BILL ANALYSIS                                                                                                                                                                                                    Ó



                                                                            



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                                    THIRD READING


          Bill No:  SB 1004
          Author:   Hernandez (D), et al.
          Amended:  5/5/14
          Vote:     21

           
           SENATE HEALTH COMMITTEE  :  9-0, 5/7/14
          AYES:  Hernandez, Morrell, Beall, De León, DeSaulnier, Evans,  
            Monning, Nielsen, Wolk

           SENATE APPROPRIATIONS COMMITTEE  :  7-0, 5/23/14
          AYES:  De León, Walters, Gaines, Hill, Lara, Padilla, Steinberg


           SUBJECT  :    Health facilities:  hospice care

           SOURCE  :     Author


           DIGEST  :    This bill requires the Department of Health Care  
          Services (DHCS) to request a federal Medicaid waiver to conduct  
          a pilot project and evaluate whether an adult pediatric  
          palliative care benefit should be offered in the Medi-Cal  
          program.

           ANALYSIS  :    

          Existing law:

        1. Establishes the Medi-Cal program, administered by DHCS, which  
             provides health care to children, seniors, persons with  
             disabilities, people also eligible for Medicare, and  
             low-income individuals and families.
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        2. Establishes the Nick Snow Children's Hospice and Palliative  
             Care Act of 2006, which requires DHCS, in consultation with  
             interested stakeholders, to develop a pediatric palliative  
             care pilot project to evaluate whether and to what extent  
             Medi-Cal beneficiaries under age 21 should be offered a  
             pediatric palliative care benefit.  Requires the project to  
             be implemented only to the extent that federal financial  
             participation (FFP) is available.  

        3. Defines  "palliative care" as a medical treatment,  
             interdisciplinary care, or consultation provided to a patient  
             or family members, or both, that has as its primary purpose  
             the prevention of, or relief from, suffering and the  
             enhancement of the quality of life, rather than treatment  
             aimed at investigation and intervention for the purpose of  
             cure or prolongation of life as described.  In some cases,  
             disease-targeted treatment may be used in palliative care.

        4. Defines "hospice care" as a specialized form of  
             interdisciplinary health care that is designed to provide  
             palliative care, alleviate the physical, emotional, social,  
             and spiritual discomforts of an individual who is  
             experiencing the last phases of life due to the existence of  
             a terminal disease, and provide supportive care to the  
             primary caregiver and the family of the hospice patient, and  
             that meets specified criteria.

        5. Establishes requirements for licensure as hospice, including  
             that the licensee provides specified services.

        6. Authorizes licensed hospices to provide, in addition to hospice  
             services, specified preliminary services for any person in  
             need of those services, as determined by the physician and  
             surgeon, if any, in charge of the care of a patient, or at  
             the request of the patient or family.

        7. Authorizes preliminary services to be provided concurrently  
             with curative treatment to a person who does not have a  
             terminal prognosis or who has not elected to receive hospice  
             services only by licensed and certified hospices.  Requires  
             these services to be subject to the schedule of benefits  
             under the Medi-Cal program.


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          This bill:

        1. Requires DHCS, in consultation with interested stakeholders, to  
             develop, as a pilot project, a palliative care benefit to  
             evaluate whether and to what extent, such a benefit should be  
             offered under the Medi-Cal program.  Requires the project to  
             be implemented only to the extent that FFP is available.

        2. Requires beneficiaries eligible to receive the palliative care  
             benefit to be 21 years of age or older, and authorizes DHCS  
             to further limit the population served by the pilot project  
             to a size deemed sufficient to evaluate the project.

        3. Requires services covered under the palliative care benefit to  
             include those types of services that are available through  
             the Medi-Cal hospice benefit, and also include:

           A.    Hospice services that are provided at the same time that  
                curative treatment is available, to the extent that the  
                services are not duplicative;

           B.    Hospice services provided to individual's whose  
                conditions may result in death, regardless of the  
                estimated length of the individual's remaining period of  
                life; and

           C.    Any other services that DHCS determines to be  
                appropriate.

        4. Requires DHCS, in consultation with interested stakeholders, to  
             determine the medical conditions and prognoses that render a  
             beneficiary eligible for the benefit.

        5. Requires providers authorized to provide services under the  
             pilot to include licensed hospice agencies and home health  
             agencies licensed to provide hospice care, subject to  
             criteria developed by DHCS for provider participation.

        6. Requires DHCS to submit any necessary application to the  
             federal Center for Medicaid and Medicare Services (CMS) for a  
             waiver to implement the pilot.  Requires DHCS to determine  
             the most appropriate form of waiver, and submit a request or  
             application within 12 months after the effective date of this  
             bill.  Requires DHCS to implement the waiver within 12 months  

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             of the date of approval.

        7. Requires the waiver to be designed to cover a period of time  
             necessary to evaluate the medical necessity for, and  
             cost-effectiveness of, a palliative care benefit, and  
             requires the result of the pilot to be made available to the  
             Legislature and appropriate policy and fiscal committees to  
             determine effectiveness of the benefit.

        8. Authorizes DHCS to implement the waiver by provider bulletin.

        9. Prohibits this bill from resulting in the elimination or  
             reduction of any covered benefits or services under the  
             Medi-Cal program.

