BILL ANALYSIS                                                                                                                                                                                                    Ó



                                                                  AB 1231
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          Date of Hearing:   April 30, 2013

                            ASSEMBLY COMMITTEE ON HEALTH
                                 Richard Pan, Chair
               AB 1231 (V. Manuel Pérez) - As Amended:  April 24, 2013
           
          SUBJECT  :   Regional centers: telehealth and teledentistry.

           SUMMARY  :   Requires the Department of Developmental Services  
          (DDS) to inform regional centers that behavioral health  
          treatment and dentistry may be provided through telehealth and  
          teledentistry, respectively, and makes other changes to promote  
          the use of telehealth and teledentistry in the regional center  
          system.  Specifically,  this bill  :  

          1)Requires DDS to do all of the following: 

             a)   Inform all regional centers that behavioral health  
               treatment may be provided through the use of telehealth;

             b)   Inform all regional centers that dentistry may be  
               provided through the use of teledentistry;

             c)   Request regional centers to include a consideration of  
               telehealth and teledentistry in each individual program  
               plan (IPP) and individualized family service plan (IFSP)  
               that includes a discussion of behavioral health treatment  
               or dental health care; and

             d)   Provide, using existing resources, and in partnership  
               with other organizations, resources, and stakeholders,  
               technical assistance to regional centers regarding the use  
               of telehealth and teledentistry.

          2)Requires the use of telehealth and teledentistry to be  
            considered for inclusion in training programs for parents,  
            including group training programs that are provided in lieu of  
            in-home parent training, as specified.  

          3)Authorizes DDS to implement appropriate vendorization subcodes  
            for telehealth and teledentistry services and programs.

          4)Requires providers of telehealth and teledentistry services to  
            maintain the privacy and security of all confidential consumer  
            information.








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          5)Provides that telehealth and teledentistry services must be  
            received voluntarily and may be discontinued upon request, as  
            specified, and requires regional centers to subsequently  
            convene a review to determine alternative, appropriate means  
            for providing the service.

          6)Requires DDS, by December 1, 2017, to forward to the fiscal  
            and appropriate policy committees of the Legislature any  
            information provided by the regional centers on the  
            effectiveness and appropriateness of providing telehealth and  
            teledentistry services to regional center consumers, as  
            specified.

          7)Requires telehealth or teledentistry providers to be  
            responsible for all expenses and costs related to equipment,  
            transmission, storage, infrastructure, and other related  
            expenses.

          8)Defines "teledentistry" as the use of information technology  
            and telecommunications for dental care, consultation,  
            education, and public awareness in the same manner as  
            described in the current law definition of telehealth.

          9)Includes a sunset date of January 1, 2019.

          10)States legislative intent to do all of the following:

             a)   Improve access to treatments and intervention services  
               for individuals with autism spectrum disorders (ASD) or  
               other developmental disabilities and their families in  
               underserved populations;

             b)   Provide more cost-effective treatments and intervention  
               services for individuals with ASD or other developmental  
               disabilities and their families;

             c)   Maximize the effectiveness of the interpersonal and  
               face-to-face interactions that are utilized for the  
               treatment of individuals with ASD or other developmental  
               disabilities.

             d)   Continue maintenance and support of the existing service  
               workforce for individuals with ASD or other developmental  
               disabilities; and








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             e)   Utilize telehealth and teledentistry to improve services  
               for individuals with ASD and other developmental  
               disabilities;

          11)Includes legislative findings and declarations related to  
            ASD, its rising incidence rate, the effectiveness of  
            behavioral health treatment for ASD treatment, and the  
            significant number of individuals with ASD who suffer from  
            inadequate dental care.

           EXISTING LAW  :

          1)Defines "telehealth" as the mode of delivering health care  
            services and public health via information and communication  
            technologies for diagnosis, consultation, treatment,  
            education, care management, and self-management while a health  
            care provider is at a distant site relative to a patient, as  
            specified.

