BILL ANALYSIS                                                                                                                                                                                                    �



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          Date of Hearing:  July 5, 2011

                            ASSEMBLY COMMITTEE ON HEALTH
                              William W. Monning, Chair
                    SB 173 (Simitian) - As Amended:  May 31, 2011

           SENATE VOTE :  34-5
           
          SUBJECT  :  Healing arts: mammograms.

           SUMMARY  :  Requires health practitioners who perform 
          mammographies to provide a specified notice to patients who have 
          dense breast tissue.  Specifically,  this bill  :    

          1)Requires a health care practitioner who performs a mammography 
            examination pursuant to requirements for coverage under health 
            care service plans (health plans) and individual or group 
            disability insurance or self-insured employee welfare benefit 
            plans to include a specified notice in the summary of the 
            written report sent to the patient, if the patient has 
            heterogeneously dense breasts or extremely dense breasts based 
            on the Breast Imaging Reporting and Data System (BI-RADS) 
            established by the American College of Radiology (ACR).

          2)Specifies that the notice required in 1) above must state, 
            "Because your mammogram demonstrates that you have dense 
            breast tissue, which could hide small abnormalities, you might 
            benefit from supplementary screening tests, depending on your 
            individual risk factors.  A report of your mammography 
            results, which contains information about your breast density, 
            has been sent to your physician's office and you should 
            contact your physician if you have any questions or concerns 
            about this report." 

           EXISTING LAW  :  

          1)Under federal regulations implementing the Mammography Quality 
            Standards Act, requires each facility that performs a 
            mammography to send a report to the referring physician that 
            includes specified information.  A letter must also be sent to 
            the patient informing her of the results of the mammogram.

          2)Requires health plans, individual or group disability 
            insurance policies, and self-insured employee welfare benefit 
            plans to provide coverage for mammograms, upon the referral of 








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            a physician, nurse practitioner, or certified nurse-midwife, 
            for breast cancer screening and diagnostic purposes.

          3)Requires individual or group disability insurance policies and 
            self-insured employee welfare benefit plans, upon referral, to 
            provide: a baseline mammogram for women ages 35 through 39, 
            inclusive; a mammogram for women ages 40 through 49, 
            inclusive, every two years or more, based on a physician's 
            recommendation; and, a mammogram every year for women age 50 
            and over.

          4)Licenses and regulates physicians and surgeons under the 
            Medical Board of California.

           FISCAL EFFECT  :  According to the Senate Appropriations 
          Committee, this bill will result in costs to the General Fund 
          and federal funds in the low hundreds of thousands to millions 
          of dollars in fiscal years 2011-12, 2012-13, 2013-14 due to 
          potential increased follow-up screenings for Medi-Cal managed 
          care plan beneficiaries and individuals with health care 
          coverage through the California Public Employees Retirement 
          System.  These are costs to the extent that: 1) a patient is 
          identified to have heterogeneously dense or extremely dense 
          breasts and receives this notice in the summary of the 
          mammography report; 2) that the patient reads the notice; and, 
          3) acts on the notice and schedules additional follow-up 
          appointments with her primary care physician that she otherwise 
          would not have scheduled had she not received the notice.  
          Additionally, the Senate Appropriations Committee states that if 
          the physician orders supplementary testing, such as an 
          ultrasound or breast magnetic resonance imaging test (BMRI), 
          there would be additional utilization of services.  Lastly, the 
          analysis states that if a physician were to order a BMRI, there 
          could be greater risk of false positives, and therefore of 
          invasive diagnostic testing.

           COMMENTS  :  

           1)PURPOSE OF THIS BILL  .  According to the author, the National 
            Cancer Institute (NCI) estimates that one in eight women will 
            develop breast cancer in their lifetime.  The author maintains 
            that women with dense breast tissue are at four to six times 
            greater risk of developing breast cancer compared to women of 
            the same age and health.  The author cites a Mayo Clinic study 
            from January 2011 which reports that because dense breast 








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            tissue is white on a mammogram and cancer is white on a 
            mammogram, 75% of cancer is missed in women with dense breast 
            tissue by mammography alone.  The author maintains while 
            federal law requires that a radiologist performing a mammogram 
            send a letter regarding the results to the patient and a 
            report to the referring physician, only the report to the 
            referring physician must contain information about the 
            patient's breast density.  A national survey, according to the 
            author, found that 95% of women do not know their breast 
            density and that doctors have spoken to less than 9% of 
            patients about breast density.  The author argues that the 
            lack of information provided to the patient regarding breast 
            density leaves the patient with a gap in information that can 
            be misleading for women with dense breast tissue.  This bill, 
            the author asserts, will lead to more women surviving breast 
            cancer by helping to catch cancer early when it is most 
            treatable and curable.  

