BILL ANALYSIS Ó ACR 120 Page 1 Date of Hearing: April 5, 2016 ASSEMBLY COMMITTEE ON PRIVACY AND CONSUMER PROTECTION Ed Chau, Chair ACR 120 (Mark Stone) - As Introduced January 19, 2016 SUBJECT: Data trusts: at-risk children SUMMARY: Declares the Legislature's support for the development of safe and secure data sharing between public education, social service, and research entities through the Silicon Valley Regional Data Trust (SVRDT) as it pertains to at-risk, foster, homeless, and justice-involved children and youth and their families. Specifically, this bill: 1)Recognizes that children in California would benefit from a reliable and secure data sharing environment that would assist social service providers and public education institutions in best responding to the personal circumstances and needs of students and families and would allow researchers using aggregate data to better support these efforts. 2)Recognizes that the mission of the SVRDT is to serve as a pilot demonstration site for addressing the needs of diverse communities using a comprehensive data-informed approach that provides quality services and promotes a healthy, safe, and prosperous community while safeguarding sensitive personal data. ACR 120 Page 2 3)Recognizes that improved collaborations between agencies can help address the complex challenges of serving vulnerable California children and their families. 4)Recognizes that the County of Santa Clara is currently participating in the FosterVision Project with the Santa Clara County Office of Education to share data about youth between schools and the county in the interest of improving services to foster and juvenile-justice-involved youth with appropriate protections to safeguard sensitive data. 5)Recognizes that the establishment of information sharing agreements through a tri-county regional data trust utilizing the Santa Clara County Office of Education Data Zone as the hub in partnership with the University of California, Santa Cruz, will help ensure that data systems are interoperable within and across agencies and sectors by adopting common data standards, definitions, and language to best serve the children in those counties. 6)Recognizes that, in order to safeguard the privacy of California children and families, it is essential that the data trust strictly adhere to existing state and federal law requiring the protection of personal information and data pertaining to students and at-risk youth and follow data security industry best practices in the interest of protecting California's most vulnerable youth while allowing appropriate data access and sharing. ACR 120 Page 3 7)Declares that the Legislature supports the development of safe and secure data sharing between public education, social service, and research entities through the SVRDT as it pertains specifically to at-risk, foster, homeless, and justice-involved children and youth and their families, in order to better serve, protect, and improve the futures of these Californians. EXISTING LAW: 1)Protects, pursuant to the federal Family Educational Rights and Privacy Act (FERPA), the confidentiality of educational records (and personally identifiable information contained therein) by prohibiting the funding of schools that permit the release of those records. It applies to all schools that receive funds under an applicable program of the U.S. Department of Education. Generally, schools must have written permission from the parent or eligible student in order to release any information from a student's education record. FERPA's prohibition only applies to the school itself and contains various exemptions where the data may be released without the written consent of the parents. (20 U.S.C. Sec. 1232g(b)(1)) 2)Prohibits, pursuant to the federal Children's Online Privacy Protection Act of 1998 (COPPA), an operator of a website or online service directed to children under the age of 13 from collecting personal information from a child, including a child's first and last name, home or other physical address including street name and name of a city or town, e-mail address, telephone number, or Social Security number. (5 U.S.C. 6501-6505) ACR 120 Page 4 3)Prohibits an operator from knowingly engaging in targeted advertising to students or their parents or legal guardians using covered information, as defined, amassing a profile of a K-12 student, selling a student's information, or disclosing covered information, as provided. (Business and Professions Code (BPC) Section 22584-85) 4)Defines an "operator" as the operator of a website, online service, online application, or mobile application with actual knowledge that the site, service, or application is used primarily for K-12 school purposes and was designed and marketed for K-12 school purposes. (BPC 22584(a)) 5)Requires an operator of a commercial website or online service that collects personally identifiable information through the Internet about individual consumers residing in California who use or visit its website to conspicuously post its privacy policy. (BPC 22575) FISCAL EFFECT: None COMMENTS: 1)Purpose of this bill . This bill is intended to express the Legislature's support for a regional data-sharing pilot project designed to improve educational and social service outcomes for youths in the foster and criminal justice systems. The bill is sponsored by the Silicon Valley Regional Data Trust (SVRDT). 