BILL ANALYSIS                                                                                                                                                                                                    






                                 SENATE HEALTH
                               COMMITTEE ANALYSIS
                        Senator Elaine K. Alquist, Chair


          BILL NO:       SB 1051                                      
          S
          AUTHOR:        Huff                                         
          B
          AMENDED:       March 22, 2010                              
          HEARING DATE:  April 21, 2010                               
          1
          CONSULTANT:                                                 
          0
          Orr/                                                        
          5              1                                           
                                     SUBJECT

             Emergency medical assistance: administration of diastat.  
                                         
                                     SUMMARY  

          This bill would allow non-medical school personnel who  
          undergo voluntary training to administer diastat to a pupil  
          suffering an epileptic seizure.

                             CHANGES TO EXISTING LAW
                                         
          Existing federal law:
          The Americans with Disabilities Act of 1990 prohibits  
          discrimination on the basis of disability by employers,  
          public accommodations, state and local governments, public  
          and private transportation, and in telecommunications.

          The Individuals with Disabilities Education Act (IDEA)  
          governs Individualized Educational Programs (IEPs) and the  
          special education process. IDEA guarantees children with  
          disabilities a "free appropriate public education" (FAPE)  
          in the least restrictive environment (LRE).

          Section 504 of the Rehabilitation Act of 1973 provides  
          federal financial assistance to state and local education  
          agencies to guarantee special education and related  
          services to eligible children with disabilities. Requires  
          school districts to provide FAPE to each qualified person  
          with a disability who is in the school district's  
                                                         Continued---



          STAFF ANALYSIS OF SENATE BILL  1051 (Huff) Page 2


          

          jurisdiction, regardless of the nature or severity of the  
          person's disability, which
          includes reasonable accommodations required for the  
          management of chronic
          medical conditions. 

          Existing state law:
          Requires the governing board of any school district to give  
          diligent care to the health and physical development of  
          pupils, which may include employing properly certified  
          persons for the work.  

          Provides that each pupil who is required to take, during  
          the regular school day, medication prescribed for him or  
          her by a physician, may be assisted by the school nurse or  
          other designated school personnel if the school district  
          receives a written statement from the physician detailing  
          the method, amount, and time schedules by which the  
          medication is to be taken, and a written statement from the  
          parent or guardian of the pupil indicating the desire that  
          the school district assist the pupil in the matters set  
          forth in the physician's statement.


          Provides that notwithstanding any provision of any law, no  
          school district, officer of any school district, school  
          principal, physician, or hospital treating any child  
          enrolled in any school in any district shall be held liable  
          for the reasonable treatment of a child without the consent  
          of a parent or guardian, when the child is ill or injured  
          during regular school hours, requires reasonable medical  
          treatment, and the parent or guardian cannot be reached,  
          unless the parent or guardian has previously filed with the  
          school district a written objection to any medical  
          treatment other than first aid.


          Provides that a school district or county office of  
          education may provide emergency epinephrine auto-injectors  
          to trained personnel, and trained personnel may utilize  
          those epinephrine auto-injectors to provide emergency  
          medical aid to persons suffering from an anaphylactic  
          reaction. 


          Authorizes a school district to provide voluntary emergency  




          STAFF ANALYSIS OF SENATE BILL  1051 (Huff) Page 3


          

          medical training to school personnel, as defined, to  
          administer emergency medical assistance to pupils with  
          diabetes suffering from severe hypoglycemia, subject to  
          specified conditions, in the absence of a credentialed  
          school nurse or other licensed nurse.

          
          Sets forth the scope of practice for nursing through the  
          Nursing Practice Act, which includes the administration of  
          medication, and prohibits any person from engaging in the  
          practice of nursing without a license.
          
          This bill:
          Authorizes a school district to provide school employees  
          with voluntary emergency  medical training to provide  
          emergency medical assistance to pupils with epilepsy  
          suffering from seizures, in the absence of a credentialed  
          nurse onsite.