          2)BREAST CANCER PREVALENCE AND RISK FACTORS  .  According to the 
            California Cancer Registry (CCR), breast cancer is the most 
            common cancer diagnosed in California, with nearly 24,000 new 
            cases and more than 4,200 deaths expected in 2011.  An average 
            newborn girl's chance of eventually being diagnosed with 
            invasive breast cancer in California is approximately 12%, or 
            one in eight.  Nearly 300,000 women are currently living with 
            breast cancer in California.  

           CCR reports that, although breast cancer is the most common 
            cancer found among women in California, when diagnosed early, 
            survival rates are high.  In California, 71% of breast cancer 
            is diagnosed in the early stages.  Among California women, the 
            five-year relative survival rate for breast cancer is 91%; 
            this rate varies with the stage at diagnosis with a 99% 
            five-year relative survival rate for localized breast cancer, 
            85% for regional breast cancer, and 25% for distant breast 
            cancer.  

           A sustained decrease in breast cancer mortality in the United 
            States and California during the last 20 years is attributed, 
            in part, to the increased use of mammography screening during 
            the 1980s, as well as improvements in treatments and reduction 
            of hormone-replacement therapy.  

           Many factors have been associated with an increased risk of 
            breast cancer.  Some of these factors include a family history 








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            of breast or ovarian cancer, a personal history of breast or 
            ovarian cancer, prior benign biopsy, personal history of 
            atypical ductal hyperplasia, radiation exposure, high breast 
            density, hormone therapy use, oral contraceptive use, later 
            age of birth of first child (or no children), early age at 
            menarche, and being overweight or obese in menopausal women. 

          According to the American Congress of Obstetricians and 
            Gynecologists, District IX - California (ACOG), high breast 
            density by itself is not a recognized risk factor that is 
            included in professional guidelines.  According to the 
            California Radiological Society (CRS), there is debate within 
            the scientific community as to the relationship between breast 
            density and breast cancer risk.  CRS states that it seems that 
            women with extremely dense breasts are at some increased risk 
            compared to those with very fatty breasts but most women fall 
            in between these two extremes.   

          3)BREAST DENSITY  .  According to NCI, breast tissue is composed 
            mainly of the connective tissue, ducts of the milk glands and 
            fat cells.  A breast is said to be dense if it consists mostly 
            of connective and ductal tissue rather than fatty tissue.  
            While fat appears black on a mammogram and provides good 
            contrast for cancers which appear white on the mammogram, the 
            connective and ductal tissue also appears white, and therefore 
            can disguise or mimic cancers.  Dense tissue is particularly 
            difficult in that even a small area of density can obscure a 
            small cancer.

          NCI states that a woman's tissue density varies over her 
            lifetime and it is a common condition found in over one-third 
            of women over the age of 40, and over half of those aged 
            40-50.  The underlying causes of breast density are mostly 
            inherited.  Higher breast density is more common in some 
            ethnic groups, including white women.  It is also more common 
            in younger women, beginning when hormones kick in during 
            puberty and continuing through the childbearing years.
           
          4)BREAST CANCER SCREENINGS  .  There are three modalities that are 
            used to screen asymptomatic women for breast cancer:  
            mammography, BMRI, and ultrasound.  A new modality, breast 
            tomosythesis (also referred to as three-dimensional 
            mammography), was recently approved by the U.S. Food and Drug 
            Administration.  









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          In 2009, the United States Preventive Services Task Force 
            (USPSTF), a group of experts that makes recommendations on 
            policies to prevent diseases, issued revised guidelines for 
            mammography recommending biennial mammography screenings 
            beginning at age 50 instead of 40.  Leading cancer 
            organizations, including the American Cancer Society (ACS), 
            the Mayo Clinic, the Susan G. Komen for the Cure, and the 
            National Breast Cancer Foundation, however, did not changing 
            their policies of recommending annual mammography screenings 
            for women when they turn 40 years old.  According to the chief 
            medical officer of ACS, the organization continues to 
            recommend annual screening using mammography and clinical 
            breast examination for all women beginning at age 40.  He 
            further states that ACS experts make this recommendation 
            having reviewed virtually all the same data reviewed by the 
            USPSTF, but also additional data that the USPSTF did not 
            consider.  

