BILL NUMBER: SCR 104	AMENDED
	BILL TEXT

	AMENDED IN ASSEMBLY  AUGUST 14, 2014
	AMENDED IN ASSEMBLY  JUNE 9, 2014
	AMENDED IN SENATE  MAY 19, 2014

INTRODUCED BY   Senator Huff
   (Coauthor: Senator Gaines)
    (   Coauthors:   Assembly Members 
 Achadjian,   Alejo,   Ammiano,  
Atkins,   Bigelow,   Bloom,   Bocanegra,
  Bonilla,   Bonta,   Bradford,  
Brown,   Buchanan,   Ian Calderon,  
Campos,  Chau,   Chesbro,   Conway, 
 Cooley,   Dababneh,   Dahle,   Daly,
  Dickinson,   Donnelly,   Eggman, 
 Fong,   Fox,   Frazier,   Garcia,
  Gomez,   Gonzalez,   Gordon,  
Gorell,   Grove,   Hagman,   Hall, 
 Harkey,   Holden,   Jones-Sawyer,  
Levine,   Linder,   Logue,   Lowenthal,
  Maienschein,   Mansoor,   Medina, 
 Melendez,   Mullin,   Muratsuchi,  
Nazarian,   Nestande,   Pan,   Perea,
 John A. Pérez,   V. Manuel Pérez,   Quirk,
  Quirk-Silva,   Rendon,   Ridley-Thomas,
  Salas,   Skinner,   Stone,  
Ting,   Wagner,   Waldron,   Weber, 
 Wieckowski,   Wilk,   Williams,   and
Yamada   ) 

                        APRIL 1, 2014

   Relative to Mitochondrial Disease Awareness Week.


	LEGISLATIVE COUNSEL'S DIGEST


   SCR 104, as amended, Huff. Mitochondrial Disease Awareness Week.
   This measure would declare the third week of September 2014, and
the third week of September in each subsequent year, as Mitochondrial
Disease Awareness Week.
   Fiscal committee: no.



   WHEREAS, Few people know of mitochondrial disease, yet every 30
minutes a child is born who will develop this disease by 10 years of
age; and
   WHEREAS, There is no cure for mitochondrial disease; and
   WHEREAS, Mitochondrial disease is often misdiagnosed; and
   WHEREAS, Mitochondrial disease occurs when mitochondria inside of
cells, responsible for creating more than 90 percent of the energy
needed by the body to sustain life and support growth, fail to carry
out their primary functions; and
   WHEREAS, When mitochondria fail, less and less energy is generated
within the cell; and
   WHEREAS, If this process is repeated throughout the body, whole
systems begin to fail, and the life of the person in whom this is
happening is severely compromised; and
   WHEREAS, The disease primarily affects children; and
   WHEREAS, Diseases of the mitochondria appear to cause the most
damage to cells of the brain, heart, liver, skeletal muscles,
kidneys, and the endocrine and respiratory systems; and
   WHEREAS, Common symptoms include muscle weakness and pain,
gastrointestinal disorders, poor growth, cardiac disease, liver
disease, diabetes, respiratory problems, seizures, visual and hearing
problems, and susceptibility to infection; and
   WHEREAS, Because so little is known about the disease, there are
only a few hospitals in the world that offer treatment, causing
affected families to travel regularly or even relocate to receive
treatment; and
   WHEREAS, Mitochondrial disease is progressive, likely terminal,
and requires a high level of care and extremely expensive medical
treatment that often exceeds covered insurance benefits, creating
great financial burdens on affected families; and
   WHEREAS, The third week of September is observed globally as
Mitochondrial Disease Awareness Week; now, therefore, be it
   Resolved by the Senate of the State of California, the Assembly
thereof concurring, That the Legislature does hereby proclaim the
third week of September 2014, and the third week of September each
subsequent year, as Mitochondrial Disease Awareness Week; and be it
further
   Resolved, That the Secretary of the Senate transmit copies of this
resolution to the author for appropriate distribution.