ACR 156, Low. World Hemophilia Day.
This measure would recognize April 17, 2016, as World Hemophilia Day.
WHEREAS, Hemophilia is a rare genetic bleeding disorder in which one of the proteins that causes blood to clot is missing, or there is not enough of the protein to work properly, causing people to bleed longer; and
WHEREAS, Without effective blood clotting, cuts and internal injuries have difficulty healing and internal bleeding into the joints can result in pain and permanent damage; and
WHEREAS, Hemophilia is typically a lifelong condition that is primarily treated with infusions of a protein involved in blood clotting; and
WHEREAS, It is estimated that more than 400,000 people worldwide are living with hemophilia; and
WHEREAS, Approximately 20,000 people in the United States are living with hemophilia; and
WHEREAS, Hemophilia is found in all populations; and
WHEREAS, People living with hemophilia and those caring for and serving them are strongly united in advocating for access to treatment and care; now, therefore, be it
Resolved by the Assembly of the State of California, the Senate thereof concurring, That the Legislature recognizes April 17, 2016, as World Hemophilia Day; and be it further
Resolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.
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