BILL ANALYSIS                                                                                                                                                                                                    Ó






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                                   THIRD READING 


          Bill No:  AB 1864
          Author:   Cooley (D), et al.
          Amended:  3/17/16 in Assembly
          Vote:     21 

           SENATE PUBLIC SAFETY COMMITTEE:  7-0, 6/14/16
           AYES:  Hancock, Anderson, Glazer, Leno, Liu, Monning, Stone

           SENATE APPROPRIATIONS COMMITTEE: Senate Rule 28.8

           ASSEMBLY FLOOR:  78-0, 5/12/16 (Consent) - See last page for  
            vote

           SUBJECT:   Inquests:  sudden unexplained death in childhood


          SOURCE:    Sudden Unexplained Death in Childhood Foundation



          DIGEST:  This bill defines "sudden unexplained death in  
          childhood" (SUDC), and requires a coroner to notify the parents  
          or responsible adult of a child that comes within the definition  
          of the importance of taking tissue samples, as specified.


          ANALYSIS:  


          Existing law: 

          1)Requires a coroner to investigate the circumstances, manner,  
            and cause of specified types of deaths, including violent,  








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            sudden, or unusual deaths; unattended deaths; and deaths where  
            the deceased has not been attended to by a physician within 20  
            days before the death occurred.  Existing law affords the  
            coroner with the discretion to determine the extent of the  
            inquiry into a death occurring under natural circumstances,  
            and allows the coroner to authorize a physician to sign the  
            certificate of death if the physician has sufficient knowledge  
            to reasonably state the cause of a death occurring under  
            natural circumstances.  (Government Code § 27491.)  

          2)Provides that a coroner shall within 24 hours, or as soon as  
            feasible thereafter, where the suspected cause of death is  
            sudden infant death syndrome (SIDS), take possession of the  
            body, and make or cause to be made a postmortem examination or  
            autopsy thereon, and the detailed medical findings resulting  
            from an examination of the body or autopsy by an examining  
            physician must either be reduced to writing, or permanently  
            preserved, as specified.  (Government Code § 27491.4(a).)

          3)Defines "sudden infant death syndrome" to mean the sudden  
            death of an infant that is unexpected by the history of the  
            infant and where a thorough postmortem fails to demonstrate an  
            adequate cause of death.  (Government Code  § 27491.49(a).)

          4)Requires that an autopsy conducted where it is suspected that  
            the cause of death is SIDS be conducted pursuant to a  
            standardized protocol developed by the State Department of  
            Public Health.  The protocol shall be developed and approved  
            by July 1, 1990.  (Government Code § 27491.41(d.).)

          5)Requires that all coroners, throughout the state, follow the  
            established protocol when conducting autopsies where the  
            suspected cause of death is SIDS, and requires a coroner to  
            state on the certificate of death that SIDS was the cause of  
            death when the findings are consistent with the definition of  
            SIDS.  (Government Code § 27491.41(e).)

          6)Requires a coroner to perform or arrange for an autopsy on a  
            decedent upon a written request of the surviving spouse, or in  
            certain circumstances, a child, parent, or other legal  
            next-of-kin; and requires the cost of the autopsy to be borne  
            by the person requesting the autopsy.  (Government Code §  
            27520.)








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          This bill: 

          1)Defines "sudden unexplained death in childhood" as the sudden  
            death of a child one year of age or older but under 18 years  
            of age that is unexplained by the history of the child and  
            where a thorough post mortem exam fails to demonstrate  
            adequate cause for the death.

          2)Requires the coroner to notify the parents or responsible  
            adult of a child that comes within the SUDC definition of the  
            importance of taking tissue samples.

          3)States that a coroner shall not be liable for damages in a  
            civil action for any act or omission in compliance with the  
            above provision.

          Background

          According to the Sudden Unexplained Death in Childhood Program's  
          (SUDCP) Web site, SUDC is a rare condition that occurs in  
          children over the age of 12 months. According to the SUDCP, SUDC  
          is a diagnosis of exclusion that is given when all known and  
          possible causes of death have been ruled out. The SUDCP states  
          that the incidence of SUCD is approximately 1.3 deaths per  
          100,000 children, compared to 57 deaths per 100,000 live births  
          for SIDS in 2002.  (http://sudc. org/About/FAQs.)  The Web site  
          additionally, states, with regard to the collection of tissue: 

            If available to you, SUDC encourages the banking of your  
            child's DNA to provide you with options to pursue more  
            information about your child's death. As clinical testing  
            advances and research options improve, you may want to access  
            these opportunities. Securing a genetic specimen (DNA) from  
            your child may provide: 

            §   the opportunity for genetic testing to uncover specific  
              cause of death and appropriate testing of family


            §   the opportunity for genetic testing to provide negative  
              results - which may assist in decreasing some anxiety









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            §   the opportunity for storing a genetic specimen -banking  
              DNA 


              §     Instill hope for cases that currently defy  
                understanding


              §     Allow for participation in present or future research


              §     Allow families to benefit from potential benefit of  
                future discoveries


            (http://sudc.org/Research/Securing-and-Banking-DNA-after-SUDC.) 


          According to the author, "reasons to take samples in SUDC cases  
          include observing tissues for abnormalities or damage, and  
          banking DNA for further investigation."  To this end, this bill  
          requires the coroner to notify the parents of the importance of  
          taking tissue samples. 


          FISCAL EFFECT:   Appropriation:    No          Fiscal  
          Com.:YesLocal:   Yes


          SUPPORT:   (Verified6/27/16)



          Sudden Unexplained Death in Childhood Foundation (source)


          Several individuals 



          OPPOSITION:   (Verified6/27/16)


          California State Coroners' Association 







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          ASSEMBLY FLOOR:  78-0, 5/12/16
          AYES:  Achadjian, Alejo, Travis Allen, Arambula, Atkins, Baker,  
            Bigelow, Bloom, Bonilla, Bonta, Brough, Brown, Calderon,  
            Campos, Chang, Chau, Chávez, Chiu, Chu, Cooley, Cooper,  
            Dababneh, Dahle, Daly, Dodd, Eggman, Frazier, Beth Gaines,  
            Gallagher, Cristina Garcia, Eduardo Garcia, Gatto, Gipson,  
            Gomez, Gonzalez, Gordon, Gray, Grove, Hadley, Harper, Roger  
            Hernández, Holden, Irwin, Jones, Kim, Lackey, Levine, Linder,  
            Lopez, Low, Maienschein, Mathis, Mayes, McCarty, Medina,  
            Melendez, Mullin, Nazarian, Obernolte, O'Donnell, Olsen,  
            Patterson, Quirk, Ridley-Thomas, Rodriguez, Salas, Santiago,  
            Steinorth, Mark Stone, Thurmond, Ting, Wagner, Waldron, Weber,  
            Wilk, Williams, Wood, Rendon
          NO VOTE RECORDED:  Burke, Jones-Sawyer

          Prepared by:Jessica  Devencenzi / PUB. S. / 
          6/29/16 15:45:58


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