        10.Prohibits this bill from affecting an individual's eligibility  
             to receive, concurrently with the palliative care benefit,  
             any services, including home health services, for which the  
             individual would have been eligible in the absence of this  
             bill.

           Comments
           
          According to the author's office, as noted in the California  
          State Health Care Innovation Plan (SHIP), an abundance of recent  
          evidence suggests that an expansion of patient and family  
          centered palliative care has the potential to change health  
          outcomes for many Californians, while reducing costs associated  
          with inpatient care.  Palliative care is designed to better  
          address patient preferences for patients facing advanced  
          illness.  California has already demonstrated success in  
          Medi-Cal with pediatric palliative care where a preliminary  
          analysis indicates that the program improves quality of life for  
          the child and family, average days in the hospital fell by  
          one-third, and shifting care from the hospital to in-home  
          community based care resulted in cost savings of $1,677 per  
          child per month on average.  With palliative care, patients can  
          live longer with a higher quality of life and fewer  
          hospitalizations.  Establishing a Medi-Cal palliative care  
          program for patients with serious advanced illness is good  
          policy and promotes better health outcomes for patients with a  
          serious illness.

           SHIP  .  SHIP was prepared in response to a federal State  

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          Innovation Model design grant.  The California Health and Human  
          Services Agency Let's Get Healthy California Task Force set an  
          overall target of bringing California's health care expenditures  
          growth rate in line with that of the gross state product by  
          2022, along with establishing targets for 38 health indicators.   
          SHIP centers around four initiatives, which focus on different  
          aspects of the health care system that experience particularly  
          high costs-uncoordinated care for people with complex chronic  
          conditions, maternity care, end of life care, and accountable  
          care communities.  Through the greater use of team-based care  
          and care coordination (including linking with community and  
          social services), implementation of best practices,  
          incorporation of lower-cost health providers where appropriate,  
          and respecting patient preferences for care options, these  
          initiatives will lower costs while improving health outcomes.   
          SHIP includes a recommendation for a palliative care initiative,  
          together with a Health Homes for Complex Patients Initiative,  
          which aims to identify patients in hospitals, long-term care  
          facilities, or the community, who may benefit from and desire  
          palliative care services, and offer them comprehensive  
          palliative care by people who are trained in this area.  

           Prior legislation  .  AB 1745 (Chan, Chapter 330, Statutes of  
          2006) required the Department of Health Services (now known as  
          DHCS) to develop, as a pilot project, a pediatric palliative  
          care benefit covered under Medi-Cal.  Requires DHCS to submit a  
          waiver to CMS to implement the pilot project.

           FISCAL EFFECT  :    Appropriation:  No   Fiscal Com.:  Yes    
          Local:  No

          According to the Senate Appropriations Committee:

           Likely costs of about $900,000 over two years to design the  
            pilot project and negotiate a waiver with the federal  
            government (General Fund and federal funds).  Based on the  
            workload to engage with stakeholders, design the pilot  
            project, and negotiate an agreement with the federal  
            government, staff estimates that DHCS would need about three  
            additional staff positions for one to two years.

           One-time costs, likely in the range of $150,000 to $300,000 to  
            conduct an evaluation of the pilot project once enough data  
            has been collected (General Fund and federal funds).

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           Unknown potential for cost savings from the pilot project  
            (General Fund and federal funds).  The state created a pilot  
            project for pediatric palliative care in the Medi-Cal program  
            from 2009 to 2012.  According to a preliminary analysis of the  
            pilot project, total spending for participants was about  
            $1,700 per month less than it would have been under standard  
            Medi-Cal pediatric benefits.  Similarly, an analysis of a  
            pilot project to provide adult palliative care benefits in New  
            York State indicated that hospitalization costs were  
            substantially reduced for program participants.

           SUPPORT  :   (Verified  5/23/14)

          AFSCME, AFL-CIO 
          Alliance of Catholic Health Care
          Association of Northern California Oncologists
          California Commission on Aging 
          California Dialysis Council 
          California Hospice and Palliative Care Association
          California Hospital Association
          Children's Hospice
          Health Access California 
          Medical Oncology Association of Southern California
          Providence Health & Services, Southern California and Providence  
            TrinityCare Hospice

           ARGUMENTS IN SUPPORT  :    The Association of Northern California  
          Oncologists believes this bill proposes a meaningful solution to  
          help ease the pain and suffering of cancer patients who are  
          seriously and terminally ill, and will support curative  
          treatment concurrently with hospice services for all eligible  
          beneficiaries.  The Alliance of Catholic Health Care writes that  
          Catholic hospitals are leaders in the provision of palliative  
          care and pain management, helping improve the quality of life  
          for seriously ill patients.  Among several important provisions,  
          this bill includes hospice services that are provided at the  
          same time that curative treatment is available, to the extent  
          the services are not duplicative, and are provided regardless of  
          the estimated length of time a beneficiary may be expected to  
          live.  This bill proposes a meaningful solution to help ease the  
          pain and suffering of patients who are seriously and terminally  
          ill, and will support curative/life prolonging treatment  
          concurrently with hospice services for all eligible  

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          beneficiaries.  The California Hospital Association supports  
          this bill as an excellent opportunity to evaluate the potential  
          benefit of access to palliative care for Medi-Cal beneficiaries.


          JL:k  5/25/14   Senate Floor Analyses 

                           SUPPORT/OPPOSITION:  SEE ABOVE

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