BILL ANALYSIS Ó AB 1526 Page 1 CONCURRENCE IN SENATE AMENDMENTS AB 1526 (Committee on Aging and Long-Term Care) As Amended September 4, 2015 Majority vote -------------------------------------------------------------------- |ASSEMBLY: |79-0 |(June 1, 2015) |SENATE: |40-0 |(September 9, | | | | | | |2015) | | | | | | | | | | | | | | | -------------------------------------------------------------------- Original Committee Reference: AGING & L.T.C. SUMMARY: Directs the Department of Public Health (DPH), by January 1, 2017, to include the federal Centers for Disease Control and Prevention's (CDC) Caregiver Module in the annual Behavioral Risk Factor Surveillance System (BRFSS) survey. The Senate amendments limit inclusion of the Caregiver Module in the CDC's BRFSS to once before 2017, and allows the Caregiver Module to be administered on one track to limit potential costs. Background: The Behavioral Risk Factor Surveillance System (BRFSS) is a cross-sectional telephone survey that state health departments conduct with a standardized questionnaire, and technical and methodological assistance from CDC. BRFSS is used AB 1526 Page 2 to collect prevalence data among United States residents regarding behaviors that create health risks, as well as preventive practices that reduce health risks. Data is forwarded to CDC, aggregated for each state, returned with standard tabulations, and published at year's end. In 2011, more than 500,000 interviews were conducted nationwide. By collecting behavioral health risk data at the state and local level, BRFSS has become a powerful tool for targeting and building health promotion activities. As a result, BRFSS users have increasingly demanded more data and asked for more questions on the survey. BRFSS Caregiver Module: Beginning in 2009, a special set of 10 questions have been available to examine various aspects of caregiving, referred to as the "Caregiver Module." The questions allow states to determine who is a caregiver; the relationship between the caregiver and the care recipient; the average hours of caregiving per week; the most difficult problem facing the caregiver; the age and gender of the care recipient; the types of assistance needed by the care recipient; the major health problem, long-term illness, or disability of the care recipient; the duration of caregiving; and whether the person has had more difficulty with thinking or remembering in the past year. The responses from the caregiver module are then paired with information from the main BRFSS questionnaire, which allow for additional information about the health and well-being of caregivers. Caregiving: California is home to the largest number of seniors in the nation and their numbers are expanding at a pace unprecedented in history. Caregivers support the needs of dependent individuals in a variety of ways, performing a range of tasks, including companionship, light house-keeping, meal preparation, and personal care to name just a few. More complex and sensitive tasks include money management, medication management, communicating with health professionals, and coordinating care. The Family Caregiver Alliance finds that many family members and friends do not consider such assistance and care "caregiving" - they are just doing what comes naturally to them: taking care of someone they love. But that care may be AB 1526 Page 3 required for months or years, and may take an emotional, physical and financial toll on caregiving families. The value of the services family caregivers provide for "free," when caring, was estimated to be $450 billion in 2009. The estimated value of unpaid care in California is $47 billion, accounting for over 3.8 billion hours of care. On the personal side, long-term caregiving has significant financial consequences for caregivers, particularly for women. Informal caregivers personally lose about $659,139 over a lifetime: $25,494 in Social Security benefits; $67,202 in pension benefits; and $566,443 in forgone wages. Caregivers face the loss of income of the care recipient, loss of their own income if they reduce their work hours or leave their jobs, loss of employer-based medical benefits, shrinking of savings to pay caregiving costs, and a threat to their retirement income due to fewer contributions to pensions and other retirement vehicles. FISCAL EFFECT: According to the Senate Appropriations Committee, annual costs of $150,000 per year to expand the existing survey to include the optional caregiving module (General Fund). The DPH indicates that it costs $7,500 per additional question to expand the existing survey, including the costs to conduct phone interviews and compile responses. Amendments taken in the Senate limit the survey to once (instead of once each year, for five years) before 2017, and limit the survey to a single track (instead of the typical dual track survey). Analysis Prepared by: Robert MacLaughlin / AGING & L.T.C. / (916) 319-3990 FN: 0002329 AB 1526 Page 4