Amended in Assembly March 18, 2016

California Legislature—2015–16 Regular Session

Assembly BillNo. 2809


Introduced by Assembly Member Rodriguez

February 19, 2016


An actbegin insert to amend Sections 4646.5, 4648, 4648.35, 4648.5, 4648.55, 4659, 4686.2, and 4686.5 of the Welfare and Institutions Code,end insert relating to developmental services.

LEGISLATIVE COUNSEL’S DIGEST

AB 2809, as amended, Rodriguez. Developmental services: regional centers.

begin insert

Existing law, the California Early Intervention Services Act, provides a statewide system of coordinated, comprehensive, family-centered, multidisciplinary, and interagency programs that are responsible for providing appropriate early intervention services and support to all eligible infants and toddlers, as defined, and their families and requires an eligible infant or toddler receiving services under the act to have an individualized family service plan (IFSP). The act requires these services to be provided pursuant to the existing regional center system under the Lanterman Developmental Disabilities Service Act.

end insert
begin insert

Under existing law, the Lanterman Developmental Disabilities Services Act, the State Department of Developmental Services is responsible for providing various services and supports to individuals with developmental disabilities, and for ensuring the appropriateness and quality of those services and supports. Under existing law, the department contracts with regional centers to provide services and supports to persons with developmental disabilities. The services and supports to be provided to a regional center consumer are contained in an individual program plan (IPP), developed in accordance with prescribed requirements.

end insert
begin insert

This bill would require regional centers to give certain information and materials to a consumer or his or her parents, legal guardian, conservator, or authorized representative, or both, at the time of development, scheduled review, or modification of a consumer’s IPP or IFSP and would require that information and those materials to be in his, her, or their native language.

end insert
begin insert

Existing law generally provides, beginning July 1, 2009 that a regional center shall not purchase medical or dental services for a consumer 3 years of age or older unless the regional center is provided with documentation of a Medi-Cal, private insurance, or a health care service plan denial and the regional center determines that an appeal of the denial by the consumer or family does not have merit. Existing law authorizes regional centers to pay for medical or dental services during certain periods, including, among others, while coverage is being pursued, but before a denial is made.

end insert
begin insert

This bill would instead require regional centers to pay for medical or dental services during those periods.

end insert
begin insert

Existing law also requires a regional center to only purchase applied behavioral analysis (ABA) services or intensive behavioral intervention services when the parent or parents of minor consumers receiving services participate in the intervention plan for the consumers.

end insert
begin insert

This bill would require the regional center, when determining the extent of parent participation to consider any relevant hardships suffered by a parent or parents that may constitute a barrier to the consumer accessing those services. The bill would require the hardships to be documented in the IPP or IFSP and reviewed annually to determine if there has been a change in circumstances.

end insert
begin delete

Existing law, the Lanterman Developmental Disabilities Services Act, requires the State Department of Developmental Services to enter into contracts with private nonprofit corporations to operate regional centers to provide community services and supports for persons with developmental disabilities and their families.

end delete
begin delete

This bill would state the intent of the Legislature to enact legislation to require regional centers to provide nontechnical, understandable information in a consumer’s native language regarding the complex process of obtaining regional center services.

end delete

Vote: majority. Appropriation: no. Fiscal committee: no. State-mandated local program: no.

The people of the State of California do enact as follows:

P3    1begin insert

begin insertSECTION 1.end insert  

end insert

begin insertSection 4646.5 of the end insertbegin insertWelfare and Institutions
2Code
end insert
begin insert is amended to read:end insert

3

4646.5.  

(a) The planning process for the individual program
4plan described in Section 4646 shall include all of the following:

5(1) Gathering information and conducting assessments to
6determine the life goals, capabilities and strengths, preferences,
7barriers, and concerns or problems of the person with
8developmental disabilities. For children with developmental
9disabilities, this process should include a review of the strengths,
10preferences, and needs of the child and the family unit as a whole.
11Assessments shall be conducted by qualified individuals and
12performed in natural environments whenever possible. Information
13shall be taken from the consumer, his or her parents and other
14family members, his or her friends, advocates, authorized
15representative, if applicable, providers of services and supports,
16and other agencies. The assessment process shall reflect awareness
17of, and sensitivity to, the lifestyle and cultural background of the
18consumer and the family.

19(2) A statement of goals, based on the needs, preferences, and
20life choices of the individual with developmental disabilities, and
21a statement of specific, time-limited objectives for implementing
22the person’s goals and addressing his or her needs. These objectives
23shall be stated in terms that allow measurement of progress or
24monitoring of service delivery. These goals and objectives should
25maximize opportunities for the consumer to develop relationships,
26be part of community life in the areas of community participation,
27housing, work, school, and leisure, increase control over his or her
28life, acquire increasingly positive roles in community life, and
29develop competencies to help accomplish these goals.

30(3) When developing individual program plans for children,
31regional centers shall be guided by the principles, process, and
32services and support parameters set forth in Section 4685.

33(4) When developing an individual program plan for a transition
34age youth or working age adult, the planning team shall consider
35the Employment First Policy described in Chapter 14 (commencing
36with Section 4868).

37(5) A schedule of the type and amount of services and supports
38to be purchased by the regional center or obtained from generic
P4    1agencies or other resources in order to achieve the individual
2program plan goals and objectives, and identification of the
3provider or providers of service responsible for attaining each
4objective, including, but not limited to, vendors, contracted
5providers, generic service agencies, and natural supports. The
6individual program plan shall specify the approximate scheduled
7start date for services and supports and shall contain timelines for
8actions necessary to begin services and supports, including generic
9services. In addition to the requirements of subdivision (h) of
10Section 4646, each regional center shall offer, and upon request
11provide, a written copy of the individual program plan to the
12consumer, and, when appropriate, his or her parents, legal guardian
13or conservator, or authorized representative within 45 days of their
14request in a threshold language, as defined by paragraph (3) of
15subdivision (a) of Section 1810.410 of Title 9 of the California
16Code of Regulations.

