfare & Institutions Code                            1
          GMO:rm                                                 9
                                                                 2

                                     SUBJECT
                                         
                Developmental Services: Consumer Abuse Registry


                                   DESCRIPTION  

          The bill would create a registry of providers or other  
          persons who have a substantiated history of abuse of  
          persons with developmental disabilities, and make the  
          registry available to regional centers, consumers and their  
          families, guardians, and conservators.  

          The bill would direct the department (to be designated by  
          the Secretary of Human Services) to adopt a "substantiation  
          protocol" for adding a provider or person to the registry  
          and a "release  protocol" for making the registry  
          information available to regional centers, consumers and  
          their families, guardians, and conservators.  It would  
          require the department to consult with program stakeholders  
          on a specified list, including service providers, district  
          attorneys, civil rights advocates, licensing agencies,  
          advocates, and families of persons with disabilities.

          The bill would immunize from liability any person or entity  
          who participates in the development of the registry or who  
          uses and relies on the information contained in the  
          registry.

          Finally, the bill has a delayed effective date of July 1,  
          2009.

                                                                 
          (more)



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          (This analysis reflects author's amendments to be offered  
          in committee.)

                                    BACKGROUND  

          In California, over 220,000 individuals with developmental  
          disabilities receive care in residential and day programs,  
          independent and supported living, and at-home, private  
          care. (Department of Social Services statistics, found at  
           www.dds.ca.gov/factsstats/cmf.cfm  .) Many studies have shown  
          that these individuals are two to five times more likely to  
          experience severe, long-lasting, and repeated abuse than  
          the non-disabled, while living in supposedly safe  
          environments.  Further, these studies show that 44% of  
          abusers make contact with their victims as unlicensed,  
          direct care workers. (Cf. Sobsey, D. (1994) Violence and  
          abuse in the lives of people with disabilities: The end of  
          silent acceptance? Baltimore: Paul H. Brookes Publishing  
          Co.)

          Under the Elder and Dependent Adult Civil Protection Act  
          (EADACPA), abuse of a developmentally disabled person can  
          include not only physical, verbal, and financial abuse, but  
          also neglect, abandonment, abduction, isolation, and  
          deprivation of needed goods and services.  In 2003, several  
          groups issued a report on the abuse and neglect of persons  
          with disabilities and concluded that persons with  
          developmental disabilities are victimized at higher rates  
          than other citizens, are at higher risk for  
          re-victimization, are abused for longer periods of time,  
          are victimized in their residences by persons they know and  
          who are responsible for their services and support, and are  
          inadequately educated to recognize and resist abusive  
          situations.  The group, composed of Protection and Advocacy  
          Inc., the State Council for Developmental Disabilities at  
          UCLA, and the University of Southern California's  
          University Affiliated Program, stated that the situation is  
          a serious public policy issue warranting the highest level  
          of attention.
           
          Those who support this bill point to the high incidence of  
          abuse in the developmentally disabled population and to the  
          sad but true fact that many abusive caregivers are able to  
          move from agency to agency, or county to county, and  
          continue to perpetuate their abusive behavior.  The lack of  
                                                                       




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          a central clearinghouse or registry where information about  
          substantiated abusers may be shared and/or made available  
          to persons about to hire them, whether they are the  
          developmentally disabled person, the family, the guardian,  
          conservator, or the local agency that is providing  
          services, is a problem that needs to be addressed now,  
          states the sponsor of AB 1192, Registry to End Abusive  
          Caregiver Hiring (REACH) Project.

          This bill would establish a registry and the procedure for  
          a state agency to add persons with substantiated history of  
          abuse to the registry, and make the registry available to  
          specified parties.

                             CHANGES TO EXISTING LAW
           
          1.    Existing law  provides for regional centers, which are  
            private not-for-profit corporations, to manage the  
            community placement of developmentally disabled persons  
            in the state under the State Department of Developmental  
            Services (DDS), and the operation of five developmental  
            centers, which are state hospitals, to care for those  
            developmentally disabled individuals whose care requires  
            more than can be provided within the community.

