BILL ANALYSIS                                                                                                                                                                                                    Ó






                                  SENATE HUMAN
                               SERVICES COMMITTEE
                          Senator Leland Y. Yee, Chair


          BILL NO:       SB 577                                       
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          AUTHOR:        Pavley                                       
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          VERSION:       April 15, 2013
          HEARING DATE:  April 23, 2013                               
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          FISCAL:        Yes                                          
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          CONSULTANT:    Mareva Brown                                

                                        

                                     SUBJECT

           Autism and other developmental disabilities: pilot program:  
                                   employment

                                     SUMMARY  

          This bill requires development of a pilot program in  
          specified regional centers to help young adults with autism  
          and other developmental disabilities prepare for work.  
          Defines job exploration and discovery as a new category of  
          services provided for consumers in the regional center  
          system to enhance employment readiness, related social  
          skill development, access to postsecondary or career  
          technical education, outreach to employers and other job  
          readiness services, as specified. Establishes an Employment  
          Growth Fund and requires $200 per month be deposited for  
          each consumer who is enrolled in an employer-paid health  
          benefit plan or $1,000 be deposited for any consumer who  
          achieves the federally designated "substantial gainful  
          activity level," as specified. Requires that money in the  
          fund be paid to supported employment providers. Requires an  
          evaluation of the program, commits DDS to recommend  
          statewide expansion if the program proves successful and  
          sunsets the pilot on July 1, 2018, as specified. 

                                                         Continued---




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                                     ABSTRACT 

           Existing law
           
             1)   Establishes the Lanterman Developmental  
               Disabilities Services Act, which declares California's  
               responsibility for providing an array of services and  
               supports to meet the needs of each person with  
               developmental disabilities in the least restrictive  
               environment, regardless of age or degree of  
               disability, and to support their integration into the  
               mainstream life of the community. (WIC 4500, et seq.)  

              2)   Establishes a system of nonprofit Regional Centers  
               to provide fixed points of contact in the community  
               for all persons with developmental disabilities and  
               their families, to coordinate services and supports  
               best suited to them throughout their lifetime. (WIC  
               4620)  

              3)   Establishes an Individual Program Plan (IPP) and  
               defines that planning process as the vehicle to ensure  
               that services and supports are customized to meet the  
               needs of consumers who are served by regional centers.  
               (WIC 4512)  

              4)   Establishes an individual habilitation services  
               plan and specifies areas in which consumers must meet  
               individual employment goals. (WIC 4853, WIC 4854)  

              5)   Defines habilitation services as activities  
               purchased for regional center consumers, including  
               services provided under the Work Activity and  
               Supported Employment programs to prepare and maintain  
               consumers at their highest level of vocation  
               functioning or to prepare them for referral to  
               vocational rehabilitation services. (WIC 4851)  

              6)   Defines supported employment services as those  
               approved in the IPP for the purposes of achieving  
               supported employment as an outcome, as specified. (WIC  
               4851 (q))  

              7)   Establishes fees and hourly rates for service  





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               providers who work with consumers in various job  
               development and support activities. (WIC 4860)  

              8)   Establishes in federal law state reimbursements for  
               achieving work outcomes for individuals with  
               disabilities, as specified. (CFR 411.582)  

              9)   Establishes that the state will contract with  
               medical providers to treat Californians that qualify  
               for Medi-Cal, the state's insurance program for the  
               poor. (WIC 14043 et seq.)  
           
           This bill
           
             1)   Makes various legislative findings about the  
               importance of work in the lives of young adults with  
               developmental disabilities, their underemployment and  
               the necessity of a state-supported program to provide  
               specific support to ensure a consumer's academic and  
               employment success. 

             2)   Declares legislative intent that, in order to  
               increase effectiveness and opportunity to gain  
               meaningful employment opportunities, habilitation  
               services be expanded to include job exploration and  
               discovery service, as defined.

             3)   Defines "job exploration and discovery" to mean:

                  a.        Services provided to enhance employment  
                    readiness.
                  b.        Social skills development services  
                    necessary to obtain and maintain employment and  
                    to secure and support participation in internship  
                    and volunteer opportunities.
                  c.        Services to access and participate in  
                    postsecondary education or career technical  
                    education.
                  d.        Services to develop resume and interview  
                    skills.
                  e.        Services to conduct targeted employer  
                    outreach to secure employment.

