BILL ANALYSIS Ó SENATE TRANSPORTATION & HOUSING COMMITTEE BILL NO: ab 2399 SENATOR MARK DESAULNIER, CHAIRMAN AUTHOR: J. pÉrez VERSION: 4/24/14 Analysis by: Erin Riches FISCAL: yes Hearing date: June 17, 2014 SUBJECT: Driver's license information: organ and tissue donor registry DESCRIPTION: This bill authorizes an organ procurement organization (OPO) to swipe a driver's license or identification card in an electronic device to transmit information to the Donate Life California Organ and Tissue Donor Registry. ANALYSIS: Existing law authorizes California's federally designated OPOs to establish a nonprofit organization as the California Organ and Tissue Donor Registrar. The OPOs established Donate Life California as the registrar, and Donate Life California established and maintains the California Organ and Tissue Donor Registry. Existing law requires an individual to indicate whether or not he or she will be an organ donor as part of completing a driver's license or identification card application or renewal form through the Department of Motor Vehicles (DMV). Existing law requires DMV to print the word "DONOR" or appropriate designation on the face of the driver's license or identification card of each individual who signs up as a donor; DMV meets this requirement by printing the word "DONOR" inside a pink dot embedded on the face of the driver's license or identification card. Existing law requires DMV to transmit electronically the following information to Donate Life California, on a weekly basis: The applicant's true full name The applicant's residence or mailing address The applicant's year of birth The applicant's California driver's license or identification AB 2399 (J. PÉREZ) Page 2 card number Existing law requires DMV to submit an annual report to Donate Life California and to the Legislature, as well as quarterly updates, detailing voluntary contributions it has collected and a non-identifiable summary of applicants, as follows: Date of application Method of application (e.g., field office, online, or mail) ZIP code Gender Year of birth Existing law requires Donate Life California to submit an annual report to the state Public Health Officer and the Legislature that includes: The number of donors on the registry The changes in the number of donors on the registry The general characteristics of donors as determined by the information provided to Donate Life California by DMV Each driver's license and identification card includes a magnetic strip on the back that contains the same information found on the front of the license or card. Existing law authorizes a business to swipe a driver's license or identification card in any electronic device for the following purposes: To verify the individual's age or the authenticity of the driver's license or identification card To comply with a legal requirement to record, retain, or transmit that information To collect or disclose personal information required for reporting, investigating, or preventing fraud, abuse, or material misrepresentation Existing law defines "business" as a proprietorship, partnership, corporation, or any other form of commercial enterprise. Existing law provides that a business swiping a driver's license or identification card for any other purpose is subject to a misdemeanor punishable by up to one year in county jail, a fine of up to $10,000, or both. This bill : AB 2399 (J. PÉREZ) Page 3 Authorizes an OPO to swipe a driver's license or identification card in any electronic device to transmit information to the Donate Life California Organ and Tissue Donor Registry for purposes of allowing an individual to identify himself or herself as a registered organ donor. Requires any information transmitted in this manner to comply with the DMV Information Security Agreement. Requires Donate Life California to include aggregated data of donors, rather than general characteristics of donors, in its annual report to the State Public Health Officer and the Legislature. COMMENTS: 1.Purpose . The author states that California is 46th in the nation in organ donor registration. As of January 2014, more than 120,000 individuals - about 18 percent of them Californians - were on the National Organ Transplant Waiting List. One organ donor can save up to eight lives, and one tissue donor can improve the lives of up to 50 others. The author states that OPOs often participate in community events to encourage individuals to become organ donors. The use of paper forms at these events, however, often slows down donor registration due to the length of time to fill out the form by hand, illegible handwriting, and similar problems. This bill would enable a Donate Life California representative to sign up an individual through a device attached to a smartphone. The individual would complete an electronic signup sheet that includes the same information collected by DMV when it signs up a donor. The information would be encrypted on the device, and deleted from the device once it is submitted to the Donate Life California database. This bill would enable Donate Life California to register donors more quickly and efficiently. 2.Background . SB 108 (Speier), Chapter 740, Statutes of 2001, authorized the establishment of an Organ and Tissue Donor Registry in the state Health and Human Services Agency, but the agency never received funding for the registry. SB 112 (Speier), Chapter 405, Statutes of 2003, transferred responsibility for establishing the registry to a private, nonprofit organization administered by the four federally designated OPOs: California Transplant Donor Network (Northern AB 2399 (J. PÉREZ) Page 4 California), Golden State Donor Services (North Central California), Lifesharing: A Donate Life Organization (Imperial and San Diego), and OneLegacy (Southern California). SB 112 built on a provision of current law at that time requiring DMV to provide donor registration forms to applicants for driver's licenses or identification cards. Donate Life California found the system established by SB 112 to be ineffective and sponsored SB 689 (Speier), Chapter 665, Statutes of 2005, requiring DMV to collect organ and tissue donor designation information on its driver's license and identification card applications. In an attempt to further increase organ donor signups, SB 1395 (Alquist), Chapter 217, Statutes of 2010, requires an individual to indicate whether or not he or she will be an organ donor in order to apply for or renew a driver's license or identification card. 3.Does electronic signup provide the same protections as DMV signup ? When an individual signs up to be an organ donor through the DMV, he or she must affirm this desire by checking yes or no on the application or renewal form (which he or she must also sign). The individual subsequently receives a follow-up email confirmation that he or she has registered as an organ donor. The sponsor indicates that an individual registering electronically through a Donate Life California representative would also have to click "yes" before completing the transaction and would receive a follow-up email confirmation. In addition, this bill requires any information transmitted pursuant to this bill to comply with the DMV Information Security Agreement (DMV ISA). The DMV uses information security standards and guidelines derived from the National Institutes of Standards and Technology to reinforce DMV information security requirements for electronic access or connection. 4.Data in annual report . Existing law requires DMV to submit an annual report to Donate Life California and to the Legislature, as specified. Existing law also requires Donate Life California to submit an annual report to the state Public Health Officer and the Legislature that includes, among other items, the general characteristics of donors as determined by the information provided to Donate Life California by DMV. This bill was amended in the Assembly Judiciary Committee to change this requirement from general characteristics of AB 2399 (J. PÉREZ) Page 5 donors, to aggregated data of donors. The author is working with DMV to clarify this requirement and plans to amend the bill further in the next committee. 5.Opposition arguments . The California Right to Life Committee (CRLC) expresses numerous concerns, most of which relate to existing law provisions authorizing organ donor signup through the driver's license application. CRLC raises questions as to whether OPO representatives educate potential donors as to whether brain death is actually true death and whether OPO representatives explain that organs may be removed from an individual that is not actually clinically dead. CRLC also questions whether, if an individual does not indicate "no" on the driver's license application, the presumption will be that the person actually meant to indicate "yes." 6.Double-referral . The Rules Committee has referred this bill to both this committee and the Judiciary Committee. Therefore, if this bill passes this committee, it will be referred to the Judiciary Committee. Assembly Votes: Floor: 76-0 Appr: 17-0 Jud: 10-0 POSITIONS: (Communicated to the committee before noon on Wednesday, June 11, 2014.) SUPPORT: American Academy of Pediatrics California Transplant Donor Network Donate Life California (sponsor) Sierra Donor Services OPPOSED: California Right to Life Committee, Inc.