BILL ANALYSIS Ó SB 319 Page 1 Date of Hearing: July 14, 2015 ASSEMBLY COMMITTEE ON HEALTH Rob Bonta, Chair SB 319 (Beall) - As Amended July 7, 2015 SENATE VOTE: 40-0 SUBJECT: Child welfare services: public health nursing. SUMMARY: Requires a foster care public health nurse (FCPHN) to monitor the administration of psychotropic medications to children in foster care and authorizes the disclosure of health care information to FCPHN. Specifically, this bill: 1)Authorizes a provider of health care to disclose medical information to a FCPHN to coordinate health care services and medical treatment for a minor who has either been taken into temporary custody, had a petition filed with the court, or been adjudged a dependent child or ward of the juvenile court, as specified. 2)Requires the FCPHN and the child's social worker to consult, collaborate, and share information in a timely manner to ensure that the child's physical, mental, dental, and developmental needs are met. 3)Requires that a FCPHN have access to a child's medical, SB 319 Page 2 dental, and mental health care information in order to allow that nurse to fulfill his or her duties. 4)Requires a FCPHN, at the request of a nonminor dependent, to assist him or her in making informed decisions about his or her health care by, at a minimum, providing educational materials. 5)Adds to the duties of a FCPHN the monitoring of each child in foster care who is administered one or more psychotropic medications and requires that monitoring include, but not be limited to, all of the following: a) Reviewing each request for psychotropic medication to verify that all required information is provided to the court; b) Monitoring and recording the appropriate completion of laboratory tests, other screenings and measurements, evaluations and assessments in a child's health and education passport; c) Reviewing, monitoring, and confirming that the juvenile court has authorized the psychotropic medication to be administered to a child; d) Taking steps to confirm that appropriate periodic follow-up health visits and procedures are scheduled and completed; SB 319 Page 3 e) Completing appropriate documentation concerning psychotropic medications in a child's health and education passport; and, f) Documenting the response of a child to the administration of psychotropic medication through review of the child's lab tests and reports, and providing information to the child's social worker to be included in court reports if necessary. EXISTING LAW: 1)Requires the Department of Social Services (DSS) to establish a program that provides health-related case management services by a FCPHN to coordinate with child welfare service workers regarding the provision of health care services to children in foster care. 2)Requires that, when a child is placed in foster care, the case plan for each child include a summary of the health and education information or records of the child maintained in the form of a health and education passport, or a comparable format designed by the child protective agency. SB 319 Page 4 3)Requires FCPHNs to perform health-related case management duties that include, but are not limited to, documenting that each child receives initial and follow-up screenings, collecting health information and other relevant data, expediting referrals, and facilitating the acquisition of necessary court authorizations for procedures or medications. 4)Limits the scope of services provided by a FCPHN to services reimbursable under Title XIX of the federal Social Services Act, which provides a 75% match for health-related case management but excludes the direct provision of health care services. 5)Requires counties to establish a community Child Health and Disabilities Prevention (CHDP) program for the purpose of providing early and periodic assessments of the health status of children in the county or counties. Requires counties to be reimbursed for the amount required in accordance with the approved community CHDP plan. 6)Permits only a juvenile court judicial officer to have authority to make orders regarding the administration of psychotropic medications for a minor who has been adjudged a dependent of the court and removed from the physical custody of his or her parent. FISCAL EFFECT: According to the Senate Appropriations Committee, annual costs of $4.5 million per year to provide additional services to foster youth who are administered psychotropic drugs (25% General Fund and 75% federal funds). SB 319 Page 5 COMMENTS: 1)PURPOSE OF THIS BILL. According to the author, nearly one in four children in foster care and 56% of children in group homes are receiving psychotropic drugs, often without adequate oversight. The author states that it is currently unclear if foster youth are being given these potent drugs as part of a therapeutic regimen or whether these medications are being used solely to control a youth's behavior. Without adequate oversight, these powerful drugs can cause irreversible damage, and many youth experience long-term side effects, including diabetes, tics, weight gain, and drowsiness. The author further states that this bill is grounded in the expertise developed working with medical experts in the State's Quality Improvement Project, the federally mandated process for developing protocols and procedures to govern the use of these medications on foster children. The author concludes that the bill utilizes public health nurses, one of the great resources of our child welfare system, to oversee the medical monitoring of psychotropic drugs to increase oversight and reduce the number of children prescribed these powerful drugs. 