             4)   Requires that a job exploration and discovery plan  
               be developed if those services are determined to be a  





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               necessary step to achieve a supported employment  
               outcome.

             5)   Establishes the rate for job exploration and  
               discovery services to be $40 per hour for a maximum of  
               75 hours per calendar quarter for all services  
               identified and provided in the job exploration and  
               discovery plan, as specified.

             6)   Requires DDS to establish a pilot program for young  
               adults to help them obtain integrated employment with  
               sufficient wages and benefits to decrease, over time,  
               their dependency on public financial support.

             7)   Requires that the pilot program:

                  a.        Develop and implement a new model for  
                    providing employment services to autistic  
                    individuals and individuals with other  
                    developmental disabilities, or modify an existing  
                    model for providing those services.
                  b.        Identify existing support services that  
                    may be modified or combined with supplemental  
                    services to provide skills assessment, training,  
                    and transition services.
                  c.        Use available federal and state incentive  
                    programs.
                  d.        Create financial incentives for  
                    employment service providers who help the  
                    individuals served in the pilot program find and  
                    retain jobs that pay wages that equal or exceed  
                    the Social Security Administration's substantial  
                    gainful activity level, or result in the  
                    individual obtaining employer-based health  
                    benefits.
                  e.        Develop and implement a protocol for  
                    collecting and evaluating data regarding the  
                    outcomes of participants in the pilot program.

             8)   Identifies the regional center catchment areas for  
               participation in the pilot project as: Golden Gate,  
               East Bay, Tri-Counties, Orange County, San Diego and  
               Alta California regional centers.

             9)   Requires DDS and the Department of Finance to  





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               establish by July 1, 2014, the Employment Growth Fund,  
               to consist of monies appropriated by the Legislature  
               from cost savings associated with the gainful  
               employment and reduced need for supportive services by  
               consumers participating in the pilot project, as  
               specified.

             10)  Requires $200 be allocated to the fund for each  
               month a consumer in the pilot project is enrolled in  
               an employer-paid health benefit plan.  This funding  
               shall be allocated from funds payable to the state  
               Department of Health Care Services (DHCS) pursuant to  
               the Medi-Cal program to the extent authorized by  
               federal law for each Medi-Cal eligible consumer of  
               regional center services.

             11)  Requires $1,000 be allocated to the fund on a  
               one-time basis from the Department of Rehabilitation  
               for each consumer of regional center services who  
               earns a monthly wage that exceeds the substantial  
               gainful activity level, as established by the federal  
               Social Security Administration, for at least nine  
               consecutive months, if the Department of  
               Rehabilitation (DOR) has received cost reimbursement  
               in that amount from the federal government pursuant to  
               the federal Ticket to Work program. This sum shall be  
               allocated on a one-time basis for each consumer who  
               meets that criteria.

             12)  Requires that these funds be deposited quarterly  
               into the Employment Growth Fund.

             13)  Requires each participating regional center to  
               submit to DDS:

                  a.        Information regarding each consumer who  
                    receives Medi-Cal benefits and is subsequently  
                    enrolled in an employer-paid health plan.
                  b.        Information regarding each consumer who  
                    earns a monthly wage that exceeds the substantial  
                    gainful activity level, as specified.

             14)   Requires DDS beginning July 1, 2015 to allocate  
               funds from the Employment Growth Fund to supported  
               employment providers who assist consumers to attain  





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               either threshold of employee-paid health benefits or  
               substantial gainful activity level, as established by  
               the federal Social Security Administration resulting  
               in a state incentive paid to DOR by the federal SSA.

             15)  Requires DDS to do the following:

                  a.         Annually determine the average cost of  
                    providing adult developmental center services to  
                    persons with developmental disabilities in the  
                    regional centers participating in the pilot  
                    program and compare that average cost to the  
                    actual cost of providing supported employment  
                    services to consumers in the pilot program. 
                  b.        Requires DDS to allocate to the  
                    Employment Growth Fund 50 percent of the savings  
                    if the average cost of adult developmental center  
                    services is higher than the actual costs of the  
                    supported employment services provided to any  
                    consumer who meets either threshold, as  
                    specified. 
                  c.        Prepare an annual report of the number of  
                    pilot program participants and estimated total  
                    cost savings to the state across departments as a  
                    result of the program.
                  d.        Design and implement an evaluation of the  
                    pilot program and submit a recommendation to the  
                    Legislature that the program be expanded  
                    statewide if it results in a 10 percent or  
                    greater average annual increase in the number of  
                    individuals who receive habilitative services  
                    through the pilot program being placed in  
                    supported employment.