          2)Prohibits health plans and insurers, including Medi-Cal and  
            the Program for All-Inclusive Care for the Elderly, from  
            requiring in-person contact between a health care provider and  
            a patient before paying for covered services appropriately  
            provided through telehealth, as specified.  Prohibits these  
            health plans and insurers from limiting the type of setting  
            where services are provided through telehealth, as provided.

          3)Requires the State Department of Health Care Services to allow  
            psychiatrists to receive fee-for-service Medi-Cal  
            reimbursement for services provided through telehealth in  
            accordance with the Medicaid state plan.

          4)Allows the Medical Board of California to establish a pilot  
            program to expand the use of telehealth for persons with  
            chronic diseases.  

          5)States legislative intent that all medical information  
            transmitted during the delivery of health care via telehealth  
            become part of the patient's medical record maintained by the  
            licensed health care provider.

          6)States that all laws regarding the confidentiality of health  
            care information and a patient's rights to his or her medical  
            information apply to telehealth interactions.  








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          7)Existing federal law, the Health Insurance Portability and  
            Accountability Act, establishes standards to protect  
            individuals' medical records and other personal health  
            information and applies to health plans, health care  
            clearinghouses, and health care providers who transmit any  
            health information in electronic form, as specified.  

          8)Requires all health care service plan contracts that provide  
            hospital, medical, or surgical coverage, and all health  
            insurance policies, to provide coverage for behavioral health  
            treatment for pervasive developmental disorder (PDD) or  
            autism, with specified exceptions.

          9)Defines "behavioral health treatment," for purposes of the  
            requirement in 8) above, as professional services and  
            treatment programs, including applied behavior analysis and  
            evidence-based behavior intervention programs, that develop or  
            restore, to the maximum extent practicable, the functioning of  
            an individual with PDD or autism and that meet specified  
            criteria.

          10)Requires that behavioral health treatment, for purposes of  
            the requirement in 8) above, to be provided by a qualified  
            autism service provider, professional, or paraprofessional, as  
            specified.

          11)Establishes the Lanterman Developmental Disabilities Services  
            Act (Lanterman Act), under which DDS is authorized to contract  
            with private non-profit regional centers to provide case  
            management services and arrange for, or purchase, services  
            that meet the individual needs and choices of each person with  
            developmental disabilities, as specified.

          12)Grants all individuals with developmental disabilities the  
            right to treatment and habilitation services and supports in  
            the least restrictive environment.

           FISCAL EFFECT  :   This bill has not yet been analyzed by a fiscal  
          committee.

           COMMENTS  :   

           1)PURPOSE OF THIS BILL  .  The author of this bill writes that  
            approximately two-thirds of all new regional center consumers  








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            are diagnosed with ASD and require 25-40 hours per week of  
            behavioral health treatment.  Additionally, poor dental care  
            is an ongoing problem for developmentally disabled individuals  
            whose challenges may prevent them from following typical  
            dental protocols and increase the likelihood that unfamiliar  
            faces (dental professionals) and noises (dental tools) will be  
            difficult to tolerate.  Many regional center consumers do not  
            have adequate access to behavioral health treatment and dental  
            care.  When regional center consumers forego dental care or  
            sufficient hours of behavioral health treatment, the cost to  
            the state is significant.  Often, the author writes,  
            telehealth is a viable, affordable alternative to in-person  
            care and treatment. 

          According to the Center for Autism and Related Disorders, this  
            bill's sponsor, it is the experience of providers that  
            regional centers are reluctant to integrate telehealth into  
            their treatment models without explicit authorization from the  
            DDS.  Therefore, this bill's provisions are intended to  
            facilitate the adoption of telehealth, for the delivery of  
            behavioral health treatment, and teledentistry in the regional  
            center system.