           The ACR's BI-RADS is one of the principal methods used for 
            mammography assessment and contains standardized numerical 
            codes assigned by a radiologist after interpreting a 
            mammogram.  The assessment categories were developed for 
            mammography and later adapted for BMRI and ultrasound.  The 
            summary of each category is identical for all three 
            modalities, as follows:  
              a)   0: Incomplete  
              b)   1: Negative  
              c)   2: Benign finding(s) 
              d)   3: Probably benign  
              e)   4: Suspicious abnormality  
              f)   5: Highly suggestive of malignancy  
              g)   6: Known biopsy - proven malignancy  

             Breast composition categories are classified as follows:  
              h)   0: Incomplete  
              i)   1: Almost entirely fat  
              j)   2: Scattered fibroglandular densities  
              aa)  3: Heterogeneously dense  
              bb)  4: Extremely dense  
             
            The subjectivity of density measurement has been the matter of 
            some concern for those in the field for many years.  Research 
            indicates that technology is currently being developed for a 
            measurement tool of breast density that is more qualitative 
            than subjective.  








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           5)OTHER STATES  .  The State of Connecticut passed a law similar 
            to this bill in 2009.  The Connecticut legislation mandates 
            insurance coverage of comprehensive ultrasound screening of an 
            entire breast or breasts if a mammogram demonstrates 
            heterogeneous or dense breast tissue.  The Connecticut law 
            also provides that: 

          Each mammography report provided to a patient shall include 
            information about breast density, based on the BI-RADS 
            established by the ACR.  Where applicable, such report shall 
            include the following notice:  "If your mammogram demonstrates 
            that you have dense breast tissue, which could hide small 
            abnormalities, you might benefit from supplemental screening 
            tests, which can include a breast ultrasound screening or a 
            BMRI examination, or both, depending on your individual risk 
            factors.  A report of your mammography results, which contains 
            information about your breast density has been sent to your 
            physician's office and you should contact your physician if 
            you have any questions or concerns about the report."  

          According to the author, New Hampshire, Massachusetts, New York, 
            Florida, and Texas all have similar legislation pending.

           6)SUPPORT  .  According to the California Nurses Association 
            (CNA), patient knowledge is an essential piece of improving 
            health care and dense breast tissue obscures the ability of a 
            mammogram to detect cancer.  CNA maintains that federal law 
            requires a letter be sent to the patient informing her of the 
            results of her mammogram.  CNA states that this letter is 
            often referred to as a "happygram" as it typically says the 
            mammogram is normal and instructs the patient to please come 
            back next year.  CNA argues that communicating breast density 
            to the patient would complete the loop allowing women to be 
            informed and help make their own health care decisions.  The 
            notice in this bill, according to CNA, will undoubtedly foster 
            conversations that will improve the ability of health 
            practitioners to use the best breast cancer screening tools.

          The California National Organization for Women (NOW) writes that 
            enabling women to learn their breast density and the 
            relationship this may have to detect cancer, and by providing 
            follow-up screening designed to better catch breast cancer in 
            early stages will save lives as well as long-term health 
            costs.  








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           7)OPPOSE UNLESS AMENDED  .  ACOG, the California Medical 
            Association (CMA) and CRS are all opposed unless amended to 
            this bill.  ACOG states that while this bill has laudable 
            intent to give women more control over their health by 
            providing information to women found to have highly dense 
            breasts, it changes the standard of medical care in a manner 
            not supported by current clinical guidelines, which could 
            cause physicians to refer for more testing than is 
            scientifically indicated.  According to ACOG, mammography is 
            not a perfect screening tool for women at any level of breast 
            density and neither is ultrasound or BMRI.  ACOG maintains 
            that screening tests by definition are a balancing act of cost 
            and risk versus benefit.  ACOG asserts that they have examined 
            the intent, the expected effect on utilization and outcomes 
            and after extensive examination, finds the data is not yet 
            clear on what information should be conveyed and what steps 
            patients should be advised to take.  ACOG maintains that as 
            the science evolves, they are confident that more answers will 
            be found and the entire system will be changed based on the 
            new information. 
             
            ACOG states that the 2009 Connecticut law included a mandate 
            to cover additional screenings resulting from a similar 
            notice.  Without the mandate, if additional screening services 
            are recommended they would likely not be covered if prior 
            approval of the health plan, insurer or Medi-Cal is needed.  
            Many women, ACOG states, would not be able to afford the $300 
            for an ultrasound and $1700 for a BMRI.  ACOG argues that if 
            these additional screening and procedures made a significant 
            difference in the numbers of early detections and survival 
            rates, they would have no problem with this increase in care 
            however, ACOG finds there is no evidence to suggest that this 
            is the case.  Rather, according to ACOG, there is an 
            anticipated increase in utilization and costs without the 
            demonstrated benefit, straining the current availability of 
            radiologists to do other necessary procedures.

