BILL ANALYSIS Ó
HR 6
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Date of Hearing: February 23, 2015
ASSEMBLY COMMITTEE ON RULES
Gordon, Chair
HR
6 (Achadjian) - As Introduced February 2, 2015
SUBJECT: Rare Disease Day.
SUMMARY: Proclaims February 28, 2014, as Rare Disease Day in
California. Specifically, this resolution makes the following
legislative findings:
1)There are nearly 7,000 diseases and conditions considered
rare; and, rare diseases as a group affecting almost 30
million Americans.
2)Many rare diseases are serious and debilitating conditions
that have a significant impact on the lives of those affected;
and, individuals and their families affected by rare diseases
struggle with obtaining an accurate and timely diagnosis, few,
if any treatment options, and problems related to accessing or
being reimbursed for treatment.
3)Research into rare diseases builds greater understanding of
the nature of disease and serves as a foundation for
innovation in the United States.
4)Nearly one in 10 Americans has a rare disease, Californians
are among those affected by those diseases.
FISCAL EFFECT: None
HR 6
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REGISTERED SUPPORT / OPPOSITION:
Support
None on file
Opposition
None on file
Analysis Prepared
by: Nicole Willis / RLS. / (916) 319-2800