BILL ANALYSIS Ó SENATE HUMAN SERVICES COMMITTEE Senator Leland Y. Yee, Chair BILL NO: AB 506 A AUTHOR: Mitchell B VERSION: May 1, 2013 HEARING DATE: June 11, 2013 5 FISCAL: No 0 6 CONSULTANT: Sara Rogers SUBJECT HIV testing; infants SUMMARY This bill permits a social worker to provide written consent for an HIV test for an infant less than 12 months of age who has been taken into temporary custody or has a petition filed with the court to be adjudged a dependent of the court, under specified conditions. ABSTRACT Existing law : 1.Establishes the criteria by which a child who has suffered, or is at risk of suffering, significant abuse or harm shall be within the jurisdiction of the juvenile court which may adjudge that person to be a dependent child of the court. (WIC 300) 2.Permits the juvenile court to direct all such orders to Continued--- STAFF ANALYSIS OF ASSEMBLY BILL AB 506 (Mitchell) PageB the parent, parents, or guardian of a minor who is subject to any juvenile court proceeding as the court deems necessary and proper for the best interests of the minor. Provides that these orders may concern the care, supervision, custody, conduct, maintenance, and support of the minor, including education and medical treatment. (WIC 245.5) 3.Under case law, establishes that proceedings in juvenile court must conform to the constitutional guarantee of due process. (152 Cal.App. 2d 458, 313 P.2d 182) 4.Permits the court to limit parental control over an adjudged dependent child and requires the court to clearly and specifically set forth those limitations. Provides that such limitations may not exceed those necessary to protect the child. (WIC 361) 5.Permits the court to make any and all reasonable orders for the care, supervision, custody, conduct, maintenance, and support of an adjudged dependent child, including medical treatment, subject to further order of the court. (WIC 362) 6.Provides that a minor under the age of 12 is unable to consent for the provision of an HIV test and provides that consent may be obtained from the minor's parents, guardians, conservators, or other person authorized to make health care decisions for the minor. (HSC 121020(a)(1)) 7.Permits the court to provide written consent for the provision of an HIV test of a minor who is adjudged to be a dependent child of the court. (HSC 121020 (a)(2)) 8.Permits a social worker to authorize the performance of the medical, surgical, dental, or other remedial care for a child in temporary custody upon the recommendation of the attending physician or surgeon. Requires the social STAFF ANALYSIS OF ASSEMBLY BILL AB 506 (Mitchell) PageC worker, before the care is provided, to notify the parent or guardian, and if the parent or guardian objects, provides that care shall be given only upon order of the court. (WIC 369(a)) 9.Permits the court to order that a social worker may authorize the medical, surgical, dental or other remedial care for a dependent child that has been placed by the court under the custody or supervision of a social worker if it appears there is no parent or guardian capable of authorizing or willing to authorize medical, surgical, dental or other remedial care. (WIC 369 (c)) 10.Permits a social worker to authorize emergency medical, surgical, or other remedial care, as defined, for a child in temporary custody, a dependent child, or a child for whom a petition has been filed, in an emergency situation. Requires the social worker to make reasonable efforts to obtain the consent of, or to notify, the parent or guardian. (WIC 369 (d)) 11.Under the Confidentiality of Medical Information Act permits a provider of health care to disclose medical information to a county social worker, a probation officer, or any other person who is legally authorized to have custody or care of a minor for the purpose of coordinating health care services and medical treatment provided to the minor. (CIV Section 56.103) 12.Protects the privacy of individuals who are the subject of an HIV test by prohibiting any person from being compelled to identify an individual who is the subject of an HIV test. (HSC Section 120975) 13.Permits an HIV test to be performed without the individuals consent if the parent, guardian, conservator, or other person specified by the juvenile dependency court signs a written declaration of their consent. (HSC Section 120990) STAFF ANALYSIS OF ASSEMBLY BILL AB 506 (Mitchell) PageD This bill: 1.Permits a social worker to provide written consent for the provision of an HIV test to an infant under the age of 12 months who has been taken into temporary custody, has had a petition filed with the court to be adjudged a dependent of the court, or has been adjudged to be a dependent of the court, if certain conditions are met. 2.Establishes the following conditions for this authorization: The attending physician and surgeon have determined and documented that HIV testing is necessary to render appropriate care to the infant. The social worker provides known information to the physician or surgeon concerning the infant's possible risk factors regarding exposure to HIV. The social worker is unable to contact the parent, guardian, or person authorized by the court to make medical decisions on behalf of the child in order to seek consent, following reasonable efforts. 