BILL ANALYSIS Ó SB 1135 Page 1 Date of Hearing: June 24, 2014 ASSEMBLY COMMITTEE ON HEALTH Richard Pan, Chair SB 1135 (Jackson) - As Amended: June 18, 2014 SENATE VOTE : 36-0 SUBJECT : Inmates: sterilization. SUMMARY : Prohibits sterilization for the purpose of birth control, including, but not limited to, during labor and delivery, of an individual under control of the Department of Corrections and Rehabilitation (CDCR), a reentry facility, community correctional facility, or county jail, or any other institution in which an individual is involuntarily confined or detained under a civil or criminal statute. Specifically, this bill : 1)Prohibits sterilization of an incarcerated individual through tubal ligation, hysterectomy, oophorectomy (surgical removal of the ovaries), or any other means rendering an individual permanently incapable of reproducing, except in either of the following circumstances: a) The procedure is required for the immediate preservation of the individual's life in an emergency medical situation; or, b) The sterilizing procedure is medically necessary, excluding for the purpose of birth control, as determined by contemporary standards of evidence-based medicine, to treat a diagnosed condition and all of the following requirements are satisfied: i) Less invasive measures to address the medical need are nonexistent, are refused by the individual, or are first attempted and deemed unsuccessful by the individual in consultations with his or her medical provider; ii) A second physician independent of the department overseeing the confinement of the individual conducts an in-person consultation and confirms the need for a medical intervention resulting in sterilization to address the medical need; and, SB 1135 Page 2 iii) Patient consent is obtained after the individual is made aware of the full and permanent impact the procedure will have on his or her reproductive capacity, and the side effects of the procedure. 2)Requires, if a sterilization procedure is performed, that the individual receive pre- and post-sterilization psychological consultation and appropriate medical follow-up. 3)Requires all facilities overseeing an incarcerated individual to publish an annual report of sterilizations performed, disaggregated by race, age, medical justification, and method of sterilization, and to provide notification to all individuals under their custody and to all employees involved in providing health services of their rights and responsibilities related to the provisions of this bill. 4)Specifies that an employee of a facility overseeing incarcerated individuals who reports the sterilization of an individual performed in violation of these provisions is entitled to protection under the California Whistleblower Protection Act. EXISTING LAW : 1)Prohibits the use in prisons of any cruel, corporal, or unusual punishment or to inflict any treatment or allow any lack of care that would injure or impair the health of the prisoner, inmate or person confined. 2)Prohibits an order for a particular medical treatment by a physician employed by CDCR from being modified or canceled by any employee of CDCR without the approval of the chief medical officer of the institution or the physician in attendance, except to protect the safety and security of the institution, as specified. 3)Specifies that any woman inmate will, upon her request, be allowed to continue to use materials necessary for personal hygiene with regard to her menstrual cycle and reproductive system and birth control measures as prescribed by her physician. EXISTING REGULATIONS : SB 1135 Page 3 1)Limit the provision of medical services for inmates of CDCR to only those services that are medically necessary. 2)Define "medically necessary," for purposes of medical care provided to incarcerated persons, as health care services that are determined by the attending physician to be reasonable and necessary to protect life, prevent significant illness or disability, or alleviate severe pain, and are supported by health outcome data as being effective medical care. 3)Define "significant illness or disability," for purposes of medical care provided to incarcerated persons, as any medical condition that causes or may cause, if left untreated, a severe limitation of function or ability to perform the daily activities of life or that may cause premature death. 4)Exclude certain medical treatment for incarcerated persons, including surgery that is not medically necessary, which specifically includes, but is not limited to, vasectomy and tubal ligation. 5)Permit treatment of excluded conditions in cases where the incarcerated person's attending physician prescribes the treatment, and the service is approved by the medical authorization review committee. 