          Provides that a school employee who does not volunteer, or  
          who has not been trained to provide emergency medical  
          assistance, shall not be required to provide such  
          assistance. 

          Encourages the Epilepsy Foundation of America to develop  
          performance standards, including specified information and  
          in cooperation with several other entities, for the  
          training and supervision of school employees in providing  
          emergency medical assistance to pupils with epilepsy  
          suffering from seizures. Requires the Department of Public  
          Health to approve the standards and make them available  
          upon request. 

          Establishes that training by a physician, surgeon, or nurse  
          shall be deemed adequate for the purpose of the bill. 

          Requires school employees to notify the district nurse if  
          diastat is administered.

          Provides that parents or guardians must supply all  
          materials necessary to administer diastat. 

          Provides that trained school employees who administer  
          diastat shall be immune from civil liability for injuries  
          resulting from acts or omissions on the administration of  
          diastat.




          STAFF ANALYSIS OF SENATE BILL  1051 (Huff) Page 4


          


          Makes findings and declarations about the right to a free  
          appropriate public education and compliance with the  
          Individuals with Disabilities Education Act.

          Declares legislative intent to authorize nurses to train  
          and supervise employees of school districts and county  
          offices of education to administer diastat to children with  
          epilepsy in the public schools. 

                                  FISCAL IMPACT  

          This bill has not been analyzed by a fiscal committee.

                            BACKGROUND AND DISCUSSION  

          The author contends that some children with epilepsy are  
          susceptible to prolonged seizures and require access to a  
          life-saving emergency medication. Diastat Acudial, a  
          pre-dosed preparation of diazepam gel, is the standard  
          out-of-hospital treatment for prolonged seizures. Diastat  
          is an FDA-approved emergency treatment specifically  
          designed to be administered by people without medical  
          training. According to the author, it was common for  
          California schools to have registered nurses, or where  
          unavailable, trained non-medical personnel (teachers,  
          aides, office staff) to administer doctor-prescribed  
          Diastat in an emergency situation to a student when  
          suffering a severe, possibly life-threatening seizure. 

          The author contends that as a result of an advisory by the  
          Board of Registered Nursing, school nurses are not  
          presently authorized to train or supervise unlicensed  
          personnel in the administration of diastat or other  
          medications. The advisory also claimed there was no  
          provision in the Nursing Practice Act for unlicensed school  
          personnel to administer diastat.  As a result of this  
          advisory, the author claims nurses are refusing to train  
          school personnel, and schools are reluctant to have staff,  
          even those already trained, administer diastat.

          Epilepsy background and statistics
          Epilepsy is a neurological condition, affecting the nervous  
          system. Epilepsy is also known as a seizure disorder,  
          because it  results from the generation of electrical  
          signals inside the brain, causing recurring seizures. A  




          STAFF ANALYSIS OF SENATE BILL  1051 (Huff) Page 5


          

          seizure is a sudden surge of electrical activity in the  
          brain that usually affects how a person feels or acts for a  
          short time. Seizure symptoms vary, and individuals with  
          seizures can experience temporary confusion, staring spells  
          uncontrollable jerking movements of the arms and legs, or a  
          complete loss of consciousness. Sometimes individuals will  
          have early warning signs before a seizure occurs, for  
          example: changes in vision or smell, numbness, tingling or  
          nausea. Seizures can also come without warning. The type of  
          seizure a person has depends on a variety of things, such  
          as the part of the brain affected and the underlying cause  
          of the seizure. The type of medicine individuals with  
          epilepsy take depends on the type of seizures. The dosage  
          may need to be adjusted from time to time. 