1.Requires the attending physician, surgeon and social worker to comply with all applicable state and federal confidentiality laws. FISCAL IMPACT This bill is not designated as fiscal and has not been analyzed by a fiscal committee. BACKGROUND AND DISCUSSION STAFF ANALYSIS OF ASSEMBLY BILL AB 506 (Mitchell) PageE According to the author, recent advances in HIV treatments have made early treatment of infants who have been infected with HIV particularly effective in increasing positive outcomes. The author states that because court approval is needed to perform HIV testing of infants taken into protective custody if the parent is unable to consent, the window of opportunity to treat the child is quickly diminished. The sponsor, Los Angeles County states that in some cases, the county is unable to locate the parents of children placed in foster care and is thus unable to secure parental consent for needed treatment. The sponsor states that court approval can take six months or longer because of heavy court caseloads thus severely compromising the health of the infant. The author states that this bill will authorize a social worker or treating health care provider to consent to an HIV test for a child under the age of one year who is in temporary custody or who has been adjudged a dependent child of the court. Juvenile Dependency Process - Limitations on Parental Rights The juvenile dependency process is designed to provide maximum safety and protection for children who are currently being physically, sexually, or emotionally abused, being neglected, or being exploited, and to ensure the safety, protection and physical and emotional well-being of children who are at risk of harm, while at the same time maintaining a focus on the preservation of the family. (WIC 300.2) The court has broad authority to direct "all such orders to the parent, parents, or guardian of a minor who is subject to any proceeding under this chapter as the court deems necessary and proper for the best interests of?the minor. These orders may concern the care, supervision, custody, STAFF ANALYSIS OF ASSEMBLY BILL AB 506 (Mitchell) PageF conduct, maintenance, and support of the minor, including education and medical treatment." Existing law permits a social worker to take a minor into "temporary custody" if it is suspected that a child is being, or is at risk of being abused or neglected, however in such cases the abuse has not yet been validated, the child has not yet been adjudged to be a dependent of the court, and parental rights have not been formally limited. The authority for the juvenile dependency system to limit parental authority over children is subject to a series of rigorous and lengthy hearings and extensive court oversight designed to ensure that parental rights are only limited to the extent necessary to protect the children. (WIC 300 et seq.) After taking a minor into custody, existing law requires a social worker to immediately file a petition with the juvenile court, if the social worker has determined that the minor shall be retained in custody, or else to release the minor within 48 hours.<1> The law then requires the court to hold a "detention hearing" before the expiration of the next judicial day after such a petition has been filed to determine whether the minor shall continue to be detained.<2> Following the detention hearing, the court is required to hold a "jurisdictional hearing" to determine whether the minor is a person described by WIC Section 300 and, if a minor is detained in custody, to hold that hearing within 15 days after the detention hearing.<3> After finding that a minor is a person described by Section 300, the court is then required to hold a "disposition hearing" within 60 days after the detention hearing to determine whether the child is a dependent child of the court, to potentially limit parental rights, establish a ------------------------- <1> WIC 311 and WIC 313 <2> WIC 315 <3> WIC 334 and WIC 355 STAFF ANALYSIS OF ASSEMBLY BILL AB 506 (Mitchell) PageG guardian, determine an appropriate placement, or to order the provision of services to the child or family.<4> Generally, in cases where children are in temporary custody, parental consent to medical treatment is required. If it is determined by a physician that medical care is needed, but the parent or guardian is unavailable or unwilling to consent to the treatment, a social worker is generally required to seek written consent from the court to provide such care or to receive authorization from the court for the social worker to provide the consent.