BILL ANALYSIS Ó HR 32 Page 1 Date of Hearing: February 24, 2014 ASSEMBLY COMMITTEE ON RULES Richard S. Gordon, Chair HR 32 (Mullin) - As Introduced: February 14, 2014 SUBJECT : Rare Disease Day. SUMMARY : Proclaims February 28, 2014, as Rare Disease Day in California. Specifically, this resolution makes the following legislative findings: 1)There are nearly 7,000 diseases and conditions considered rare; and, rare diseases as a group affecting almost 30 million Americans. 2)Many rare diseases are serious and debilitating conditions that have a significant impact on the lives of those affected; and, individuals and their families affected by rare diseases struggle with obtaining an accurate and timely diagnosis, few, if any treatment options, and problems related to accessing or being reimbursed for treatment. 3)Research into rare diseases builds greater understanding of the nature of disease and serves as a foundation for innovation in the United States. 4)Because nearly one in 10 Americans has a rare disease, Californians are among those affected by those diseases. FISCAL EFFECT : None REGISTERED SUPPORT / OPPOSITION : Support California Healthcare Institute Opposition None on file Analysis Prepared by : Nicole Willis / RLS. / (916) 319-2800 HR 32 Page 2