6)Require the decision of the medical authorization review committee, when determining whether to allow treatment of an excluded condition, to base the decision on: a) Available health and dental care outcome data supporting the effectiveness of the services; and, b) Other factors, including, but not limited to, co-existing medical problems, acuity, length of the incarcerated person's sentence, availability of the service, and cost. FISCAL EFFECT : According to the Senate Appropriations Committee, minor ongoing General Fund (GF) costs to CDCR to provide psychological consultations, as CDCR has indicated the provisions of this bill are consistent with current policy. Potentially significant state-reimbursable costs (GF) incurred by local agencies statewide for mandated medical professional SB 1135 Page 4 activities including second opinion in-person consultations, psychological counseling, and medical follow up to the extent sterilization of an individual is considered or performed under limited circumstances in county facilities. Minor to significant state-reimbursable costs (GF) to local agencies to provide notification to all applicable employees and persons in custody of the rights and responsibilities specified in this measure, as well as prepare and publish an annual report on sterilizations performed. Costs would be dependent on the volume and method in which notification is provided, which is not currently specified. COMMENTS : 1)PURPOSE OF THIS BILL . According to the author, despite current regulations which prohibit sterilizations of incarcerated people, medical providers were illegally authorizing tubal ligations on prisoners in Central California Women's Facility and Valley State Prison for Women. The author states that in 1999, for unknown reasons, a memo was circulated revising the medical standards for inmates and as part of the revision postpartum tubal ligations would be included in obstetric care. The author notes that this memo was in direct conflict with regulations as being "medically unnecessary," but the procedures were being performed anyway. The author contends that this bill is needed because women were robbed of their reproductive choice by these coerced procedures. 2)BACKGROUND . a) Medical Receivership. On June 30, 2005, in a class action lawsuit filed four years earlier, the United States District Court for the Northern District of California established a Receivership to take control of the delivery of medical services to all California state prisoners confined by CDCR. The court order establishing the Receivership provides that the Receivership "shall cease as soon as the Court is satisfied, and so finds in consultation with the Receiver, that Defendants have the will, capacity, and leadership to maintain a system of providing constitutionally adequate medical health care services to class members." The judge in the case issued an order in January of 2012 stating that because of the progress to date, "the end of the Receivership appears to SB 1135 Page 5 be in sight, and the Court seeks to get the parties' and the Receiver's views on when the Receivership should be terminated and how this case should progress after the Receivership has ended." On September 5, 2012, after considering the views of all parties involved in the case, the Court issued an order that outlined the process for Receivership transition of medical care back to CDCR, stating that "?To provide Defendants with an opportunity to demonstrate their ability to maintain a constitutionally adequate system of inmate medical care?the ultimate transfer of power back to the State (from the Receivership) will be transitional." Since that time, a few functions previously managed by the Receivership (guarding/transportation of inmates for medical purposes and construction/activation of facilities) has been returned to CDCR control. b) Center for Investigative Reporting articles. Stories published in July 2013 and February 2014 by the Center for Investigative Reporting (CIR) are cited by the author as background information for the problem this bill is attempting to solve. According to the CIR reports, between 2006 and 2010, at least 148 women received tubal ligations in violation of prison rules at two state prisons: the California Institution for Women in Corona and the Valley State Prison for Women in Chowchilla. According to the 2013 story, federal and state laws ban inmate sterilizations if federal funds are used, reflecting concerns that prisoners might feel pressured to comply. California used state funds instead, but since 1994, approval from top CDCR staff has been required on a case-by-case basis. Despite there being records of tubal ligations being performed at these two facilities, a review conducted by the Receiver's office found no requests to the health care committee responsible for approving such restricted surgeries. In an interview with CIR, the Valley State Prison medical manager said that she and her staff had discovered the procedure was restricted and subsequently began to look for ways around that restriction, believing the rules were unfair to women. The prison's OB-GYN said that he offered tubal ligations only to pregnant inmates with a history of at least three C-sections, stating that additional pregnancies would be dangerous for these women because scar tissue inside the uterus could tear, resulting in massive blood loss and SB 1135 Page 6 possible death. However, the reporter spoke to a number of previously incarcerated women who had less than three C-sections and had been repeatedly asked to agree to be sterilized. c) Bureau of State Audits Report. On Thursday, June 19, 2014 the California State Auditor released report 2013-120: "Sterilization of Female Inmates: Some Inmates Were Sterilized Unlawfully, and Safeguards Designed to Limit Occurrences of the Procedure Failed." The