BILL NUMBER: AB 2034	AMENDED
	BILL TEXT

	AMENDED IN SENATE  JUNE 15, 2012
	AMENDED IN ASSEMBLY  MAY 25, 2012
	AMENDED IN ASSEMBLY  MARCH 29, 2012
	AMENDED IN ASSEMBLY  MARCH 14, 2012

INTRODUCED BY   Assembly Member Fuentes
   (Principal coauthor: Assembly Member Bonilla)

                        FEBRUARY 23, 2012

   An act to add Section 125191.5 to the Health and Safety Code,
relating to health services.


	LEGISLATIVE COUNSEL'S DIGEST


   AB 2034, as amended, Fuentes. Medical care: genetically
handicapping conditions.
   Existing law, the Holden-Moscone-Garamendi Genetically Handicapped
 Person's   Persons  Program (GHPP),
requires the Director of Health Care Services to establish and
administer a program for the medical care of persons with specified
genetically handicapping conditions and for persons with specified
hereditary metabolic disorders.
   Existing law, the federal Patient Protection and Affordable Care
Act (PPACA), among other provisions, reformed certain aspects of the
private health insurance industry and public health insurance
programs.
   This bill would require the State Department of Health Care
Services  , in consultation with designated entities,
 to develop a plan for the administration of the GHPP after
the implementation of the PPACA. This bill would require the plan to
address, among other things, preservation of the availability of
wrap-around services that would otherwise not be available through
the PPACA and the addition of genetic amyotrophic lateral sclerosis
to the list of conditions covered under the GHPP  or any
subsequent care model developed after implementation of the PPACA
 . This bill would require the department to submit the plan to
the relevant fiscal and policy committees of the Legislature by July
1, 2013.
   Vote: majority. Appropriation: no. Fiscal committee: yes.
State-mandated local program: no.


THE PEOPLE OF THE STATE OF CALIFORNIA DO ENACT AS FOLLOWS:

  SECTION 1.  Section 125191.5 is added to the Health and Safety
Code, to read:
   125191.5.  (a) The department, in consultation with the California
Health Benefit Exchange  and the Advisory Committee on
Genetically Handicapped Person's Program  , shall develop a
plan for the Genetically Handicapped  Person's  
Persons  Program after implementation of the federal Patient
Protection and Affordable Care Act (Public Law 111-148). The plan
shall address all of the following:
   (1) Wrap-around services that will not be available, in the
absence of the Genetically Handicapped  Person's 
 Persons  Program, after implementation of the federal
Patient Protection and Affordable Care Act.
   (2) Continued coverage for any residual services and populations.
   (3) Adding genetic amyotrophic lateral sclerosis (ALS) to the
Genetically Handicapped  Person's   Persons
 Program list of conditions, as described in Section 125130 
or any subsequent care model developed after implementation of the
federal Patient Protection and Affordable Care Act  . Care and
treatment provided for genetic ALS under the Genetically Handicapped
 Person's   Persons  Program, pursuant to
the addition of genetic ALS to the Genetically Handicapped 
Person's   Persons  Program list of conditions,
shall be consistent with the principles described in Section 104323.
   (b)  As an alternative to consulting with the Advisory
Committee on Genetically Handicapped Person's Program, in 
 In    developing the plan described in subdivision
(a), the department may consult with stakeholders, representatives
of Genetically Handicapped  Person's   Persons
 Program providers, persons with genetically handicapped
conditions, special care centers, genetic disease medical experts,
and other interested persons.
   (c) The  department shall submit the  plan described in
subdivision (a)  shall be submitted  to the relevant
fiscal and policy committees of the Legislature by July 1, 2013.