          About 2.7 million Americans have been treated for epilepsy  
          in the past 5 years, or approximately 8 or 9 out of every  
          1,000 people. Death or permanent brain damage from seizures  
          is rare. However, seizures that last for a long time or two  
          or more seizures that occur close together (status  
          epilepticus) may cause permanent harm. Status epilepticus  
          (SE) is a life-threatening condition in which the brain is  
          in a state of persistent seizure. It is usually defined as  
          30 minutes of uninterrupted seizure activity, but there is  
          some evidence that 5 minutes is sufficient to damage  
          neurons and that seizures are unlikely to self-terminate by  
          that time. It is always considered a medical emergency.  
          First aid guidelines for seizures state that an ambulance  
          should be called for seizures lasting longer than five  
          minutes. The mortality rate of status epilepticus is high  
          (at least 20%), especially if treatment is not intiated  
          quickly. Status epilepticus is most common in the very  
          young and the very old, with the lowest incidence at ages  
          15-40. 
          
          Diastat
          Diastat AcuDial (diastat) is a gel formulation of Diazepam  
          (valium) that is administered rectally. Diazepam is used to  
          treat a wide range of conditions and has been one of the  
          most frequently prescribed medications in the world for the  
          past 40 years. It is sometimes prescribed for people who  
          have experienced acute repetitve seizures, or "cluster"  
          seizures, which are intermittent periods of unusually  
          increased seizure activity. It is the only FDA-approved,  
          at-home medication for the treatment of cluster seizures.  
          In addition to seizures, Diazepam is commonly used for  




          STAFF ANALYSIS OF SENATE BILL  1051 (Huff) Page 6


          

          treating anxiety, insomnia, muscle spasms, restless legs  
          syndrome, obsessive compulsive disorder, alcohol  
          withdrawal, and other conditions. Dosages should be  
          determined on an individual basis, depending upon the  
          condition to be treated, the severity of symptoms, the body  
          weight of the patient, and any comorbid conditions the  
          patient may have.  

          The manufacturer of diastat claims that it was specifically  
          developed to be administered by people without medical  
          training. Diastat is intended to be kept handy so that if  
          another cluster begins, a caregiver can attempt to stop it  
          by administering the drug relatively quickly. The rectal  
          delivery system includes a plastic applicator with a  
          flexible, molded tip and is provided in fixed unit-doses of  
          5, 10, 15 and 20 mg. It is recommended that diastat be used  
          to treat no more than five episodes per month and no more  
          than one episode every five days.  Common side-effects  
          include drowsiness, impaired motor function (i.e.  
          coordination, balance, etc.), impaired learning and nausea,  
          among others.


          Health care needs in schools
          In regular classrooms throughout California, there are  
          numerous children with special medical needs, including  
          gastronomy feeding tubes, oxygen administration, tracheal  
          suctioning and monitoring for seizures. According to the  
          California Teacher's Association, 1 in every 300-600  
          children, or approximately 15,000 school-age children in  
          California is diagnosed with diabetes. An estimated 13.7  
          percent to 16.3 percent of California children between 6  
          and 17 years of age have been diagnosed with asthma,  
          representing approximately one million children.  In 2001,  
          nearly 136,000 California adolescents with asthma missed  
          one or more days of school per month. During the 2002-2003  
          school year, there were 6,244,403 children in the public  
          schools and 2,466 school nurses, a ratio of one  
          credentialed school nurse to every 2,532 students.

          Nursing Practice Act
          The practice of nursing, as defined in statute, includes  
          but is not limited to those functions, including basic  
          health care, that help people cope with difficulties in  
          daily living that are associated with their health or  
          illness problems or the treatment thereof. This may include  




          STAFF ANALYSIS OF SENATE BILL  1051 (Huff) Page 7


          

          direct and indirect patient care services that ensure the  
          safety, comfort, personal hygiene, and protection of  
          patients. These functions may require a substantial amount  
          of scientific knowledge or technical skill, and can include  
          observation of signs and symptoms of illness and/or  
          reactions to treatment, and based on observed  
          abnormalities, can also include implementation of  
          appropriate reporting, referral, or changes in treatment  
          regimen in accordance with standardized procedures, or the  
          initiation of emergency procedures. These functions also  
          include, but are not limited to, the administration of  
          medications and therapeutic agents necessary to implement a  
          treatment, disease prevention, or rehabilitative regimen  
          ordered by a physician, dentist, podiatrist, or clinical  
          psychologist. The Legislature recognizes that the practice  
          of nursing is a dynamic field and is continually evolving  
          to include more sophisticated patient care activities. 

