BILL ANALYSIS Ó AB 1231 Page 1 Date of Hearing: April 30, 2013 ASSEMBLY COMMITTEE ON HEALTH Richard Pan, Chair AB 1231 (V. Manuel Pérez) - As Amended: April 24, 2013 SUBJECT : Regional centers: telehealth and teledentistry. SUMMARY : Requires the Department of Developmental Services (DDS) to inform regional centers that behavioral health treatment and dentistry may be provided through telehealth and teledentistry, respectively, and makes other changes to promote the use of telehealth and teledentistry in the regional center system. Specifically, this bill : 1)Requires DDS to do all of the following: a) Inform all regional centers that behavioral health treatment may be provided through the use of telehealth; b) Inform all regional centers that dentistry may be provided through the use of teledentistry; c) Request regional centers to include a consideration of telehealth and teledentistry in each individual program plan (IPP) and individualized family service plan (IFSP) that includes a discussion of behavioral health treatment or dental health care; and d) Provide, using existing resources, and in partnership with other organizations, resources, and stakeholders, technical assistance to regional centers regarding the use of telehealth and teledentistry. 2)Requires the use of telehealth and teledentistry to be considered for inclusion in training programs for parents, including group training programs that are provided in lieu of in-home parent training, as specified. 3)Authorizes DDS to implement appropriate vendorization subcodes for telehealth and teledentistry services and programs. 4)Requires providers of telehealth and teledentistry services to maintain the privacy and security of all confidential consumer information. AB 1231 Page 2 5)Provides that telehealth and teledentistry services must be received voluntarily and may be discontinued upon request, as specified, and requires regional centers to subsequently convene a review to determine alternative, appropriate means for providing the service. 6)Requires DDS, by December 1, 2017, to forward to the fiscal and appropriate policy committees of the Legislature any information provided by the regional centers on the effectiveness and appropriateness of providing telehealth and teledentistry services to regional center consumers, as specified. 7)Requires telehealth or teledentistry providers to be responsible for all expenses and costs related to equipment, transmission, storage, infrastructure, and other related expenses. 8)Defines "teledentistry" as the use of information technology and telecommunications for dental care, consultation, education, and public awareness in the same manner as described in the current law definition of telehealth. 9)Includes a sunset date of January 1, 2019. 10)States legislative intent to do all of the following: a) Improve access to treatments and intervention services for individuals with autism spectrum disorders (ASD) or other developmental disabilities and their families in underserved populations; b) Provide more cost-effective treatments and intervention services for individuals with ASD or other developmental disabilities and their families; c) Maximize the effectiveness of the interpersonal and face-to-face interactions that are utilized for the treatment of individuals with ASD or other developmental disabilities. d) Continue maintenance and support of the existing service workforce for individuals with ASD or other developmental disabilities; and AB 1231 Page 3 e) Utilize telehealth and teledentistry to improve services for individuals with ASD and other developmental disabilities; 11)Includes legislative findings and declarations related to ASD, its rising incidence rate, the effectiveness of behavioral health treatment for ASD treatment, and the significant number of individuals with ASD who suffer from inadequate dental care. EXISTING LAW : 1)Defines "telehealth" as the mode of delivering health care services and public health via information and communication technologies for diagnosis, consultation, treatment, education, care management, and self-management while a health care provider is at a distant site relative to a patient, as specified. 2)Prohibits health plans and insurers, including Medi-Cal and the Program for All-Inclusive Care for the Elderly, from requiring in-person contact between a health care provider and a patient before paying for covered services appropriately provided through telehealth, as specified. Prohibits these health plans and insurers from limiting the type of setting where services are provided through telehealth, as provided. 3)Requires the State Department of Health Care Services to allow psychiatrists to receive fee-for-service Medi-Cal reimbursement for services provided through telehealth in accordance with the Medicaid state plan. 4)Allows the Medical Board of California to establish a pilot program to expand the use of telehealth for persons with chronic diseases. 5)States legislative intent that all medical information transmitted during the delivery of health care via telehealth become part of the patient's medical record maintained by the licensed health care provider. 