BILL ANALYSIS                                                                                                                                                                                                    Ó






                                  SENATE HUMAN
                               SERVICES COMMITTEE
                          Senator Leland Y. Yee, Chair


          BILL NO:       AB 506                                       
          A
          AUTHOR:        Mitchell                                     
          B
          VERSION:       May 1, 2013
          HEARING DATE:  June 11, 2013                                
          5
          FISCAL:        No                                           
          0
                                                                      
          6
          CONSULTANT:    Sara Rogers                                 

                                        

                                     SUBJECT
                                         
                              HIV testing; infants

                                     SUMMARY  

          This bill permits a social worker to provide written  
          consent for an HIV test for an infant less than 12 months  
          of age who has been taken into temporary custody or has a  
          petition filed with the court to be adjudged a dependent of  
          the court, under specified conditions. 

                                     ABSTRACT  

           Existing law  :


          1.Establishes the criteria by which a child who has  
            suffered, or is at risk of suffering, significant abuse  
            or harm shall be within the jurisdiction of the juvenile  
            court which may adjudge that person to be a dependent  
            child of the court. (WIC 300)  


           2.Permits the juvenile court to direct all such orders to  

                                                         Continued---




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            the parent, parents, or guardian of a minor who is  
            subject to any juvenile court proceeding as the court  
            deems necessary and proper for the best interests of the  
            minor. Provides that these orders may concern the care,  
            supervision, custody, conduct, maintenance, and support  
            of the minor, including education and medical treatment.  
            (WIC 245.5)


          3.Under case law, establishes that proceedings in juvenile  
            court must conform to the constitutional guarantee of due  
            process. (152 Cal.App. 2d 458, 313 P.2d 182)


          4.Permits the court to limit parental control over an  
            adjudged dependent child and requires the court to  
            clearly and specifically set forth those limitations.  
            Provides that such limitations may not exceed those  
            necessary to protect the child. (WIC 361)


          5.Permits the court to make any and all reasonable orders  
            for the care, supervision, custody, conduct, maintenance,  
            and support of an adjudged dependent child, including  
            medical treatment, subject to further order of the court.  
            (WIC 362)


          6.Provides that a minor under the age of 12 is unable to  
            consent for the provision of an HIV test and provides  
            that consent may be obtained from the minor's parents,  
            guardians, conservators, or other person authorized to  
            make health care decisions for the minor. (HSC  
            121020(a)(1))


          7.Permits the court to provide written consent for the  
            provision of an HIV test of a minor who is adjudged to be  
            a dependent child of the court. (HSC 121020 (a)(2))


          8.Permits a social worker to authorize the performance of  
            the medical, surgical, dental, or other remedial care for  
            a child in temporary custody upon the recommendation of  
            the attending physician or surgeon. Requires the social  





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            worker, before the care is provided, to notify the parent  
            or guardian, and if the parent or guardian objects,  
            provides that care shall be given only upon order of the  
            court. (WIC 369(a))


          9.Permits the court to order that a social worker may  
            authorize the medical, surgical, dental or other remedial  
            care for a dependent child that has been placed by the  
            court under the custody or supervision of a social worker  
            if it appears there is no parent or guardian capable of  
            authorizing or willing to authorize medical, surgical,  
            dental or other remedial care. (WIC 369 (c)) 


          10.Permits a social worker to authorize emergency medical,  
            surgical, or other remedial care, as defined, for a child  
            in temporary custody, a dependent child, or a child for  
            whom a petition has been filed, in an emergency  
            situation. Requires the social worker to make reasonable  
            efforts to obtain the consent of, or to notify, the  
            parent or guardian. (WIC 369 (d))


          11.Under the Confidentiality of Medical Information Act  
            permits a provider of health care to disclose medical  
            information to a county social worker, a probation  
            officer, or any other person who is legally authorized to  
            have custody or care of a minor for the purpose of  
            coordinating health care services and medical treatment  
            provided to the minor. (CIV Section 56.103)


          12.Protects the privacy of individuals who are the subject  
            of an HIV test by prohibiting any person from being  
            compelled to identify an individual who is the subject of  
            an HIV test. (HSC Section 120975)


          13.Permits an HIV test to be performed without the  
            individuals consent if the parent, guardian, conservator,  
            or other person specified by the juvenile dependency  
            court signs a written declaration of their consent. (HSC  
            Section 120990) 






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          This bill:


          1.Permits a social worker to provide written consent for  
            the provision of an HIV test to an infant under the age  
            of 12 months who has been taken into temporary custody,  
            has had a petition filed with the court to be adjudged a  
            dependent of the court, or has been adjudged to be a  
            dependent of the court, if certain conditions are met.


