BILL ANALYSIS Ó SCR 124 Page 1 Date of Hearing: May 2, 2016 ASSEMBLY COMMITTEE ON RULES Gordon, Chair SCR 124 (Fuller) - As Introduced March 30, 2016 SENATE VOTE: 38-0 SUBJECT: Congenital Diaphragmatic Hernia Awareness Month SUMMARY: Designates April 2016 as Congenital Diaphragmatic Hernia Awareness Month. Specifically, this resolution makes the following legislative findings: 1)Congenital diaphragmatic hernia (CDH), a birth defect, occurs when the diaphragm fails to fully form, allowing abdominal organs to migrate into the chest cavity and preventing lung growth. The cause of CDH is unknown. 2)The majority of CDH patients suffer from underdeveloped lungs or poor pulmonary function; and babies born with CDH endure extended hospital stays in intensive care with multiple surgeries. 3)CDH is treated through mechanical ventilation, a heart and lung bypass, which is commonly known as extracorporeal membrane oxygenation, machines, and surgical repair. Surgical repair is often not a permanent solution for CDH and can lead to reherniation and require additional surgery. 4)Infants born with CDH have a high mortality rate, ranging from 20% to 60%, with a rate of occurrence of 1 in every 3,800 live SCR 124 Page 2 births worldwide. CDH affects approximately 1,090 babies each year in the United States, and, since 2000, more than 700,000 babies have been affected worldwide. FISCAL EFFECT: None REGISTERED SUPPORT / OPPOSITION: Support None on file Opposition None on file Analysis Prepared by:Nicole Willis / RLS. / (916) 319-2800