BILL ANALYSIS                                                                                                                                                                                                    Ó



          SENATE COMMITTEE ON HEALTH
                          Senator Ed Hernandez, O.D., Chair

          BILL NO:                    AB 176    
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          |AUTHOR:        |Bonta                                          |
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          |VERSION:       |June 30, 2015                                  |
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          |HEARING DATE:  |July 8, 2015   |               |               |
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          |CONSULTANT:    |Shannon Muir                                   |
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           SUBJECT  :  Data collection

           SUMMARY  :  Requires the California Community Colleges, California State  
          University, University of California, Department of Health Care  
          Services, and Department of Managed Health Care to disaggregate  
          collection and tabulation categories for Native Hawaiian, and  
          Asian and Pacific Islander groups.   

          Existing law:
          1)Requires state agencies, boards, and commissions that directly  
            or by contract collect demographic data as to the ancestry or  
            ethnic origin of Californians to use separate collection  
            categories and tabulations for each major Asian and Pacific  
            Islander group, including, but not limited to, Chinese,  
            Japanese, Filipino, Korean, Vietnamese, Asian Indian, Laotian,  
            Cambodian, Hawaiian, Guamanian, and Samoan.


          2)Requires the Department of Industrial Relations (DIR) and the  
            Department of Fair Employment and Housing (DFEH) to collect  
            and tabulate data for those groups listed above, as well as  
            additional major Asian groups including, but not limited to,  
            Bangladeshi, Hmong, Indonesian, Malaysian, Pakistani, Sri  
            Lankan, Taiwanese, and Thai, and additional major Native  
            Hawaiian groups and other Pacific Islander groups including,  
            but not limited to Fijian and Tongan.


          This bill:
          1)Requires the Board of Governors of the California Community  
            Colleges (CCC) and the Trustees of the California State  
            University (CSU), and requests the Regents of the University  
            of California (UC), when collecting demographic data on  







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            students for a report that includes student admission,  
            enrollment, completion, or graduation rates, to use specified  
            collection and tabulation categories for Native Hawaiian and  
            Asian and Pacific Islander groups as follows:

                  a)        Until the release of the next decennial  
                    census, use the categories that were used as of  
                    January 1, 2015;
                  b)        Within 18 months after release of the  
                    decennial census, use Native Hawaiian and Asian and  
                    Pacific Islander categories as reported by the United  
                    States Census Bureau;
                  c)        Report on additional major Asian groups,  
                    including, but not limited to Bangladeshi, Cambodian,  
                    Hmong, Indonesian, Laotian, Malaysian, Pakistani, Sri  
                    Lankan, Taiwanese, and Thai, and additional major  
                    Native Hawaiian and other Pacific Islander groups  
                    including, but not limited to, Fijian and Tongan; and,
                  d)        Observe current standards regarding compliance  
                    with the Family Educational Rights Privacy Act and  
                    observe criteria for ensuring statistical significance  
                    of data collected and published.

          2)Requires CCC, CSU and UC, by July 1, 2016, to collect and  
            publish specified demographic data on their respective  
            websites and update the data annually. 

          3)Specifies that the provisions in this bill regarding  
            categorization requirements do not apply to graduate or  
            professional schools at UC. Requires this bill to only apply  
            to UC only if the UC Regents make it applicable by resolution.  
             

          4)Requires on or after July 1, 2016, the Department of Health  
            Care Services (DHCS) and the Department of Managed Health Care  
            (DMHC), when collecting patient demographic data for reports  
            on the type and amount of health care coverage, rates for  
            major diseases, leading causes of death, as specified,  
            pregnancy rates, and housing numbers, to use the following  
            separate collecting categories and tabulations, in addition to  
            the existing categories required by current law: 

                  a)        Major Asian groups, including, but not limited  
                    to, Bangladeshi, Hmong, Indonesian, Malaysian,  
                    Pakistani, Sri Lankan, Taiwanese, and Thai; and, 








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                  b)        Major Native Hawaiian and other Pacific  
                    Islander groups, including, but not limited to, Fijian  
                    and Tongan. 

           FISCAL EFFECT  : According to the Assembly Appropriations  
          Committee, based on the May 28, 2015 version of this bill:


          1)UC and CSU:  Minor and absorbable costs.


          2)CCC:  Districts currently report on about one-third of the  
            Census subgroups.  Given that this measure would not require  
            reporting for all subgroups until around 2023, districts  
            should be able to encompass this change within the course of  
            updating their current practices, costs should not be  
            significant.


          3)DHCS:  Non-responsive.


          4)DMHC:  No additional costs, as recently enacted legislation  
            already will require the department to meet the requirements  
            of this measure.


