BILL ANALYSIS Ó SENATE COMMITTEE ON APPROPRIATIONS Senator Ricardo Lara, Chair 2015 - 2016 Regular Session SB 128 (Wolk) - End of life ----------------------------------------------------------------- | | | | | | ----------------------------------------------------------------- |--------------------------------+--------------------------------| | | | |Version: April 14, 2015 |Policy Vote: HEALTH 6 - 2, JUD. | | | 5 - 2 | | | | |--------------------------------+--------------------------------| | | | |Urgency: No |Mandate: Yes | | | | |--------------------------------+--------------------------------| | | | |Hearing Date: May 28, 2015 |Consultant: Brendan McCarthy | | | | ----------------------------------------------------------------- SUSPENSE FILE. AS AMENDED. Bill Summary: SB 128 would allow a terminally ill individual to request a prescription for aid-in-dying medication, if certain conditions are met and certain procedures are followed. Fiscal Impact (as approved on May 28, 2015): One-time costs of $265,000 over two years for the development of regulations by the Department of Public Health (General Fund). One-time costs of $90,000 and ongoing costs of $10,000 per year for the Department of Public Health to develop and SB 128 (Wolk) Page 1 of ? operate a secure computer system for tracking patients who have received an aid-in-dying prescription (General Fund). Ongoing costs of $235,000 per year for Department of Public Health staff to collect data, follow up on prescriptions with prescribing physicians, and prepare the required annual report (General Fund). Ongoing costs of $275,000 per year for Department of Public Health staff to review a sample of the medical records of participating patients, to ensure compliance with the requirements of the bill (General Fund). One-time costs of $600,000 over two year for the Department of Managed Health Care to develop policies, adopt regulations, and respond to public record requests (Managed Care Fund). The bill does not mandate coverage for aid-in-dying medication by health plans. However, because current law mandates coverage for pain management drugs, the Department expects to develop regulations to clarify the responsibilities of health plans in this area. Minor costs to the Medical Board. The Medical Board would not need to amend or adopt any regulations. The Medical Board estimates that any additional enforcement actions due to the bill would result in minor costs. Minor costs to the Board of Pharmacy. The Board of Pharmacy would not need to amend or adopt any regulations. The Board of Pharmacy estimates that any additional enforcement actions due to the bill would result in minor costs. Minor potential reduction in statewide health care spending (various funds). (See below.) Background: Under current law, when a health care provider makes a diagnosis that a patient has a terminal illness, the health care provider is required to give certain information to the patient, including information about hospice care, the patient's rights to continue to receive care or to refuse care, the right to give future health care instructions through advanced care directives and other means, and other information. SB 128 (Wolk) Page 2 of ? Proposed Law: SB 128 would allow a terminally ill individual to request a prescription for aid-in-dying medication, if certain conditions and procedures are met. Specific provisions of the bill would: Permit a competent individual who is terminally ill to make a request for aid-in-dying medication if specified conditions are met; Specify the manner of making the request; Specify the duties and responsibilities of the attending physician to whom the request is made, including requirements for referral to a consulting physician, and verification that the patient is not under duress; Specify the procedures for delivering the medication to the patient; Specify the documentation requirements on the attending physician; Provide specified patient protections; Provide protections for physicians and pharmacists from professional censure; Make participation by health care providers voluntary; Make it a felony to forge a request or coerce a patient to participate; Require the Department of Health Care Services to review records from participating patients' medical records; Require the Department of Public Health to adopt regulations for reporting by physicians and pharmacists; Provide for protection of patient confidentiality. Related Legislation: SB 19 (Wolk) would establish a statewide registry for Physician Orders for Life Sustaining Treatment. That bill will be heard in this committee. SB 149 (Stone) would make investigational drugs available to patients with a terminal illness. That bill will be heard in this committee. Staff Comments: Under the bill, a terminally ill patient could use aid-in-dying medication to hasten his or her death. In those SB 128 (Wolk) Page 3 of ? cases, there may be some avoided health care costs. However, experience with a similar program in Oregon indicates that a relatively small number of individuals is likely to make use of the program (less than 1,000 people per year, extrapolating from experience in Oregon). Of the participating individuals in Oregon, 90% were enrolled in hospice care at the time of their death. While hospice care does not always preclude the continued use of curative medical interventions, in practice, most hospice patients are no longer using intensive medical services (such as inpatient hospital services). Therefore, avoided health care expenditures are not likely to be significant. The only costs that may be incurred by a local agency relate to crimes and infractions. Under the California Constitution, such costs are not reimbursable by the state. Author's amendments (as adopted May 28, 2015): make a variety of changes to the requirements on physicians, make changes to patient protection requirements, and make technical changes. -- END --