             16)  Sunsets the program on July 2018 and repeals it as  
               of January 1, 2019.

                                  FISCAL IMPACT  

          This bill has not been analyzed by a fiscal committee.



                            BACKGROUND AND DISCUSSION  






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           Author's purpose

           The author states that employment rates for people with  
          autism and other developmental disabilities are appalling  
          in California. In 2009, only 14 percent of working-age  
          regional center clients were employed in any kind of job  
          for any number of hours per week, according to the author.  
          The 2010 National Core Indicators survey of over 8,724  
          regional center clients indicated that fewer than 5 percent  
          surveyed had a job in integrated competitive employment.

          The author states that people with autism and other  
          developmental disabilities who work in paid integrated  
          settings in the community have a higher quality of life,  
          better health outcomes, more access to social relationships  
          and greater community participation. In addition, the  
          author states, consumers who work use less publicly funded  
          healthcare, fewer publicly funded services and pay taxes  
          like everyone else that works. Yet California's funding  
          structure for employment service delivery perversely  
          encourages the placement of people with autism and other  
          developmental disabilities in non-work day services and  
          segregated low paying jobs with little to no future,  
          according to the author. 
           
          Regional centers
           
          California's 21 nonprofit regional centers are part of a  
          system of care for individuals with developmental  
          disabilities overseen by DDS. With a proposed budget of  
          $4.3 billion for community-based services in 2013-2014, DDS  
          is responsible for coordinating care and providing services  
          for nearly 260,000 people who receive services and supports  
          to live in their communities, as well as approximately  
          1,560 people who resided in developmental centers as of  
          March 6, 2013.

          California's 21 regional centers are non-profit  
          organizations that provide local services and supports to  
          individuals through contracts with DDS. Regional centers  
          provide diagnosis and assessment of eligibility and help  
          plan, access, coordinate and monitor the services and  
          supports that are needed because of an individual's  
          developmental disability. Services for consumers are  
          determined through an individual program plan (IPP).





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           Employment first efforts

           In 2009, the Legislature and Governor required that the  
          State Council on Developmental Disabilities establish a  
          standing Employment First Committee to identify strategies,  
          best practices, and incentives, and to develop an  
          Employment First Policy. The goal of the policy was to  
          increase the number of people with developmental  
          disabilities who are employed in integrated work,  
          self-employment, and microenterprises, and in the number  
          earning wages at or above minimum wage. The council also is  
          required to provide an annual report to the Legislature  
          outlining its work and making recommendations. 

          In 2011, the State Council released its first report which  
          included findings that 26.5 percent of working age adults  
          with developmental disabilities live below the federal  
          poverty line compared with 13 percent of same-aged adults  
          in the general population. Other findings included a need  
          for additional supports for individuals to prepare for and  
          maintain employment.  That report, and a subsequent report  
          last year, prompted a number of legislative efforts to  
          require regional centers to adopt an "employment first"  
          philosophy when assessing individuals for services, as well  
          as other efforts.<1>

           Federal incentives through DOR

           The California Department of Rehabilitation works in  
          partnership with consumers and other stakeholders to  
          provide services and advocacy resulting in employment,  
          independent living and equality for individuals with  
          disabilities.  Among the services is Vocational  
          Rehabilitation, which includes employment counseling  
          training and education, mobility and transportation aids,  
          job search and placement assistance. To be eligible for  
          services, an individual must have a physical or mental  
          impairment that substantially impedes his or her ability to  
          secure employment and that require Vocational  
          Rehabilitation services to prepare for, secure, retain or  
          regain employment. An individual must also be able to  
          -------------------------
          <1>  
          http://www.scdd.ca.gov/res/docs/pdf/HQ-%20Employment%20First 
          %20Report%208-9-11.pdf




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          benefit from DOR services in obtaining employment in an  
          integrated setting. 

          The federal Social Security Administration reimburses DOR  
          for reasonable and necessary costs incurred in providing  
          Vocational Rehabilitation services to a social security  
          disability beneficiary or social security income recipient.  
          In order to receive reimbursement, the state must  
          demonstrate that:

                 The individual served was a disability beneficiary  
               at the time services were provided.
                 The services contributed to the beneficiary's  
               employment at the Substantial Gainful Activity level,  
               which includes a minimum of nine months work within a  
               12-month period and earnings above $1,040 for a  
               non-blind recipient in 2013. 
                 That there were estimated savings to the state's  
               general fund as a result of the person going to work  
               and no longer receiving state-funded benefits.