begin insert

17(6) At the beginning of each individual program plan meeting,
18the regional center shall provide a consumer and, when
19appropriate, his or her parents, legal guardian, conservator, or
20authorized representative a list of services provided by the regional
21center and information about the appeal and complaint process
22in his or her native language.

end insert
begin insert

23(7) At the end of the individual program plan meeting, the
24regional center shall provide a consumer and, when appropriate,
25his or her parents, legal guardian, conservator, or authorized
26representative a written list of agreed-upon services and supports,
27including the amount and anticipated start date, and a list of any
28services and supports for which final agreement has not yet been
29reached and for which there will be a subsequent program plan
30meeting pursuant to subdivision (f) of Section 4646.

end insert
begin delete

31(6)

end delete

32begin insert(end insertbegin insert8)end insert When agreed to by the consumer, the parents, legally
33appointed guardian, or authorized representative of a minor
34consumer, or the legally appointed conservator of an adult
35consumer or the authorized representative, including those
36appointed pursuant to subdivision (a) of Section 4541, subdivision
37(b) of Section 4701.6, and subdivision (e) of Section 4705, a review
38of the general health status of the adult or child, including medical,
39dental, and mental health needs, shall be conducted. This review
40shall include a discussion of current medications, any observed
P5    1side effects, and the date of the last review of the medication.
2Service providers shall cooperate with the planning team to provide
3any information necessary to complete the health status review. If
4any concerns are noted during the review, referrals shall be made
5to regional center clinicians or to the consumer’s physician, as
6appropriate. Documentation of health status and referrals shall be
7made in the consumer’s record by the service coordinator.

begin delete

8(7)

end delete

9begin insert(end insertbegin insert9)end insert (A) The development of a transportation access plan for a
10consumer when all of the following conditions are met:

11(i) The regional center is purchasing private, specialized
12transportation services or services from a residential, day, or other
13provider, excluding vouchered service providers, to transport the
14consumer to and from day or work services.

15(ii) The planning team has determined that a consumer’s
16community integration and participation could be safe and
17enhanced through the use of public transportation services.

18(iii) The planning team has determined that generic
19transportation services are available and accessible.

20(B) To maximize independence and community integration and
21participation, the transportation access plan shall identify the
22services and supports necessary to assist the consumer in accessing
23public transportation and shall comply with Section 4648.35. These
24services and supports may include, but are not limited to, mobility
25training services and the use of transportation aides. Regional
26 centers are encouraged to coordinate with local public
27transportation agencies.

begin delete

28(8)

end delete

29begin insert(10)end insert A schedule of regular periodic review and reevaluation to
30ascertain that planned services have been provided, that objectives
31have been fulfilled within the times specified, and that consumers
32and families are satisfied with the individual program plan and its
33implementation.

34(b) For all active cases, individual program plans shall be
35reviewed and modified by the planning team, through the process
36described in Section 4646, as necessary, in response to the person’s
37achievement or changing needs, and no less often than once every
38three years. If the consumer or, where appropriate, the consumer’s
39parents, legal guardian, authorized representative, or conservator
P6    1requests an individual program plan review, the individual program
2shall be reviewed within 30 days after the request is submitted.

3(c) (1) The department, with the participation of representatives
4of a statewide consumer organization, the Association of Regional
5Center Agencies, an organized labor organization representing
6service coordination staff, and the state council shall prepare
7training material and a standard format and instructions for the
8preparation of individual program plans, which embody an
9approach centered on the person and family.

10(2) Each regional center shall use the training materials and
11format prepared by the department pursuant to paragraph (1).

12(3) The department shall biennially review a random sample of
13individual program plans at each regional center to ensure that
14these plans are being developed and modified in compliance with
15Section 4646 and this section.

16begin insert

begin insertSEC. 2.end insert  

end insert

begin insertSection 4648 of the end insertbegin insertWelfare and Institutions Codeend insertbegin insert is
17amended to read:end insert

18

4648.  

In order to achieve the stated objectives of a consumer’s
19individual program plan, the regional center shall conduct activities,
20including, but not limited to, all of the following:

21(a) Securing needed services and supports.

22(1) It is the intent of the Legislature that services and supports
23assist individuals with developmental disabilities in achieving the
24greatest self-sufficiency possible and in exercising personal
25choices. The regional center shall secure services and supports
26that meet the needs of the consumer, as determined in the
27consumer’s individual program plan, and within the context of the
28individual program plan, the planning team shall give highest
29preference to those services and supports which would allow
30minors with developmental disabilities to live with their families,
31adult persons with developmental disabilities to live as
32independently as possible in the community, and that allow all
33consumers to interact with persons without disabilities in positive,
34meaningful ways.

35(2) In implementing individual program plans, regional centers,
36through the planning team, shall first consider services and supports
37in natural community, home, work, and recreational settings.
38Services and supports shall be flexible and individually tailored
39to the consumer and, where appropriate, his or her family.

P7    1(3) A regional center may, pursuant to vendorization or a
2contract, purchase services or supports for a consumer from any
3individual or agency that the regional center and consumer or,
4when appropriate, his or her parents, legal guardian, or conservator,
5or authorized representatives, determines will best accomplish all
6or any part of that consumer’s program plan.

7(A) Vendorization or contracting is the process for identification,
8selection, and utilization of service vendors or contractors, based
9on the qualifications and other requirements necessary in order to
10provide the service.

11(B) A regional center may reimburse an individual or agency
12for services or supports provided to a regional center consumer if
13the individual or agency has a rate of payment for vendored or
14contracted services established by the department, pursuant to this
15division, and is providing services pursuant to an emergency
16vendorization or has completed the vendorization procedures or
17has entered into a contract with the regional center and continues
18to comply with the vendorization or contracting requirements. The
19director shall adopt regulations governing the vendorization process
20to be utilized by the department, regional centers, vendors, and
21the individual or agency requesting vendorization.

22(C) Regulations shall include, but not be limited to: the vendor
23application process, and the basis for accepting or denying an
24application; the qualification and requirements for each category
25of services that may be provided to a regional center consumer
26through a vendor; requirements for emergency vendorization;
27procedures for termination of vendorization; the procedure for an
28individual or an agency to appeal any vendorization decision made
29by the department or regional center.

