BILL ANALYSIS                                                                                                                                                                                                    Ó



                                                                  SB 816
                                                                  Page  1

          Date of Hearing:  June 11, 2013

                            ASSEMBLY COMMITTEE ON HEALTH
                                 Richard Pan, Chair
            SB 816 (Committee on Health) - As Introduced:  March 11, 2013

           SENATE VOTE  :  35-0
           
          SUBJECT  :  Hospice facilities:  developmental disabilities:   
          intellectual disability.

           SUMMARY  :  Makes the State Fire Marshal, rather than the Office  
          of Statewide Health Planning and Development (OSHPD),  
          responsible for the development of building standards for  
          hospice facilities, and makes other minor and technical  
          corrections to law related to hospice facilities and  
          intellectual disabilities.  Specifically,  this bill  :

          1)Requires the Office of the State Fire Marshal, in consultation  
            with OSHPD, to develop and adopt building standards for  
            hospice facilities.

          2)Corrects two references to federal regulations that establish  
            standards for hospice facilities.

          3)Replaces the term "mental retardation" with "intellectual  
            disability" in the definition of "developmental disability" in  
            the Lanterman Developmental Disabilities Services Act  
            (Lanterman Act) and makes other minor, technical corrections  
            in that definition.

           EXISTING LAW  :

          1)Requires hospices to obtain a license from the Department of  
            Public Health (DPH) and to provide, or make provision for,  
            skilled nursing services, social services and/or counseling  
            services, medical direction, bereavement services, volunteer  
            services, inpatient care arrangements, and home health aide  
            services.  

          2)Allows hospice facilities to operate as freestanding health  
            facilities with a capacity of no more than 24 beds that  
            provide routine care, continuous care, inpatient respite care,  
            and inpatient hospice care.









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          3)Requires building standards for hospice facilities to apply  
            uniformly throughout the state. 

          4)Until OSHPD, in consultation with the Office of the State Fire  
            Marshal, develops and adopts building standards for hospice  
            facilities, requires hospice facilities to meet building  
            standards and physical environment requirements from federal  
            Medicare Conditions of Participation for a hospice that  
            provides inpatient care directly in its own facility.

          5)Requires the building standards developed by OSHPD to, at a  
            minimum, maintain the requirements specified in federal  
            Medicare Conditions of Participation for a hospice that  
            provides inpatient care directly in its own facility.

          6)Requires congregate living health facilities (CLHFs) serving  
            individuals who are terminally ill, catastrophically and  
            severely disabled, mentally alert but physically disabled, or  
            any combination of these individuals, to obtain and maintain a  
            valid fire clearance from the appropriate authority having  
            jurisdiction over the facility, based on compliance with state  
            regulations concerning fire and life safety, as adopted by the  
            State Fire Marshal.

          7)Requires the State Fire Marshal, with the advice of the State  
            Board of Fire Services, to adopt regulations establishing  
            minimum requirements for the protection of life and property  
            for CLHFs that recognize the residential and non-institutional  
            setting of CLHFs.

          8)Establishes the Lanterman Act, which gives individuals with  
            disabilities the right to treatment and habilitation services  
            and supports in the least restrictive environment. 

          9)For purposes of the Lanterman Act, requires the term  
            "developmental disability" to include mental retardation,  
            cerebral palsy, epilepsy, and autism.

           FISCAL EFFECT  :  According to the Senate Appropriations  
          Committee, pursuant to Senate Rules 28.8, negligible state  
          costs.

           COMMENTS  :

           1)PURPOSE OF THIS BILL  .  The author of this bill states that SB  








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            1381 (Pavley), Chapter 457, Statutes of 2012, made an  
            important change to statutory terminology by removing  
            references to the term "mental retardation" from state  
            statutes.  Unfortunately, the Welfare and Institutions Code  
            Section that defines "developmental disability" was  
            inadvertently not amended and thus still includes the term  
            "mental retardation."  This bill corrects those references.