           PRIOR  
          VOTES  :  
          
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          |Assembly Floor:                     |77 - 1                      |
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          |Assembly Appropriations Committee:  |17 - 0                      |
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          |Assembly Higher Education           |12 - 1                      |
          |Committee:                          |                            |
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          COMMENTS  :
          1)Author's statement.  According to the author, when relying on  
            aggregate data of the Asian and Pacific Islander community, the  
            state of California fails to recognize that different Asian and  
            Pacific Islander ethnic subpopulations have different social and  
            economic conditions.  If the needs of each are not addressed  








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            properly, California runs the risk of greater health care costs  
            and lower educational outcomes for our future generations. Data  
            disaggregation is imperative for uncovering social, economic, and  
            educational disparities within the greater Asian population.

            Although many of the communities within the Asian and Pacific  
            Islander population face similar challenges in California, such as  
            language barriers and immigration, they differ on many issues.  
            This is most evident with respect to education and public health,  
            where the outcomes of some of the largest Asian and Pacific  
            Islander groups within the Asian and Pacific Islander population  
            raise the average outcome of the greater Asian and Pacific  
            Islander population as a whole. For example, although data related  
            to the average Asian and Pacific Islander student demonstrates  
            high academic achievements, disaggregated data sheds light on the  
            harsh reality that Southeast Asian subgroups suffer from much  
            lower achievement rates than other Asian and Pacific Islander  
            groups. Similarly, data from a 2013 report by the Asian American  
            Center for Advancing Justice demonstrates that 14% of Asian  
            Americans are uninsured; disaggregated data demonstrates that  
            Korean, Tongan, and Thai have uninsured rates higher than 22%,  
            whereas only 8-10% of Japanese and Indian populations are  
            uninsured.
            
          2)Background. According to an Asian and Pacific Islander  
            American Health Forum Report in 2010, in California,  
            aggregated Asian American and Native Hawaiian and Pacific  
            Islander data fail to capture the diversity and differences  
            across subgroups. For example, in the 1980s and 1990s,  
            aggregated Asian American and Native Hawaiian and Pacific  
            Islander data showed that the group had the lowest incidence  
            of breast cancer across races and ethnicities, and the belief  
            at the time was that "Asian women don't get breast cancer".  
            However, subsequent studies showed that Native Hawaiian women  
            had a very high incidence of breast cancer, second only to  
            white women, whereas Korean women had a very low incidence.  
            The high risk for Native Hawaiians was hidden by the  
            aggregation of data. Asian subpopulations also have varying  
            socioeconomic statuses, which are a large predictor of health  
            access. The 2010 U.S. Census data show Hmong Americans have a  
            poverty rate at 27.4%, compared to 9.3% of the aggregated  
            Asian community, and show low educational attainment levels  
            for Southeast Asians with14.8% of Hmong, 16% of Cambodian and  
            13.2% of Laotian Americans with a Bachelor's degree or higher  
            compared to 48.9% of Asians as a whole. The report stated that  








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            support for new primary data collection and longitudinal  
            studies are needed to fully capture the diverse social and  
            health assets and needs faced by all the Asian American and  
            Native Hawaiian and Pacific Islander communities.

          3)Joint Informational Hearing. On March 11, 2015, the California  
            Senate and Assembly Committees on Health held a joint  
            information hearing to examine health disparities in  
            California. Testimony provided by the Southeast Asia Resource  
            Action Center illustrated how the lack of disaggregated data  
            masks disparities within the Asian and Pacific Islander  
            community. For example, 24% of Hmong and Cambodian Americans  
            have diabetes, but there are no data regarding the number of  
            Hmong and Cambodian Americans that are served by California's  
            Heart Disease and Prevention Unit. Among recommendations was  
            disaggregating data for DHCS. The Committees also heard that  
            the federal Office of Minority Health has issued guidelines  
            for the collection of more granular and disaggregated  
            categories for race and ethnicity, and accordingly, California  
            should take administrative steps to standardize demographic  
            data categories for race and ethnicity in order to reduce  
            health disparities. Further, these actions should be jointly  
            implemented by DHCS and DMHC. 

          4)Double referral. This bill was heard in the Senate Education  
            Committee on June 24, 2015, and passed by a 9-0 vote.

          5)Prior legislation. AB 411 (Pan, 2013) would have required  
            DHCS, when entering into a new contract with an External  
            Quality Review Organization (EQRO) for the purpose of  
            performing work associated with Medi-Cal managed care  
            programs, to include in the terms of the new contract a  
            requirement that, upon approval of the contract, the EQRO  
            stratify all patient-specific Healthcare Effectiveness Data  
            and Information Set measures, or their External Accountability  
            Set performance measure equivalent, by certain  
            characteristics, including geographic area and primary  
            language. AB 411 would have required DHCS to publicly report  
            this analysis on its Internet Web site. AB 411 would have  
            provided that its provisions only be implemented to the extent  
            that funding is available. AB 411 was vetoed by the Governor  
            who stated that nothing in current law prevents DHCS from  
            requiring EQROs to provide more detailed data by geography,  
            race, ethnicity, or other demographic attribute. He concluded  
            that if DHCS saw a need or benefit that justifies the costs of  








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            procuring this additional data, he was confident that they  
            would procure it.  
          