          Federal laws and 504 plans
          Two federal anti-discrimination statutes, Section 504 of  
          the Rehabilitation Act of 1973 (Section 504) and Title II  
          of the Americans with Disabilities Act of 1990 (ADA),  
          together establish rights for eligible students in  
          California's public schools. They serve to protect students  
          from discrimination based upon their disability. The two  
          statutory schemes are often treated synonymously.  In  
          general, a student will be determined to have a disability  
          under Section 504 if he/she has a mental or physical  
          impairment that substantially limits one or more major life  
          activities, such as eating, breathing, caring for oneself,  
          performing manual tasks, hearing, speaking, walking, and  
          learning. 

          The U.S. Department of Education (ED) enforces Section 504  
          in programs and activities that receive funds from ED.  
          Recipients of these funds include public school districts,  
          institutions of higher education, and other state and local  
          education agencies. 

          The Act stipulates that all qualified persons with  
          disabilities within the jurisdiction of a school district  
          are entitled to a free appropriate public education (FAPE).  
          An appropriate education may comprise education in regular  
          classes, education in regular classes with the use of  
          related aids and services, or special education and related  
          services in separate classrooms for all or portions of the  




          STAFF ANALYSIS OF SENATE BILL  1051 (Huff) Page 8


          

          school day. Special education may include specially  
          designed instruction in classrooms, at home, or in private  
          or public institutions, and may be accompanied by related  
          services such as speech therapy, occupational and physical  
          therapy, psychological counseling, and medical diagnostic  
          services necessary to the child's education.

          Once a local education agency (LEA) determines that a  
          student is entitled to Section 504 protections, services  
          and accommodations are determined through the Section 504  
          planning process, and documented in a Section 504 plan. To  
          be appropriate, education programs for students with  
          disabilities must be designed to meet their individual  
          needs to the same extent that the needs of nondisabled  
          students are met.  Students with disabilities may not be  
          excluded from participating in nonacademic services and  
          extracurricular activities on the basis of disability.  
          Public elementary and secondary schools must employ  
          procedural safeguards regarding the identification,  
          evaluation, or educational placement of persons who,  
          because of disability, need or, are believed to need,  
          special instruction or related services. 

          Students who qualify for services under the Individuals  
          with Disabilities in Education Act, also known as IDEA,  
          will have an Individualized Education Program (IEP) instead  
          of a Section 504 plan.  IEPs are required for students  
          participating in the special education programs of  
          recipients of funding under the IDEA. Typically, an IEP is  
          more specific than a 504 Plan with regard to the student's  
          academic needs. Unlike IDEA, Section 504 requires only  
          notice, not consent, for evaluation.  Districts are not  
          required to obtain parental consent for a 504 plan, but it  
          is recommended. 


          Related legal issues with diabetes care in schools


          The requirement to provide FAPE under Section 504 has been  
          applied in the context of the administration of medication  
          in general and diabetes-based related services in  
          particular. In finding that a plaintiff in Fraser v.  
          Goodale, (9th Cir. 2003) had presented evidence that she  
          was substantially limited in eating, the Ninth Circuit  
          Court of Appeals determined that diabetes is a "physical  