           2)BACKGROUND  .

              a)   Lanterman Act  .  The Lanterman Act entitles  
               developmentally disabled individuals (commonly referred to  
               as "consumers") to treatment and habilitation services and  
               supports in the least restrictive environment.  Lanterman  
               Act services are designed to enable all consumers to live  
               more independent and productive lives in the community.   
               Direct responsibility for implementation of the Lanterman  
               Act service system is shared by DDS and 21 regional  
               centers, which are private nonprofit entities that contract  
               with DDS to carry out many of the state's responsibilities  
               under the Lanterman Act.  The principal roles of regional  
               centers include intake and assessment, IPP development,  
               case management, and securing services through generic  
               agencies (e.g., school districts, In-Home Supportive  
               Services) or by purchasing services provided by vendors.   
               Regional centers also share primary responsibility with  
               local education agencies for provision of early  
               intervention services under the California Early  
               Intervention Services Act.  The regional center caseload  
               includes over 250,000 consumers who receive services such  








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               as residential placements, supported living services,  
               respite care, transportation, day treatment programs, work  
               support programs, and various social and therapeutic  
               activities.

             Services provided to people with developmental disabilities  
               are determined through the IPP process.  Under this  
               process, planning teams, which include, among others, the  
               consumer, his or her legally authorized representative, and  
               one or more regional center representatives, jointly  
               prepare an IPP based on the consumer's needs and choices.   
               The Lanterman Act requires that the IPP promote community  
               integration and maximize opportunities for each consumer to  
               develop relationships, be part of community life, increase  
               control over his or her life, and acquire increasingly  
               positive roles in the community.  The IPP must give the  
               highest preference to those services and supports that  
               allow minors to live with their families and adults to live  
               as independently as possible in the community.

              b)   Access to Regional Center Services  .  On April 12, 2012,  
               the Senate Select Committee on Autism and Related Disorders  
               held an informational hearing, "Ensuring Fair & Equal  
               Access to Regional Center Services for Autism Spectrum  
               Disorders."  Testimony addressed disparities, including  
               racial and ethnic disparities, in access to regional center  
               services, often based on where in the state the consumer  
               lives.  Access issues exist particularly within low-income  
               communities or rural areas where services may not exist, or  
               where other barriers, such as inadequate transportation,  
               are common.

              c)   Parent Training through Telehealth  .  Studies have begun  
               to show that telehealth may be an efficacious delivery  
               method for behavioral health treatment for ASD.  For  
               example, a study published in 2012 (Laurie A. Vismara,  
               Gregory S. Young, and Sally J.  Rogers.  "Telehealth for  
               Expanding the Reach of Early Autism Training to Parents."   
               Autism research and treatment 2012) provided parents of  
               children diagnosed with autism or PDD with training using  
               an Internet-based, password-protected video-conferencing  
               program.  This technology allowed the therapist and parents  
               to see, hear, and communicate with one another in real  
               time.  Researchers trained parents over 12 sessions in the  
               Early Start Denver Model (ESDM), a behavioral intervention  








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               for infants to preschool-aged children with ASD that  
               integrates applied behavior analysis with developmental and  
               relationship-based approaches.  The study found that  
               parents, on average, achieved "fidelity in the ESDM" after  
               six weeks of telehealth training, similar to the findings  
               of a study that provided parents with ESDM training in  
               person.  Moreover, the study found a significant increase  
               in parent and child engagement and in children's social and  
               communicative behaviors over the course of the 12 sessions.

              d)   Virtual Dental Homes  .  In July 2012, researchers at the  
               University of the Pacific School of Dentistry reported on  
               the preliminary phase of a demonstration project that is  
               studying the efficacy of providing dental services through  
               telehealth using a model called "virtual dental homes."   
               (Paul Glassman, et al. "The virtual dental home: bringing  
               oral health to vulnerable and underserved populations."   
               Journal of the California Dental Association 2012).  The  
               virtual dental home is a community-based oral health  
               delivery system in which people receive preventive and  
               early intervention therapeutic services or receive  
               educational, social, or general health services using  
               telehealth technology to link allied dental personnel  
               (registered dental hygienists in alternative practice,  
               registered dental hygienists working in public health  
               programs, and registered dental assistants) in the  
               community with dentists at remote office sites.  There are  
               nine sites currently operating this model of care in  
               California (two elementary schools in Sacramento and San  
               Diego counties, a consortium of Head Start centers in San  
               Francisco and San Diego, residential facilities associated  
               with three regional centers for persons with developmental  
               disabilities, four long-term care facilities, and one  
               community clinic). 