2)BACKGROUND. a) Psychotropic Drugs. Psychotropic medications are any chemical substance that changes brain function and results in alterations in perception, mood, or consciousness. Psychiatric medications are prescribed for the management of mental and emotional disorders, or to aid in overcoming challenging behavior. There are six major classes of psychotropic medications: SB 319 Page 6 i) Antidepressants, which treat disparate disorders such as clinical depression, dysthymia, anxiety, eating disorders, and borderline personality disorder; ii) Stimulants, which are used to treat disorders such as attention deficit disorder and narcolepsy and to suppress the appetite; iii) Antipsychotics, which are used to treat psychotic symptoms, such as those associated with schizophrenia or severe mania; iv) Mood stabilizers, which are used to treat bipolar disorder and schizoaffective disorder; v) Anxiolytics, which are used to treat anxiety disorders; and, vi) Depressants, which are used as hypnotics, sedatives, and anesthetics, depending upon dosage. While these drugs have been proven effective for many adults living with mental disorders, the research on their impacts on youth, particularly children under six, is minimal. The National Institute on Mental Health states that while researchers are trying to clarify how early treatment affects a growing body, families and doctors should weigh the benefits and risks of each medication. SB 319 Page 7 b) Media Attention. A recent series of stories published in the San Jose Mercury News (August, 24, 2014, "Drugging Our Kids") and most recently in the Los Angeles Times (April 7, 2015, "Use of Meds by L.A. County Foster, Delinquent Kids Prompts Reform"), highlighted growing concerns that psychotropic medications have been relied on by California's child welfare and children's mental health systems as a means of controlling, instead of treating, youth who suffer from trauma-related behavioral health challenges. The series detailed significant challenges in accessing pharmacy benefits claims data held by the California Department of Health Care Services (DHCS), eventually overcome through a Public Records Act request and lengthy negotiations, and demonstrated that prescribing rates were far higher than had been anticipated by child welfare system experts. The San Jose Mercury News series, "Drugging Our Kids," noted that nearly one of every four adolescents in California's foster system is receiving psychotropic medications, which is 3 1/2 times the rate for all adolescents nationwide. Over the last decade, almost 15% of the state's foster youth of all ages were receiving the medications. Long-term effects, particularly in children, have received little study, but for some psychotropics, there is evidence of persistent tics, increased risk of suicide, and brain shrinkage. c) CHDP & Health Care Program for Children in Foster Care (HCPCFC). HCPCFC implements California statute establishing a program of public health nursing within the child welfare services system. The program provides public health nurse expertise to meet the medical, dental, mental and developmental needs of children and youth in foster care. Currently, administrative responsibilities for the program are managed by the local CHDP program. Under the program, public health nurses provide the following SB 319 Page 8 services in consultation and collaboration with social workers and probation officers: i) Medical and health care case planning; ii) Assistance foster caregivers in obtaining timely health assessments and dental examinations for children; iii) Expediting referrals for medical, dental, mental health and developmental services; iv) Coordinating health services for children in out-of-county and out-of-state placements; v) Providing medical education through the interpretation of medical reports and training; and, vi) Participating in the creation and updating of the Health and Education Passport The CHDP program provides complete health assessments for the early detection and prevention of disease and disabilities for low-income children and youth. A health assessment consists of a health history, physical examination, developmental assessment, nutritional assessment, dental assessment, vision and hearing tests, a tuberculin test, laboratory tests, immunizations, health education/anticipatory guidance, and referral for any needed diagnosis and treatment." SB 319 Page 9 d) California guidelines. DHCS and DSS have the shared responsibility for the oversight of mental health services provided to children and youth involved with county child welfare and probation agencies. In early April 2015, the California Guidelines for the Use of Psychotropic Medication with Children and Youth in Foster Care were released specific to those children and youth who are: i) involved with child welfare services and/or probation services; and, ii) are placed in foster care. According to DHCS's Web site, the Guidelines are a statement of best practice for the treatment of children and youth in out-of-home care, who may require psychotropic medications. Depending on the nature, severity, and persistence of their symptoms, medication may be indicated as part of an initial treatment plan (as with Attention Deficit