BILL ANALYSIS Ó SENATE COMMITTEE ON HEALTH Senator Ed Hernandez, O.D., Chair BILL NO: AB 176 --------------------------------------------------------------- |AUTHOR: |Bonta | |---------------+-----------------------------------------------| |VERSION: |June 30, 2015 | --------------------------------------------------------------- --------------------------------------------------------------- |HEARING DATE: |July 8, 2015 | | | --------------------------------------------------------------- --------------------------------------------------------------- |CONSULTANT: |Shannon Muir | --------------------------------------------------------------- SUBJECT : Data collection SUMMARY : Requires the California Community Colleges, California State University, University of California, Department of Health Care Services, and Department of Managed Health Care to disaggregate collection and tabulation categories for Native Hawaiian, and Asian and Pacific Islander groups. Existing law: 1)Requires state agencies, boards, and commissions that directly or by contract collect demographic data as to the ancestry or ethnic origin of Californians to use separate collection categories and tabulations for each major Asian and Pacific Islander group, including, but not limited to, Chinese, Japanese, Filipino, Korean, Vietnamese, Asian Indian, Laotian, Cambodian, Hawaiian, Guamanian, and Samoan. 2)Requires the Department of Industrial Relations (DIR) and the Department of Fair Employment and Housing (DFEH) to collect and tabulate data for those groups listed above, as well as additional major Asian groups including, but not limited to, Bangladeshi, Hmong, Indonesian, Malaysian, Pakistani, Sri Lankan, Taiwanese, and Thai, and additional major Native Hawaiian groups and other Pacific Islander groups including, but not limited to Fijian and Tongan. This bill: 1)Requires the Board of Governors of the California Community Colleges (CCC) and the Trustees of the California State University (CSU), and requests the Regents of the University of California (UC), when collecting demographic data on AB 176 (Bonta) Page 2 of ? students for a report that includes student admission, enrollment, completion, or graduation rates, to use specified collection and tabulation categories for Native Hawaiian and Asian and Pacific Islander groups as follows: a) Until the release of the next decennial census, use the categories that were used as of January 1, 2015; b) Within 18 months after release of the decennial census, use Native Hawaiian and Asian and Pacific Islander categories as reported by the United States Census Bureau; c) Report on additional major Asian groups, including, but not limited to Bangladeshi, Cambodian, Hmong, Indonesian, Laotian, Malaysian, Pakistani, Sri Lankan, Taiwanese, and Thai, and additional major Native Hawaiian and other Pacific Islander groups including, but not limited to, Fijian and Tongan; and, d) Observe current standards regarding compliance with the Family Educational Rights Privacy Act and observe criteria for ensuring statistical significance of data collected and published. 2)Requires CCC, CSU and UC, by July 1, 2016, to collect and publish specified demographic data on their respective websites and update the data annually. 3)Specifies that the provisions in this bill regarding categorization requirements do not apply to graduate or professional schools at UC. Requires this bill to only apply to UC only if the UC Regents make it applicable by resolution. 4)Requires on or after July 1, 2016, the Department of Health Care Services (DHCS) and the Department of Managed Health Care (DMHC), when collecting patient demographic data for reports on the type and amount of health care coverage, rates for major diseases, leading causes of death, as specified, pregnancy rates, and housing numbers, to use the following separate collecting categories and tabulations, in addition to the existing categories required by current law: a) Major Asian groups, including, but not limited to, Bangladeshi, Hmong, Indonesian, Malaysian, Pakistani, Sri Lankan, Taiwanese, and Thai; and, AB 176 (Bonta) Page 3 of ? b) Major Native Hawaiian and other Pacific Islander groups, including, but not limited to, Fijian and Tongan. FISCAL EFFECT : According to the Assembly Appropriations Committee, based on the May 28, 2015 version of this bill: 1)UC and CSU: Minor and absorbable costs. 2)CCC: Districts currently report on about one-third of the Census subgroups. Given that this measure would not require reporting for all subgroups until around 2023, districts should be able to encompass this change within the course of updating their current practices, costs should not be significant. 3)DHCS: Non-responsive. 