             The report indicates that more than 750 patients have been  
               enrolled in the project.  Of these, 40% are children, 24%  
               are adults in rural or low-income communities, 17% are  
               patients in long-term care facilities, and 15% are disabled  
               adults living in residential care settings.  According to  
               the report, dentists have determined that almost half of  
               the patients seen to date can be kept healthy through the  
               services of the allied dental personnel performing  
               preventive and early intervention services in the  
               community.  The other half are being referred to dental  








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               offices or clinics for the services only dentists can  
               provide.  The report maintains that this project has begun  
               the process of normalizing daily oral care and emphasizing  
               the importance of oral health.  The demonstration project  
               will continue through December 1, 2013.  According to the  
               Office of Statewide Health Planning and Development, which  
               authorized the project, a thorough evaluation of the  
               project will be done when the project is completed.  

           3)SUPPORT  .   The Center for Autism and Related Disorders (CARD),  
            the sponsor of this bill, writes that telehealth is a powerful  
            tool in the effort to increase access to cost-effectiveness of  
            behavioral health treatment and some dental services and to  
            overcome obstacles inherent in providing behavioral health  
            treatment and dental services to low-income and underserved  
            Californians, as well as those individuals living in more  
            remote areas.  CARD states that successful implementation of  
            effective and efficient telehealth services can help address  
            issues of provider shortages, transportation costs, and lost  
            time from work and school.  CARD maintains that this bill  
            offers a way to increase access to vital healthcare, maintain  
            a high standard of care, and decrease transportation costs  
            that are crippling regional center budgets.  Moreover, when  
            children with ASD have access to the care they need earlier,  
            they are more likely to fulfill their potential and become  
            contributing members of society.

          The Special Needs Network (SNN), in support, writes that the  
            federal Centers for Disease Control and Prevention recently  
            announced an estimate that the prevalence of ASD has increased  
            to one in 50 U.S. schoolchildren.  Low-income and minority  
            children are especially vulnerable, and regional center  
            services are often the only option to manage or improve their  
            conditions.  SNN believes that this bill will offer more  
            flexibility to struggling regional center consumers, reduce  
            costs to both the family and the state, and continue to  
            provide quality service to the child.

           4)RELATED LEGISLATION  .  

             a)   AB 809 (Logue), pending the Assembly Business,  
               Professions, and Consumer Protection Committee, would  
               replace a verbal consent requirement that applies to health  
               care providers prior to the delivery of health care via  
               telehealth with a requirement to obtain a waiver for  








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               treatment involving telehealth services. 

             b)   AB 318 (Logue), pending in the Assembly Health  
               Committee, would authorize Medi-Cal payments for  
               teledentistry services provided to individuals  
               participating in the Medi-Cal program.

             c)   AB 1174 (Bocanegra), pending in the Assembly Health  
               Committee, would expand duties of registered dental  
               assistants (RDAs), RDAs in extended functions, and  
               registered dental hygienists, and would authorize Medi-Cal  
               payments for teledentistry services provided to individuals  
               participating in the Medi-Cal program.  

             d)   SB 126 (Steinberg), pending in the Senate Health  
               Committee, would extend the sunset on the requirement for  
               health plans and insurers to cover behavioral health  
               treatment for autism or PDD until July 1, 2019.