          2.Establishes the following conditions for this  
            authorization:


                     The attending physician and surgeon have  
                 determined and documented that HIV testing is  
                 necessary to render appropriate care to the infant.


                     The social worker provides known information to  
                 the physician or surgeon concerning the infant's  
                 possible risk factors regarding exposure to HIV.


                     The social worker is unable to contact the  
                 parent, guardian, or person authorized by the court  
                 to make medical decisions on behalf of the child in  
                 order to seek consent, following reasonable efforts.  
                  


          1.Requires the attending physician, surgeon and social  
            worker to comply with all applicable state and federal  
            confidentiality laws.


                                  FISCAL IMPACT  

          This bill is not designated as fiscal and has not been  
          analyzed by a fiscal committee.

                            BACKGROUND AND DISCUSSION  






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          According to the author, recent advances in HIV treatments  
          have made early treatment of infants who have been infected  
          with HIV particularly effective in increasing positive  
          outcomes. The author states that because court approval is  
          needed to perform HIV testing of infants taken into  
          protective custody if the parent is unable to consent, the  
          window of opportunity to treat the child is quickly  
          diminished.


          The sponsor, Los Angeles County states that in some cases,  
          the county is unable to locate the parents of children  
          placed in foster care and is thus unable to secure parental  
          consent for needed treatment. The sponsor states that court  
          approval can take six months or longer because of heavy  
          court caseloads thus severely compromising the health of  
          the infant.


          The author states that this bill will authorize a social  
          worker or treating health care provider to consent to an  
          HIV test for a child under the age of one year who is in  
          temporary custody or who has been adjudged a dependent  
          child of the court.  


           Juvenile Dependency Process - Limitations on Parental  
          Rights


           The juvenile dependency process is designed to provide  
          maximum safety and protection for children who are  
          currently being physically, sexually, or emotionally  
          abused, being neglected, or being exploited, and to ensure  
          the safety, protection and physical and emotional  
          well-being of children who are at risk of harm, while at  
          the same time maintaining a focus on the preservation of  
          the family. (WIC 300.2)


          The court has broad authority to direct "all such orders to  
          the parent, parents, or guardian of a minor who is subject  
          to any proceeding under this chapter as the court deems  
          necessary and proper for the best interests of?the minor.  
          These orders may concern the care, supervision, custody,  





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          conduct, maintenance, and support of the minor, including  
          education and medical treatment."


          Existing law permits a social worker to take a minor into  
          "temporary custody" if it is suspected that a child is  
          being, or is at risk of being abused or neglected, however  
          in such cases the abuse has not yet been validated, the  
          child has not yet been adjudged to be a dependent of the  
          court, and parental rights have not been formally limited.  
          The authority for the juvenile dependency system to limit  
          parental authority over children is subject to a series of  
          rigorous and lengthy hearings and extensive court oversight  
          designed to ensure that parental rights are only limited to  
          the extent necessary to protect the children. (WIC 300 et  
          seq.) 


          After taking a minor into custody, existing law requires a  
          social worker to immediately file a petition with the  
          juvenile court, if the social worker has determined that  
          the minor shall be retained in custody, or else to release  
          the minor within 48 hours.<1> The law then requires the  
          court to hold a "detention hearing" before the expiration  
          of the next judicial day after such a petition has been  
          filed to determine whether the minor shall continue to be  
          detained.<2> Following the detention hearing, the court is  
          required to hold a "jurisdictional hearing" to determine  
          whether the minor is a person described by WIC Section 300  
          and, if a minor is detained in custody, to hold that  
          hearing within 15 days after the detention hearing.<3>  
          After finding that a minor is a person described by Section  
          300, the court is then required to hold a "disposition  
          hearing" within 60 days after the detention hearing to  
          determine whether the child is a dependent child of the  
          court, to potentially limit parental rights, establish a  
          -------------------------


          <1> WIC 311 and WIC 313


          <2> WIC 315


          <3> WIC 334 and WIC 355






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          guardian, determine an appropriate placement, or to order  
          the provision of services to the child or family.<4> 


