BILL ANALYSIS Ó AB 861 Page 1 Date of Hearing: April 6, 2011 ASSEMBLY COMMITTEE ON APPROPRIATIONS Felipe Fuentes, Chair AB 861 (Hill and Nestande) - As Introduced: February 17, 2011 Policy Committee: HealthVote:16-0 Urgency: No State Mandated Local Program: No Reimbursable: No SUMMARY This bill establishes the California Stroke Registry within the Department of Public Health (DPH) to serve as a centralized repository for stroke data to promote quality improvement for acute stroke treatment. It also states that the program will only be implemented to the extent funds from federal or private sources are made available for this purpose. Specifically, this bill: 1) Requires DPH to create the registry, and specifies operating details including: where the program is housed, which national organizations must inform the effort, and that DPH may contract out the registry function. 2) Assigns responsibility to the director of DPH to carry out various activities related to maintenance of the registry, outreach, communication with stakeholders, and improvement in the quality of stroke care. 3) Provides for access to stroke registry data for scientific and epidemiological purposes, and specifies how confidential data is to be protected. 4) Prohibits the provisions of the bill from being construed as a medical practice guideline, and specifies that it does not preempt the authority of facilities to maintain their own stroke registries. FISCAL EFFECT One-time start-up costs, likely in the range of $200,000 to $400,000, and ongoing costs of around $800,000 annually to fund AB 861 Page 2 stroke registry operations. Although a federal grant program exists to fund state stroke registries, only six states have received funding through this program. If federal or private funds are not identified, the establishment in statute of an unfunded program would result in cost pressure to the General Fund. COMMENTS 1)Rationale. According to the author, a voluntary stroke registry was established at DPH in 2007 and approximately 42 hospitals across the state have participated. The author maintains that codifying the voluntary registry will likely lead to a much greater rate of participation and that increasing the amount of information that can be collected on strokes, the types of treatment victims receive, and the impacts of those treatments will provide medical professionals with a roadmap to improved care. Additionally, the author maintains that establishment of a stroke registry in statute will improve the potential for California to receive and accept federal grants through the Center for Disease Control (CDC). According to the author, a new round of CDC funding is forthcoming but absent a stroke registry in statute, California will be ineligible to receive those federal funds. 2)Stroke is a Significant Population Health Problem, But Stroke Care Needs Improvement . According to the CDC, a stroke, or "brain attack," occurs when the blood supply to part of the brain is blocked or when a blood vessel in the brain bursts. In either case, parts of the brain become damaged or die when blood circulation to brain cells fails. A significant percentage of stroke victims are permanently disabled by the stroke incident. DPH reports that approximately 20,000 Californians die of stroke annually, and stroke accounts for approximately 200,000 hospital discharges per year. CDC notes that while evidence-based medical guidelines for stroke care have been developed, as well as new and improved diagnostic and treatment tools, many hospitals still do not have the organization, staff, and equipment to effectively diagnose and treat acute stroke patients. 3)Paul Coverdell National Acute Stroke Registry . In 2001, Congress charged CDC with implementing state-based registries to track acute stroke care and to use data from the registries to improve the quality of care. The purpose of a stroke AB 861 Page 3 registry is to develop and implement systems for collecting data on acute stroke care provided to patients, analyze the collected data, and use the results of those analyses to guide quality improvement interventions at the hospital level through partnerships with hospitals, doctors, stroke-care teams, and administrators. In 2001 and 2002, CDC funded prototype projects in several states, including California. These projects showed that large gaps existed between generally recommended guidelines for treating stroke patients and actual hospital practices. In 2004, four states were awarded funds to implement and operate stroke registries, and in 2007, six states received funding for this purpose. Analysis Prepared by : Lisa Murawski / APPR. / (916) 319-2081