<5> Only in cases of emergency, where it appears the child requires immediate emergency treatment, is a social worker permitted to provide unilateral consent after making reasonable efforts to obtain consent from the parent or guardian. In this case, "emergency situation" is defined as when: [A] child requires immediate treatment for the alleviation of severe pain or an immediate diagnosis and treatment of an unforeseeable medical, surgical, dental, or other remedial condition or contagious diseases which if not immediately diagnosed and treated would lead to serious disability or death. <6> This bill additionally establishes the right of social workers to consent to HIV testing of a child who is in temporary custody or is adjudged to be a ward of the court, without approval of the court, under certain circumstances. ------------------------- <4> WIC 360 and WIC 361 <5> WIC 369 <6> WIC 369 (d) STAFF ANALYSIS OF ASSEMBLY BILL AB 506 (Mitchell) PageH This bill, sponsored by Los Angeles County, would contradict the existing Juvenile Division Rules of the Los Angeles County Superior Court which recently enacted specific provisions related to HIV/AIDS testing of Dependent Children. As a matter of court policy, Local Rule 7.6 states the finding of the juvenile court that "it is necessary to engage in early intervention and to provide treatment for dependent children who are infected with the human immunodeficiency virus ("HIV"), the probable causative agent of acquired immune deficiency syndrome ("AIDS")." The Local Rule further states that if a child is taken into temporary custody and no petition has yet been filed with the dependency court , DCFS may conduct HIV testing without a court order if the child: Is under 12 years of age Is placed in out of home care Has parents/legal guardians who have refused to provide consent or their whereabouts are unknown, and Has a parent with a history of specified risk behaviors that may have placed the child at risk of exposure to HIV. However, once a petition has been filed, the Local Rule states that DCFS must request a court order for testing children under the age of 12 (older children are able to consent themselves). The Local Rule further requires that DCFS provide the results of any performed test to the court in a sealed envelope marked "confidential," and may only provide the results to pertinent persons including the child's attorney, out-of-home placement provider, parents, legal guardian, prospective adoptive parents, and dentist or mental health practitioner after making the request to the STAFF ANALYSIS OF ASSEMBLY BILL AB 506 (Mitchell) PageI court.<7> Many county courts have standing rules pertaining to the provision of medical care for dependent children, permitting social workers to consent to medical care under certain circumstances, though not necessarily pertaining to HIV testing and treatment specifically. Advances in neonatal and infant HIV treatment According to the American Academy of Pediatrics (AAP), Committee on Pediatric AIDS, advances in the management of HIV infection of newborns and infants require specific medical interventions to be applied before the first 6 weeks of birth and that "prompt identification permits early initiation of aggressive antiretroviral therapy with the potential to prevent the rapid progression of illness." <8> AAP further writes that: [T]o provide appropriate medical care for the infant, it is necessary that foster care agencies obtain information about HIV exposure status, if known, for infants placed in foster care. If the maternal serologic status is unknown, the HIV exposure status ---------------------- <7> Superior Court of California, Los Angeles County. Local Rules Chapter 7 Juvenile Division Rule 7.6. <8> Identification and Care of HIV-Exposed and HIV-Infected Infants, Children and Adolescents in Foster Care. American Academy of Pediatrics, Committee on Pediatric AIDS. Pediatrics 2000; 106;149. http://pediatrics.aappublications.org/content/106/1/149.full .pdf STAFF ANALYSIS OF ASSEMBLY BILL AB 506 (Mitchell) PageJ of infants in foster care?including infants placed in foster care who are 1 year or younger, should be determined by testing the infants for HIV antibody. Additionally, a recently published peer-reviewed study looking at the medical treatment of young children with HIV infection, found a four-fold reduction in infant mortality associated with early initiation of antiretroviral medication compared with deferred initiation.