             e)   SB 163 (Hueso), pending in the Senate Appropriations  
               Committee, would require a regional center to pay any  
               applicable co-payment, co-insurance, and deductible imposed  
               by a health insurance policy or health care service plan  
               for a service or support required by a consumer's IPP or  
               IFSP, as specified, and would prohibit regional centers  
               from charging or seeking reimbursement for these costs.

             f)   SB 784 (Fuller), pending in the Senate Rules Committee,  
               would require the team developing an IPP or an IFSP to  
               consider the consumer's, and his or her family's, needs  
               related to issues that include nontraditional service  
               hours, flexibility regarding treatment settings, parental  
               participation requirements, and the scope of services  
               available for adult consumers, and the use of treatment  
               interventions, including, among others, center-based  
               intensive behavioral interventions, as defined.
                
            5)PREVIOUS LEGISLATION  .

             a)   SB 764 (Steinberg) of 2012 would have required each IPP  
               team to consider the use of telehealth whenever applicable  
               for the purpose of improving access to intervention and  
               therapeutic services and facilitating better and  
               cost-effective services, as specified.  SB 764 was vetoed  
               by Governor Brown.  The Governor's veto message read, "I  








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               appreciate the author's desire to bring more efficiency to  
               regional centers as well as promote the value of  
               telehealth.  The goals of this bill, however, can already  
               be accomplished under existing law.  Mandating every  
               individual program planning team to consider telehealth  
               appears excessive.  Where beneficial and available, I  
               expect they will consider it, without the state telling  
               them to do so."

             b)   SB 1050 (Alquist) of 2012 would have required DDS to  
               establish an autism telehealth taskforce to be administered  
               and led by a public or nonprofit entity responsible for the  
               activities and work of the taskforce, would have provided  
               that the lead administrator appoint members of the  
               taskforce who have knowledge or experience, as specified,  
               and would have required the taskforce to provide technical  
               assistance and recommendations in the area of telehealth  
               services for individuals with ASD, as specified.  SB 1050  
               was vetoed by Governor Brown.  The Governor's veto message  
               said, "I am returning SB 1050 without my signature.  Last  
               year I signed AB 415 (Logue), the Telehealth Advancement  
                                                           Act of 2011, to update our statutes on the use of  
               telehealth.  As we work to improve and modernize our health  
               care system, we can expect telehealth to play an  
               increasingly prominent role in rural and urban areas, for  
               many diseases and conditions.  Such advancements and  
               collaboration are occurring now, and a privately funded,  
               disease-specific task force set forth in statute does not  
               appear to be warranted." 

             c)   AB 1733 (Logue), Chapter 782, Statutes of 2012, updates  
               several code sections to replace the term "telemedicine"  
               with "telehealth" and expands the potential for the use of  
               telehealth in additional health care programs administered  
               by the Department of Health Care Services such as the  
               Program of All-Inclusive Care for the Elderly. 

             d)   AB 171 (Beall) of 2011 would have required health plans  
               and insurers to provide coverage for behavioral health  
               treatment for autism or PDD.  AB 171 died in the Senate  
               Health Committee without a hearing.

             e)   AB 415 (Logue), Chapter 547, Statutes of 2011,  
               establishes the Telehealth Advancement Act of 2011 to  
               revise and update existing law to facilitate the  








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               advancement of telehealth as a service delivery mode in  
               managed care and the Medi-Cal program.  

             f)   SB 166 (Steinberg) of 2011 would have required health  
               care service plans and health insurers to provide coverage  
               for behavioral health treatment for autism or PDD.  SB 166  
               died in the Senate Health Committee without a hearing.

             g)   SB 946 (Steinberg and Evans), Chapter 650, Statutes of  
               2011, requires health plans and health insurance policies  
               to cover behavioral health therapy for PDD or autism,  
               requires plans and insurers to maintain adequate networks  
               of autism service providers, and establishes an Autism  
               Advisory Task Force in the Department of Managed Health  
               Care.

