P1 1WHEREAS, Cystic fibrosis is the second most common chronic,
2progressive, and life-threatening genetic disease in the United
3States, and one for which there is no known cure; and
4WHEREAS, Approximately 30,000 children and adults in the
5United States have cystic fibrosis and more than 1,000 new cases
6are diagnosed each year; and
7WHEREAS, During the 1950s, few children with cystic fibrosis
8lived long enough to attend elementary school; and
9WHEREAS, Due to progress in understanding and treating the
10disease, many people living with cystic fibrosis can now expect
11to live into their 40s and beyond; and
12WHEREAS, One of every 3,500 babies born in the United States
13is born with cystic fibrosis; and
14WHEREAS, The federal Centers for Disease Control and
15Prevention estimates that more than 12 million Americans are
16unknowing, symptomless carriers of the cystic fibrosis gene and
17have high odds of passing the gene to their children; and
18WHEREAS, The federal Centers for Disease Control and
19Prevention recommends that all states consider screening newborns
20for cystic fibrosis; and
21WHEREAS, The Cystic Fibrosis Foundation urges all states to
22implement newborn screening for cystic fibrosis to facilitate early
23diagnosis and treatment that improves health and longevity; and
P2 1WHEREAS, Prompt, aggressive treatment of the symptoms of
2cystic fibrosis can extend the lives of people who have the disease;
3and
4WHEREAS, Recent advances in cystic fibrosis research have
5produced promising leads in gene, protein, and drug therapies
6beneficial to people who have the disease; and
7WHEREAS, Innovative research is progressing faster, and is
8being conducted more aggressively, than ever before, due, in part,
9to the Cystic Fibrosis Foundation’s establishment of a model
10clinical trials network; and
11WHEREAS, Although the Cystic Fibrosis Foundation continues
12to fund a research pipeline for more than two dozen potential
13therapies and funds a nationwide network of care centers that
14extend the length and quality of life for people with cystic fibrosis,
15lives continue to be lost to this disease every day; and
16WHEREAS, Education of the public about cystic fibrosis,
17including the symptoms of the disease, increases knowledge and
18understanding of cystic fibrosis and promotes early diagnosis; and
19WHEREAS, The Cystic Fibrosis Foundation will conduct
20activities to honor National Cystic Fibrosis Awareness Month
21during May 2015; now, therefore, be it
22Resolved by the Senate of the State of California, That the Senate
23proclaims the month of May 2015 as Cystic Fibrosis Awareness
24Month; and be it further
25Resolved, That the Senate honors the goals and ideals of Cystic
26Fibrosis Awareness Month so as to promote further public
27awareness and understanding of cystic fibrosis; and be it further
28Resolved, That the Senate encourages early diagnosis and access
29to quality care for people with cystic fibrosis to improve the quality
30of their lives, advocates for increased support for people who have
31cystic fibrosis and their families, and supports research to find a
32cure for cystic fibrosis; and be it further
33Resolved, That the Secretary of the Senate transmit copies of
34this resolution to the author for appropriate distribution.
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