6)States that all laws regarding the confidentiality of health care information and a patient's rights to his or her medical information apply to telehealth interactions. AB 1231 Page 4 7)Existing federal law, the Health Insurance Portability and Accountability Act, establishes standards to protect individuals' medical records and other personal health information and applies to health plans, health care clearinghouses, and health care providers who transmit any health information in electronic form, as specified. 8)Requires all health care service plan contracts that provide hospital, medical, or surgical coverage, and all health insurance policies, to provide coverage for behavioral health treatment for pervasive developmental disorder (PDD) or autism, with specified exceptions. 9)Defines "behavioral health treatment," for purposes of the requirement in 8) above, as professional services and treatment programs, including applied behavior analysis and evidence-based behavior intervention programs, that develop or restore, to the maximum extent practicable, the functioning of an individual with PDD or autism and that meet specified criteria. 10)Requires that behavioral health treatment, for purposes of the requirement in 8) above, to be provided by a qualified autism service provider, professional, or paraprofessional, as specified. 11)Establishes the Lanterman Developmental Disabilities Services Act (Lanterman Act), under which DDS is authorized to contract with private non-profit regional centers to provide case management services and arrange for, or purchase, services that meet the individual needs and choices of each person with developmental disabilities, as specified. 12)Grants all individuals with developmental disabilities the right to treatment and habilitation services and supports in the least restrictive environment. FISCAL EFFECT : This bill has not yet been analyzed by a fiscal committee. COMMENTS : 1)PURPOSE OF THIS BILL . The author of this bill writes that approximately two-thirds of all new regional center consumers AB 1231 Page 5 are diagnosed with ASD and require 25-40 hours per week of behavioral health treatment. Additionally, poor dental care is an ongoing problem for developmentally disabled individuals whose challenges may prevent them from following typical dental protocols and increase the likelihood that unfamiliar faces (dental professionals) and noises (dental tools) will be difficult to tolerate. Many regional center consumers do not have adequate access to behavioral health treatment and dental care. When regional center consumers forego dental care or sufficient hours of behavioral health treatment, the cost to the state is significant. Often, the author writes, telehealth is a viable, affordable alternative to in-person care and treatment. According to the Center for Autism and Related Disorders, this bill's sponsor, it is the experience of providers that regional centers are reluctant to integrate telehealth into their treatment models without explicit authorization from the DDS. Therefore, this bill's provisions are intended to facilitate the adoption of telehealth, for the delivery of behavioral health treatment, and teledentistry in the regional center system. 2)BACKGROUND . a) Lanterman Act . The Lanterman Act entitles developmentally disabled individuals (commonly referred to as "consumers") to treatment and habilitation services and supports in the least restrictive environment. Lanterman Act services are designed to enable all consumers to live more independent and productive lives in the community. Direct responsibility for implementation of the Lanterman Act service system is shared by DDS and 21 regional centers, which are private nonprofit entities that contract with DDS to carry out many of the state's responsibilities under the Lanterman Act. The principal roles of regional centers include intake and assessment, IPP development, case management, and securing services through generic agencies (e.g., school districts, In-Home Supportive Services) or by purchasing services provided by vendors. Regional centers also share primary responsibility with local education agencies for provision of early intervention services under the California Early Intervention Services Act. The regional center caseload includes over 250,000 consumers who receive services such AB 1231 Page 6 as residential placements, supported living services, respite care, transportation, day treatment programs, work support programs, and various social and therapeutic activities. Services provided to people with developmental disabilities are determined through the IPP process. Under this process, planning teams, which include, among others, the consumer, his or her legally authorized representative, and one or more regional center representatives, jointly prepare an IPP based on the consumer's needs and choices. The Lanterman Act requires that the IPP promote community integration and maximize opportunities for each consumer to develop