          STAFF ANALYSIS OF SENATE BILL  1051 (Huff) Page 9


          

          impairment" and noted that the plaintiff was required to be  
          vigilant about testing blood glucose levels and adjusting  
          food intake, insulin and physical activity accordingly. To  
          avoid fluctuations in blood glucose levels, students with  
          diabetes must also be vigilant about exercise and  
          administration of medication. Fluctuations in blood glucose  
          levels in students with diabetes can impact concentration  
          and comprehension, as well as have significant and  
          potentially life-threatening short- and long-term health  
          implications. The Office for Civil Rights of the United  
          States Department of Education (OCR) has found students  
          with diabetes to be "disabled" under Section 504. A student  
          with diabetes is considered disabled under Section 504 when  
          close monitoring of diet, behavior, and activities is  
          necessary at all times in order for to be able to attend  
          school. 
          In 2005, the American Diabetes Association sued the State  
          of California (K.C., et al. vs. Jack O'Connell, et al)  
          asking the court to compel public school officials to  
          comply with federal law by providing the assistance that  
          California students with diabetes require to manage their  
          diabetes during the school day. The California Department  
          of Education (CDE) entered into a settlement with them and,  
          as a part of the settlement, CDE issued a Legal Advisory  
          that declared unlicensed but adequately trained school  
          employees may administer insulin under the treating  
          physician's orders and in accordance with the student's  
          Section 504 Plan or IEP, in the absence of available  
          licensed health care professionals. Several nursing groups  
          sued to overturn this portion of the Legal Advisory  
          (American Nurses Assoc. v. Jack O'Connell), and in November  
          2008 a trial court judge ruled in their favor. Following  
          the court ruling, ADA and CDE filed an appeal of the court  
          ruling, and in April 2009, a California Court of Appeals  
          ruled that the lower court's ruling is "stayed" during the  
          appeal. While this is not a decision on the merits of the  
          case, it does mean that the lower court's ruling has no  
          effect until the appeal is decided, therefore, the CDE may  
          continue to advise districts that non-medical school  
          personnel are authorized to administer insulin (based on  
          the K.C., et al settlement) while the Nursing Practices Act  
          continues to prohibit the same (nothing in statute  
          specifically allows anyone other than licensed nurses to  
          administer insulin). 

          According to the Legal Advisory, only the following seven  




          STAFF ANALYSIS OF SENATE BILL  1051 (Huff) Page 10


          

          categories of persons are expressly authorized under state  
          law to administer insulin in schools: 
          1) The student, with authorization of the student's  
          licensed health care provider and parent/guardian. 
          2) A school nurse or school physician employed by the LEA.   

          3) An appropriately licensed school employee such as a  
          registered nurse or licensed vocational nurse, supervised  
          by a school physician, school nurse, or other appropriate  
          person. 
          4) A contracted registered nurse or licensed vocational  
          nurse from a private agency or registry, or by contract  
          with a public health nurse through the county health  
          department.
          5) A parent/guardian who chooses to administer the insulin.  

          6) A designee of the parent guardian who volunteers to  
          administer the insulin and who is not a school employee. 
          7) An unlicensed voluntary school employee with appropriate  
          training, in emergencies.  An LEA may train a voluntary  
          school district employee to administer insulin to a student  
          with diabetes during school and school-related activities  
          if his or her IEP or Section 504 Plan so requires and if no  
          person expressly authorized by categories 1-7 is available.  


          According to CDE, financial burden or other difficulty to a  
          local education agency is not a valid defense for not  
          providing school health services required under a child's  
          IEP or Section 504 Plan. If no school nurse is available,  
          the district must use reasonable efforts to contract with a  
          registered nurse or licensed vocational nurse from a  
          private agency or registry, or to contract with a public  
          health nurse through the county health department.  If an  
          LEA has determined that a nurse is not available, then it  
          must train a voluntary school employee to provide such  
          services.  School placement decisions may not be based upon  
          the unwillingness of a district to provide needed related  
          services to a child with "other health impaired" (OHI)  
          diabetes disability at the school that the child would  
          otherwise attend. A district may not require the parent to  
          waive any rights, hold the district harmless, or agree to  
          any particular placement or related services as a condition  
          of administering medication or assisting a student in the  
                                                                  administration of medication at school.
          