4)DMHC: No additional costs, as recently enacted legislation already will require the department to meet the requirements of this measure. PRIOR VOTES : ----------------------------------------------------------------- |Assembly Floor: |77 - 1 | |------------------------------------+----------------------------| |Assembly Appropriations Committee: |17 - 0 | |------------------------------------+----------------------------| |Assembly Higher Education |12 - 1 | |Committee: | | ----------------------------------------------------------------- COMMENTS : 1)Author's statement. According to the author, when relying on aggregate data of the Asian and Pacific Islander community, the state of California fails to recognize that different Asian and Pacific Islander ethnic subpopulations have different social and economic conditions. If the needs of each are not addressed AB 176 (Bonta) Page 4 of ? properly, California runs the risk of greater health care costs and lower educational outcomes for our future generations. Data disaggregation is imperative for uncovering social, economic, and educational disparities within the greater Asian population. Although many of the communities within the Asian and Pacific Islander population face similar challenges in California, such as language barriers and immigration, they differ on many issues. This is most evident with respect to education and public health, where the outcomes of some of the largest Asian and Pacific Islander groups within the Asian and Pacific Islander population raise the average outcome of the greater Asian and Pacific Islander population as a whole. For example, although data related to the average Asian and Pacific Islander student demonstrates high academic achievements, disaggregated data sheds light on the harsh reality that Southeast Asian subgroups suffer from much lower achievement rates than other Asian and Pacific Islander groups. Similarly, data from a 2013 report by the Asian American Center for Advancing Justice demonstrates that 14% of Asian Americans are uninsured; disaggregated data demonstrates that Korean, Tongan, and Thai have uninsured rates higher than 22%, whereas only 8-10% of Japanese and Indian populations are uninsured. 2)Background. According to an Asian and Pacific Islander American Health Forum Report in 2010, in California, aggregated Asian American and Native Hawaiian and Pacific Islander data fail to capture the diversity and differences across subgroups. For example, in the 1980s and 1990s, aggregated Asian American and Native Hawaiian and Pacific Islander data showed that the group had the lowest incidence of breast cancer across races and ethnicities, and the belief at the time was that "Asian women don't get breast cancer". However, subsequent studies showed that Native Hawaiian women had a very high incidence of breast cancer, second only to white women, whereas Korean women had a very low incidence. The high risk for Native Hawaiians was hidden by the aggregation of data. Asian subpopulations also have varying socioeconomic statuses, which are a large predictor of health access. The 2010 U.S. Census data show Hmong Americans have a poverty rate at 27.4%, compared to 9.3% of the aggregated Asian community, and show low educational attainment levels for Southeast Asians with14.8% of Hmong, 16% of Cambodian and 13.2% of Laotian Americans with a Bachelor's degree or higher compared to 48.9% of Asians as a whole. The report stated that AB 176 (Bonta) Page 5 of ? support for new primary data collection and longitudinal studies are needed to fully capture the diverse social and health assets and needs faced by all the Asian American and Native Hawaiian and Pacific Islander communities. 3)Joint Informational Hearing. On March 11, 2015, the California Senate and Assembly Committees on Health held a joint information hearing to examine health disparities in California. Testimony provided by the Southeast Asia Resource Action Center illustrated how the lack of disaggregated data masks disparities within the Asian and Pacific Islander community. For example, 24% of Hmong and Cambodian Americans have diabetes, but there are no data regarding the number of Hmong and Cambodian Americans that are served by California's Heart Disease and Prevention Unit. Among recommendations was disaggregating data for DHCS. The Committees also heard that the federal Office of Minority Health has issued guidelines for the collection of more granular and disaggregated categories for race and ethnicity, and accordingly, California should take administrative steps to standardize demographic data categories for race and ethnicity in order to reduce health disparities. Further, these actions should be jointly implemented by DHCS and DMHC. 4)Double referral. This bill was heard in the Senate Education Committee on June 24, 2015, and passed by a 9-0 vote. 5)Prior legislation. AB 411 (Pan, 2013) would have required DHCS, when entering into a new contract with an External Quality Review Organization (EQRO) for the purpose of performing work associated with Medi-Cal managed care programs, to include in the terms of the new contract a requirement that, upon approval of the contract, the EQRO stratify all patient-specific Healthcare Effectiveness Data and Information Set measures, or their External Accountability Set performance measure equivalent, by certain characteristics, including geographic area and primary language. AB 411 would have required DHCS to publicly report this analysis on its Internet Web site. AB 