BILL ANALYSIS Ó ----------------------------------------------------------------- |SENATE RULES COMMITTEE | SB 1004| |Office of Senate Floor Analyses | | |1020 N Street, Suite 524 | | |(916) 651-1520 Fax: (916) | | |327-4478 | | ----------------------------------------------------------------- THIRD READING Bill No: SB 1004 Author: Hernandez (D), et al. Amended: 5/5/14 Vote: 21 SENATE HEALTH COMMITTEE : 9-0, 5/7/14 AYES: Hernandez, Morrell, Beall, De León, DeSaulnier, Evans, Monning, Nielsen, Wolk SENATE APPROPRIATIONS COMMITTEE : 7-0, 5/23/14 AYES: De León, Walters, Gaines, Hill, Lara, Padilla, Steinberg SUBJECT : Health facilities: hospice care SOURCE : Author DIGEST : This bill requires the Department of Health Care Services (DHCS) to request a federal Medicaid waiver to conduct a pilot project and evaluate whether an adult pediatric palliative care benefit should be offered in the Medi-Cal program. ANALYSIS : Existing law: 1. Establishes the Medi-Cal program, administered by DHCS, which provides health care to children, seniors, persons with disabilities, people also eligible for Medicare, and low-income individuals and families. CONTINUED SB 1004 Page 2 2. Establishes the Nick Snow Children's Hospice and Palliative Care Act of 2006, which requires DHCS, in consultation with interested stakeholders, to develop a pediatric palliative care pilot project to evaluate whether and to what extent Medi-Cal beneficiaries under age 21 should be offered a pediatric palliative care benefit. Requires the project to be implemented only to the extent that federal financial participation (FFP) is available. 3. Defines "palliative care" as a medical treatment, interdisciplinary care, or consultation provided to a patient or family members, or both, that has as its primary purpose the prevention of, or relief from, suffering and the enhancement of the quality of life, rather than treatment aimed at investigation and intervention for the purpose of cure or prolongation of life as described. In some cases, disease-targeted treatment may be used in palliative care. 4. Defines "hospice care" as a specialized form of interdisciplinary health care that is designed to provide palliative care, alleviate the physical, emotional, social, and spiritual discomforts of an individual who is experiencing the last phases of life due to the existence of a terminal disease, and provide supportive care to the primary caregiver and the family of the hospice patient, and that meets specified criteria. 5. Establishes requirements for licensure as hospice, including that the licensee provides specified services. 6. Authorizes licensed hospices to provide, in addition to hospice services, specified preliminary services for any person in need of those services, as determined by the physician and surgeon, if any, in charge of the care of a patient, or at the request of the patient or family. 7. Authorizes preliminary services to be provided concurrently with curative treatment to a person who does not have a terminal prognosis or who has not elected to receive hospice services only by licensed and certified hospices. Requires these services to be subject to the schedule of benefits under the Medi-Cal program. CONTINUED SB 1004 Page 3 This bill: 1. Requires DHCS, in consultation with interested stakeholders, to develop, as a pilot project, a palliative care benefit to evaluate whether and to what extent, such a benefit should be offered under the Medi-Cal program. Requires the project to be implemented only to the extent that FFP is available. 2. Requires beneficiaries eligible to receive the palliative care benefit to be 21 years of age or older, and authorizes DHCS to further limit the population served by the pilot project to a size deemed sufficient to evaluate the project. 3. Requires services covered under the palliative care benefit to include those types of services that are available through the Medi-Cal hospice benefit, and also include: A. Hospice services that are provided at the same time that curative treatment is available, to the extent that the services are not duplicative; B. Hospice services provided to individual's whose conditions may result in death, regardless of the estimated length of the individual's remaining period of life; and C. Any other services that DHCS determines to be appropriate. 4. Requires DHCS, in consultation with interested stakeholders, to determine the medical conditions and prognoses that render a beneficiary eligible for the benefit. 5. Requires providers authorized to provide services under the pilot to include licensed hospice agencies and home health agencies licensed to provide hospice care, subject to criteria developed by DHCS for provider participation. 6. Requires DHCS to submit any necessary application to the federal Center for Medicaid and Medicare Services (CMS) for a waiver to implement the pilot. Requires DHCS to determine the most appropriate form of waiver, and submit a request or application within 12 months after the effective date of this bill. Requires DHCS to implement the waiver within 12 months CONTINUED SB 1004 Page 4 of the date of approval. 7. Requires the waiver to be designed to cover a period of time necessary to evaluate the medical necessity for, and cost-effectiveness of, a palliative care benefit, and requires the result of the pilot to be made available to the Legislature and appropriate policy and fiscal committees to determine effectiveness of the benefit. 8. Authorizes DHCS to implement the waiver by provider bulletin. 9. Prohibits this bill from resulting in the elimination or reduction of any covered benefits or services under the Medi-Cal program. 