30(D) A regional center may vendorize a licensed facility for
31exclusive services to persons with developmental disabilities at a
32capacity equal to or less than the facility’s licensed capacity. A
33facility already licensed on January 1, 1999, shall continue to be
34vendorized at their full licensed capacity until the facility agrees
35to vendorization at a reduced capacity.

36(E) Effective July 1, 2009, notwithstanding any other law or
37regulation, a regional center shall not newly vendor a State
38Department of Social Services licensed 24-hour residential care
39facility with a licensed capacity of 16 or more beds, unless the
P8    1facility qualifies for receipt of federal funds under the Medicaid
2Program.

3(4) Notwithstanding subparagraph (B) of paragraph (3), a
4regional center may contract or issue a voucher for services and
5supports provided to a consumer or family at a cost not to exceed
6the maximum rate of payment for that service or support
7established by the department. If a rate has not been established
8by the department, the regional center may, for an interim period,
9contract for a specified service or support with, and establish a
10rate of payment for, any provider of the service or support
11necessary to implement a consumer’s individual program plan.
12Contracts may be negotiated for a period of up to three years, with
13annual review and subject to the availability of funds.

14(5) In order to ensure the maximum flexibility and availability
15of appropriate services and supports for persons with
16developmental disabilities, the department shall establish and
17maintain an equitable system of payment to providers of services
18and supports identified as necessary to the implementation of a
19consumers’ individual program plan. The system of payment shall
20include a provision for a rate to ensure that the provider can meet
21the special needs of consumers and provide quality services and
22supports in the least restrictive setting as required by law.

23(6) The regional center and the consumer, or when appropriate,
24his or her parents, legal guardian, conservator, or authorized
25representative, including those appointed pursuant to subdivision
26(a) of Section 4541, subdivision (b) of Section 4701.6, or
27subdivision (e) of Section 4705, shall, pursuant to the individual
28program plan, consider all of the following when selecting a
29provider of consumer services and supports:

30(A) A provider’s ability to deliver quality services or supports
31that can accomplish all or part of the consumer’s individual
32program plan.

33(B) A provider’s success in achieving the objectives set forth
34in the individual program plan.

35(C) Where appropriate, the existence of licensing, accreditation,
36or professional certification.

37(D) The cost of providing services or supports of comparable
38quality by different providers, if available, shall be reviewed, and
39the least costly available provider of comparable service, including
40the cost of transportation, who is able to accomplish all or part of
P9    1the consumer’s individual program plan, consistent with the
2particular needs of the consumer and family as identified in the
3individual program plan, shall be selected. In determining the least
4costly provider, the availability of federal financial participation
5shall be considered. The consumer shall not be required to use the
6least costly provider if it will result in the consumer moving from
7an existing provider of services or supports to more restrictive or
8less integrated services or supports.

9(E) The consumer’s choice of providers, or, when appropriate,
10the consumer’s parent’s, legal guardian’s, authorized
11representative’s, or conservator’s choice of providers.

12(7) No service or support provided by any agency or individual
13 shall be continued unless the consumer or, when appropriate, his
14or her parents, legal guardian, or conservator, or authorized
15representative, including those appointed pursuant to subdivision
16(a) of Section 4541, subdivision (b) of Section 4701.6, or
17subdivision (e) of Section 4705, is satisfied and the regional center
18and the consumer or, when appropriate, the person’s parents or
19legal guardian or conservator agree that planned services and
20supports have been provided, and reasonable progress toward
21objectives have been made.

22(8) Regional center funds shall not be used to supplant the
23budget of any agency that has a legal responsibility to serve all
24members of the general public and is receiving public funds for
25providing those services.

26(9) (A) A regional center may, directly or through an agency
27acting on behalf of the center, provide placement in, purchase of,
28or follow-along services to persons with developmental disabilities
29in, appropriate community living arrangements, including, but not
30limited to, support service for consumers in homes they own or
31lease, foster family placements, health care facilities, and licensed
32community care facilities. In considering appropriate placement
33alternatives for children with developmental disabilities, approval
34by the child’s parent or guardian shall be obtained before placement
35is made.

36(B) Effective July 1, 2012, notwithstanding any other law or
37regulation, a regional center shall not purchase residential services
38from a State Department of Social Services licensed 24-hour
39residential care facility with a licensed capacity of 16 or more
P10   1beds. This prohibition on regional center purchase of residential
2services shall not apply to any of the following:

3(i) A residential facility with a licensed capacity of 16 or more
4beds that has been approved to participate in the department’s
5Home and Community Based Services Waiver or another existing
6waiver program or certified to participate in the Medi-Cal program.

7(ii) A residential facility service provider that has a written
8agreement and specific plan prior to July 1, 2012, with the
9vendoring regional center to downsize the existing facility by
10transitioning its residential services to living arrangements of 15
11beds or less or restructure the large facility to meet federal
12Medicaid eligibility requirements on or before June 30, 2013.

13(iii) A residential facility licensed as a mental health
14rehabilitation center by the State Department of Mental Health or
15successor agency under any of the following circumstances:

16(I) The facility is eligible for Medicaid reimbursement.

17(II) The facility has a department-approved plan in place by
18June 30, 2013, to transition to a program structure eligible for
19federal Medicaid funding, and this transition will be completed by
20June 30, 2014. The department may grant an extension for the date
21by which the transition will be completed if the facility
22demonstrates that it has made significant progress toward transition,
23and states with specificity the timeframe by which the transition
24will be completed and the specified steps that will be taken to
25accomplish the transition. A regional center may pay for the costs
26of care and treatment of a consumer residing in the facility on June
2730, 2012, until June 30, 2013, inclusive, and, if the facility has a
28department-approved plan in place by June 30, 2013, may continue
29to pay the costs under this subparagraph until June 30, 2014, or
30until the end of any period during which the department has granted
31an extension.