          Generally, in cases where children are in temporary  
          custody, parental consent to medical treatment is required.  
          If it is determined by a physician that medical care is  
          needed, but the parent or guardian is unavailable or  
          unwilling to consent to the treatment, a social worker is  
          generally required to seek written consent from the court  
          to provide such care or to receive authorization from the  
          court for the social worker to provide the consent.<5> 


          Only in cases of emergency, where it appears the child  
          requires immediate emergency treatment, is a social worker  
          permitted to provide unilateral consent after making  
          reasonable efforts to obtain consent from the parent or  
          guardian. In this case, "emergency situation" is defined as  
          when:


               [A] child requires immediate treatment for the  
               alleviation of severe pain or an immediate diagnosis  
               and treatment of an unforeseeable medical, surgical,  
               dental, or other remedial condition or contagious  
               diseases which if not immediately diagnosed and  
               treated would lead to serious disability or death. <6>


          This bill additionally establishes the right of social  
          workers to consent to HIV testing of a child who is in  
          temporary custody or is adjudged to be a ward of the court,  
          without approval of the court, under certain circumstances.  
           

          -------------------------
          <4> WIC 360 and WIC 361


          <5> WIC 369


          <6> WIC 369 (d)






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          This bill, sponsored by Los Angeles County, would  
          contradict the existing Juvenile Division Rules of the Los  
          Angeles County Superior Court which recently enacted  
          specific provisions related to HIV/AIDS testing of  
          Dependent Children. As a matter of court policy, Local Rule  
          7.6 states the finding of the juvenile court that "it is  
          necessary to engage in early intervention and to provide  
          treatment for dependent children who are infected with the  
          human immunodeficiency virus ("HIV"), the probable  
          causative agent of acquired immune deficiency syndrome  
          ("AIDS")."


          The Local Rule further states that if a child is taken into  
          temporary custody and  no petition has yet been filed with  
          the dependency court  , DCFS may conduct HIV testing without  
          a court order if the child:


                           Is under 12 years of age
                           Is placed in out of home care
                           Has parents/legal guardians who have  
                    refused to provide consent or their whereabouts  
                    are unknown, and
                           Has a parent with a history of specified  
                    risk behaviors that may have placed the child at  
                    risk of exposure to HIV.


          However, once a petition has been filed, the Local Rule  
          states that DCFS must request a court order for testing  
          children under the age of 12 (older children are able to  
          consent themselves).

          The Local Rule further requires that DCFS provide the  
          results of any performed test to the court in a sealed  
          envelope marked "confidential," and may only provide the  
          results to pertinent persons including the child's  
          attorney, out-of-home placement provider, parents, legal  
          guardian, prospective adoptive parents, and dentist or  
          mental health practitioner after making the request to the  








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          court.<7>

          Many county courts have standing rules pertaining to the  
          provision of medical care for dependent children,  
          permitting social workers to consent to medical care under  
          certain circumstances, though not necessarily pertaining to  
          HIV testing and treatment specifically.

           Advances in neonatal and infant HIV treatment


           According to the American Academy of Pediatrics (AAP),  
          Committee on Pediatric AIDS, advances in the management of  
          HIV infection of newborns and infants require specific  
          medical interventions to be applied before the first 6  
          weeks of birth and that "prompt identification permits  
          early initiation of aggressive antiretroviral therapy with  
          the potential to prevent the rapid progression of illness."  
          <8>








          AAP further writes that: 


               [T]o provide appropriate medical care for the infant,  
               it is necessary that foster care agencies obtain  
               information about HIV exposure status, if known, for  
               infants placed in foster care. If the maternal  
               serologic status is unknown, the HIV exposure status  
               ----------------------


          <7> Superior Court of California, Los Angeles County. Local  
          Rules Chapter 7 Juvenile Division Rule 7.6.
          <8> Identification and Care of HIV-Exposed and HIV-Infected  
          Infants, Children and Adolescents in Foster Care. American  
          Academy of Pediatrics, Committee on Pediatric AIDS.  
          Pediatrics 2000; 106;149.  
           http://pediatrics.aappublications.org/content/106/1/149.full 
          .pdf  






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               of infants in foster care?including infants placed in  
               foster care who are 1 year or younger, should be  
               determined by testing the infants for HIV antibody. 