             Existing law  establishes the protection and advocacy  
            agency, which is authorized to investigate any incident  
            of abuse or neglect of any person with a disability that  
            is reported to the agency, or if the agency determines  
            that there is probable cause to believe abuse or neglect  
            occurred.

             Existing law  establishes the procedure for the reporting  
            of abuse and/or neglect of elders and dependent adults,  
            and of children, by mandatory and non-mandatory  
            reporters.  

             This bill  would require every regional center and every  
            provider of services to consumers with developmental  
            disabilities to report any evidence of abusive treatment  
            of a consumer, to a department designated by the  
            Secretary of the California Health and Human Services  
            Agency. 

             This bill  would require the designated department to  
                                                                       




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            establish a process for investigating and substantiating  
            reports of abusive treatment of developmentally disabled  
            persons.

          2.    Existing law  establishes in the Department of Justice  
            the Child Abuse Central Index, where incidents of child  
            abuse are reported by mandated and non-mandated reporters  
            and indexed if the child abuse reports are subsequently  
            "substantiated" or deemed "inconclusive" after  
            investigation. 

             This bill  would establish a mechanism for the department  
            designated by the Secretary of Health and Human Services  
            to receive reports of abusive treatment of  
            developmentally disabled persons and to investigate and  
            substantiate the report of abusive treatment.

             This bill  would establish in the designated department a  
            registry of providers or other persons who have a  
            substantiated history of abuse of persons with  
            developmental disabilities, and would require the  
            department to adopt a "substantiation protocol" for  
            adding a person or provider to the registry and a  
            "release protocol" for making the information in the  
            registry available to consumers and their families,  
            guardians, conservators, and to regional centers.

             This bill  would require the department to consult with  
            program stakeholders, including representatives from  
            specified groups and agencies, in the development of the  
            protocols required.

             This bill  would provide immunity from liability to any  
            person or entity who participates in the development of  
            the registry or who uses or relies on the registry.

             This bill  would require the designated department to  
            adopt implementing regulations by July 1, 2009.

                                      COMMENT
           
          1.   Stated need for the bill
           
            According to the author: 

                                                                       




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               There is no state registry to protect the  
               developmentally disabled by tracking the  
               individuals who use caregiver positions to abuse  
               their clients.  A state registry is needed because  
               abusive caregivers can move from one community to  
               the next and continue their crimes.  
               ?Developmentally disabled persons face a higher  
               risk of abuse because they are often segregated  
               from the mainstream population and are heavily  
               dependent on others for their basic needs.   
               According to a report prepared by REACH [the  
               sponsor of AB 1192], arrests for the abuse of  
               developmentally disabled individuals is rare,  
               convictions are tracked through law enforcement  
               systems, most instances of abuse are not formally  
               reported to law enforcement, and most instances of  
               abuse are handled administratively as employment  
               issues.

          2.    Author's amendments to be offered in committee

             The author has proposed amendments to AB 1192 to ensure  
            that the registry created by the bill would not suffer  
            from the same infirmities as the current Child Abuse  
            Central Index, which is a registry of persons and  
            providers with substantiated reports of child abuse. (See  
            Comment 3.) These amendments would:

             A.   require the designated department to adopt  
               additional protocols to:

               1)     substantiate incidents of reported abuse in  
                 order to add the reported person to the registry;
               2)     provide an opportunity for appeal prior to  
                 adding a person to the registry;
               3)     enable a person listed in the registry to  
                 petition for immediate removal from the registry;  
                 and
               4)     make timely and regular updates to the registry  
                 content;
             A.   include representatives of county child protective  
               services and adult protective services agencies in the  
               list of stakeholders with whom the designated  
               department would consult in developing the required  
               protocols;
                                                                       




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             C.   include child protective services and adult  
               protective services agencies that are investigating  
               allegations of abuse or neglect of a child or an elder  
               or dependent adult in the list of entities to whom the  
               registry would be available;
             D.   require the designated department to coordinate and  
               share information in the registry with the Department  
               of Public Health, in accordance with adopted  
               protocols;
             E.   define "abuse" as used in the bill; and
             F.   expressly state that the bill would not alter or  
               amend any existing reporting obligations of any person  
               or entity.