32(III) There is an emergency circumstance in which the regional
33center determines that it cannot locate alternate federally eligible
34services to meet the consumer’s needs. Under such an emergency
35circumstance, an assessment shall be completed by the regional
36center as soon as possible and within 30 days of admission. An
37individual program plan meeting shall be convened immediately
38following the assessment to determine the services and supports
39needed for stabilization and to develop a plan to transition the
40consumer from the facility into the community. If transition is not
P11   1expected within 90 days of admission, an individual program plan
2meeting shall be held to discuss the status of transition and to
3determine if the consumer is still in need of placement in the
4facility. Commencing October 1, 2012, this determination shall
5be made after also considering resource options identified by the
6statewide specialized resource service. If it is determined that
7emergency services continue to be necessary, the regional center
8shall submit an updated transition plan that can cover a period of
9up to 90 days. In no event shall placements under these emergency
10circumstances exceed 180 days.

11(C) (i) Effective July 1, 2012, notwithstanding any other law
12or regulation, a regional center shall not purchase new residential
13services from, or place a consumer in, institutions for mental
14disease, as described in Part 5 (commencing with Section 5900)
15of Division 5, for which federal Medicaid funding is not available.
16Effective July 1, 2013, this prohibition applies regardless of the
17availability of federal funding.

18(ii) The prohibition described in clause (i) shall not apply to
19emergencies, as determined by the regional center, when a regional
20center cannot locate alternate services to meet the consumer’s
21 needs. As soon as possible within 30 days of admission due to an
22emergency, an assessment shall be completed by the regional
23center. An individual program plan meeting shall be convened
24immediately following the assessment, to determine the services
25and supports needed for stabilization and to develop a plan to
26transition the consumer from the facility to the community. If
27transition is not expected within 90 days of admission, an
28emergency program plan meeting shall be held to discuss the status
29of the transition and to determine if the consumer is still in need
30of placement in the facility. If emergency services continue to be
31necessary, the regional center shall submit an updated transition
32plan to the department for an extension of up to 90 days. Placement
33shall not exceed 180 days.

34(iii) To the extent feasible, prior to any admission, the regional
35center shall consider resource options identified by the statewide
36specialized resource service established pursuant to subdivision
37(b) of Section 4418.25.

38(iv) The clients’ rights advocate shall be notified of each
39admission and individual program planning meeting pursuant to
40this subparagraph and may participate in all individual program
P12   1planning meetings unless the consumer objects on his or her own
2behalf. For purposes of this clause, notification to the clients’ rights
3advocate shall include a copy of the most recent comprehensive
4assessment or updated assessment and the time, date, and location
5of the meeting, and shall be provided as soon as practicable, but
6not less than seven calendar days prior to the meeting.

7(v) If a consumer is placed in an institution for mental disease
8by another entity, the institution for mental disease shall inform
9the regional center of the placement within five days of the date
10the consumer is admitted. If an individual’s records indicate that
11he or she is a regional center consumer, the institution for mental
12disease shall make every effort to contact the local regional center
13or department to determine which regional center to provide notice.
14As soon as possible within 30 days of admission to an institution
15for mental disease due to an emergency pursuant to clause (ii), or
16within 30 days of notification of admission to an institution for
17mental disease by an entity other than a regional center, an
18assessment shall be completed by the regional center.

19(vi) Regional centers shall complete a comprehensive assessment
20of any consumer residing in an institution for mental disease as of
21July 1, 2012, for which federal Medicaid funding is not available,
22and for any consumer residing in an institution for mental disease
23as of July 1, 2013, without regard to federal funding. The
24comprehensive assessment shall be completed prior to the
25consumer’s next scheduled individual program plan meeting and
26shall include identification of the services and supports needed
27and the timeline for identifying or developing those services needed
28to transition the consumer back to the community. Effective
29October 1, 2012, the regional center shall also consider resource
30options identified by the statewide specialized resource service.
31For each individual program plan meeting convened pursuant to
32this subparagraph, the clients’ rights advocate for the regional
33center shall be notified of the meeting and may participate in the
34meeting unless the consumer objects on his or her own behalf. For
35purposes of this clause, notification to the clients’ rights advocate
36shall include the time, date, and location of the meeting, and shall
37be provided as soon as practicable, but not less than seven calendar
38days prior to the meeting.

39(D) A person with developmental disabilities placed by the
40regional center in a community living arrangement shall have the
P13   1rights specified in this division. These rights shall be brought to
2the person’s attention by any means necessary to reasonably
3communicate these rights to each resident, provided that, at a
4minimum, the Director of Developmental Services prepare,
5provide, and require to be clearly posted in all residential facilities
6and day programs a poster using simplified language and pictures
7that is designed to be more understandable by persons with
8intellectual disabilities and that the rights information shall also
9be available through the regional center to each residential facility
10and day program in alternative formats, including, but not limited
11to, other languages, braille, and audiotapes, when necessary to
12meet the communication needs of consumers.

13(E) Consumers are eligible to receive supplemental services
14including, but not limited to, additional staffing, pursuant to the
15process described in subdivision (d) of Section 4646. Necessary
16additional staffing that is not specifically included in the rates paid
17to the service provider may be purchased by the regional center if
18the additional staff are in excess of the amount required by
19regulation and the individual’s planning team determines the
20 additional services are consistent with the provisions of the
21individual program plan. Additional staff should be periodically
22reviewed by the planning team for consistency with the individual
23program plan objectives in order to determine if continued use of
24the additional staff is necessary and appropriate and if the service
25is producing outcomes consistent with the individual program plan.
26Regional centers shall monitor programs to ensure that the
27additional staff is being provided and utilized appropriately.

28(10) Emergency and crisis intervention services including, but
29not limited to, mental health services and behavior modification
30services, may be provided, as needed, to maintain persons with
31developmental disabilities in the living arrangement of their own
32choice. Crisis services shall first be provided without disrupting a
33person’s living arrangement. If crisis intervention services are
34unsuccessful, emergency housing shall be available in the person’s
35home community. If dislocation cannot be avoided, every effort
36shall be made to return the person to his or her living arrangement
37of choice, with all necessary supports, as soon as possible.

