BILL ANALYSIS                                                                                                                                                                                                    Ó



          SENATE COMMITTEE ON APPROPRIATIONS
                             Senator Ricardo Lara, Chair
                            2015 - 2016  Regular  Session

          SB 128 (Wolk) - End of life
          
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          |Version: April 14, 2015         |Policy Vote: HEALTH 6 - 2, JUD. |
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          |Urgency: No                     |Mandate: Yes                    |
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          |Hearing Date: May 28, 2015      |Consultant: Brendan McCarthy    |
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          SUSPENSE FILE. AS AMENDED.




          


          Bill  
          Summary:  SB 128 would allow a terminally ill individual to  
          request a prescription for aid-in-dying medication, if certain  
          conditions are met and certain procedures are followed.


          Fiscal Impact (as approved on May 28,  
          2015):  
           One-time costs of $265,000 over two years for the development  
            of regulations by the Department of Public Health (General  
            Fund).

           One-time costs of $90,000 and ongoing costs of $10,000 per  
            year for the Department of Public Health to develop and  







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            operate a secure computer system for tracking patients who  
            have received an aid-in-dying prescription (General Fund).

           Ongoing costs of $235,000 per year for Department of Public  
            Health staff to collect data, follow up on prescriptions with  
            prescribing physicians, and prepare the required annual report  
            (General Fund).

           Ongoing costs of $275,000 per year for Department of Public  
            Health staff to review a sample of the medical records of  
            participating patients, to ensure compliance with the  
            requirements of the bill (General Fund).

           One-time costs of $600,000 over two year for the Department of  
            Managed Health Care to develop policies, adopt regulations,  
            and respond to public record requests (Managed Care Fund). The  
            bill does not mandate coverage for aid-in-dying medication by  
            health plans. However, because current law mandates coverage  
            for pain management drugs, the Department expects to develop  
            regulations to clarify the responsibilities of health plans in  
            this area.

           Minor costs to the Medical Board. The Medical Board would not  
            need to amend or adopt any regulations. The Medical Board  
            estimates that any additional enforcement actions due to the  
            bill would result in minor costs.

           Minor costs to the Board of Pharmacy. The Board of Pharmacy  
            would not need to amend or adopt any regulations. The Board of  
            Pharmacy estimates that any additional enforcement actions due  
            to the bill would result in minor costs.

           Minor potential reduction in statewide health care spending  
            (various funds). (See below.) 


          Background:  Under current law, when a health care provider makes a  
          diagnosis that a patient has a terminal illness, the health care  
          provider is required to give certain information to the patient,  
          including information about hospice care, the patient's rights  
          to continue to receive care or to refuse care, the right to give  
          future health care instructions through advanced care directives  
          and other means, and other information.









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          Proposed Law:  
            SB 128 would allow a terminally ill individual to request a  
          prescription for aid-in-dying medication, if certain conditions  
          and procedures are met.
          Specific provisions of the bill would:
           Permit a competent individual who is terminally ill to make a  
            request for aid-in-dying medication if specified conditions  
            are met;
           Specify the manner of making the request;
           Specify the duties and responsibilities of the attending  
            physician to whom the request is made, including requirements  
            for referral to a consulting physician, and verification that  
            the patient is not under duress;
           Specify the procedures for delivering the medication to the  
            patient;
           Specify the documentation requirements on the attending  
            physician;
           Provide specified patient protections;
           Provide protections for physicians and pharmacists from  
            professional censure;
           Make participation by health care providers voluntary;
           Make it a felony to forge a request or coerce a patient to  
            participate;
           Require the Department of Health Care Services to review  
            records from participating patients' medical records;
           Require the Department of Public Health to adopt regulations  
            for reporting by physicians and pharmacists;
           Provide for protection of patient confidentiality.


          Related  
          Legislation:  
           SB 19 (Wolk) would establish a statewide registry for  
            Physician Orders for Life Sustaining Treatment. That bill will  
            be heard in this committee.
           SB 149 (Stone) would make investigational drugs available to  
            patients with a terminal illness. That bill will be heard in  
            this committee.


          Staff  
          Comments:  Under the bill, a terminally ill patient could use  
          aid-in-dying medication to hasten his or her death. In those  








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          cases, there may be some avoided health care costs. However,  
          experience with a similar program in Oregon indicates that a  
          relatively small number of individuals is likely to make use of  
          the program (less than 1,000 people per year, extrapolating from  
          experience in Oregon). Of the participating individuals in  
          Oregon, 90% were enrolled in hospice care at the time of their  
          death. While hospice care does not always preclude the continued  
          use of curative medical interventions, in practice, most hospice  
          patients are no longer using intensive medical services (such as  
          inpatient hospital services). Therefore, avoided health care  
          expenditures are not likely to be significant.
          The only costs that may be incurred by a local agency relate to  
          crimes and infractions. Under the California Constitution, such  
          costs are not reimbursable by the state.


          Author's amendments (as adopted May 28, 2015): make a variety of  
          changes to the requirements on physicians, make changes to  
          patient protection requirements, and make technical changes.




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