             h)   AB 329 (Nakanishi), Chapter 386, Statutes of 2007,  
               authorizes the Medical Board of California (MBC) to  
               establish a pilot program to expand the practice of  
               telemedicine and to convene a working group.  AB 329  
               specifies that the purpose of the pilot program is to  
               develop methods, using a telemedicine model, of delivering  
               health care to those with chronic diseases and delivering  
               other health information, and requires MBC to make  
               recommendations regarding its findings to the Legislature  
               within one calendar year of the commencement date of the  
               pilot program.  MBC reports that this pilot program is  
               currently commencing.

             i)   AB 1224 (Hernandez), Chapter 507, Statutes of 2007, adds  
               optometrists to the list of health care providers covered  
               under laws governing telemedicine services.

             j)   SB 1665 (Thompson), Chapter 864, Statutes of 1996,  
               establishes the Telemedicine Development Act (TDA) to set  
               standards for the use of telemedicine by health care  
               practitioners and insurers.  TDA specifies, in part, that  
               face-to-face contact between a health care provider and a  
               patient shall not be required under the Medi-Cal program  
               for services appropriately provided through telemedicine,  
               when those services are otherwise covered by the Medi-Cal  
               program, and requires a health care practitioner to obtain  
               verbal and written consent prior to providing services  
               through telemedicine.
                








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            6)DOUBLE REFERRAL  .  This bill has been double-referred.  It  
            passed the Assembly Committee on Human Services with a vote of  
            7-0 on April 16, 2013.

           7)SUGGESTED AMENDMENTS  :

             a)   This bill defines "teledentistry" as "the use of  
               information technology and telecommunications for dental  
               care, consultation, education, and public awareness in the  
               same manner as described in paragraph (6) of subdivision  
               (a) of Section 2290.5 of the Business and Professions Code  
               [the current law definition of telehealth]."  This contains  
               some redundant terminology and includes "public awareness,"  
               which is not currently a part of the definition of  
               telehealth.  To eliminate redundancy and improve  
               consistency, the Committee may wish to amend this bill to  
               change the definition of "teledentistry" to "telehealth  
               used to deliver dental health care services and public  
               dental health." 

             b)   This bill defines "behavioral health treatment" by  
               referencing a code section that only applies to individuals  
               with autism or PDD.  In contrast, this bill's provisions  
               related to teledentistry are not similarly restrictive.   
               Because access issues and disparities do not exist only for  
               regional center consumers with autism or PDD, the Committee  
               may wish to amend this bill to provide a definition of  
               "behavioral health treatment" that is not limited to  
               treatment of autism and PDD.

             c)   This bill requires providers of telehealth and  
               teledentistry services to maintain the privacy and security  
               of all confidential consumer information.  Under current  
               law, all laws regarding the confidentiality of health care  
               information and a patient's rights to his or her medical  
               information apply to telehealth interactions, making this  
               bill's requirement related to privacy and security of  
               confidential information unnecessary.  Therefore, the  
               Committee may wish to amend this bill to strike the  
               requirement for privacy and security.

             d)   This bill requires DDS to request regional centers to  
               consider telehealth and teledentistry in the IPP/IFSP  
               process.  This bill also requires regional centers to  
               consider telehealth and teledentistry in training programs  








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               for parents in the IPP/IFSP process.  For consistency, the  
               Committee may wish to amend this bill to require DDS to  
               request regional centers to consider telehealth and  
               teledentistry in training programs for parents. 

           REGISTERED SUPPORT / OPPOSITION  :

           Support  

          Center for Autism and Related Disorders (sponsor)
          ACT Today!
          Association of Regional Center Agencies
          Autism Research Group
          Children's Partnership
          Institute for Behavioral Training
          Law Offices of Bonnie Z. Yates, Inc.
          Special Needs Network
          One individual

           Opposition 
           
          None on file.
           
          Analysis Prepared by  :    Ben Russell / HEALTH / (916) 319-2097