BILL ANALYSIS                                                                                                                                                                                                    Ó




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          |SENATE RULES COMMITTEE            |                       SCR 133|
          |Office of Senate Floor Analyses   |                              |
          |(916) 651-1520    Fax: (916)      |                              |
          |327-4478                          |                              |
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                                    THIRD READING


          Bill No:  SCR 133
          Author:   Beall (D)
          Introduced:4/18/16  
          Vote:     21  

           SUBJECT:   Gastroschisis Awareness Day


          SOURCE:    Author


          DIGEST:  This resolution recognizes July 30, 2016, as Gastroschisis  
          Awareness Day in California.
          ANALYSIS:  This resolution makes the following legislative  
          findings:


          1)There are one in 2,229 individuals born with gastroschisis in  
            the United States and roughly the same number born in  
            California annually.


          2)Many Americans living with gastroschisis have serious and  
            debilitating conditions that have a significant impact on the  
            lives of those affected, including, but not limited to,  
            failure to thrive or slow growth, short bowel syndrome,  
            multiple organ transplants, and long-term feeding issues.


          3)Individuals and families affected by gastroschisis often  
            experience problems such as a sense of isolation, difficulty  
            in obtaining an accurate and timely diagnosis, few treatment  
            options, and problems related to accessing or being reimbursed  
            for treatment.









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          4)The cause of gastroschisis is relatively unknown, and patients  
            and their families must bear a large share of the burden for  
            things such as raising funds for research.  A statewide  
            proclamation can greatly benefit the families coping with this  
            disease.


          This resolution recognizes July 30, 2016, as Gastroschisis  
          Awareness Day in California.


          FISCAL EFFECT:   Appropriation:    No          Fiscal  
          Com.:NoLocal:    No


          SUPPORT:   (Verified4/20/16)


          None received


          OPPOSITION:   (Verified4/20/16)


          None received





          Prepared by:  Jonas Austin / SFA / (916) 651-1520
          4/20/16 16:32:18


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