BILL ANALYSIS                                                                                                                                                                                                    Ó






           ----------------------------------------------------------------- 
          |SENATE RULES COMMITTEE            |                       SCR 108|
          |Office of Senate Floor Analyses   |                              |
          |(916) 651-1520    Fax: (916)      |                              |
          |327-4478                          |                              |
           ----------------------------------------------------------------- 


                                 UNFINISHED BUSINESS


          Bill No:  SCR 108
          Author:   Monning (D), et al.
          Amended:  4/25/16  
          Vote:     21  

           SENATE FLOOR:  40-0, 2/29/16
           AYES: Allen, Anderson, Bates, Beall, Berryhill, Block,  
            Cannella, De León, Fuller, Gaines, Galgiani, Glazer, Hall,  
            Hancock, Hernandez, Hertzberg, Hill, Hueso, Huff, Jackson,  
            Lara, Leno, Leyva, Liu, McGuire, Mendoza, Mitchell, Monning,  
            Moorlach, Morrell, Nguyen, Nielsen, Pan, Pavley, Roth, Runner,  
            Stone, Vidak, Wieckowski, Wolk

          ASSEMBLY FLOOR:  Read and adopted, 4/25/16

           SUBJECT:   Rare Disease Day


          SOURCE:    Author


          DIGEST:  This resolution proclaims February 29, 2016, as Rare Disease  
          Day in California.
          Assembly Amendments make technical changes and add co-authors.


          ANALYSIS:  This resolution makes the following legislative  
          findings:


          1)There are nearly 7,000 diseases and conditions that are  
            considered rare, each affecting fewer than 200,000 Americans,  
            according to the National Institutes of Health.  While each of  








                                                                    SCR 108  
                                                                    Page  2


            these diseases may affect a small number of people, rare  
            diseases as a group affect almost 30 million Americans.


          2)Individuals and families affected by rare diseases often  
            experience problems such as diagnosis delay, difficulty  
            finding a medical expert, and lack of access to treatments or  
            ancillary services.


          3)While the public is familiar with some rare diseases, many  
            patients and families affected by less widely known rare  
            diseases bear a large share of the burden of funding research  
            and raising public awareness to support the search for  
            treatments.


          4)Residents of California are among those affected by rare  
            diseases because nearly one in 10 Americans have rare  
            diseases.


          This resolution proclaims February 29, 2016, as Rare Disease Day  
          in California, and provides that every year thereafter the  
          Legislature shall recognize Rare Disease Day in California on  
          the last day of February.


          FISCAL EFFECT:   Appropriation:    No          Fiscal  
          Com.:NoLocal:    No


          SUPPORT:   (Verified4/26/16)


          Bayer
          California Life Sciences Association
          International Pemphigus Pemphigoid Foundation
          National Organization for Rare Disorders


          OPPOSITION:   (Verified4/26/16)









                                                                    SCR 108  
                                                                    Page  3


          None received








          Prepared by:  Jonas Austin / SFA / (916) 651-1520
          4/27/16 15:57:37


                                   ****  END  ****