review includes an examination of each sterilization case from the last eight years to determine the demographics of each inmate, including economic status, ethnicity, race, number of prison terms, number of pregnancies and number of births. d) Audit Results. The CDCR oversees the inmate population of the State's 33 adult prisons. During the eight-year audit period-which was defined as fiscal years 2005-06 through 2012-13-four of these prisons housed substantially all of the female inmates: California Institution for Women, Central California Women's Facility, Folsom Women's Facility, and Valley State Prison for Women. For much of the audit period, CDCR's role in providing inmates with medical care was not significant; the more substantial role was played by California Correctional Health Care Services (Receiver's Office) under the direction of a federal court-appointed receiver. A receiver took control of prison medical care in 2006 and will retain control until the court finds that Corrections can maintain a constitutionally adequate prison medical care system. From fiscal years 2005-06 through 2012-13, 144 female inmates were sterilized by a procedure known as a bilateral tubal ligation. The last of these female inmate sterilizations occurred in 2011. Although various surgical procedures may result in a female's sterilization, bilateral tubal ligations are generally surgical procedures that are performed for the sole purpose of sterilization, and state regulations impose certain requirements that must be met before such a procedure is performed. However, the state entities responsible for providing medical care to these inmates, CDCR and the Receiver's Office - sometimes failed to ensure that inmates' consent for sterilization was lawfully obtained. SB 1135 Page 7 Overall, the audit notes that 39 inmates were sterilized following deficiencies in the informed consent process. The audit found two types of deficiencies. First, it found no evidence that the inmate's physician, the individual who would perform the procedure in a hospital or an alternate physician, signed the consent form as required by state regulations. Second, it noted potential violations of the required waiting period between when the inmate consented to the procedure and when the sterilization surgery actually took place. Some inmates were sterilized following violations of both of these requirements. Although neither CDCR nor employees of the Receiver's Office actually performed the sterilization procedures, the audit concluded that they had a responsibility to ensure the informed consent requirements were followed in those instances when their employees obtained inmates' consent, which was the case for at least 19 of the 39 inmates. Either the remaining 20 inmates signed their consent to be sterilized at a physical location other than a prison or the Receiver's Office had difficulty determining whether the individual who obtained consent was an employee. For example, the physician or an alternate physician must sign the consent form just before performing the surgery, and a waiting period is required after the patient signs the consent form. The audit states that the missing physicians' signatures on some of the inmates' consent forms are especially concerning because of what the physician signature certifies: that the required waiting period has been satisfied and that the patient appears mentally competent and understands the lasting effects of sterilization. The physician is the last check in the informed consent process and provides the patient with the final opportunity to change her mind. The Audit also found that Receiver's Office failed to ensure that the prison medical staff under its direction followed state regulations requiring specific approvals for bilateral tubal ligation procedures, including approvals by two committees made up of high-ranking prison medical staff and medical executives from the Receiver's Office and that the failure to obtain the necessary approvals was systemic; all but one of the 144 bilateral tubal ligation procedures lacked the necessary approvals. SB 1135 Page 8 Since January 2010, when the Receiver's Office asserts it became aware of the sterilization procedures-following allegations by a legal advocacy group-its medical claims data show that the number of female inmates who have undergone bilateral tubal ligations and other medical procedures that result in sterilization has greatly decreased. In addition, since that time the audit found that the Receiver's Office has better adhered to its processes for reviewing medical services for necessity and for obtaining required approvals for medical services. Nevertheless, because the function of approving a medical procedure has been and remains separate from the process for scheduling the procedure at a general acute care hospital or other community medical facility, the opportunity still exists for inmates to receive medical services that are not authorized. Audit Recommendations. The Auditor recommends numerous measures that the Receiver's office should implement including, but not limited to: To ensure that the necessary education and disciplinary action can be taken, the Receiver's Office should report to the California Department of Public Health, which licenses general acute care