relationships, be part of community life, increase control over his or her life, and acquire increasingly positive roles in the community. The IPP must give the highest preference to those services and supports that allow minors to live with their families and adults to live as independently as possible in the community. b) Access to Regional Center Services . On April 12, 2012, the Senate Select Committee on Autism and Related Disorders held an informational hearing, "Ensuring Fair & Equal Access to Regional Center Services for Autism Spectrum Disorders." Testimony addressed disparities, including racial and ethnic disparities, in access to regional center services, often based on where in the state the consumer lives. Access issues exist particularly within low-income communities or rural areas where services may not exist, or where other barriers, such as inadequate transportation, are common. c) Parent Training through Telehealth . Studies have begun to show that telehealth may be an efficacious delivery method for behavioral health treatment for ASD. For example, a study published in 2012 (Laurie A. Vismara, Gregory S. Young, and Sally J. Rogers. "Telehealth for Expanding the Reach of Early Autism Training to Parents." Autism research and treatment 2012) provided parents of children diagnosed with autism or PDD with training using an Internet-based, password-protected video-conferencing program. This technology allowed the therapist and parents to see, hear, and communicate with one another in real time. Researchers trained parents over 12 sessions in the Early Start Denver Model (ESDM), a behavioral intervention AB 1231 Page 7 for infants to preschool-aged children with ASD that integrates applied behavior analysis with developmental and relationship-based approaches. The study found that parents, on average, achieved "fidelity in the ESDM" after six weeks of telehealth training, similar to the findings of a study that provided parents with ESDM training in person. Moreover, the study found a significant increase in parent and child engagement and in children's social and communicative behaviors over the course of the 12 sessions. d) Virtual Dental Homes . In July 2012, researchers at the University of the Pacific School of Dentistry reported on the preliminary phase of a demonstration project that is studying the efficacy of providing dental services through telehealth using a model called "virtual dental homes." (Paul Glassman, et al. "The virtual dental home: bringing oral health to vulnerable and underserved populations." Journal of the California Dental Association 2012). The virtual dental home is a community-based oral health delivery system in which people receive preventive and early intervention therapeutic services or receive educational, social, or general health services using telehealth technology to link allied dental personnel (registered dental hygienists in alternative practice, registered dental hygienists working in public health programs, and registered dental assistants) in the community with dentists at remote office sites. There are nine sites currently operating this model of care in California (two elementary schools in Sacramento and San Diego counties, a consortium of Head Start centers in San Francisco and San Diego, residential facilities associated with three regional centers for persons with developmental disabilities, four long-term care facilities, and one community clinic). The report indicates that more than 750 patients have been enrolled in the project. Of these, 40% are children, 24% are adults in rural or low-income communities, 17% are patients in long-term care facilities, and 15% are disabled adults living in residential care settings. According to the report, dentists have determined that almost half of the patients seen to date can be kept healthy through the services of the allied dental personnel performing preventive and early intervention services in the community. The other half are being referred to dental AB 1231 Page 8 offices or clinics for the services only dentists can provide. The report maintains that this project has begun the process of normalizing daily oral care and emphasizing the importance of oral health. The demonstration project will continue through December 1, 2013. According to the Office of Statewide Health Planning and Development, which authorized the project, a thorough evaluation of the project will be done when the project is completed. 