          STAFF ANALYSIS OF SENATE BILL  1051 (Huff) Page 11


          

          Exceptions to the Nursing Practice Act
          Existing law provides that any pupil who is required to  
          take medication prescribed for him or her by a physician  
          and surgeon during the regular schoolday may be assisted by  
          the school nurse or other designated school personnel. In  
          order for a pupil to be assisted by a school nurse or other  
          designated school personnel, the school district must  
          obtain both a written statement from the physician  
          detailing the name of the medication, method, dosage, and  
          time schedules by which the medication is to be taken, and  
          a written statement from the parent or guardian indicating  
          the desire that the school district assist the pupil in the  
          matters set forth in the physician's statement. Existing  
          regulations of CDE specify procedures to be followed in the  
          administration of medication to a pupil.

          Existing law allows pupils to carry and self-administer  
          prescription auto-injectable epinephrine to be used in case  
          of life-threatening allergic reactions, and/or inhaled  
          asthma medication if the school district receives the  
          appropriate written statements from the physician and the  
          parent or guardian of the pupil. 


          Any public and private elementary and secondary school in  
          the state may voluntarily determine whether or not to make  
          emergency epinephrine auto-injectors and trained personnel  
          available at its school. In making this determination, a  
          school must evaluate the emergency medical response time to  
          the school and determine whether initiating emergency  
          medical services is an acceptable alternative to  
          epinephrine auto-injectors and trained personnel. 

          In the absence of a credentialed school nurse or other  
          licensed nurse onsite at the school, existing law allows  
          each school district to provide school personnel with  
          voluntary emergency medical training to provide emergency  
          medical assistance to pupils with diabetes suffering from  
          severe hypoglycemia. Volunteer personnel must provide this  
          emergency care in accordance with specified standards and  
          the performance instructions set forth by the licensed  
          health care provider of the pupil. A school employee who  
          does not volunteer or who has not been trained may not be  
          required to provide emergency medical assistance.
          
          Related bills




          STAFF ANALYSIS OF SENATE BILL  1051 (Huff) Page 12


          

          SB 1200 (Leno) of 2010 would require the Department of  
          Managed Health Care and the Insurance Commissioner to  
          develop regulations to ensure timeliness of care for school  
          age children who must receive medically necessary services  
          during school hours. Pending in the Senate Health  
          Committee. 

          AB 1802 (Hall) of 2010 would authorize a parent or guardian  
          of a pupil with diabetes
          to designate one or more school employees as  
          parent-designated school employees for the purpose of  
          administering insulin to the pupil as necessary during the  
          regular school day when a credentialed school nurse or  
          other health care professional is not immediately available  
          onsite at the school. Pending in Assembly Business,  
          Professions, and Consumer Protection Committee. 

          AB 2454 (Torlakson) of 2010 would require the governing  
          board of a school district to employ at least one school  
          nurse, registered nurse, or licensed vocational nurse for  
          every 750 pupils on and after July 1, 2020. The bill would  
          require registered nurses and licensed vocational nurses to  
          provide health care services to pupils under the  
          supervision of a school nurse. Pending in Assembly  
          Education Committee.

          Prior legislation
          AB 1430 (Swanson) of 2009 would have required, with certain  
          exceptions, that any medication that is administered to a  
          pupil who is required to take, during the regular school  
          day, medication prescribed for him or her by a physician or  
          surgeon be administered by a health care professional  
          operating within the scope of his or her
          practice. Died in Assembly Business and Professions  
          Committee.

          AB 942 (Leno) Chapter 684, Statutes of 2003, authorized  
          each school district to provide voluntary emergency medical  
          training to school personnel, as defined, to administer  
          emergency medical assistance to pupils with diabetes  
          suffering from severe hypoglycemia, if certain performance  
          standards for training and supervision are developed by the  
          American Diabetes Association in cooperation with several  
          other entities for approval and distribution by the State  
          Department of Health Services' Diabetes Control Program, in  
          the absence of a credentialed school nurse or other  




          STAFF ANALYSIS OF SENATE BILL  1051 (Huff) Page 13


          

          licensed nurse. 