            ACOG asserts that given the uncertainty of the evidence, it 
            makes sense to wait for an evaluation of the Connecticut law 
            to determine if this type of notice helped to identify 
            additional cancers and saved lives before we implement such a 
            significant system change in California.

            CMA states that currently, national medical practice protocols 








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            require information about breast density to be included in the 
            patient's mammography report provided to the referring 
            physician from the radiologist.  CMA maintains that using this 
            information in combination with their knowledge of the 
            patient's personal history, including other risk factors, the 
            primary treating physician can then make a decision regarding 
            the best course of action or follow-up.  CMA argues that this 
            bill in its current form disrupts the physician-patient 
            relationship by mandating that all women, whether or not their 
            treating physician believes it is clinically indicated, be 
            given a specific notice regarding breast density and potential 
            supplemental screening procedures like ultrasound and BMRI.  
            CMA is opposed unless this bill is amended to remove the 
            requirements dictating the content of patients' screening 
            mammography reports.

            CRS states that the radiologist community is supportive of 
            patient empowerment and ensuring that all patients are 
            provided with adequate information to make informed decisions 
            about their medical care.  CRS maintains that there is 
            significant observer variability in the assignment of a breast 
            density category among radiologists.  The categories are 
            subjective and until a reliable, easily implemented method for 
            objectively determining the amount of breast tissue is 
            developed, the notification of breast density could lead to 
            more confusion than clarification.  CRS asserts that all women 
            are at risk of developing breast cancer, regardless of their 
            tissue patterns.  Notifying women directly of their breast 
            density runs the risk of giving a false sense of security to 
            women who are told their breast tissue is not dense.  CRS 
            argues that the patient's physician should use the information 
            to discuss the appropriate options given her history and other 
            circumstances.  CRS is opposed to those provisions in this 
            bill that would require reporting of breast density with the 
            suggested information statement directly to patients.
           
          8)RELATED LEGISLATION  .  AB 137 (Portantino) requires health plan 
            contracts and health insurance policies that are issued, 
            amended, delivered, or renewed, on or after July 1, 2012, to 
            provide coverage for mammography for screening or diagnostic 
            purposes upon referral by a health care professional, based on 
            medical need, regardless of age.  AB 137 was held in the 
            Assembly Appropriations Committee.  
           
           9)PREVIOUS LEGISLATION  .  








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              a)   AB 113 (Portantino) of 2010 was identical to AB 137.  
               Governor Schwarzenegger vetoed AB 113, stating, in part, 
               that it was unnecessary and had no practical impact on the 
               current state of health coverage in California.  

              b)   AB 56 (Portantino) of 2009 contained provisions 
               identical to those in AB 113.  AB 56 was vetoed by Governor 
               Schwarzenegger.  In his veto address he stated, in part, 
               "The addition of a new mandate, no matter how small, will 
               only serve to increase the overall cost of health care." 

             c)   AB 2234 (Portantino) of 2008 would have required health 
               plans and health insurers to provide coverage for tests 
               necessary for screening or diagnoses of breast conditions, 
               in accordance with national guidelines, upon referral of a 
               specified health care provider and required health plans 
               and health insurers to notify female enrollees or 
               policyholders in writing of their eligibility for testing.  
               AB 2234 was held in the Assembly Appropriations Committee. 
                

          10)DOUBLE REFERRAL  .  This bill was previously heard in Assembly 
            Business, Professions and Consumer Protection Committee, and 
            was approved on a 9-0 vote. 

             



          REGISTERED SUPPORT / OPPOSITION  :

           Support 
           
          Association of Women's Health Obstetric and Neonatal Nurses
          Breast Cancer Fund
          Breast Care Center, Community Hospital of Monterey Peninsula
          California Association of Health Underwriters
          California Communities United Institute
          California National Organization of Women
          California Nurses Association
          Sheila R. Veloz Breast Imaging Center
           
            Oppose Unless Amended 
           








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          American Congress of Obstetricians and Gynecologists, District 
          IX - California
          California Medical Association
          California Radiological Society

           Analysis Prepared by  :  Tanya Robinson-Taylor / HEALTH / (916) 
          319-2097