BILL ANALYSIS Ó ----------------------------------------------------------------- |SENATE RULES COMMITTEE | SCR 133| |Office of Senate Floor Analyses | | |(916) 651-1520 Fax: (916) | | |327-4478 | | ----------------------------------------------------------------- THIRD READING Bill No: SCR 133 Author: Beall (D) Introduced:4/18/16 Vote: 21 SUBJECT: Gastroschisis Awareness Day SOURCE: Author DIGEST: This resolution recognizes July 30, 2016, as Gastroschisis Awareness Day in California. ANALYSIS: This resolution makes the following legislative findings: 1)There are one in 2,229 individuals born with gastroschisis in the United States and roughly the same number born in California annually. 2)Many Americans living with gastroschisis have serious and debilitating conditions that have a significant impact on the lives of those affected, including, but not limited to, failure to thrive or slow growth, short bowel syndrome, multiple organ transplants, and long-term feeding issues. 3)Individuals and families affected by gastroschisis often experience problems such as a sense of isolation, difficulty in obtaining an accurate and timely diagnosis, few treatment options, and problems related to accessing or being reimbursed for treatment. SCR 133 Page 2 4)The cause of gastroschisis is relatively unknown, and patients and their families must bear a large share of the burden for things such as raising funds for research. A statewide proclamation can greatly benefit the families coping with this disease. This resolution recognizes July 30, 2016, as Gastroschisis Awareness Day in California. FISCAL EFFECT: Appropriation: No Fiscal Com.:NoLocal: No SUPPORT: (Verified4/20/16) None received OPPOSITION: (Verified4/20/16) None received Prepared by: Jonas Austin / SFA / (916) 651-1520 4/20/16 16:32:18 **** END **** SCR 133 Page 3