BILL NUMBER: AB 2034	AMENDED
	BILL TEXT

	AMENDED IN ASSEMBLY  MAY 25, 2012
	AMENDED IN ASSEMBLY  MARCH 29, 2012
	AMENDED IN ASSEMBLY  MARCH 14, 2012

INTRODUCED BY   Assembly Member Fuentes
   (Principal coauthor: Assembly Member Bonilla)

                        FEBRUARY 23, 2012

   An act to add Section 125191.5 to the Health and Safety Code,
relating to health services.


	LEGISLATIVE COUNSEL'S DIGEST


   AB 2034, as amended, Fuentes. Medical care: genetically
handicapping conditions.
   Existing law, the Holden-Moscone-Garamendi Genetically Handicapped
Person's Program (GHPP), requires the Director of Health Care
Services to establish and administer a program for the medical care
of persons with specified genetically handicapping conditions and for
persons with specified hereditary metabolic disorders.
   Existing law, the federal Patient Protection and Affordable Care
Act (PPACA), among other provisions, reformed certain aspects of the
private health insurance industry and public health insurance
programs.
   This bill would require the State Department of Health Care
Services, in consultation with designated entities, to develop a plan
for the administration of the GHPP after the implementation of the
PPACA. This bill would require the plan to address, among other
things, preservation of the availability of wrap-around services that
would otherwise not be available through the PPACA and the addition
of genetic amyotrophic lateral sclerosis to the list of conditions
covered under the GHPP.  This bill would require the department
to submit the plan to the relevant fiscal and policy committees of
the Legislature by July 1, 2013. 
   Vote: majority. Appropriation: no. Fiscal committee: yes.
State-mandated local program: no.


THE PEOPLE OF THE STATE OF CALIFORNIA DO ENACT AS FOLLOWS:

  SECTION 1.  Section 125191.5 is added to the Health and Safety
Code, to read:
   125191.5.  (a) The department, in consultation with the California
Health Benefit Exchange and the Advisory Committee on Genetically
Handicapped Person's Program, shall develop a plan for  the
continued operation of  the Genetically Handicapped Person's
Program after implementation of the federal Patient Protection and
Affordable Care Act  (Public Law 111-148)  . The plan shall
address all of the following:
   (1)  Preserving the availability of wrap-around 
 Wrap-around    services that will not 
otherwise  be available  , in the absence of the
Genetically Handicapped Person's Program,  after implementation
of the federal Patient Protection and Affordable Care Act 
(Public Law 111-148)  .
   (2) Continued coverage for any residual services and populations.
   (3) Adding genetic amyotrophic lateral sclerosis (ALS) to the
Genetically Handicapped Person's Program list of conditions, as
described in Section 125130. The care   Care
 and treatment  provided  for genetic ALS under the
Genetically Handicapped Person's Program  , pursuant to the
addition of genetic ALS to the Genetically Handicapped Person's
Program list of conditions,  shall be consistent with the
principles described in Section 104323.
   (b) As an alternative to consulting with the Advisory Committee on
Genetically Handicapped Person's Program, in developing the plan
described in subdivision (a), the department may consult with
stakeholders, representatives of Genetically Handicapped Person's
Program providers, persons with genetically handicapped conditions,
special care centers, genetic disease medical experts, and other
interested persons. 
   (c) The plan described in subdivision (a) shall be submitted to
the relevant fiscal and policy committees of the Legislature by July
1, 2013.