BILL ANALYSIS Ó ----------------------------------------------------------------- |SENATE RULES COMMITTEE | AB 1864| |Office of Senate Floor Analyses | | |(916) 651-1520 Fax: (916) | | |327-4478 | | ----------------------------------------------------------------- THIRD READING Bill No: AB 1864 Author: Cooley (D), et al. Amended: 8/15/16 in Senate Vote: 21 SENATE PUBLIC SAFETY COMMITTEE: 7-0, 6/14/16 AYES: Hancock, Anderson, Glazer, Leno, Liu, Monning, Stone SENATE APPROPRIATIONS COMMITTEE: Senate Rule 28.8 ASSEMBLY FLOOR: 78-0, 5/12/16 (Consent) - See last page for vote SUBJECT: Inquests: sudden unexplained death in childhood SOURCE: Sudden Unexplained Death in Childhood Foundation DIGEST: This bill defines "sudden unexplained death in childhood" (SUDC), and requires a coroner to notify the parents or responsible adult of a child that comes within the definition of the importance of taking tissue samples, as specified. Senate Floor Amendments of 8/15/16 make chaptering amendments. Senate Floor Amendments of 8/4/16 delete a requirement that had to be completed by 1990, and make chaptering amendments. AB 1864 Page 2 ANALYSIS: Existing law: 1)Requires a coroner to investigate the circumstances, manner, and cause of specified types of deaths, including violent, sudden, or unusual deaths; unattended deaths; and deaths where the deceased has not been attended to by a physician within 20 days before the death occurred. Existing law affords the coroner with the discretion to determine the extent of the inquiry into a death occurring under natural circumstances, and allows the coroner to authorize a physician to sign the certificate of death if the physician has sufficient knowledge to reasonably state the cause of a death occurring under natural circumstances. (Government Code § 27491.) 2)Provides that a coroner shall within 24 hours, or as soon as feasible thereafter, where the suspected cause of death is sudden infant death syndrome (SIDS), take possession of the body, and make or cause to be made a postmortem examination or autopsy thereon, and the detailed medical findings resulting from an examination of the body or autopsy by an examining physician must either be reduced to writing, or permanently preserved, as specified. (Government Code § 27491.4(a).) 3)Defines "sudden infant death syndrome" to mean the sudden death of an infant that is unexpected by the history of the infant and where a thorough postmortem fails to demonstrate an adequate cause of death. (Government Code § 27491.49(a).) 4)Requires that an autopsy conducted where it is suspected that the cause of death is SIDS be conducted pursuant to a standardized protocol developed by the State Department of Public Health. The protocol shall be developed and approved by July 1, 1990. (Government Code § 27491.41(d.).) 5)Requires that all coroners, throughout the state, follow the established protocol when conducting autopsies where the suspected cause of death is SIDS, and requires a coroner to state on the certificate of death that SIDS was the cause of death when the findings are consistent with the definition of SIDS. (Government Code § 27491.41(e).) AB 1864 Page 3 6)Requires a coroner to perform or arrange for an autopsy on a decedent upon a written request of the surviving spouse, or in certain circumstances, a child, parent, or other legal next-of-kin; and requires the cost of the autopsy to be borne by the person requesting the autopsy. (Government Code § 27520.) This bill: 1)Defines "sudden unexplained death in childhood" as the sudden death of a child one year of age or older but under 18 years of age that is unexplained by the history of the child and where a thorough post mortem exam fails to demonstrate adequate cause for the death. 2)Requires the coroner to notify the parents or responsible adult of a child that comes within the SUDC definition of the importance of taking tissue samples. 3)States that a coroner shall not be liable for damages in a civil action for any act or omission in compliance with the above provision. Background According to the Sudden Unexplained Death in Childhood Program's (SUDCP) Web site, SUDC is a rare condition that occurs in children over the age of 12 months. According to the SUDCP, SUDC is a diagnosis of exclusion that is given when all known and possible causes of death have been ruled out. The SUDCP states that the incidence of SUCD is approximately 1.3 deaths per 100,000 children, compared to 57 deaths per 100,000 live births for SIDS in 2002. (http://sudc. org/About/FAQs.) The Web site additionally, states, with regard to the collection of tissue: If available to you, SUDC encourages the banking of your child's DNA to provide you with options to pursue more information about your child's death. As clinical testing advances and research options improve, you may want to access these opportunities. Securing a genetic specimen (DNA) from your child may provide: § the opportunity for genetic testing to uncover specific AB 1864 Page 4 cause of death and appropriate testing of family § the opportunity for genetic testing to provide negative results - which may assist in decreasing some anxiety § the opportunity for storing a genetic specimen -banking DNA § Instill hope for cases that currently defy understanding § Allow for participation in present or future research § Allow families to benefit from potential benefit of future discoveries (http://sudc.org/Research/Securing-and-Banking-DNA-after-SUD C.) According to the author, "reasons to take samples in SUDC cases include observing tissues for abnormalities or damage, and banking DNA for further investigation." To this end, this bill requires the coroner to notify the parents of the importance of taking tissue samples. FISCAL EFFECT: Appropriation: No Fiscal Com.:YesLocal: Yes SUPPORT: (Verified8/11/16) Sudden Unexplained Death in Childhood Foundation (source) Several individuals AB 1864 Page 5 OPPOSITION: (Verified8/11/16) California State Coroners' Association ASSEMBLY FLOOR: 78-0, 5/12/16 AYES: Achadjian, Alejo, Travis Allen, Arambula, Atkins, Baker, Bigelow, Bloom, Bonilla, Bonta, Brough, Brown, Calderon, Campos, Chang, Chau, Chávez, Chiu, Chu, Cooley, Cooper, Dababneh, Dahle, Daly, Dodd, Eggman, Frazier, Beth Gaines, Gallagher, Cristina Garcia, Eduardo Garcia, Gatto, Gipson, Gomez, Gonzalez, Gordon, Gray, Grove, Hadley, Harper, Roger Hernández, Holden, Irwin, Jones, Kim, Lackey, Levine, Linder, Lopez, Low, Maienschein, Mathis, Mayes, McCarty, Medina, Melendez, Mullin, Nazarian, Obernolte, O'Donnell, Olsen, Patterson, Quirk, Ridley-Thomas, Rodriguez, Salas, Santiago, Steinorth, Mark Stone, Thurmond, Ting, Wagner, Waldron, Weber, Wilk, Williams, Wood, Rendon NO VOTE RECORDED: Burke, Jones-Sawyer Prepared by:Jessica Devencenzi / PUB. S. / 8/16/16 17:57:11 **** END ****