BILL ANALYSIS Ó HR 6 Page 1 Date of Hearing: February 23, 2015 ASSEMBLY COMMITTEE ON RULES Gordon, Chair HR 6 (Achadjian) - As Introduced February 2, 2015 SUBJECT: Rare Disease Day. SUMMARY: Proclaims February 28, 2014, as Rare Disease Day in California. Specifically, this resolution makes the following legislative findings: 1)There are nearly 7,000 diseases and conditions considered rare; and, rare diseases as a group affecting almost 30 million Americans. 2)Many rare diseases are serious and debilitating conditions that have a significant impact on the lives of those affected; and, individuals and their families affected by rare diseases struggle with obtaining an accurate and timely diagnosis, few, if any treatment options, and problems related to accessing or being reimbursed for treatment. 3)Research into rare diseases builds greater understanding of the nature of disease and serves as a foundation for innovation in the United States. 4)Nearly one in 10 Americans has a rare disease, Californians are among those affected by those diseases. FISCAL EFFECT: None HR 6 Page 2 REGISTERED SUPPORT / OPPOSITION: Support None on file Opposition None on file Analysis Prepared by: Nicole Willis / RLS. / (916) 319-2800