hospitals, and the Medical Board of California, which licenses physicians, the names of all hospitals and physicians associated with inmates' bilateral tubal ligations during fiscal years 2005-06 through 2012-13 for which consent was unlawfully obtained. The Audit recommends that the Receiver's Office should develop a plan by August 2014 to implement a process by December 2014 that provide additional training to prison medical staff regarding requirements for obtaining informed consent for sterilization procedures. The audit also recommends that until such time as the Receiver's Office implements a process for obtaining inmate consent for sterilization that complies with all aspects of the regulations, it should discontinue its practice of facilitating an inmate's consent for sterilization in the prison and allow the general acute care hospital to obtain an inmate's consent. In its response to the audit, the Receiver's Office SB 1135 Page 9 generally agreed with the report's factual findings, but noted that it reached conclusions about its duty to ensure compliance with the sterilization and consent procedures in regulation that differ from the report. Nevertheless, the Receiver's Office pledged to implement all of the recommendations. 3)SUPPORT . Justice Now is the sponsor of this bill and writes that in 1929 California legalized mandatory sterilizations and an estimated third of sterilizations nationwide were performed in California during the 20th century. Justice Now states that despite federal prohibitions and California legislative intent to guard against eugenics, their organization documented that between 2006 and 2010, at least 116 people imprisoned in women's prisons under the control of the CDCR were sterilized by tubal ligation for the purpose of birth control during labor and delivery. Justice Now argues that this bill is absolutely necessary to make sure that sterilization is not performed in the coercive prison environment for the purpose of permanently ending an individual's future chance of pregnancy. California Correctional Health Care Services writes that they put a halt to these procedures in 2010 when it was discovered that female inmates were being offered tubal ligations while in state prison as far back as 1999, despite a regulation in place at that time prohibiting this procedure except in extreme cases where the health of the inmate was at stake. California Correctional Health Care Services concludes that this bill will also place these requirements on county jail systems and with the implementation of public safety realignment and the corresponding increase in the number of females who will be housed for longer periods of time in county jails, it is important that this bill apply to local jails. Planned Parenthood Affiliates of California writes that while all women should be able to make autonomous decisions about their reproductive future, the coercive nature of the prison system raises the question of whether true consent can ever be achieved. 4)OPPOSITION . The American Congress of Obstetricians and Gynecologists, District IX California and the California Medical Association have an oppose unless amended position SB 1135 Page 10 because the bill does not recognize that there are medically indicated sterilizations for the purpose of birth control. Both organizations argue that there are some women whose medical history is so concerning that a subsequent pregnancy has a high likelihood of death or severe complication, so that a tubal ligation at the time of delivery of the current pregnancy is medically indicated and request that the bill be amended to allow for tubal ligation in those instances. 5)PREVIOUS LEGISLATION . SB 1079 (Rubio) of 2012 would have codified existing regulations limiting medical services for CDCR inmates to only those services which are medically necessary, excluding treatment for sexual dysfunction or infertility, gender reassignment surgery, and weight reduction surgery. SB 1079 failed passage in the Senate Public Safety Committee. 6)DOUBLE REFERRAL . This bill is double referred. It passed out of the Assembly Committee on Public Safety on June 17, 2014 with a vote of 7-0. REGISTERED SUPPORT / OPPOSITION : Support Justice Now (sponsor) All of Us or None American Civil Liberties Union of California Black and Pink, San Diego California Attorneys for Criminal Justice California Catholic Conference, Inc. California Coalition for Women Prisoners California Correctional Health Care Services California CURE California Legislative Women's Caucus California Partnership to End Domestic Violence Californians United for a Responsible Budget Critical Resistance Friends Committee on Legislation of California National Asian Pacific American Women's Forum Nevada County Citizens for Choice Planned Parenthood Affiliates of California Sister Song, Women of Color Reproductive Justice Collective The Center on Reproductive Rights and Justice at UC Berkeley School of Law SB 1135 Page 11 The Women's Foundation Women with a Vision Women's Fightback Network, New York City Chapter Women's Health Specialists Opposition American Congress of Obstetricians and Gynecologists, District IX California (unless amended) California Medical Association (unless amended) Analysis Prepared by : Lara Flynn / HEALTH / (916) 319-2097