411 would have provided that its provisions only be implemented to the extent that funding is available. AB 411 was vetoed by the Governor who stated that nothing in current law prevents DHCS from requiring EQROs to provide more detailed data by geography, race, ethnicity, or other demographic attribute. He concluded that if DHCS saw a need or benefit that justifies the costs of AB 176 (Bonta) Page 6 of ? procuring this additional data, he was confident that they would procure it. AB 1737 (Eng, 2010), would have required certain state agencies to use additional separate collection categories and tabulations for major Asian and Pacific Islander groups. AB 1737 was held on suspense in the Assembly Appropriations Committee. AB 295 (Lieu, 2007), would have required various state entities to report collected demographic data according to each major Asian and Pacific Islander group and make the data available to the public to the extent that disclosure did not violate confidentiality. AB 295 was vetoed by Governor Schwarzenegger who stated that this bill was unnecessary and imposed additional costs on state agencies at a time the state cannot afford them, and that existing law gives state agencies the flexibility to expand upon current demographic categories if necessary. AB 2420 (Lieu, 2006), was substantially similar to this bill, and would have expanded from 11 to 23 the ancestry or ethnic origin collection categories required to be collected by any state agency, board, commission, CCC, or CSU. AB 2420 was held on suspense in the Senate Appropriations Committee. 1)Support. Several academic organizations are in support of the bill. The UC Office of the President writes that this bill is consistent with their goal and efforts to enroll a student body that reflects California's diversity. The Executive Committee of the UC Asian American and Pacific Islander Policy Multicampus Research Unit states that without disaggregated data problems in public health and education cannot be addressed, leading to continuing disparities and higher costs in services that may have been prevented with earlier intervention. The Pasadena Area Community College District states that greater data disaggregation is imperative for uncovering social, economic, and educational disparities within the greater Asian and Pacific Islander population. Supporters also highlight the public health aspects of this bill. The March of Dimes states that there is considerable variation in rates of premature birth and infant mortality across races and ethnicities and that this bill will increase the availability of data on these disparities and benefits the development of policies and programs to reduce these AB 176 (Bonta) Page 7 of ? disparities. Hmong National Development, Inc. and Project Prevention both state that current aggregation of Asian and Pacific Islander data hinders public health research efforts. 2)Technical Amendments. a) On page 3, lines 32 and 33, delete "observe current standards regarding compliance" and replace with "comply" b) On page 4: delete lines 16-28, on line 35, insert:: (3) On or after July 1, 2016, the Department of Health Care Services or the Department of Managed Health Care, whenever collecting demographic data as to the ancestry or ethnic origin of persons for a report that includes the type and amount of health care coverage, rates for major diseases, leading causes of death per demographic, subcategories for leading causes of death in California overall, pregnancy rates, or housing numbers. SUPPORT AND OPPOSITION : Support: Asian Americans for Community Involvement AYPAL California Asian Pacific Islander Budget Partnership California Black Health Network California Commission on Asian and Pacific Islander American Affairs California Faculty Association California Immigrant Policy Center California Pan-Ethnic Health Network California State Council of the Service Employees International Union California State University California Young Democrats Asian Pacific Islander Caucus Chinese for Affirmative Action (CAA) Families in Good Health Fresno Center for New Americans Fresno Interdenominational Refugee Ministries Healthy House Within a MATCH Coalition AB 176 (Bonta) Page 8 of ? Hmong Movement Organizing for the Next Generation Hmong National Development, Inc. Hmong Student Association at California State University, Fresno Iu Mien Community Services Khmer Girls in Action Los Angeles Community College District March of Dimes California Chapter National Asian Pacific American Women's Forum National Asian Pacific American Women's Forum Los Angeles National Asian Pacific American Women's Forum Orange Coutny National Asian Pacific American Women's Forum San Diego National Asian Pacific American Women's Forum San Francisco Bay Area OCA - Greater Los Angeles Pasadena Community College District Project Prevention Coaltion San Jose Evergreen Valley Community College District Southeast Asia Resource Action Center Stone Soup Fresno The Campaign for College Opportunity United Cambodian Community University of California Young Invincibles Numerous individuals Oppose: None received. -- END --