<9> The article cites research finding that, "disease progression in infants is much more rapid than in older children and adults, with mortality exceeding 50 percent by 2 years of age in the absence of antiretroviral therapy." <10> Recognizing the existence of significant legal medical consent questions related to HIV testing, the AAP writes: When the authority to consent to medical care has been transferred from the biological parents to a foster care agency, and the HIV-exposure status of the infant is unknown, the agency should provide consent for HIV testing of the infant and have an established mechanism to facilitate testing and to allow exchange of confidential information with appropriate persons (eg, physician, nurse, caseworker coordinating care for the foster child, biological parents, and the foster parents). ---------------------- <9> Prendergast AJ, Penazzato M, Cotton M, Musoke P, Mulenga V, et al. (2012) Treatment of Young Children with HIV Infection: Using Evidence to Inform Policymakers. PLoS Med 9(7): e1001273. doi:10.1371/journal.pmed.1001273 <10> Newell ML, Coovadia H, Cortina-Borja M, Rollins N, Gaillard P, et al. (2004) Mortality of infected and uninfected infants born to HIV-infected mothers in Africa: a pooled analysis. Lancet 364: 1236-1243. STAFF ANALYSIS OF ASSEMBLY BILL AB 506 (Mitchell) PageK AAP recommendations further state the importance of communicating any positive test results to the biological or foster parents within a "health care setting with appropriate social service support available at the time of the meeting. Infants who are identified as HIV-exposed should be managed in accordance with established guidelines." Privacy of Medical Information related to HIV status WIC Section 369 provides the court with the authority to release medical information to certain individuals responsible for the care of the child. Additionally, HSC Section 121020 provides that a case worker authorized to consent for a child may receive the test results without written authorization and may disclose test results of the child, if they have written authorization from the court. HSC Section 121022 provides that health care providers and laboratories shall report cases of HIV infection to the local health officer using patient names on a form developed by the department. The statute further requires local health officers to report unduplicated HIV cases by name to the department on a form developed by the department. Additionally the Confidentiality of Medical Information Act permits a health care provider to disclose medical information to a county social worker, a probation officer, or any other person who is legally authorized to have custody or care of a minor for the purpose of coordinating health care services and medical treatment provided to the minor.<11> Opposition Concerns ------------------------- <11> CIV Section 56.103 STAFF ANALYSIS OF ASSEMBLY BILL AB 506 (Mitchell) PageL Los Angeles Dependency Lawyers (LADL), an organization representing biological parents of children in dependency proceedings, writes that this bill "breaches parental confidentiality by allowing the social worker to reveal to a physician a parent's history of behaviors, true or not, that in the estimation of the reporting social worker may place the parent at an increased risk of exposure to HIV." Additionally, LADL writes that the stated concern addressed in this bill, that it may take months for a social worker to obtain authority from the court to test a child in temporary custody for HIV is incorrect, stating that "the presentation of a written affidavit from a concerned social worker and a simple application would find the court issuing a considered order within the day or certainly by the next. Court review of requests for psychotropic drugs and other medical procedures are already issued with some regularity within the 72 hours between the time a child is taken into custody and the filing of a juvenile dependency petition. LADL further states that the Juvenile Court for the County of Los Angeles, Dependency Division, has "carefully considered and with great care developed procedures that ensure the needs of a child who may have been exposed to HIV." The Williams Institute and Youth Law Center write in opposition, based on a prior version of the bill, that social workers should not have unilateral authority to consent to an HIV test for an infant in temporary custody as statutory and court authority for social workers to acquire authority already exists in the law. ACLU writes that the recent amendments do not address concerns that an infant who is tested and is positive will be adequately linked to appropriate care. Additionally, the ACLU expresses concerns that the HIV status of an infant has important implications for the HIV status of the mother and therefore supports the addition of explicit confidentiality protections for the mother. Additionally, the ACLU writes that physicians who receive a positive test STAFF ANALYSIS OF ASSEMBLY BILL AB 506 (Mitchell) PageM result for a patient