BILL ANALYSIS Ó SB 816 Page 1 Date of Hearing: June 11, 2013 ASSEMBLY COMMITTEE ON HEALTH Richard Pan, Chair SB 816 (Committee on Health) - As Introduced: March 11, 2013 SENATE VOTE : 35-0 SUBJECT : Hospice facilities: developmental disabilities: intellectual disability. SUMMARY : Makes the State Fire Marshal, rather than the Office of Statewide Health Planning and Development (OSHPD), responsible for the development of building standards for hospice facilities, and makes other minor and technical corrections to law related to hospice facilities and intellectual disabilities. Specifically, this bill : 1)Requires the Office of the State Fire Marshal, in consultation with OSHPD, to develop and adopt building standards for hospice facilities. 2)Corrects two references to federal regulations that establish standards for hospice facilities. 3)Replaces the term "mental retardation" with "intellectual disability" in the definition of "developmental disability" in the Lanterman Developmental Disabilities Services Act (Lanterman Act) and makes other minor, technical corrections in that definition. EXISTING LAW : 1)Requires hospices to obtain a license from the Department of Public Health (DPH) and to provide, or make provision for, skilled nursing services, social services and/or counseling services, medical direction, bereavement services, volunteer services, inpatient care arrangements, and home health aide services. 2)Allows hospice facilities to operate as freestanding health facilities with a capacity of no more than 24 beds that provide routine care, continuous care, inpatient respite care, and inpatient hospice care. SB 816 Page 2 3)Requires building standards for hospice facilities to apply uniformly throughout the state. 4)Until OSHPD, in consultation with the Office of the State Fire Marshal, develops and adopts building standards for hospice facilities, requires hospice facilities to meet building standards and physical environment requirements from federal Medicare Conditions of Participation for a hospice that provides inpatient care directly in its own facility. 5)Requires the building standards developed by OSHPD to, at a minimum, maintain the requirements specified in federal Medicare Conditions of Participation for a hospice that provides inpatient care directly in its own facility. 6)Requires congregate living health facilities (CLHFs) serving individuals who are terminally ill, catastrophically and severely disabled, mentally alert but physically disabled, or any combination of these individuals, to obtain and maintain a valid fire clearance from the appropriate authority having jurisdiction over the facility, based on compliance with state regulations concerning fire and life safety, as adopted by the State Fire Marshal. 7)Requires the State Fire Marshal, with the advice of the State Board of Fire Services, to adopt regulations establishing minimum requirements for the protection of life and property for CLHFs that recognize the residential and non-institutional setting of CLHFs. 8)Establishes the Lanterman Act, which gives individuals with disabilities the right to treatment and habilitation services and supports in the least restrictive environment. 9)For purposes of the Lanterman Act, requires the term "developmental disability" to include mental retardation, cerebral palsy, epilepsy, and autism. FISCAL EFFECT : According to the Senate Appropriations Committee, pursuant to Senate Rules 28.8, negligible state costs. COMMENTS : 1)PURPOSE OF THIS BILL . The author of this bill states that SB SB 816 Page 3 1381 (Pavley), Chapter 457, Statutes of 2012, made an important change to statutory terminology by removing references to the term "mental retardation" from state statutes. Unfortunately, the Welfare and Institutions Code Section that defines "developmental disability" was inadvertently not amended and thus still includes the term "mental retardation." This bill corrects those references. In addition, SB 135 (Ed Hernandez), Chapter 673, Statutes of 2012, establishes a new health facility licensing category of hospice facility, and permits a licensed and certified hospice services provider to provide inpatient hospice services. The author writes that SB 135 contains an erroneous cross-reference of the Federal Code of Regulations (Section 41.100 of Title 42) which imposes incompatible requirements on the development of hospice facilities. This bill remedies this incorrect citation with the correct citation of the Federal Code of Regulations (Section 418.110 of Title 42). 2)BACKGROUND . Among its many provisions, SB 135 makes OSHPD primarily responsible for the development of building standards for free-standing hospice facilities. Until OSHPD's regulations are developed and adopted, SB 135 requires facilities to meet building standards set out in federal regulations for hospices that provide inpatient care in their own facilities. According to the author, the intent of SB 135 was to require a hospice facility to meet the same building standards as a CLHF, which are not built under OSHPD authority as they have fewer beds, are more residential in nature, and have different zoning classifications (unlike OSHPD facilities, CLHFs are allowed in local neighborhoods). This bill corrects this incongruity by shifting primary responsibility for hospice facility building standards to the State Fire Marshal. 3)SUPPORT . The Arc California and United Cerebral Palsy in California Collaboration write in support that, originally intended as a term of respect, the term "mental retardation" has become a term of hostility, often associated with bullying and hate crimes. This bill corrects an oversight and replaces the term with "intellectual disability." The California Hospice and Palliative Care Association (CHAPCA), writes in support that this bill contains an erroneous cross-reference to federal regulations and would impose SB 816 Page 4 incompatible requirements on the development of hospice facilities. CHAPCA states that this bill will enable hospice programs to move forward in developing hospice care facilities in the state. 4)RELATED LEGISLATION . a) AB 383 (Wagner), pending in the Senate Judiciary Committee, makes numerous technical changes in the California codes that have been recommended by the Legislative Counsel's Office. Among its many changes, AB 383 replaces the term "mentally retarded" with "intellectually disabled" in the definition of "gravely disabled" for purposes of the Lanterman-Petris-Short Act, which governs involuntary commitment to mental health institutions. b) SB 663 (Lara), pending in the Senate Committee on Human Services, revises the definition of certain sex offenses to apply if the victim is developmentally disabled. For purposes of this revision, defines "developmental disability" to include "mental retardation, cerebral palsy, epilepsy, and autism" and to include "disabling conditions found to be closely related to mental retardation or to require treatment similar to that required for individuals with mental retardation." 5)PREVIOUS LEGISLATION . a) SB 135 (Ed Hernandez), Chapter 673, Statutes of 2012, establishes a new health facility licensing category of hospice facility, and permits a licensed and certified hospice services provider to provide inpatient hospice services through the operation of a hospice facility, either as a free-standing health facility, or adjacent to, physically connected to, or on the building grounds of another health facility or a residential care facility. b) SB 1381 (Pavley), Chapter 457, Statutes of 2012, deletes in state law references to "mental retardation" or a "mentally retarded person" and instead replaces them with "intellectual disability" or "a person with an intellectual disability." c) AB 2370 (Mansoor), Chapter 448, Statutes of 2012, is SB 816 Page 5 substantially similar to SB 1381. d) SB 2622 (Maddy), Chapter 1343, Statutes of 1990, requires hospices to be licensed by the Department of Health Services (now the DPH). 6)DOUBLE REFERRAL . This bill is double referred. Should it pass out of this committee, it will be referred to the Assembly Governmental Organization Committee. REGISTERED SUPPORT / OPPOSITION : Support Arc California and United Cerebral Palsy in California Collaboration California Hospice and Palliative Care Association Opposition None on file. Analysis Prepared by: Ben Russell / HEALTH / (916) 319-2097