          Additionally, a recently published peer-reviewed study  
          looking at the medical treatment of young children with HIV  
          infection, found a four-fold reduction in infant mortality  
          associated with early initiation of antiretroviral  
          medication compared with deferred initiation.<9> 


          The article cites research finding that, "disease  
          progression in infants is much more rapid than in older  
          children and adults, with mortality exceeding 50 percent by  
          2 years of age in the absence of antiretroviral therapy."  
          <10>


          Recognizing the existence of significant legal medical  
          consent questions related to HIV testing, the AAP writes:


               When the authority to consent to medical care has been  
               transferred from the biological parents to a foster  
               care agency, and the HIV-exposure status of the infant  
               is unknown, the agency should provide consent for HIV  
               testing of the infant and have an established  
               mechanism to facilitate testing and to allow exchange  
               of confidential information with appropriate persons  
               (eg, physician, nurse, caseworker coordinating care  
               for the foster child, biological parents, and the  
               foster parents). 
               ----------------------


          <9> Prendergast AJ, Penazzato M, Cotton M, Musoke P,  
          Mulenga V, et al. (2012) Treatment of Young Children with  
          HIV Infection: Using Evidence to Inform Policymakers. PLoS  
          Med 9(7): e1001273. doi:10.1371/journal.pmed.1001273


          <10> Newell ML, Coovadia H, Cortina-Borja M, Rollins N,  
          Gaillard P, et al. (2004) Mortality of infected and  
          uninfected infants born to HIV-infected mothers in Africa:  
          a pooled analysis. Lancet 364: 1236-1243.






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          AAP recommendations further state the importance of  
          communicating any positive test results to the biological  
          or foster parents within a "health care setting with  
          appropriate social service support available at the time of  
          the meeting. Infants who are identified as HIV-exposed  
          should be managed in accordance with established  
          guidelines."


           Privacy of Medical Information related to HIV status


           WIC Section 369 provides the court with the authority to  
          release medical information to certain individuals  
          responsible for the care of the child. Additionally, HSC  
          Section 121020 provides that a case worker authorized to  
          consent for a child may receive the test results without  
          written authorization and may disclose test results of the  
          child, if they have written authorization from the court. 


          HSC Section 121022 provides that health care providers and  
          laboratories shall report cases of HIV infection to the  
          local health officer using patient names on a form  
          developed by the department. The statute further requires  
          local health officers to report unduplicated HIV cases by  
          name to the department on a form developed by the  
          department.


          Additionally the Confidentiality of Medical Information Act  
          permits a health care provider to disclose medical  
          information to a county social worker, a probation officer,  
          or any other person who is legally authorized to have  
          custody or care of a minor for the purpose of coordinating  
          health care services and medical treatment provided to the  
          minor.<11> 


           Opposition Concerns
          -------------------------


          <11> CIV Section 56.103






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           Los Angeles Dependency Lawyers (LADL), an organization  
          representing biological parents of children in dependency  
          proceedings, writes that this bill "breaches parental  
          confidentiality by allowing the social worker to reveal to  
          a physician a parent's history of behaviors, true or not,  
          that in the estimation of the reporting social worker may  
          place the parent at an increased risk of exposure to HIV."


          Additionally, LADL writes that the stated concern addressed  
          in this bill, that it may take months for a social worker  
          to obtain authority from the court to test a child in  
          temporary custody for HIV is incorrect, stating that "the  
          presentation of a written affidavit from a concerned social  
          worker and a simple application would find the court  
          issuing a considered order within the day or certainly by  
          the next. Court review of requests for psychotropic drugs  
          and other medical procedures are already issued with some  
          regularity within the 72 hours between the time a child is  
          taken into custody and the filing of a juvenile dependency  
          petition. LADL further states that the Juvenile Court for  
          the County of Los Angeles, Dependency Division, has  
          "carefully considered and with great care developed  
          procedures that ensure the needs of a child who may have  
          been exposed to HIV."  


          The Williams Institute and Youth Law Center write in  
          opposition, based on a prior version of the bill, that  
          social workers should not have unilateral authority to  
          consent to an HIV test for an infant in temporary custody  
          as statutory and court authority for social workers to  
          acquire authority already exists in the law.


          ACLU writes that the recent amendments do not address  
          concerns that an infant who is tested and is positive will  
          be adequately linked to appropriate care. Additionally, the  
          ACLU expresses concerns that the HIV status of an infant  
          has important implications for the HIV status of the mother  
          and therefore supports the addition of explicit  
          confidentiality protections for the mother. Additionally,  
          the ACLU writes that physicians who receive a positive test  





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          result for a patient are responsible to report that  
          information to local public health officers, thus social  
          workers should help facilitate accurate reporting of  
          positive test results by providing available contact  
          information for the biological mother to the physician, who  
          would then include that information when reporting the test  
          result to the local health officer.