are responsible to report that information to local public health officers, thus social workers should help facilitate accurate reporting of positive test results by providing available contact information for the biological mother to the physician, who would then include that information when reporting the test result to the local health officer. COMMENTS 1. Staff recommends amending the bill to clarify and simplify requirements that a social worker may consent only after making reasonable efforts to contact the parent or guardian. Specifically staff recommends the following amendment: Page 3, line 25 amend as follows: (ii)(I)The social worker provides known information concerning the infant's possible risk factors regarding exposure to HIV to the attending physician and surgeon. (iii) The social worker has made reasonable efforts to contact the parent or guardian but was unable to do so and the social worker has documented the efforts made. Strike lines 28-40 inclusive. 2. Staff recommends amending the bill to ensure that a social worker also has authority to consent to HIV related medical care that is determined by the physician to be necessary. Additionally, in response to concerns raised by the opposition, the author wishes to amend the bill such that, if an infant tests positive, a social worker shall provide any available contact information to the physician for inclusion in the mandatory case reporting to the local health STAFF ANALYSIS OF ASSEMBLY BILL AB 506 (Mitchell) PageN officer. Additionally, the author seeks to include a requirement that the local health department seek to notify the biological mother and refer her to appropriate care. Specifically, staff recommends the following amendment: Following line 17, insert: (d)(1) If an infant described in subsection (a)(3) tests positive for HIV infection and the physician and surgeon determine that immediate HIV medical care is necessary to render appropriate care to that infant, the provision of HIV medical care shall be considered emergency medical care pursuant to Welfare and Institutions Code Section 369 (d). (2) After the results of an HIV test performed pursuant to this section have been received and if the infant tests positive for HIV infection, the social worker shall provide any available contact information for the biological mother to the physician and surgeon which shall be included in case reporting to the local health officer. The physician and surgeon shall report any infant test result that is positive for HIV with any available contact information for the biological mother to the local health officer pursuant to Health and Safety Code Section 1603.1. 3. The ACLU seeks an amendment to this bill that would require a positive test result for an infant to be treated as confidential medical information for the mother. However, defining a child's HIV test result as the confidential medical information of the mother leads to practical questions regarding the appropriate sharing of information with necessary individuals who are responsible for the care of the infant. While current law includes multiple exceptions to permit the sharing of confidential information for a dependent child, if the information were also confidential information of the mother, those exemptions may not permit sharing on behalf of the child. Staff recommends this issue be further considered in Senate Judiciary Committee. Related Legislation STAFF ANALYSIS OF ASSEMBLY BILL AB 506 (Mitchell) PageO AB 446 (Mitchell), Requires each draw of blood ordered for a patient in a public health clinic or an urgent care center to be tested for HIV, provided that the patient has consented to the HIV test, as specified. Requires, before a person other than a medical provider can administer a test for HIV infection, the person being tested, his or her parent, guardian, conservator, or other person as specified, to provide informed consent for the performance of the test. This bill is in Senate Rules Committee awaiting referral. PRIOR VOTES Assembly Floor: 77-0 Assembly Judiciary: 10-0 Assembly Human Services:5-0 POSITIONS Support: County of Los Angeles (Sponsor) AIDS Healthcare Foundation AIDS Project Los Angeles American Academy of Pediatrics California Black Health Network California Communities United Institute California Medical Association California State Association of Counties County Health Executives Association of California County Welfare Directors Association Health Officers Association of California Los Angeles Centers for Alcohol and Drug Abuse L.A. Gay and Lesbian Center National Association of Social Workers Santa Clara County Board of Supervisors Oppose: ACLU (unless amended) Los Angeles Dependency Lawyers, Inc. Williams Institute (unless amended) Youth Law Center (prior version) STAFF ANALYSIS OF ASSEMBLY BILL AB 506 (Mitchell) PageP -- END --