BILL ANALYSIS                                                                                                                                                                                                    Ó



                                                                  HR 32
                                                                  Page  1

          Date of Hearing:   February 24, 2014

                             ASSEMBLY COMMITTEE ON RULES
                              Richard S. Gordon, Chair
                  HR 32 (Mullin) - As Introduced:  February 14, 2014
           
          SUBJECT  :   Rare Disease Day.

           SUMMARY  :   Proclaims February 28, 2014, as Rare Disease Day in  
          California. Specifically,  this resolution  makes the following  
          legislative findings:

          1)There are nearly 7,000 diseases and conditions considered  
            rare; and, rare diseases as a group affecting almost 30  
            million Americans.

          2)Many rare diseases are serious and debilitating conditions  
            that have a significant impact on the lives of those affected;  
            and, individuals and their families affected by rare diseases  
            struggle with obtaining an accurate and timely diagnosis, few,  
            if any treatment options, and problems related to accessing or  
            being reimbursed for treatment.

          3)Research into rare diseases builds greater understanding of  
            the nature of disease and serves as a foundation for  
            innovation in the United States.

          4)Because nearly one in 10 Americans has a rare disease,  
            Californians are among those affected by those diseases.

           FISCAL EFFECT  :   None

           REGISTERED SUPPORT / OPPOSITION  :   

           Support 
           
          California Healthcare Institute

           Opposition 
           
          None on file
           
          Analysis Prepared by  :    Nicole Willis / RLS. / (916) 319-2800 










                                                                  HR 32
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