           


                                    COMMENTS

              1.   Staff recommends amending the bill to clarify and  
               simplify requirements that a social worker may consent  
               only after making reasonable efforts to contact the  
               parent or guardian. Specifically staff recommends the  
               following amendment:

               Page 3, line 25 amend as follows:

               (ii)   (I)   The social worker provides known  
               information concerning the infant's possible risk  
                                                     factors regarding exposure to HIV to the attending  
               physician and surgeon.
                (iii)     The social worker has made reasonable  
               efforts to contact the parent or guardian but was  
               unable to do so and the social worker has documented  
               the efforts made.   
               
               Strike lines 28-40 inclusive.

             2.   Staff recommends amending the bill to ensure that a  
               social worker also has authority to consent to HIV  
               related medical care that is determined by the  
               physician to be necessary. Additionally, in response  
               to concerns raised by the opposition, the author  
               wishes to amend the bill such that, if an infant tests  
               positive, a social worker shall provide any available  
               contact information to the physician for inclusion in  
               the mandatory case reporting to the local health  





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               officer. Additionally, the author seeks to include a  
               requirement that the local health department seek to  
               notify the biological mother and refer her to  
               appropriate care. Specifically, staff recommends the  
               following amendment:  
           
               Following line 17, insert:

                     (d)(1) If an infant described in subsection  
               (a)(3) tests positive for HIV infection and the  
               physician and surgeon determine that immediate HIV  
               medical care is necessary to render appropriate care  
               to that infant, the provision of HIV medical care  
               shall be considered emergency medical care pursuant to  
               Welfare and Institutions Code Section 369 (d).
                    (2) After the results of an HIV test performed  
               pursuant to this section have been received and if the  
               infant tests positive for HIV infection, the social  
               worker shall provide any available contact information  
               for the biological mother to the physician and surgeon  
               which shall be included in case reporting to the local  
               health officer. The physician and surgeon shall report  
               any infant test result that is positive for HIV with  
               any available contact information for the biological  
               mother to the local health officer pursuant to Health  
               and Safety Code Section 1603.1.  
                    
             3.   The ACLU seeks an amendment to this bill that would  
               require a positive test result for an infant to be  
               treated as confidential medical information for the  
               mother. However, defining a child's HIV test result as  
               the confidential medical information of the mother  
               leads to practical questions regarding the appropriate  
               sharing of information with necessary individuals who  
               are responsible for the care of the infant. 

               While current law includes multiple exceptions to  
               permit the sharing of confidential information for a  
               dependent child, if the information were also  
               confidential information of the mother, those  
               exemptions may not permit sharing on behalf of the  
               child. Staff recommends this issue be further  
               considered in Senate Judiciary Committee.

           Related Legislation





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          AB 446 (Mitchell), Requires each draw of blood ordered for  
          a patient in a public health clinic or an urgent care  
          center to be tested for HIV, provided that the patient has  
          consented to the HIV test, as specified. Requires, before a  
          person other than a medical provider can administer a test  
          for HIV infection, the person being tested, his or her  
          parent, guardian, conservator, or other person as  
          specified, to provide informed consent for the performance  
          of the test.  This bill is in Senate Rules Committee  
          awaiting referral.  
           
                                   PRIOR VOTES  


          Assembly Floor:     77-0
          Assembly Judiciary: 10-0
          Assembly Human Services:5-0

                                    POSITIONS  

          Support:       County of Los Angeles (Sponsor)
                         AIDS Healthcare Foundation
                         AIDS Project Los Angeles
                         American Academy of Pediatrics
                         California Black Health Network
                         California Communities United Institute
                         California Medical Association
                         California State Association of Counties 
                         County Health Executives Association of  
                    California
                         County Welfare Directors Association
                         Health Officers Association of California
                         Los Angeles Centers for Alcohol and Drug  
                    Abuse
                         L.A. Gay and Lesbian Center
                         National Association of Social Workers
                         Santa Clara County Board of Supervisors

          Oppose:   ACLU (unless amended)
                         Los Angeles Dependency Lawyers, Inc.
                         Williams Institute (unless amended)
                         Youth Law Center (prior version)
                                        






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