BILL ANALYSIS                                                                                                                                                                                                    Ó




           ----------------------------------------------------------------- 
          |SENATE RULES COMMITTEE            |                       SCR 124|
          |Office of Senate Floor Analyses   |                              |
          |(916) 651-1520    Fax: (916)      |                              |
          |327-4478                          |                              |
           ----------------------------------------------------------------- 


                                    THIRD READING


          Bill No:  SCR 124
          Author:   Fuller (R), et al.
          Introduced:3/30/16  
          Vote:     21  

           SUBJECT:   Congenital Diaphragmatic Hernia Awareness Month


          SOURCE:    Author


          DIGEST:  This resolution designates April 2016 as Congenital  
          Diaphragmatic Hernia Awareness Month.
          ANALYSIS:  This resolution makes the following legislative  
          findings:


          1)Congenital diaphragmatic hernia (CDH) occurs when the  
            diaphragm fails to fully form, allowing abdominal organs to  
            migrate into the chest cavity and preventing lung growth.  The  
            federal Centers for Disease Control and Prevention recognizes  
            CDH as a birth defect.


          2)The majority of CDH patients suffer from underdeveloped lungs  
            or poor pulmonary function.  CDH patients often endure  
            long-term complications, including pulmonary hypertension,  
            pulmonary hypoplasia, asthma, gastrointestinal reflex, feeding  
            disorders, and developmental delays.


          3)CDH is treated through mechanical ventilation, a heart and  
            lung bypass, which is commonly known as extracorporeal  
            membrane oxygenation (ECMO), machines, and surgical repair,  
            however, surgical repair is often not a permanent solution for  








                                                                    SCR 124  
                                                                    Page  2



            CDH and can lead to reherniation and require additional  
            surgery.


          4)Infants born with CDH have a high mortality rate, ranging from  
            20 to 60 percent and CDH affects approximately 1,090 babies  
            each year in the United States.  The cause of CDH is unknown.


          This resolution:


          1)Designates April 2016 as California Congenital Diaphragmatic  
            Hernia Awareness Month.


          2)Encourages that steps should be taken to: 


             a)   Raise awareness of and increase public knowledge about  
               CDH; 


             b)   Inform all Californians about the dangers of CDH,  
               especially those groups that may be disproportionately  
               affected by CDH or that have lower survival rates;


             c)   Disseminate information on the importance of quality  
               neonatal care of CDH patients; 


             d)   Promote quality prenatal care and the use of ultrasounds  
               to detect CDH in utero; and 


             e)   Support research funding of CDH to improve screening and  
               treatment for CDH, discover the causes of CDH, and develop  
               a cure for CDH.


          3)Calls upon the people of California, interest groups, and  








                                                                    SCR 124  
                                                                    Page  3



            affected persons to promote awareness of CDH, take an active  
            role in the fight against this devastating birth defect, and  
            observe California Congenital Diaphragmatic Hernia Awareness  
            Month with appropriate ceremonies and activities


          FISCAL EFFECT:   Appropriation:    No          Fiscal  
          Com.:NoLocal:    No


          SUPPORT:   (Verified4/6/16)


          None received


          OPPOSITION:   (Verified4/6/16)


          None received





          Prepared by:  Jonas Austin / SFA / (916) 651-1520
          4/6/16 16:16:31


                                   ****  END  ****