38(11) Among other service and support options, planning teams
39shall consider the use of paid roommates or neighbors, personal
40assistance, technical and financial assistance, and all other service
P14   1and support options which would result in greater self-sufficiency
2for the consumer and cost-effectiveness to the state.

3(12) When facilitation as specified in an individual program
4plan requires the services of an individual, the facilitator shall be
5of the consumer’s choosing.

6(13) The community support may be provided to assist
7individuals with developmental disabilities to fully participate in
8community and civic life, including, but not limited to, programs,
9services, work opportunities, business, and activities available to
10persons without disabilities. This facilitation shall include, but not
11be limited to, any of the following:

12(A) Outreach and education to programs and services within
13the community.

14(B) Direct support to individuals that would enable them to
15more fully participate in their community.

16(C) Developing unpaid natural supports when possible.

17(14) When feasible and recommended by the individual program
18planning team, for purposes of facilitating better and cost-effective
19services for consumers or family members, technology, including
20telecommunication technology, may be used in conjunction with
21other services and supports. Technology in lieu of a consumer’s
22in-person appearances at judicial proceedings or administrative
23due process hearings may be used only if the consumer or, when
24appropriate, the consumer’s parent, legal guardian, conservator,
25or authorized representative, gives informed consent. Technology
26may be used in lieu of, or in conjunction with, in-person training
27for providers, as appropriate.

28(15) Other services and supports may be provided as set forth
29in Sections 4685, 4686, 4687, 4688, and 4689, when necessary.

30(16) Notwithstanding any other law or regulation, effective July
311, 2009, regional centers shall not purchase experimental
32 treatments, therapeutic services, or devices that have not been
33clinically determined or scientifically proven to be effective or
34safe or for which risks and complications are unknown.
35Experimental treatments or therapeutic services include
36experimental medical or nutritional therapy when the use of the
37product for that purpose is not a general physician practice. For
38regional center consumers receiving these services as part of their
39individual program plan (IPP) or individualized family service
P15   1plan (IFSP) on July 1, 2009, this prohibition shall apply on August
21, 2009.

3(b) (1) Advocacy for, and protection of, the civil, legal, and
4service rights of persons with developmental disabilities as
5established in this division.

6(2) Whenever the advocacy efforts of a regional center to secure
7or protect the civil, legal, or service rights of any of its consumers
8 prove ineffective, the regional center or the person with
9developmental disabilities or his or her parents, legal guardian, or
10other representative may request advocacy assistance from the
11state council.

12(c) The regional center may assist consumers and families
13directly, or through a provider, in identifying and building circles
14of support within the community.

15(d) In order to increase the quality of community services and
16protect consumers, the regional center shall, when appropriate,
17take either of the following actions:

18(1) Identify services and supports that are ineffective or of poor
19quality and provide or secure consultation, training, or technical
20assistance services for any agency or individual provider to assist
21that agency or individual provider in upgrading the quality of
22services or supports.

23(2) Identify providers of services or supports that may not be
24in compliance with local, state, and federal statutes and regulations
25and notify the appropriate licensing or regulatory authority to
26investigate the possible noncompliance.

27(e) When necessary to expand the availability of needed services
28of good quality, a regional center may take actions that include,
29but are not limited to, the following:

30(1) Soliciting an individual or agency by requests for proposals
31or other means, to provide needed services or supports not presently
32available.

33(2) Requesting funds from the Program Development Fund,
34pursuant to Section 4677, or community placement plan funds
35designated from that fund, to reimburse the startup costs needed
36to initiate a new program of services and supports.

37(3) Using creative and innovative service delivery models,
38including, but not limited to, natural supports.

39(f) Except in emergency situations, a regional center shall not
40provide direct treatment and therapeutic services, but shall utilize
P16   1appropriate public and private community agencies and service
2providers to obtain those services for its consumers.

3(g) When there are identified gaps in the system of services and
4supports or when there are identified consumers for whom no
5provider will provide services and supports contained in his or her
6individual program plan, the department may provide the services
7and supports directly.

8(h) At least annually,begin insert and at the time of development, scheduled
9review, or modification of a consumer’s individual program plan
10or individualized family service plan,end insert
regional centers shall provide
11the consumer, his or her parents, legal guardian, conservator, or
12authorized representative a statement of services and supports the
13regional center purchased for the purpose of ensuring that they are
14delivered. The statement shall include the type, unit, month, and
15cost of services and supports purchased.begin insert The regional center shall
16provide that statement in the native language of the consumer or
17his or her parents, legal guardian, conservator, or authorized
18representative, or both.end insert

19begin insert

begin insertSEC. 3.end insert  

end insert

begin insertSection 4648.35 of the end insertbegin insertWelfare and Institutions Codeend insert
20begin insert is amended to read:end insert

21

4648.35.  

At the time of development, review, or modification
22of a consumer’s individual program plan (IPP) or individualized
23family service plan (IFSP), all of the following shall apply to a
24regional center:

25(a) A regional center shall not fund private specialized
26transportation services for an adult consumer who can safely access
27and utilize public transportation, when that transportation is
28available.

29(b) A regional center shall fund the least expensive
30transportation modality that meets the consumer’s needs, as set
31forth in the consumer’s IPP or IFSP.

32(c) A regional center shall fund transportation, when required,
33from the consumer’s residence to the lowest-cost vendor that
34provides the service that meets the consumer’s needs, as set forth
35in the consumer’s IPP or IFSP. For purposes of this subdivision,
36the cost of a vendor shall be determined by combining the vendor’s
37program costs and the costs to transport a consumer from the
38consumer’s residence to the vendor.

39(d) A regional center shall fund transportation services for a
40minor child living in the family residence, only if the family of
P17   1the child provides sufficient written documentation to the regional
2center to demonstrate that it is unable to provide transportation for
3the child.begin insert At the time of development, scheduled review, or
4modification of a consumer’s individual program plan or
5individualized family service plan, the regional center shall
6provide, in a non-technical, understandable form and in the native
7language of the consumer or his or her parents, legal guardian,
8conservator, or authorized representative, or both, a written
9statement of the requirement described in this subdivision and
10examples of sufficient written documentation that may be submittedend insert
begin insert.
11The regional center shall accept documentation submitted pursuant
12to this subdivision in any written form, including in the native
13language of the consumer or his or her parents, legal guardian,
14conservator, or authorized representative.end insert

15begin insert

begin insertSEC. 4.end insert  

end insert

begin insertSection 4648.5 of the end insertbegin insertWelfare and Institutions Codeend insert
16begin insert is amended to read:end insert

17

4648.5.  