          Reimbursable expenses to the state are limited to direct  
          costs purchased by the Department of Rehabilitation from  
          vendors or outside sources, administrative, counseling and  
          placement costs provided by DOR employees and tracking  
          costs for up to nine months after case closure, as approved  
          by the Social Security Administration. According to DOR,  
          the average reimbursement is between $2,000 and $3,000. A  
          reimbursement claim is disallowed by the Social Security  
          Administration if payment to the Vocational Rehabilitation  
          agency would be greater than the estimated savings if  
          benefits were eventually terminated or reduced, thus  
          resulting in no "net savings" to the trust fund or general  
          fund. 

          DOR states additionally that Social Security Administration  
          reimbursements currently are dedicated to fund the  
          Independent Living Centers.
           
          Related legislation

           AB 287 (Beall) Chapter 231, Statutes of 2009 established an  
          "Employment First" effort for the State to undertake, which  
          has led to the State Council on Developmental Disabilities  
          to put together an "Employment First" policy and several  





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          attempts to get that policy passed into law.

          AB 1041 (Chesbro, 2013) Requires regional centers to ensure  
          that consumers, beginning at 16 years of age, are provided  
          with information about options for integrated competitive  
          employment and other services including postsecondary  
          education, available to enable the consumer to transition  
          from school to work, and to achieve the outcomes of  
          obtaining and maintaining integrated competitive  
          employment.

          AB 1112 (Ammiano, 2013) Requires that the hourly rate paid  
          to providers of individualized and group-supported  
          employment services be consistent with the Department of  
          Rehabilitation rate structure policy. 

          AB 954 (Mainenschein, 2013) Increases the hourly rate paid  
          to providers of individualized and group-supported  
          employment services from $30.82 to $34.24 and the fees paid  
          to the interim program providers from $360 or $720 to $400  
          and $800, respectively.
           
          Comments
          
           The bill's sponsor has stated that intermediary services  
          are needed to prepare some individuals with developmental  
          disabilities, including young adults with autism, prior to  
          being to be able to participate in the Vocational  
          Rehabilitation program at DOR. Many of these young adults  
          need to learn to interpret social cues related to the  
          workplace and have other unique training needs in order to  
          be successful in DOR's program. The job exploration and  
          discovery training outlined in this bill would be separate  
          from job coaching and other pre-employment assessment and  
          skills training. 

          In addition to setting up a separate job description and  
          hourly wage for vendors who would perform this training,  
          this bill would establish a state fund to collect  
          reimbursements between other state agencies that result  
          from individuals in the DDS system obtaining and  
          maintaining employment. For each regional center employee  
          who obtains employer health benefits, the state would be  
          required to deposit $200 monthly into the fund. For each  
          regional center consumer who maintains sustained work for  





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          nine months under federal Social Security Administration  
          regulations, and for which DOR is reimbursed expenses, DOR  
          must deposit $1,000 into the fund. The fund is authorized  
          solely to pay supported employment providers who assist  
          consumers to attain either threshold. 

          This bill has many unresolved fiscal questions and involves  
          general fund shifts from two state departments into the  
          newly established fund. It also requires DDS to evaluate  
          the difference in cost between a consumer served in a  
          developmental center and a consumer served in the pilot  
          project and to deposit 50 percent of the "savings" in  
          developmental center costs into the same fund. 

          Should SB 577 move forward to the Appropriations committee,  
          staff recommends the author clarify how developmental  
          center "savings" are to be established if a consumer does  
          not move from a developmental center into the program. This  
          bill also needs clarification around which consumers are  
          eligible for DOR reimbursement - while the intent language  
          implies that it would be just for consumers who participate  
          in the pilot program, the language in 4870 (b) (1) (B)  
          indicates that any regional center consumer for whom DOR  
          receives reimbursement must have $1,000 allocated to the  
          fund.

          Additionally, the author should clarify the types of data  
          to be collected and reported to DDS by the regional  
          centers. 
           

                                   POSITIONS  
 
          Support:       California Federation of Teachers 
                         Disability Rights California
                         East Bay Innovations     
                         Futures Explored, Inc.                  
                         Service Employees International Union (SEIU)  
                    California


          Oppose:   None received








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