Hyperactivity Disorder, major depression, psychosis and disabling anxiety); may be considered only after appropriate psychosocial interventions are employed (as with moderate anxiety/depression); or, may not be indicated at all (as with learned defiance and predatory aggression). When psychotropic medication is indicated, it should be used in conjunction with psychosocial interventions. The exception is when psychosocial interventions have been effective and are therefore terminated, but continued use of medication is necessary to prevent the recurrence of symptoms. DHCS notes that the Guidelines represent the first comprehensive effort at the state level to address the use of psychotropic medication in children and youth in out-of-home care being served by the child welfare and/or probation system. DHCS expects that the Guidelines, which will be reviewed annually, will evolve over time in SB 319 Page 10 response to updated research and the evolution of best practices, and in response to feedback from youth, families, prescribers, other providers, and additional community stakeholders. 3)SUPPORT. The sponsors of this bill, National Center for Youth Law (NCYL) writes that psychotropic medications including antipsychotics have debilitating effects on children including crippling sedation, rapid, significant weight gain, diabetes, metabolic disturbance, heart disease, irreversible tremors, and other conditions which impact their health even as adults. NCYL states that since 2004 guidelines issued by the American Diabetes Association, the American Psychiatric Association, and the American Academy of Child and Adolescent Psychiatrists have called for the completion of lab tests and other screenings before a child is started on antipsychotics. NCYL argues that these screenings are completed for few foster children. NCYL concludes that public health nurses' medical expertise and their existing role in helping to manage health care services for foster children put them in a unique position to fill the gap in overseeing the care of children administered psychotropic medication. Additional supporters of this bill include the California Alliance of Child and Family Services, California Nurses Association, Children Now, the County Welfare Directors Association of California and others argue that it strengthens HCPCFC by explicitly giving FCPHNs access to information and the authority needed to monitor and oversee thousands of foster youth who are prescribed psychotropic medications. These supporters also note that this bill gives non-minor foster youth access to FCPHNs to help them make informed decisions about beginning or continuing the use of such medications. Supporters state that psychotropic medications have debilitating effects on children and cite that of all foster youth administered the medications 52% are given one or more antipsychotics-a class of drugs with few Food and Drug Administration approved indications for children and SB 319 Page 11 adolescents. Supporters further argue that the benefits and risks of such medications must be periodically reevaluated, including follow-up labs and other measures, which this bill provides. 4)RELATED LEGISLATION. a) SB 484 (Beall) requires DSS's Director to identify group homes that inappropriately administer psychotropic medications to children. SB 484 is pending in the Assembly Human Services Committee. b) SB 238 (Mitchell) requires specified certification and training programs for group home administrators, foster parents, child welfare social workers, dependency court judges, and court appointed council to include training on psychotropic medication, trauma, and behavioral health, for children receiving child welfare services. SB 238 is pending in the Assembly Human Services Committee. c) SB 253 (Monning) requires an order of the juvenile court authorizing psychotropic medication to require clear and convincing evidence of specified conditions. SB 253 is pending in the Assembly Human Services Committee. 5)PREVIOUS LEGISLATION. SB 543 (Bowen), Chapter 552, Statutes of 1999, mandates that once a child has been adjudged a dependent of the state, only the court may authorize psychotropic medications for the child, based on a request SB 319 Page 12 from a physician. 6)DOUBLE REFERRAL. This bill was heard by the Assembly Committee on Health and Human Services on June 30, 2015 and passed out of the Committee on a 7-0 vote. REGISTERED SUPPORT / OPPOSITION: Support National Center for Youth Law (sponsor) Kamala Harris, California Attorney General Abode Services Accessing Health Services for California's Children in Foster Care Task Force Advokids Alameda County Board of Supervisors California Academy of Child and Adolescent Psychiatry SB 319 Page 13 California Alliance of Child and Family Services California Department of Justice California Youth Connection Children's Defense Fund California Children Now Children's Partnership Children's Law Center of California Consumer Watchdog County Welfare Directors Association of California Disability Rights California First Place for Youth Humboldt County Transition Age Youth Collaboration John Burton Foundation for Children without Homes SB 319 Page 14 Laborer's International Union of North America Local 777 and 792 Mockingbird Society National Center for Youth Law Santa Clara County Board of Supervisors Eight individuals Opposition None on file. Analysis Prepared by:Paula Villescaz / HEALTH / (916) 319-2097