BILL ANALYSIS                                                                                                                                                                                                    Ó



                                                                  SB 816
                                                                  Page  1

          Date of Hearing:   June 26, 2013

                   ASSEMBLY COMMITTEE ON GOVERNMENTAL ORGANIZATION
                                 Isadore Hall, Chair
            SB 816 (Committee on Health) - As Introduced:  March 11, 2013

           SENATE VOTE  :   35-0
           
          SUBJECT  :   Hospice facilities: developmental disabilities:  
          intellectual disability

           SUMMARY  :   Makes the State Fire Marshal (SFM), rather than the  
          Office of Statewide Health Planning and Development (OSHPD),  
          responsible for the development of building standards for  
          hospice facilities, and makes other minor and technical  
          corrections to law related to hospice facilities and  
          intellectual disabilities.  Specifically,  this bill :   

          1)Requires the SFM, in consultation with OSHPD, to develop and  
            adopt building standards for hospice facilities.

          2)Corrects two references to federal regulations that establish  
            standards for hospice facilities.

          3)Replaces the term "mental retardation" with "intellectual  
            disability" in the definition of "developmental disability" in  
            the Lanterman Developmental Disabilities Services Act  
            (Lanterman Act) and makes other minor, technical corrections  
            in that definition.

           EXISTING LAW  

          1)Requires hospices to obtain a license from the Department of  
            Public Health (DPH) and to provide, or make provision for,  
            skilled nursing services, social services and/or counseling  
            services, medical direction, bereavement services, volunteer  
            services, inpatient care arrangements, and home health aide  
            services.

          2)Allows hospice facilities to operate as freestanding health  
            facilities with a capacity of no more than 24 beds that  
            provide routine care, continuous care, inpatient respite care,  
            and inpatient hospice care.

          3)Requires building standards for hospice facilities to apply  








                                                                  SB 816
                                                                  Page  2

            uniformly throughout the state.

          4)Until OSHPD, in consultation with the SFM, develops and adopts  
            building standards for hospice facilities, requires hospice  
            facilities to meet building standards and physical environment  
            requirements from federal Medicare Conditions of Participation  
            for a hospice that provides inpatient care directly in its own  
            facility.

          5)Requires the building standards developed by OSHPD to, at a  
            minimum, maintain the requirements specified in federal  
            Medicare Conditions of Participation for a hospice that  
            provides inpatient care directly in its own facility.

          6)Requires congregate living health facilities (CLHFs) serving  
            individuals who are terminally ill, catastrophically and  
            severely disabled, mentally alert but physically disabled, or  
            any combination of these individuals, to obtain and maintain a  
            valid fire clearance from the appropriate authority having  
            jurisdiction over the facility, based on compliance with state  
            regulations concerning fire and life safety, as adopted by the  
            SFM.

          7)Requires the SFM, with the advice of the State Board of Fire  
            Services, to adopt regulations establishing minimum  
            requirements for the protection of life and property for CLHFs  
            that recognize the residential and non-institutional setting  
            of CLHFs.

          8)Establishes the Lanterman Act, which gives individuals with  
            disabilities the right to treatment and habilitation services  
            and supports in the least restrictive environment.

          9)For purposes of the Lanterman Act, requires the term  
            "developmental disability" to include mental retardation,  
            cerebral palsy, epilepsy, and autism.

           FISCAL EFFECT  :   Unknown

           COMMENTS  :   

           Purpose of the bill  :  According to the author, while originally  
          intended as a term of respect, the term "mental retardation" has  
          become a term of hostility, often associated with bullying and  
          hate crimes.  The term "mental retardation" has been replaced in  








                                                                  SB 816
                                                                  Page  3

          California Codes with the term "intellectual disability."  
          However, existing Welfare and Institutions Code Section 4512  
          still contains the term "mental retardation." This bill would  
          correct this oversight. 

          The author further states that existing Health and Safety Code  
          contains an erroneous cross-reference of the Federal Code of  
          Regulations which imposes incompatible requirements on the  
          development of hospice facilities.  This bill remedies this  
          incorrect citation with the correct citation of the Federal Code  
          of Regulations.

           Background  :  In 2012, SB 135 (Hernández) was signed into law.   
          Among its many provisions, SB 135 makes OSHPD primarily  
          responsible for the development of building standards for  
          free-standing hospice facilities.  Until OSHPD's regulations are  
          developed and adopted, SB 135 requires facilities to meet  
          building standards set out in federal regulations for hospices  
          that provide inpatient care in their own facilities.  According  
          to the author, the intent of SB 135 was to require a hospice  
          facility to meet the same building standards as a CLHF, which  
          are not built under OSHPD authority as they have fewer beds, are  
          more residential in nature, and have different zoning  
          classifications (unlike OSHPD facilities, CLHFs are allowed in  
          local neighborhoods.  This bill corrects this incongruity by  
          shifting primary responsibility for hospice facility building  
          standards to the SFM.

           Arguments in Support  :  According to the California Hospice  
          Palliative Care Association, existing Health and Safety Code  
          contains an erroneous cross-reference of the Federal Code of  
          Regulations and would impose incompatible requirements on the  
          development of hospice facilities.  SB 816 remedies this  
          incorrect citation with the correct citation of the Federal Code  
          of Regulations. 

          The Arc California and United Cerebral Palsy in California argue  
          that originally intended as a term of respect, the term "mental  
          retardation" has become a term of hostility, often associated  
          with bullying and hate crimes.  This bill corrects an oversight  
          and replaces the term with "intellectual disability."
           Double-referral  : This bill was previously heard in the Assembly  
          Committee on Health on June 11, 2013. The bill passed with a  
          vote of 18-0.









                                                                  SB 816
                                                                  Page  4

           Previous Legislation  : SB 135 (Hernández), Chapter 673, Statutes  
          of 2012.  Established a new health facility licensing category  
          of hospice facility and permits a licensed and certified hospice  
          services provider to provide inpatient hospice services through  
          the operation of a hospice facility, either as a free standing  
          health facility, or adjacent to, physically connected to, or on  
          the building grounds of another health facility or a residential  
          care facility.

          SB 1381 (Pavley), Chapter 457, Statutes of 2012. Deleted in  
          state law references to "mental retardation" or a "mentally  
          retarded person" and instead replaces them with "intellectual  
          disability" or a "person with an intellectual disability."

           REGISTERED SUPPORT / OPPOSITION  :

           Support 
           
          The Arc and United Cerebral Palsy in California
          California Hospice and Palliative Care Association
           
            Opposition 
           
          None on file

           Analysis Prepared by  :    Felipe Lopez / G. O. / (916) 319-2531