            AB 1737 (Eng, 2010), would have required certain state  
            agencies to use additional separate collection categories and  
            tabulations for major Asian and Pacific Islander groups. AB  
            1737 was held on suspense in the Assembly Appropriations  
            Committee.
                     
            AB 295 (Lieu, 2007), would have required various state  
            entities to report collected demographic data according to  
            each major Asian and Pacific Islander group and make the data  
            available to the public to the extent that disclosure did not  
            violate confidentiality. AB 295 was vetoed by Governor  
            Schwarzenegger who stated that this bill was unnecessary and  
            imposed additional costs on state agencies at a time the state  
            cannot afford them, and that existing law gives state agencies  
            the flexibility to expand upon current demographic categories  
            if necessary. 

            AB 2420 (Lieu, 2006), was substantially similar to this bill,  
            and would have expanded from 11 to 23 the ancestry or ethnic  
            origin collection categories required to be collected by any  
            state agency, board, commission, CCC, or CSU. AB 2420 was held  
            on suspense in the Senate Appropriations Committee. 
            
          1)Support.  Several academic organizations are in support of the  
            bill. The UC Office of the President writes that this bill is  
            consistent with their goal and efforts to enroll a student  
            body that reflects California's diversity. The Executive  
            Committee of the UC Asian American and Pacific Islander Policy  
            Multicampus Research Unit states that without disaggregated  
            data problems in public health and education cannot be  
            addressed, leading to continuing disparities and higher costs  
            in services that may have been prevented with earlier  
            intervention. The Pasadena Area Community College District  
            states that greater data disaggregation is imperative for  
            uncovering social, economic, and educational disparities  
            within the greater Asian and Pacific Islander population.  
            Supporters also highlight the public health aspects of this  
            bill. The March of Dimes states that there is considerable  
            variation in rates of premature birth and infant mortality  
            across races and ethnicities and that this bill will increase  
            the availability of data on these disparities and benefits the  
            development of policies and programs to reduce these  








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            disparities. Hmong National Development, Inc. and Project  
            Prevention both state that current aggregation of Asian and  
            Pacific Islander data hinders public health research efforts. 

          2)Technical Amendments.

                  a)        On page 3, lines 32 and 33, delete "observe  
                    current standards regarding compliance" and replace  
                    with   "comply"

                  b)        On page 4: delete lines 16-28, on line 35,  
                    insert:: 
               
                    (3)  On or after July 1, 2016,  the Department of Health  
                    Care Services or the Department of Managed
                    Health Care, whenever collecting demographic data as  
                    to the ancestry or ethnic origin of persons for a  
                    report that includes the type and amount of
                    health care coverage, rates for major diseases,  
                    leading causes of
                    death per demographic, subcategories for leading  
                    causes of death
                    in California overall, pregnancy rates, or housing  
                    numbers.

           SUPPORT AND OPPOSITION  :
          Support:  Asian Americans for Community Involvement
                    AYPAL
                    California Asian Pacific Islander Budget Partnership
                    California Black Health Network
                    California Commission on Asian and Pacific Islander  
               American Affairs
                    California Faculty Association
                    California Immigrant Policy Center
                    California Pan-Ethnic Health Network
                    California State Council of the Service Employees  
               International Union
                    California State University
                    California Young Democrats Asian Pacific Islander  
               Caucus
                    Chinese for Affirmative Action (CAA)
                    Families in Good Health
                    Fresno Center for New Americans
                    Fresno Interdenominational Refugee Ministries
                    Healthy House Within a MATCH Coalition








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                    Hmong Movement Organizing for the Next Generation
                    Hmong National Development, Inc.
                    Hmong Student Association at California State  
               University, Fresno
                    Iu Mien Community Services
                    Khmer Girls in Action
                    Los Angeles Community College District
                    March of Dimes California Chapter
                    National Asian Pacific American Women's Forum
                    National Asian Pacific American Women's Forum Los  
               Angeles
                    National Asian Pacific American Women's Forum Orange  
               Coutny
                    National Asian Pacific American Women's Forum San  
               Diego
                    National Asian Pacific American Women's Forum San  
               Francisco Bay Area
                    OCA - Greater Los Angeles
                    Pasadena Community College District
                    Project Prevention Coaltion
                    San Jose Evergreen Valley Community College District
                    Southeast Asia Resource Action Center
                    Stone Soup Fresno
                    The Campaign for College Opportunity
                    United Cambodian Community
                    University of California
                    Young Invincibles 
                    Numerous individuals
          
          Oppose:   None received.
          
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