2)Author's statement . According to the author, "Many vulnerable California students, including those who are in foster care ACR 120 Page 5 and those who are or have been involved in the juvenile justice system, face unique challenges that make it difficult for them to succeed academically. While both educational institutions and social service providers offer myriad programs to support at-risk students, students do not always participate in programs that would benefit them, or they are enrolled far later than they should be. Sometimes this happens because educational institutions and social service providers may not always share critical information about struggling students that would trigger interventions or enrollment in helpful programs." "The California Legislature has prioritized closing the achievement gap, as well as helping students in foster care and justice-involved youth succeed academically. ACR 120 reflects this commitment to helping these students by calling for appropriate, secure data sharing amongst service providers. Specifically, ACR 120 supports a proposed pilot project between the Santa Clara County Office of Education, the San Mateo County Office of Education, [Santa Cruz County] and the University of California Santa Cruz, in order to test this secure data-sharing approach to improving student outcomes. Additionally, ACR 120 calls for the data to be accessible to researchers who seek to study the proposed pilot project. "ACR 120 reflects the Legislature's long-standing commitment to helping improve educational and life outcomes of California's students." 3)The Silicon Valley Regional Data Trust . The SVRDT 's stated mission to apply "advanced analytics to a regional multi-agency dataset, balancing ethical, privacy, and social policies, to improve services and educational outcomes especially for children of poverty." ACR 120 Page 6 SVRDT supports data sharing among county agencies, school districts, non-profits and educational technology firms to inform regional policy, practice, and research. It intends to use the shared data to engage in mining and analysis that will facilitate personalization of learning plans and improvement of service provision to children of poverty. SVRDT is a pilot project at this stage and has not yet begun operations. Its website does not provide a target start-up date. 4)Data sharing, privacy and high-needs students . By its own account, SVRDT has not yet developed its guidelines for data privacy, saying that it "will develop guidelines for the Regional Data Trust that define and govern what is allowable under privacy regulations such as FERPA, HIPAA and COPPA and will develop data sharing agreements that accordingly protect students' privacy and confidentiality." However, the author contends that student data would be adequately protected under state law. "There are specific provisions [in existing law] that allow for data collection on student populations as long as the data remains the property of the school district and that it be used specifically for the tailoring of educational services by the schools, not for anything else?[Existing law also contains] specific provisions that allow for the existence of cloud-based data hubs that provide services for tailored education with no commercial use. The data is to be used and seen by teachers to support their in class activities and improve the educational outcomes of their students and nothing else. It is under these conditions that the SVRDT operates in conjunction with the Santa Clara County Office of Education." 5)Arguments in support . According to the sponsor, the SVRDT, "ACR 120 will designate the Silicon Valley Regional Data Trust ACR 120 Page 7 (SVRDT) as a pilot for implementing regional cross-agency data sharing in order to provide better integrated services to the region's most at-risk youth and families and could service as a statewide model?" "SVRDT is a partnership between the county offices of education and health and human service agencies of San Mateo, Santa Clara and Santa Cruz Counties and the University of California, Santa Cruz. It will link data from schools and health and human service agencies that serve the region's children and families. The Santa Clara County Office of Education's Data Zone will provide the technical infrastructure for SVRDT. SVRDT's foundation of governance, legal and technical infrastructures will insure the security and privacy of data in accordance with local, state and federal regulations. Public schools and health and human service agencies will collaborate with university researchers to maintain ethical standards of data access and use and to analyze data to answer questions crucial to providing efficient, effective and coordinated services. "By designating SVRDT as a pilot for implementing regional cross-agency data sharing, ACR 120 will afford SVRDT recognition that will support its efforts to build and sustain a secure information sharing environment and to attract resources. As a pilot, SVRDT can inform interagency data sharing in other regions of the state and help to shape state policies to support interagency data sharing that improves public services while maintaining data security and privacy." REGISTERED SUPPORT / OPPOSITION: Support ACR 120 Page 8 Silicon Valley Regional Data Trust (sponsor) Opposition None on file. Analysis Prepared by:Hank Dempsey / P. & C.P. / (916) 319-2200