          AB 559 (Wiggins), Chapter 458, Statutes of 2001, authorizes  
          a school district or county office of education to provide  
          emergency epinephrine auto-injectors to trained personnel,  
          and would authorize the trained personnel to utilize those  
          epinephrine auto-injectors to provide emergency medical aid  
          to persons suffering from an anaphylactic reaction.
          
          Arguments in support
          The Orange County Department of Education, which has a  
          large special education program, is sponsoring this bill  
          because they believe legislation is needed to carve out  
          another rare exception to the Nursing Practice Act for the  
          safety of children in schools. They cite the advisory by  
          the Board of Registered Nursing prohibiting school nurses  
          from training or supervising unlicensed personnel to  
          administer diastat. As a result, parents of children with  
          epilepsy are being told they must be available to come to  
          their child's school to administer the drug. According to  
          the sponsor, parents are also being told that the school  
          will call 911 or, in some cases, are transferring the  
          student to a school where a nurse is available, without  
          regard to the educational needs of the student.

          Epilepsy California supports the bill on behalf of the  
          93,000 students with epilepsy currently enrolled in  
          California school districts and categorical programs. The  
          organization claims to have received numerous complaints  
          from parents, teachers, school nurses, and medical  
          providers regarding children being denied access to diastat  
          in the school setting. They believe this bill will preserve  
          the right for children to participate in the education  
          process and prevent some of the documented consequences of  
          prolonged seizures, specifically brain injury and death. 
          
          Arguments in opposition
          Numerous labor groups strongly oppose any legislative  
          effort to change the law to allow unlicensed school  
          personnel to administer diastat to school children.  They  
          cite that with budget cuts to education, school employees  
          are being asked to do more with less, and school employees  
          face legal liability if something goes wrong. The  
          California Labor Federation claims that this bill fails  
          children with epilepsy by allowing schools to enlist  
          personnel with no medical expertise to administer a  




          STAFF ANALYSIS OF SENATE BILL  1051 (Huff) Page 14


          

          potentially dangerous medication, instead of requiring  
          school districts to provide adequate medical care.

          The California School Nurses Organization believes this  
          bill is being used as a means to skirt existing state law  
          in the Nurse Practice Act. Current federal law mandates  
          that school districts provide safe and appropriate care for  
          students with chronic illnesses such as seizures, and they  
          believe that safe and appropriate care includes licensed  
          nursing care. The California State PTA recognizes the  
          importance of treating children experiencing a seizure, but  
          does not believe unlicensed staff will ever have the  
          expertise to properly assess which circumstances warrant  
          the use of diastat. They also believe that it is  
          unreasonable to expect overworked school staff to be  
          responsible for inspecting the medication according to the  
          manufacturers directions. They believe the health of  
          children at schools should be one of the school districts'  
          priorities, and believe licensed nurses are the only  
          alternatives to ensure the safety of children.
          
                                         



                                    COMMENTS

           1.  Amendments in Education Committee. The following  
          summarizes the amendments that were agreed to in the Senate  
          Education Committee that will be taken in the Senate Health  
          Committee: 
                  a.        Allows a parent or guardian of a pupil  
                    with epilepsy who has been prescribed Diastat  
                    AcuDial to request that one or more school  
                    employees be trained to administer the drug when  
                    a nurse is not available. Schools can notify  
                    staff of the request for volunteers  
                    electronically, and no one shall be threatened,  
                    coerced, or intimidated into volunteering. 
                  b.        Requires schools that choose to  
                    participate to develop a school plan. The plan  
                    should include written authorization from the  
                    parent or guardian, a written statement from the  
                    pupil's health care practitioner including  
                    specified information, require parents and  
                    guardians to notify the school when the pupil  




          STAFF ANALYSIS OF SENATE BILL  1051 (Huff) Page 15


          

                    received Diastat within the prior four hours, and  
                    require the school to notify the parent or  
                    guardian when diastat is administered. 
                  c.        Adds techniques and procedures to assure  
                    student privacy to the training developed by the  
                    Epilepsy Foundation. Adds a representative from  
                    an epilepsy volunteer agency to the list of  
                    approved trainers. 
                  d.        Requires schools to retain all records  
                    related to the administration of Diastat. 
                  e.        Adds a five-year sunset.