3)SUPPORT . The Center for Autism and Related Disorders (CARD), the sponsor of this bill, writes that telehealth is a powerful tool in the effort to increase access to cost-effectiveness of behavioral health treatment and some dental services and to overcome obstacles inherent in providing behavioral health treatment and dental services to low-income and underserved Californians, as well as those individuals living in more remote areas. CARD states that successful implementation of effective and efficient telehealth services can help address issues of provider shortages, transportation costs, and lost time from work and school. CARD maintains that this bill offers a way to increase access to vital healthcare, maintain a high standard of care, and decrease transportation costs that are crippling regional center budgets. Moreover, when children with ASD have access to the care they need earlier, they are more likely to fulfill their potential and become contributing members of society. The Special Needs Network (SNN), in support, writes that the federal Centers for Disease Control and Prevention recently announced an estimate that the prevalence of ASD has increased to one in 50 U.S. schoolchildren. Low-income and minority children are especially vulnerable, and regional center services are often the only option to manage or improve their conditions. SNN believes that this bill will offer more flexibility to struggling regional center consumers, reduce costs to both the family and the state, and continue to provide quality service to the child. 4)RELATED LEGISLATION . a) AB 809 (Logue), pending the Assembly Business, Professions, and Consumer Protection Committee, would replace a verbal consent requirement that applies to health care providers prior to the delivery of health care via telehealth with a requirement to obtain a waiver for AB 1231 Page 9 treatment involving telehealth services. b) AB 318 (Logue), pending in the Assembly Health Committee, would authorize Medi-Cal payments for teledentistry services provided to individuals participating in the Medi-Cal program. c) AB 1174 (Bocanegra), pending in the Assembly Health Committee, would expand duties of registered dental assistants (RDAs), RDAs in extended functions, and registered dental hygienists, and would authorize Medi-Cal payments for teledentistry services provided to individuals participating in the Medi-Cal program. d) SB 126 (Steinberg), pending in the Senate Health Committee, would extend the sunset on the requirement for health plans and insurers to cover behavioral health treatment for autism or PDD until July 1, 2019. e) SB 163 (Hueso), pending in the Senate Appropriations Committee, would require a regional center to pay any applicable co-payment, co-insurance, and deductible imposed by a health insurance policy or health care service plan for a service or support required by a consumer's IPP or IFSP, as specified, and would prohibit regional centers from charging or seeking reimbursement for these costs. f) SB 784 (Fuller), pending in the Senate Rules Committee, would require the team developing an IPP or an IFSP to consider the consumer's, and his or her family's, needs related to issues that include nontraditional service hours, flexibility regarding treatment settings, parental participation requirements, and the scope of services available for adult consumers, and the use of treatment interventions, including, among others, center-based intensive behavioral interventions, as defined. 5)PREVIOUS LEGISLATION . a) SB 764 (Steinberg) of 2012 would have required each IPP team to consider the use of telehealth whenever applicable for the purpose of improving access to intervention and therapeutic services and facilitating better and cost-effective services, as specified. SB 764 was vetoed by Governor Brown. The Governor's veto message read, "I AB 1231 Page 10 appreciate the author's desire to bring more efficiency to regional centers as well as promote the value of telehealth. The goals of this bill, however, can already be accomplished under existing law. Mandating every individual program planning team to consider telehealth appears excessive. Where beneficial and available, I expect they will consider it, without the state telling them to do so." b) SB 1050 (Alquist) of 2012 would have required DDS to establish an autism telehealth taskforce to be administered and led by a public or nonprofit entity responsible for the activities and work of the taskforce, would have provided that the lead administrator appoint members of the taskforce who have knowledge or experience, as specified, and would have required the taskforce to provide technical assistance and recommendations in the area of telehealth services for individuals with ASD, as specified. SB 1050 was vetoed by Governor Brown. The Governor's veto message said, "I am returning SB 1050 without my signature. Last year I signed AB 415 (Logue), the Telehealth Advancement Act of 2011, to update our statutes on the use of telehealth. As we work to improve and modernize our health care system, we can expect telehealth to play an increasingly prominent role in rural and urban areas, for many diseases and conditions. Such advancements and collaboration are occurring now, and a privately funded, disease-specific task force set forth in statute does not appear to be warranted." c) AB 1733 (Logue), Chapter 782, Statutes of 2012, updates several code sections to replace the term "telemedicine" with "telehealth" and expands the potential for the use of telehealth in additional health care programs administered by the Department of Health Care Services such as the Program of All-Inclusive Care for the Elderly. d) AB 171 (Beall) of 