          3.   Registry simulates the Child Abuse Central Index  
            but hopefully cures its defects
           
            The Child Abuse Central Index (CACI) is housed and  
            administered in the Department of Justice (DOJ).   
            Generally, reports of child abuse are made by mandated  
            reporters (doctors, hospitals, schools, law enforcement,  
            for example), non-mandated reporters, and some reports  
            are even furnished to the DOJ by the licensing agencies  
            with jurisdiction over children's services.  After DOJ  
            review, these reports are entered into the CACI if they  
            are found to be "substantiated" or "inconclusive."   
            "Unfounded" reports are not entered into the index but  
            the records are retained by DOJ.

            While the CACI has been in place for over ten years and  
            has helped keep track of child abusers with substantiated  
            history of child abuse, it has also been a beacon for  
            criticism and even lawsuits challenging the procedure for  
            adding and removing persons from the index.  The index is  
            criticized as being incomplete, with many substantiated  
            incidents never making their way into the index.  And,  
            because it is only an index of an investigative result,  
            there is no appeal process available to contest the  
            result, and once entered in the CACI, an entry is almost  
            impossible to remove.  The far-reaching and sometimes  
            devastating effects of being registered in the CACI on  
            persons who were subsequently cleared of any wrongdoing  
            has been the subject of litigation in recent years.   
            Also, many have argued that innocent persons are listed  
            on the CACI because the DOJ calls virtually all unproven  
                                                                       




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            accusations "inconclusive," thus retaining them in the  
            index rather than calling them "unfounded" and keeping  
            them off the index. 

            In 1999 this committee held a hearing on AB 1447  
            (Granlund) that would have revised the Child Abuse and  
            Neglect Reporting Act (CANRA) to allow for purging of  
            specified records, to limit dissemination of information  
            in the index, to require local agencies submitting  
            reports to respond to the DOJ in a timely manner, and to  
            establish a CANRA Task Force to assess the value of the  
            index and what changes were necessary. The bill was  
            withdrawn at the request of the sponsor (the Attorney  
            General) because of the ongoing litigation involving the  
            CACI law
             
            AB 1192 would establish a registry in the mold of the  
            CACI but with some improvements, although the process is  
            still not clear enough.  

            a.    Providers to report evidence of abusive treatment;  
              department to register abusers with substantiated  
              history

                Under this bill, every regional center, and every  
               provider of services including health facilities and  
               community care facilities, would be required to report  
               any evidence of abusive treatment of a consumer to the  
               department designated by the Secretary of Health and  
               Human Services to create and administer the registry.   
               The department would have to establish a "mechanism"  
               to investigate and substantiate the report of abusive  
               treatment.

               The department would then be charged with establishing  
               a registry of "providers or other persons who have a  
               substantiated history of abuse of persons with  
               developmental disabilities."  

               The amendments offered in committee would define  
               "abuse" for purposes of this registry by importing the  
               definition in the Welfare and Institutions Code used  
               for mandated reporting of neglect or abuse.  However,  
               the bill does not contain any provision defining what  
               a "substantiated history" of abuse would mean and how  
                                                                       




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               that would be determined.  While this is arguably left  
               to the department-designee to define, it should be  
               noted that even the CACI law makes reference to the  
               Penal Code provisions defining "substantiated,"  
               "inconclusive," and "unfounded" reports for purposes  
               of determining whether a reported person needs to be  
               entered into the index.

               SHOULD THE TERM "SUBSTANTIATED HISTORY OF ABUSE" BE  
               DEFINED?

               This is especially important because even while  
               "substantiated" is a clearly defined word in the Penal  
               Code, "substantiated history" is not.  Is the  
               determination to be whether or not one report of  
               abusive treatment of a consumer was substantiated, and  
               therefore the person must be registered?  Or is the  
               substantiation doubly required for a "history" of  
               abuse, meaning there was more than one incident  
               reported (creating the history) and if one was  
               substantiated that is enough to get into the registry?  
               Should the language be "a person or provider with a  
               history of substantiated reports of abuse" or "a  
               person or provider against whom one or more reports of  
               abuse have been substantiated"?