          2. Schools' plans. The bill should be amended to add a  
          requirement that, wherever possible, as part of the plans  
          they develop, schools should use licensed personnel to  
          administer Diastat. One way to do this would be to require  
          schools, with the assistance of the school district, to  
          identify licensed staff within the district or region who  
          could be available to respond to an emergency need to  
          administer Diastat, and incorporate that information into  
          the plan.  

          3. 504 Plans. It is not clear whether school districts can  
          currently identify the numbers of students within their  
          districts that have special needs, in the absence of 504  
          plans or IEPs. As mentioned above, pupils with identified  
          special needs are currently required to be accommodated  
          under Section 504 of the Rehabilitation Act. It is unclear  
          how many current students with epilepsy use the 504 plans  
          to obtain necessary accommodations for health care during  
          school hours. Supporters of the bill note that the 504  
          planning process can be difficult for parents to  
          understand, navigate, and enforce. However it may be a more  
          appropriate route to address the needs of pupils with  
          epilepsy. A recommended amendment would be to require  
          schools, as part of the plans they develop, to encourage  
          parents or guardians of pupils with epilepsy to develop 504  
          plans. Those subsets of students with more severe cases  
          should be particularly encouraged to develop 504 plans. 

          4. Nursing Practice Act. The Nursing Practice Act does not  
          prohibit nursing services in case of an emergency. As used  
          in the act, "emergency" includes an epidemic or natural  
          disaster, but does not expressly exclude other situations  
          that could be described as emergencies. Also, the  
          interpretation of the Board of Registered Nursing claimed  




          STAFF ANALYSIS OF SENATE BILL  1051 (Huff) Page 16


          

          it is unlawful for a nurse to train or supervise unlicensed  
          personnel in the administration of medication. It is not  
          clear if there are similar statutes to prohibit physicians  
          or other qualified non-nurse medical providers to provide  
          the training. 

          5. Ensuring proper dosage of diastat. The bill currently  
          requires parents or guardians to provide all materials  
          necessary to administer diastat. This should be further  
          clarified to ensure that the school is given the proper  
          dosage requirement for each child, and is given copies of  
          the manufacturer's inserts. 

                                    POSITIONS  

          Support: Orange County Office of Education (sponsor)
                 Association of California Neurologists
                 California Chronic Care Coalition (CCCC)
                 California NeuroAlliance
                 Comprehensive Epilepsy Program, UCLA
                 Comprehensive Epilepsy Program, USC
                 Disability Rights California
                 Disability Rights Education and Defense Fund
                 El Dorado County Superintendent of Schools
                 Epilepsy California
                 Epilepsy Center
                 Epilepsy Center of Excellence, VA Greater Los  
          Angeles Healthcare System
                 Epilepsy Foundation
                 Epilepsy Foundation of Greater Los Angeles
                 Epilepsy Foundation Northern California
                 Health Officers Association of California
                 Humboldt County Office of Education
                 Pediatric Epilepsy Program, UCLA
                 Pediatric Neurology Division, UCLA
                 Riverside Unified School District
                 Saddleback Valley Unified School District
                 San Bernardino County District Advocates for Better  
          Schools (SANDABS)
                 Small School Districts' Association
                 Sonoma County Office of Education
                 Over 500 hundred individuals
          
          Oppose:  American Nurses Association\California
                   Consumer Attorneys of California
                   California Federation of Teachers




          STAFF ANALYSIS OF SENATE BILL  1051 (Huff) Page 17


          

                          California Labor Federation
                   California School Employees Association
                   California School Nurses Organization 
                          California State PTA
                 California Teachers Association
                 Service Employees International Union- Nurses  
          Alliance of California
                 United Nurses Associations of California/Union of  
          Health Care Professionals   
                     (UNAC/UHCP) 
                 Several individuals
                                   -- END --