2011 would have required health plans and insurers to provide coverage for behavioral health treatment for autism or PDD. AB 171 died in the Senate Health Committee without a hearing. e) AB 415 (Logue), Chapter 547, Statutes of 2011, establishes the Telehealth Advancement Act of 2011 to revise and update existing law to facilitate the AB 1231 Page 11 advancement of telehealth as a service delivery mode in managed care and the Medi-Cal program. f) SB 166 (Steinberg) of 2011 would have required health care service plans and health insurers to provide coverage for behavioral health treatment for autism or PDD. SB 166 died in the Senate Health Committee without a hearing. g) SB 946 (Steinberg and Evans), Chapter 650, Statutes of 2011, requires health plans and health insurance policies to cover behavioral health therapy for PDD or autism, requires plans and insurers to maintain adequate networks of autism service providers, and establishes an Autism Advisory Task Force in the Department of Managed Health Care. h) AB 329 (Nakanishi), Chapter 386, Statutes of 2007, authorizes the Medical Board of California (MBC) to establish a pilot program to expand the practice of telemedicine and to convene a working group. AB 329 specifies that the purpose of the pilot program is to develop methods, using a telemedicine model, of delivering health care to those with chronic diseases and delivering other health information, and requires MBC to make recommendations regarding its findings to the Legislature within one calendar year of the commencement date of the pilot program. MBC reports that this pilot program is currently commencing. i) AB 1224 (Hernandez), Chapter 507, Statutes of 2007, adds optometrists to the list of health care providers covered under laws governing telemedicine services. j) SB 1665 (Thompson), Chapter 864, Statutes of 1996, establishes the Telemedicine Development Act (TDA) to set standards for the use of telemedicine by health care practitioners and insurers. TDA specifies, in part, that face-to-face contact between a health care provider and a patient shall not be required under the Medi-Cal program for services appropriately provided through telemedicine, when those services are otherwise covered by the Medi-Cal program, and requires a health care practitioner to obtain verbal and written consent prior to providing services through telemedicine. AB 1231 Page 12 6)DOUBLE REFERRAL . This bill has been double-referred. It passed the Assembly Committee on Human Services with a vote of 7-0 on April 16, 2013. 7)SUGGESTED AMENDMENTS : a) This bill defines "teledentistry" as "the use of information technology and telecommunications for dental care, consultation, education, and public awareness in the same manner as described in paragraph (6) of subdivision (a) of Section 2290.5 of the Business and Professions Code [the current law definition of telehealth]." This contains some redundant terminology and includes "public awareness," which is not currently a part of the definition of telehealth. To eliminate redundancy and improve consistency, the Committee may wish to amend this bill to change the definition of "teledentistry" to "telehealth used to deliver dental health care services and public dental health." b) This bill defines "behavioral health treatment" by referencing a code section that only applies to individuals with autism or PDD. In contrast, this bill's provisions related to teledentistry are not similarly restrictive. Because access issues and disparities do not exist only for regional center consumers with autism or PDD, the Committee may wish to amend this bill to provide a definition of "behavioral health treatment" that is not limited to treatment of autism and PDD. c) This bill requires providers of telehealth and teledentistry services to maintain the privacy and security of all confidential consumer information. Under current law, all laws regarding the confidentiality of health care information and a patient's rights to his or her medical information apply to telehealth interactions, making this bill's requirement related to privacy and security of confidential information unnecessary. Therefore, the Committee may wish to amend this bill to strike the requirement for privacy and security. d) This bill requires DDS to request regional centers to consider telehealth and teledentistry in the IPP/IFSP process. This bill also requires regional centers to consider telehealth and teledentistry in training programs AB 1231 Page 13 for parents in the IPP/IFSP process. For consistency, the Committee may wish to amend this bill to require DDS to request regional centers to consider telehealth and teledentistry in training programs for parents. REGISTERED SUPPORT / OPPOSITION : Support Center for Autism and Related Disorders (sponsor) ACT Today! Association of Regional Center Agencies Autism Research Group Children's Partnership Institute for Behavioral Training Law Offices of Bonnie Z. Yates, Inc. Special Needs Network One individual Opposition None on file. Analysis Prepared by : Ben Russell / HEALTH / (916) 319-2097