               SHOULD THIS BE CLARIFIED?

            b.    Due process:  appeal prior to being added to  
              registry, petition for removal from registry

                Unlike the CACI, this bill would provide two important  
               elements of due process to ensure that innocent  
               persons are given an opportunity to convince the  
               department that either (1) the report of abusive  
               treatment is not substantiated by evidence, or (2)  
               once in the registry, there exists substantial  
               evidence that could justify being removed from the  
               registry.

               As stated above, the DOJ's administration of the CACI  
               was severely criticized for its lack of process for  
               appeal of inclusion in the index, and a lack of  
               process for removing one's name from the index, even  
               if one were to be absolved by court judgment.  This  
                                                                       




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               last scenario was the subject of years of litigation  
               challenging the CACI.  Staff does not know whether the  
               litigation has been resolved.

               This bill would direct the department-designee to  
               adopt rules and regulations that would allow a person  
               against whom a report of abusive treatment of a  
               developmentally disabled person was made to appeal a  
               finding of "substantiated" as to the complaint, prior  
               to entering the person's name into the registry.

               The idea of providing an appeal process seems  
               incomplete however, because without a timeline for  
               appealing a finding, or a cap on how long an appeal  
               process could delay entry into the registery, an  
               abusive caregiver may be endangering more persons.   
               One alternative is to provide a "pending appeal"  
               category of persons in the registry, and require that  
               the entry be removed from this category within a  
               specified period after the department makes its ruling  
               on the appeal.

               SHOULD THERE BE MORE GUIDANCE PROVIDED TO THE  
               DEPARTMENT ON THE APPEAL PROCESS?  

               SHOULD THERE BE A "PENDING APPEAL" CATEGORY OF ENTRIES  
               TO THE REGISTRY?

               In addition, the bill would, as proposed to be  
               amended, also provide for a petition process for the  
               removal of a person or provider from the registry.   
               The department-designee would establish rules for  
               removal (such as a time period for purging the  
               records, death of the registered person, etc.). 
            c.    Department to consult "program stakeholders"
             
               This bill would require the Secretary of Health and  
               Human Services to file, within 30 days of designating  
               the department pursuant to this bill, a written notice  
               with the Chief Clerk of the Assembly and the Secretary  
               of the Senate specifying which department would be in  
               charge of implementing the provisions of this bill.

               This bill would require the department-designee to  
               consult a host of "program stakeholders" to develop  
                                                                       




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               the protocols required by the bill.  These  
               stakeholders would include, but not be limited to,  
               representatives from regional centers, providers of  
               services to persons with developmental disabilities,  
               state and local law enforcement agencies, district  
               attorneys, the Office of the Attorney General, the  
               state long-term care Ombudsperson, Protection and  
               Advocacy, Inc., the REACH Coalition and other  
               advocates for persons with disabilities, families of  
               persons with developmental disabilities, the State  
               Department of Social Services, the Department of  
               Aging, the Department of Mental Health, the Department  
               of Developmental Services, civil rights organizations,  
               and, as added by author's amendments, child and adult  
               protective service agencies investigating allegations  
               of abuse or neglect.
           
           Support: REScoalition; Protection and Advocacy, Inc.;  
                 Developmental Disabilities Area Board 10; California  
                 Association of Psychiatric Technicians; California  
                 Association of Health Facilities; Crime Victims  
                 United of California

          Opposition: None Known

                                     HISTORY
           
          Source: Registry to End Abusive Caregiver Hiring (REACH)  
          Project

          Related Pending Legislation: None Known

          Prior Legislation: None Known

          Prior Vote: Assembly Human Services Committee (Ayes 6, Noes  
          0)
                    Assembly Appropriations Committee (Ayes 12, Noes  
          5)
                    Assembly Floor (Ayes 74, Noes 1)
                    Senate Human Services Committee (Ayes 5, Noes 0)
          
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