BILL ANALYSIS                                                                                                                                                                                                    Ó



                                                                    SCR 133


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          Date of Hearing:   June 23, 2016


                             ASSEMBLY COMMITTEE ON RULES


                              Richard S. Gordon, Chair


          SCR  
                       133 (Beall) - As Introduced April 18, 2016


          SENATE VOTE:  38-0


          SUBJECT:  Gastroschisis Awareness Day


          SUMMARY:  Recognizes July 30, 2016, as Gastroschisis Awareness  
          Day in California.  Specifically, this resolution makes the  
          following legislative findings: 


          1)One in 2,229 individuals is born with gastroschisis in the  
            United States and roughly the same number is born in  
            California annually.



          2)Many Americans living with gastroschisis have serious and  
            debilitating conditions that have a significant impact on the  
            lives of those affected, including, but not limited to,  
            failure to thrive or slow growth, short bowel syndrome,  
            multiple organ transplants, and long-term feeding issues.



          3)Individuals and families affected by gastroschisis often  
            experience problems such as a sense of isolation, difficulty  
            in obtaining an accurate and timely diagnosis, few treatment  
            options, and problems related to accessing or being reimbursed  








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            for treatment.



          4)Avery's Angels Gastroschisis Foundation (AAGF), a nonprofit  
            organization based out of Raleigh, North Carolina, is  
            organizing a nationwide observance of Gastroschisis Awareness  
            Day on July 30, 2016, and every year thereafter. 



          5)The founder of AAGF's son, Avery John Rauen, passed away from  
            complications of his gastroschisis on July 30, 2009, at the  
            University of North Carolina Hospital, and this date is to  
            commemorate him and all others who are living with or who are  
            deceased from gastroschisis. 
          FISCAL EFFECT:  None


          REGISTERED SUPPORT / OPPOSITION:


          Support


          Avery's Angels Gastroschisis Foundation (AAGF)


          Opposition
          None on file


          Analysis Prepared by:Nicole Willis / RLS. / (916) 319-2800
          
















                                                                    SCR 133


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