(a) Notwithstanding any otherbegin delete provision ofend delete law or
18regulations to the contrary, effective July 1, 2009, a regional
19centers’ authority to purchase the following services shall be
20suspended pending implementation of the Individual Choice
21Budget and certification by the Director of Developmental Services
22that the Individual Choice Budget has been implemented and will
23result in state budget savings sufficient to offset the costs of
24providing the following services:

25(1) Camping services and associated travel expenses.

26(2) Social recreation activities, except for those activities
27 vendored as community-based day programs.

28(3) Educational services for children three to 17, inclusive, years
29of age.

30(4) Nonmedical therapies, including, but not limited to,
31specialized recreation, art, dance, and music.

32(b) For regional center consumers receiving services described
33in subdivision (a) as part of their individual program plan (IPP) or
34individualized family service plan (IFSP), the prohibition in
35subdivision (a) shall take effect on August 1, 2009.

36(c) An exemption may be granted on an individual basis in
37extraordinary circumstances to permit purchase of a service
38identified in subdivision (a) when the regional center determines
39that the service is a primary or critical means for ameliorating the
40physical, cognitive, or psychosocial effects of the consumer’s
P18   1developmental disability, or the service is necessary to enable the
2consumer to remain in his or her home and no alternative service
3is available to meet the consumer’s needs.

begin insert

4(d) At the time of development, scheduled review, or
5modification of a consumer’s individual program plan or
6individualized family service plan, the regional center shall
7provide, in a non-technical, understandable form and in the native
8language of the consumer or his or her parents, legal guardian,
9conservator, or authorized representative, or both, a written
10statement describing the exemption in subdivision (c) and examples
11of documentation that may be submitted to demonstrate
12qualification for the exemption.

end insert
13begin insert

begin insertSEC. 5.end insert  

end insert

begin insertSection 4648.55 of the end insertbegin insertWelfare and Institutions Codeend insert
14begin insert is amended to read:end insert

15

4648.55.  

(a) A regional center shall not purchase day program,
16vocational education, work services, independent living program,
17or mobility training and related transportation services for a
18consumer who is 18 to 22 years of age, inclusive, if that consumer
19is eligible for special education and related education services and
20has not received a diploma or certificate of completion, unless the
21individual program plan (IPP) planning team determines that the
22consumer’s needs cannot be met in the educational system or grants
23an exemption pursuant to subdivision (d). If the planning team
24determines that generic services can meet the consumer’s day,
25vocational education, work services, independent living, or mobility
26training and related transportation needs, the regional center shall
27assist the consumer in accessing those services. To ensure that
28consumers receive appropriate educational services and an effective
29transition from services provided by educational agencies to
30services provided by regional centers, the regional center service
31coordinator, at the request of the consumer or, where appropriate,
32the consumer’s parent, legal guardian, or conservator, may attend
33the individualized education program (IEP) planning team meeting.

34(b) For consumers who are 18 to 22 years of age, inclusive, who
35have left the public school system, and who are receiving regional
36center purchased services identified in subdivision (a) on or before
37the effective date of this section, a determination shall be made
38through the IPP as to whether the return to the educational system
39can be achieved while meeting the consumer’s needs. If the
40planning team determines that the consumer’s needs cannot be
P19   1met in the educational system, the regional center may continue
2to purchase the services identified in subdivision (a). If the planning
3team determines that generic services can meet the consumer’s
4day, vocational education, work services, independent living, or
5mobility training and related transportation needs, the regional
6center shall assist the consumer in accessing those services.

7(c) For consumers who are 18 to 22 years of age, inclusive, who
8have left school prior to enactment of this section, but who are not
9receiving any of the regional center purchased services identified
10in subdivision (a), the regional center shall use generic education
11services to meet the consumer’s day, vocational education, work
12services, independent living, or mobility training and related
13transportation needs if those needs are subsequently identified in
14the IPP unless the consumer is eligible for an exemption as set
15forth in subdivision (d). If the planning team determines that
16generic services can meet the consumer’s day, vocational
17education, work services, independent living, or mobility training
18and related transportation needs, the regional center shall assist
19the consumer in accessing those services.

20(d) begin insert(1)end insertbegin insertend insert An exemption to the provisions of this section may be
21granted on an individual basis in extraordinary circumstances to
22permit purchase of a service identified in subdivision (a). An
23exemption shall be granted through the IPP process and shall be
24based on a determination that the generic service is not appropriate
25to meet the consumer’s need.begin delete The consumer shall be informed of
26the exemption and the process for obtaining an exemption.end delete

begin insert

27(2) At the time of development, scheduled review, or
28modification of a consumer’s individual program plan, the regional
29center shall provide, in a non-technical, understandable form and
30in the native language of the consumer or his or her parents, legal
31guardian, conservator, or authorized representative, or both, a
32written statement describing the exemption in paragraph (1) and
33examples of documentation that may be submitted to demonstrate
34qualification for the exemption.

end insert
begin insert

35(3) The IPP planning team shall consider the standard set forth
36in Section 4688.05 when determining whether the consumer
37qualifies for an exemption under this subdivision for the purpose
38of meeting his or her independent living needs.

end insert

39(e) A school district may contract with regional center vendors
40to meet the needs of consumers pursuant to this section.

P20   1begin insert

begin insertSEC. 6.end insert  

end insert

begin insertSection 4659 of the end insertbegin insertWelfare and Institutions Codeend insertbegin insert is
2amended to read:end insert

3

4659.  