          In addition, SB 135 (Ed Hernandez), Chapter 673, Statutes of  
            2012, establishes a new health facility licensing category of  
            hospice facility, and permits a licensed and certified hospice  
            services provider to provide inpatient hospice services.  The  
            author writes that SB 135 contains an erroneous  
            cross-reference of the Federal Code of Regulations (Section  
            41.100 of Title 42) which imposes incompatible requirements on  
            the development of hospice facilities.  This bill remedies  
            this incorrect citation with the correct citation of the  
            Federal Code of Regulations (Section 418.110 of Title 42).

           2)BACKGROUND  .  Among its many provisions, SB 135 makes OSHPD  
            primarily responsible for the development of building  
            standards for free-standing hospice facilities.  Until OSHPD's  
            regulations are developed and adopted, SB 135 requires  
            facilities to meet building standards set out in federal  
            regulations for hospices that provide inpatient care in their  
            own facilities.  According to the author, the intent of SB 135  
            was to require a hospice facility to meet the same building  
            standards as a CLHF, which are not built under OSHPD authority  
            as they have fewer beds, are more residential in nature, and  
            have different zoning classifications (unlike OSHPD  
            facilities, CLHFs are allowed in local neighborhoods).  This  
            bill corrects this incongruity by shifting primary  
            responsibility for hospice facility building standards to the  
            State Fire Marshal. 

           3)SUPPORT  .  The Arc California and United Cerebral Palsy in  
            California Collaboration write in support that, originally  
            intended as a term of respect, the term "mental retardation"  
            has become a term of hostility, often associated with bullying  
            and hate crimes.  This bill corrects an oversight and replaces  
            the term with "intellectual disability."

          The California Hospice and Palliative Care Association (CHAPCA),  
            writes in support that this bill contains an erroneous  
            cross-reference to federal regulations and would impose  








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            incompatible requirements on the development of hospice  
            facilities.  CHAPCA states that this bill will enable hospice  
            programs to move forward in developing hospice care facilities  
            in the state.

           4)RELATED LEGISLATION  .  

             a)   AB 383 (Wagner), pending in the Senate Judiciary  
               Committee, makes numerous technical changes in the  
               California codes that have been recommended by the  
               Legislative Counsel's Office.  Among its many changes, AB  
               383 replaces the term "mentally retarded" with  
               "intellectually disabled" in the definition of "gravely  
               disabled" for purposes of the Lanterman-Petris-Short Act,  
               which governs involuntary commitment to mental health  
               institutions. 

             b)   SB 663 (Lara), pending in the Senate Committee on Human  
               Services, revises the definition of certain sex offenses to  
               apply if the victim is developmentally disabled.  For  
               purposes of this revision, defines "developmental  
               disability" to include "mental retardation, cerebral palsy,  
               epilepsy, and autism" and to include "disabling conditions  
               found to be closely related to mental retardation or to  
               require treatment similar to that required for individuals  
               with mental retardation." 

           5)PREVIOUS LEGISLATION  .  

             a)   SB 135 (Ed Hernandez), Chapter 673, Statutes of 2012,  
               establishes a new health facility licensing category of  
               hospice facility, and permits a licensed and certified  
               hospice services provider to provide inpatient hospice  
               services through the operation of a hospice facility,  
               either as a free-standing health facility, or adjacent to,  
               physically connected to, or on the building grounds of  
               another health facility or a residential care facility.

             b)   SB 1381 (Pavley), Chapter 457, Statutes of 2012, deletes  
               in state law references to "mental retardation" or a  
               "mentally retarded person" and instead replaces them with  
               "intellectual disability" or "a person with an intellectual  
               disability."  

             c)   AB 2370 (Mansoor), Chapter 448, Statutes of 2012, is  








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               substantially similar to SB 1381.

             d)   SB 2622 (Maddy), Chapter 1343, Statutes of 1990,  
               requires hospices to be licensed by the Department of  
               Health Services (now the DPH).

           6)DOUBLE REFERRAL  .  This bill is double referred.  Should it  
            pass out of this committee, it will be referred to the  
            Assembly Governmental Organization Committee.
           
          REGISTERED SUPPORT / OPPOSITION  :

           Support 
           
          Arc California and United Cerebral Palsy in California  
          Collaboration 
          California Hospice and Palliative Care Association

           Opposition 
           
          None on file.

          Analysis Prepared by:    Ben Russell / HEALTH / (916) 319-2097