BILL ANALYSIS Ó SB 816 Page 1 Date of Hearing: June 26, 2013 ASSEMBLY COMMITTEE ON GOVERNMENTAL ORGANIZATION Isadore Hall, Chair SB 816 (Committee on Health) - As Introduced: March 11, 2013 SENATE VOTE : 35-0 SUBJECT : Hospice facilities: developmental disabilities: intellectual disability SUMMARY : Makes the State Fire Marshal (SFM), rather than the Office of Statewide Health Planning and Development (OSHPD), responsible for the development of building standards for hospice facilities, and makes other minor and technical corrections to law related to hospice facilities and intellectual disabilities. Specifically, this bill : 1)Requires the SFM, in consultation with OSHPD, to develop and adopt building standards for hospice facilities. 2)Corrects two references to federal regulations that establish standards for hospice facilities. 3)Replaces the term "mental retardation" with "intellectual disability" in the definition of "developmental disability" in the Lanterman Developmental Disabilities Services Act (Lanterman Act) and makes other minor, technical corrections in that definition. EXISTING LAW 1)Requires hospices to obtain a license from the Department of Public Health (DPH) and to provide, or make provision for, skilled nursing services, social services and/or counseling services, medical direction, bereavement services, volunteer services, inpatient care arrangements, and home health aide services. 2)Allows hospice facilities to operate as freestanding health facilities with a capacity of no more than 24 beds that provide routine care, continuous care, inpatient respite care, and inpatient hospice care. 3)Requires building standards for hospice facilities to apply SB 816 Page 2 uniformly throughout the state. 4)Until OSHPD, in consultation with the SFM, develops and adopts building standards for hospice facilities, requires hospice facilities to meet building standards and physical environment requirements from federal Medicare Conditions of Participation for a hospice that provides inpatient care directly in its own facility. 5)Requires the building standards developed by OSHPD to, at a minimum, maintain the requirements specified in federal Medicare Conditions of Participation for a hospice that provides inpatient care directly in its own facility. 6)Requires congregate living health facilities (CLHFs) serving individuals who are terminally ill, catastrophically and severely disabled, mentally alert but physically disabled, or any combination of these individuals, to obtain and maintain a valid fire clearance from the appropriate authority having jurisdiction over the facility, based on compliance with state regulations concerning fire and life safety, as adopted by the SFM. 7)Requires the SFM, with the advice of the State Board of Fire Services, to adopt regulations establishing minimum requirements for the protection of life and property for CLHFs that recognize the residential and non-institutional setting of CLHFs. 8)Establishes the Lanterman Act, which gives individuals with disabilities the right to treatment and habilitation services and supports in the least restrictive environment. 9)For purposes of the Lanterman Act, requires the term "developmental disability" to include mental retardation, cerebral palsy, epilepsy, and autism. FISCAL EFFECT : Unknown COMMENTS : Purpose of the bill : According to the author, while originally intended as a term of respect, the term "mental retardation" has become a term of hostility, often associated with bullying and hate crimes. The term "mental retardation" has been replaced in SB 816 Page 3 California Codes with the term "intellectual disability." However, existing Welfare and Institutions Code Section 4512 still contains the term "mental retardation." This bill would correct this oversight. The author further states that existing Health and Safety Code contains an erroneous cross-reference of the Federal Code of Regulations which imposes incompatible requirements on the development of hospice facilities. This bill remedies this incorrect citation with the correct citation of the Federal Code of Regulations. Background : In 2012, SB 135 (Hernández) was signed into law. Among its many provisions, SB 135 makes OSHPD primarily responsible for the development of building standards for free-standing hospice facilities. Until OSHPD's regulations are developed and adopted, SB 135 requires facilities to meet building standards set out in federal regulations for hospices that provide inpatient care in their own facilities. According to the author, the intent of SB 135 was to require a hospice facility to meet the same building standards as a CLHF, which are not built under OSHPD authority as they have fewer beds, are more residential in nature, and have different zoning classifications (unlike OSHPD facilities, CLHFs are allowed in local neighborhoods. This bill corrects this incongruity by shifting primary responsibility for hospice facility building standards to the SFM. Arguments in Support : According to the California Hospice Palliative Care Association, existing Health and Safety Code contains an erroneous cross-reference of the Federal Code of Regulations and would impose incompatible requirements on the development of hospice facilities. SB 816 remedies this incorrect citation with the correct citation of the Federal Code of Regulations. The Arc California and United Cerebral Palsy in California argue that originally intended as a term of respect, the term "mental retardation" has become a term of hostility, often associated with bullying and hate crimes. This bill corrects an oversight and replaces the term with "intellectual disability." Double-referral : This bill was previously heard in the Assembly Committee on Health on June 11, 2013. The bill passed with a vote of 18-0. SB 816 Page 4 Previous Legislation : SB 135 (Hernández), Chapter 673, Statutes of 2012. Established a new health facility licensing category of hospice facility and permits a licensed and certified hospice services provider to provide inpatient hospice services through the operation of a hospice facility, either as a free standing health facility, or adjacent to, physically connected to, or on the building grounds of another health facility or a residential care facility. SB 1381 (Pavley), Chapter 457, Statutes of 2012. Deleted in state law references to "mental retardation" or a "mentally retarded person" and instead replaces them with "intellectual disability" or a "person with an intellectual disability." REGISTERED SUPPORT / OPPOSITION : Support The Arc and United Cerebral Palsy in California California Hospice and Palliative Care Association Opposition None on file Analysis Prepared by : Felipe Lopez / G. O. / (916) 319-2531