(a) Except as otherwise provided in subdivision (b) or
4(e), the regional center shall identify and pursue all possible sources
5of funding for consumers receiving regional center services. These
6sources shall include, but not be limited to, both of the following:

7(1) Governmental or other entities or programs required to
8provide or pay the cost of providing services, including Medi-Cal,
9Medicare, the Civilian Health and Medical Program for Uniform
10Services, school districts, and federal supplemental security income
11and the state supplementary program.

12(2) Private entities, to the maximum extent they are liable for
13the cost of services, aid, insurance, or medical assistance to the
14consumer.

15(b) Any revenues collected by a regional center pursuant to this
16section shall be applied against the cost of services prior to use of
17regional center funds for those services. This revenue shall not
18result in a reduction in the regional center’s purchase of services
19budget, except as it relates to federal supplemental security income
20and the state supplementary program.

21(c) Effective July 1, 2009, notwithstanding any other law or
22regulation, regional centers shall not purchase any service that
23would otherwise be available from Medi-Cal, Medicare, the
24Civilian Health and Medical Program for Uniform Services,
25In-Home Support Services, California Children’s Services, private
26insurance, or a health care service plan when a consumer or a
27family meets the criteria of this coverage but chooses not to pursue
28that coverage. If, on July 1, 2009, a regional center is purchasing
29that service as part of a consumer’s individual program plan (IPP),
30the prohibition shall take effect on October 1, 2009.

31(d) (1) Effective July 1, 2009, notwithstanding any other law
32or regulation, a regional center shall not purchase medical or dental
33services for a consumer three years of age or older unless the
34regional center is provided with documentation of a Medi-Cal,
35private insurance, or a health care service plan denial and the
36regional center determines that an appeal by the consumer or family
37of the denial does not have merit. If, on July 1, 2009, a regional
38center is purchasing the service as part of a consumer’s IPP, this
39provision shall take effect on August 1, 2009.begin insert At the time of
40development, scheduled review, or modification of a consumer’s
P21   1individual program plan or individualized family service plan, the
2regional center shall provide, in a non-technical, understandable
3form and in the native language of the consumer or his or her
4parents, legal guardian, conservator, or authorized representative,
5or both, a written statement describing the documentation required
6pursuant to this paragraph.end insert
Regional centersbegin delete mayend deletebegin insert shallend insert pay for
7medical or dental services during the following periods:

8(A) While coverage is being pursued, but before a denial is
9made.

10(B) Pending a final administrative decision on the administrative
11appeal if the family has provided to the regional center a
12verification that an administrative appeal is being pursued.

13(C) Until the commencement of services by Medi-Cal, private
14insurance, or a health care service plan.

15(2) When necessary, the consumer or family may receive
16assistance from the regional center, the Clients’ Rights Advocate
17funded by the department, or the state council in pursuing these
18appeals.

19(e) This section shall not impose any additional liability on the
20parents of children with developmental disabilities, or to restrict
21eligibility for, or deny services to, any individual who qualifies
22for regional center services but is unable to pay.

23(f) In order to best utilize generic resources, federally funded
24programs, and private insurance programs for individuals with
25developmental disabilities, the department and regional centers
26shall engage in the following activities:

27(1) Within existing resources, the department shall provide
28training to regional centers, no less than once every two years, in
29the availability and requirements of generic, federally funded and
30private programs available to persons with developmental
31disabilities, including, but not limited to, eligibility requirements,
32the application process and covered services, and the appeal
33process.

34(2) Regional centers shall disseminate information and training
35to all service coordinators regarding the availability and
36requirements of generic, federally funded, and private insurance
37programs on the local level.

38begin insert

begin insertSEC. 7.end insert  

end insert

begin insertSection 4686.2 of the end insertbegin insertWelfare and Institutions Codeend insert
39begin insert is amended to read:end insert

P22   1

4686.2.  

(a) Effective July 1, 2009, notwithstanding any other
2begin delete provision ofend delete law or regulation to the contrary, any vendor who
3provides applied behavioral analysis (ABA) services, or intensive
4behavioral intervention services or both, as defined in subdivision
5(d), shall:

6(1) Conduct a behavioral assessment of each consumer to whom
7the vendor provides these services.

8(2) Design an intervention plan that shall include the service
9type, number of hours and parent participation needed to achieve
10the consumer’s goals and objectives, as set forth in the consumer’s
11individual program plan (IPP) or individualized family service
12plan (IFSP). The intervention plan shall also set forth the frequency
13at which the consumer’s progress shall be evaluated and reported.

14(3) Provide a copy of the intervention plan to the regional center
15for review and consideration by the planning team members.

16(b) Effective July 1, 2009, notwithstanding any otherbegin delete provision
17ofend delete
law or regulation to the contrary, regional centers shall:

18(1) Only purchase ABA services or intensive behavioral
19intervention services that reflect evidence-based practices, promote
20positive social behaviors, and ameliorate behaviors that interfere
21with learning and social interactions.

22(2) begin insert(A)end insertbegin insertend insert Only purchase ABA or intensive behavioral intervention
23services when the parent or parents of minor consumers receiving
24services participate in the intervention plan for the consumers,
25given the critical nature of parent participation to the success of
26the intervention plan.

begin insert

27(B) In determining the extent of parent participation required
28for the provision of ABA or intensive behavioral intervention
29services, the IPP or IFSP planning team shall consider any
30relevant hardships suffered by a parent or parents that may
31constitute a barrier to the consumer accessing those services,
32including, but not limited to, availability of group instruction
33courses, conflicts with employment, vocational training, or
34educational demands, financial hardship, or lack of transportation
35or child or other family member care, and language barriers. Any
36hardships shall be documented in the IPP or IFSP and reviewed
37annually to determine if there has been a change in circumstances.
38If the regional center determines that the extent of parent
39participation should be adjusted due to a change in circumstances,
P23   1the regional center shall provide adequate notice pursuant to
2subdivision (a) of Section 4710.

end insert
begin insert

3(C) At the time of development, scheduled review, or
4modification of a consumer’s IPP or IFSP, the regional center
5shall provide, in a non-technical, understandable form and in the
6native language of the consumer or his or her parents, legal
7guardian, conservator, or authorized representative, or both, a
8written statement describing the process for determining the extent
9of parent participation pursuant to this paragraph and examples
10of documentation that may be submitted to demonstrate hardships.

end insert

11(3) Not purchase either ABA or intensive behavioral intervention
12services for purposes of providing respite, day care, or school
13services.