10.Prohibits this bill from affecting an individual's eligibility to receive, concurrently with the palliative care benefit, any services, including home health services, for which the individual would have been eligible in the absence of this bill. Comments According to the author's office, as noted in the California State Health Care Innovation Plan (SHIP), an abundance of recent evidence suggests that an expansion of patient and family centered palliative care has the potential to change health outcomes for many Californians, while reducing costs associated with inpatient care. Palliative care is designed to better address patient preferences for patients facing advanced illness. California has already demonstrated success in Medi-Cal with pediatric palliative care where a preliminary analysis indicates that the program improves quality of life for the child and family, average days in the hospital fell by one-third, and shifting care from the hospital to in-home community based care resulted in cost savings of $1,677 per child per month on average. With palliative care, patients can live longer with a higher quality of life and fewer hospitalizations. Establishing a Medi-Cal palliative care program for patients with serious advanced illness is good policy and promotes better health outcomes for patients with a serious illness. SHIP . SHIP was prepared in response to a federal State CONTINUED SB 1004 Page 5 Innovation Model design grant. The California Health and Human Services Agency Let's Get Healthy California Task Force set an overall target of bringing California's health care expenditures growth rate in line with that of the gross state product by 2022, along with establishing targets for 38 health indicators. SHIP centers around four initiatives, which focus on different aspects of the health care system that experience particularly high costs-uncoordinated care for people with complex chronic conditions, maternity care, end of life care, and accountable care communities. Through the greater use of team-based care and care coordination (including linking with community and social services), implementation of best practices, incorporation of lower-cost health providers where appropriate, and respecting patient preferences for care options, these initiatives will lower costs while improving health outcomes. SHIP includes a recommendation for a palliative care initiative, together with a Health Homes for Complex Patients Initiative, which aims to identify patients in hospitals, long-term care facilities, or the community, who may benefit from and desire palliative care services, and offer them comprehensive palliative care by people who are trained in this area. Prior legislation . AB 1745 (Chan, Chapter 330, Statutes of 2006) required the Department of Health Services (now known as DHCS) to develop, as a pilot project, a pediatric palliative care benefit covered under Medi-Cal. Requires DHCS to submit a waiver to CMS to implement the pilot project. FISCAL EFFECT : Appropriation: No Fiscal Com.: Yes Local: No According to the Senate Appropriations Committee: Likely costs of about $900,000 over two years to design the pilot project and negotiate a waiver with the federal government (General Fund and federal funds). Based on the workload to engage with stakeholders, design the pilot project, and negotiate an agreement with the federal government, staff estimates that DHCS would need about three additional staff positions for one to two years. One-time costs, likely in the range of $150,000 to $300,000 to conduct an evaluation of the pilot project once enough data has been collected (General Fund and federal funds). CONTINUED SB 1004 Page 6 Unknown potential for cost savings from the pilot project (General Fund and federal funds). The state created a pilot project for pediatric palliative care in the Medi-Cal program from 2009 to 2012. According to a preliminary analysis of the pilot project, total spending for participants was about $1,700 per month less than it would have been under standard Medi-Cal pediatric benefits. Similarly, an analysis of a pilot project to provide adult palliative care benefits in New York State indicated that hospitalization costs were substantially reduced for program participants. SUPPORT : (Verified 5/23/14) AFSCME, AFL-CIO Alliance of Catholic Health Care Association of Northern California Oncologists California Commission on Aging California Dialysis Council California Hospice and Palliative Care Association California Hospital Association Children's Hospice Health Access California Medical Oncology Association of Southern California Providence Health & Services, Southern California and Providence TrinityCare Hospice ARGUMENTS IN SUPPORT : The Association of Northern California Oncologists believes this bill proposes a meaningful solution to help ease the pain and suffering of cancer patients who are seriously and terminally ill, and will support curative treatment concurrently with hospice services for all eligible beneficiaries. The Alliance of Catholic Health Care writes that Catholic hospitals are leaders in the provision of palliative care and pain management, helping improve the quality of life for seriously ill patients. Among several important provisions, this bill includes hospice services that are provided at the same time that curative treatment is available, to the extent the services are not duplicative, and are provided regardless of the estimated length of time a beneficiary may be expected to live. This bill proposes a meaningful solution to help ease the pain and suffering of patients who are seriously and terminally ill, and will support curative/life prolonging treatment concurrently with hospice services for all eligible CONTINUED SB 1004 Page 7 beneficiaries. The California Hospital Association supports this bill as an excellent opportunity to evaluate the potential benefit of access to palliative care for Medi-Cal beneficiaries. JL:k 5/25/14 Senate Floor Analyses SUPPORT/OPPOSITION: SEE ABOVE **** END **** CONTINUED