14(4) Discontinue purchasing ABA or intensive behavioral
15intervention services for a consumer when the consumer’s
16treatment goals and objectives, as described under subdivision (a),
17are achieved. ABA or intensive behavioral intervention services
18shall not be discontinued until the goals and objectives are reviewed
19and updated as required in paragraph (5) and shall be discontinued
20only if those updated treatment goals and objectives do not require
21ABA or intensive behavioral intervention services.

22(5) For each consumer, evaluate the vendor’s intervention plan
23and number of service hours for ABA or intensive behavioral
24intervention no less than every six months, consistent with
25 evidence-based practices. If necessary, the intervention plan’s
26treatment goals and objectives shall be updated and revised.

27(6) Not reimburse a parent for participating in a behavioral
28services treatment program.

29(c) For consumers receiving ABA or behavioral intervention
30services on July 1, 2009, as part of their IPP or IFSP, subdivision
31(b) shall apply on August 1, 2009.

32(d) For purposes of this section the following definitions shall
33apply:

34(1) “Applied behavioral analysis” means the design,
35implementation, and evaluation of systematic instructional and
36environmental modifications to promote positive social behaviors
37and reduce or ameliorate behaviors which interfere with learning
38and social interaction.

39(2) “Intensive behavioral intervention” means any form of
40applied behavioral analysis that is comprehensive, designed to
P24   1address all domains of functioning, and provided in multiple
2settings for no more than 40 hours per week, across all settings,
3depending on the individual’s needs and progress. Interventions
4can be delivered in a one-to-one ratio or small group format, as
5appropriate.

6(3) “Evidence-based practice” means a decisionmaking process
7that integrates the best available scientifically rigorous research,
8clinical expertise, and individual’s characteristics. Evidence-based
9practice is an approach to treatment rather than a specific treatment.
10Evidence-based practice promotes the collection, interpretation,
11integration, and continuous evaluation of valid, important, and
12applicable individual- or family-reported, clinically-observed, and
13research-supported evidence. The best available evidence, matched
14to consumer circumstances and preferences, is applied to ensure
15the quality of clinical judgments and facilitates the most
16cost-effective care.

17(4) “Parent participation” shall include, but shall not be limited
18to, the following meanings:

19(A) Completion of group instruction on the basics of behavior
20intervention.

21(B) Implementation of intervention strategies, according to the
22intervention plan.

23(C) If needed, collection of data on behavioral strategies and
24submission of that data to the provider for incorporation into
25progress reports.

26(D) Participation in any needed clinical meetings.

27(E) Purchase of suggested behavior modification materials or
28community involvement if a reward system is used.

29begin insert

begin insertSEC. 8.end insert  

end insert

begin insertSection 4686.5 of the end insertbegin insertWelfare and Institutions Codeend insert
30begin insert is amended to read:end insert

31

4686.5.  

(a) Effective July 1, 2009, notwithstanding any other
32provision of law or regulation to the contrary, all of the following
33shall apply:

34(1) A regional center may only purchase respite services when
35the care and supervision needs of a consumer exceed that of an
36individual of the same age without developmental disabilities.

37(2) A regional center shall not purchase more than 21 days of
38out-of-home respite services in a fiscal year nor more than 90 hours
39of in-home respite services in a quarter, for a consumer.

P25   1(3) (A) A regional center may grant an exemption to the
2 requirements set forth in paragraphs (1) and (2) if it is demonstrated
3that the intensity of the consumer’s care and supervision needs are
4such that additional respite is necessary to maintain the consumer
5in the family home, or there is an extraordinary event that impacts
6the family member’s ability to meet the care and supervision needs
7of the consumer.

begin insert

8(B) At the time of development, scheduled review, or
9modification of a consumer’s individual program plan or
10individualized family service plan, the regional center shall
11provide, in a non-technical, understandable form and in the native
12language of the consumer or his or her parents, legal guardian,
13conservator, or authorized representative, or both, a written
14statement describing the exemption in subparagraph (A) and
15examples of documentation that may be submitted to demonstrate
16qualification for the exemption.

end insert
begin delete

17(B)

end delete

18begin insert(end insertbegin insertC)end insert For purposes of this section, “family member” means an
19individual who:

20(i) Has a consumer residing with him or her.

21(ii) Is responsible for the 24-hour care and supervision of the
22consumer.

23(iii) Is not a licensed or certified residential care facility or foster
24family home receiving funds from any public agency or regional
25center for the care and supervision provided. Notwithstanding this
26provision, a relative who receives foster care funds shall not be
27precluded from receiving respite.

28(4) A regional center shall not purchase day care services to
29replace or supplant respite services. For purposes of this section,
30“day care” is defined as regularly provided care, protection, and
31supervision of a consumer living in the home of his or her parents,
32for periods of less than 24 hours per day, while the parents are
33engaged in employment outside of the home or educational
34activities leading to employment, or both.

35(5) A regional center shall only consider in-home supportive
36services a generic resource when the approved in-home supportive
37services meets the respite need as identified in the consumer’s
38individual program plan (IPP) or individualized family service
39plan (IFSP).

P26   1(b) For consumers receiving respite services on July 1, 2009,
2as part of their IPP or IFSP, subdivision (a) shall apply on August
31, 2009.

4(c) This section shall remain in effect until implementation of
5the individual choice budget pursuant to Section 4648.6 and
6certification by the Director of the Department of Developmental
7Services that the individual choice budget has been implemented
8and will result in state budget savings sufficient to offset the costs
9associated with the repeal of this section. This section shall be
10repealed on the date of certification.

begin delete
11

SECTION 1.  

It is the intent of the Legislature to enact
12legislation to require regional centers to provide nontechnical,
13understandable information in a consumer’s native language
14regarding the complex process of obtaining certain regional center
15services.

end delete


O

    98