BILL ANALYSIS Ó SB 675 Page 1 Date of Hearing: July 14, 2015 ASSEMBLY COMMITTEE ON HEALTH Rob Bonta, Chair SB 675 (Liu) - As Amended June 23, 2015 SENATE VOTE: 37-0 SUBJECT: Hospitals: family caregivers. SUMMARY: Requires a hospital, as part of the discharge planning process, to provide each patient with an opportunity to identify a family caregiver who may assist in post hospital care; to provide an opportunity for the patient and his or her family caregiver to engage in the discharge planning process; and, to ensure that discharge planning is appropriate to the condition and acuity of the patient and the location to where the patient will be discharged. Specifically, this bill: 1)Requires a hospital to provide a patient who has been admitted with an opportunity to identify one family caregiver who may assist in post hospital care and record that information in the patient's medical chart. 2)Requires a hospital, if the patient is unconscious or otherwise incapacitated when admitted, to provide the patient or patient's legal guardian with an opportunity to designate a caregiver, at the discretion of the attending physician, once the patient is conscious. Requires the hospital to document SB 675 Page 2 the attempt in the patient's medical record. Requires the hospital, when a patient declines to designate a caregiver, to document the declination in the patient's medical record when appropriate. 3)Requires hospitals, as part of the discharge process, to provide an opportunity for the patient and his or her designated family caregiver to engage in the discharge planning process, which must include providing information and instruction regarding the post hospital care of the patient. Requires this information to include, but not be limited to, education and counseling about the patient's medications, including dosing and proper use of medication delivery devices, when applicable. 4)Requires the information be provided in a culturally competent manner in a language that is comprehensible to the patient and caregiver, and includes an opportunity for the caregiver to ask questions. 5)Requires hospital discharge planning policies to ensure that planning is appropriate to the condition of the patient, meets the patient's needs and acuity, and is appropriate to the discharge destination. 6)Specifies the provisions in this bill do not require a hospital to adopt a policy that would delay the discharge or transfer of a patient, or, disclose information if the patient has not provided consent that meets state and federal standards regarding the privacy and security of protected health information. Specifies that these provisions do not supersede any state or federal law regarding protected health information, including the federal Health Insurance Portability and Accountability Act. SB 675 Page 3 7)Defines family caregiver as a relative, friend, or neighbor who provides assistance related to an underlying physical or mental disability who is unpaid for those services. EXISTING LAW: 1)Establishes the Department of Public Health, which licenses and regulates general acute care hospitals, acute psychiatric hospitals, and special hospitals, and requires hospitals to have a written discharge planning policy and process. 2)Requires the hospital discharge policies to require that arrangements for post hospital care, including, but not limited to: care at home; in a skilled nursing facility (SNF) or intermediate care facility (ICF); or from a hospice, are made prior to discharge for patients who are likely to suffer adverse health consequences if there is no adequate discharge planning. Requires the hospital to provide counseling to prepare patients and families for post hospital care if the hospital determines counseling is needed. 3)Requires discharge planning policies to ensure the patient is informed, orally or in writing, of the continuing heath care requirements following discharge. Specifies the right to this information applies to the person who has legal responsibility to make decision on behalf of a patient if the patient is unable to make decisions for him- or herself. Allows a patient to request their friends or family members be given this information even if the patient is able to make his or her own decisions regarding medical care. 4)Requires a transfer summary to accompany the patient to a SNF or ICF or to the distinct part-SNF or intermediate care unit of the hospital. Requires the transfer summary to include SB 675 Page 4 essential information regarding the patient's diagnosis, pain treatment and management, medications, treatments, dietary requirements, rehabilitation potential, known allergies, and treatment plan. Requires the transfer summary be signed by the physician. 5)Requires a copy of the transfer summary be given to the patient and the patient's legal representative, if any, prior to transfer to a SNF or ICF. 6)Requires a hospital to establish and implement a written policy ensuring each patient receives, at discharge, information regarding each medication dispensed. 7)Requires a hospital, at time of discharge, to provide patients anticipated to be in need of long-term care (LTC) when discharged, with contact information for at least one public on nonprofit agency dedicated to providing information or referral services relating to LTC options. 8)Requires a hospital to provide a patient, upon admission or as soon as practical, written information regarding the patient's right to the following: a) To be informed of continuing health care requirements following discharge from the hospital; b) To be informed, if the patient authorizes, that a friend or family member be provided information about the patient's continuing health care requirements following discharge; c) To participate actively in decisions regarding medical SB 675 Page 5 care, and, to the extent permitted by law, that participation includes the right to refuse treatment; and, d) To receive appropriate pain assessment and treatment. 9)Allows a hospital to include the required information with other notices to the patient regarding patient rights. FISCAL EFFECT: According to the Senate Appropriations Committee, pursuant to Senate Rule 28.8, negligible state costs. COMMENTS: 1)PURPOSE OF THIS BILL. According to the author, unpaid family caregivers provide the majority of LTC support for their loved ones, yet the health and LTC system is slow to recognize them as partners. The author states, identifying and meeting the needs of California's caregivers can help ensure that appropriate care is provided for aging adults at home or in a rehabilitation or nursing facility and avoid unnecessary readmissions or prolonged stays. The author notes, without full understanding and appropriate training to meet the consumer's needs, both the caregiver and consumer suffer, and assisting a caregiver to understand the expectations for care to be provided when the consumer is transferred from one facility to another enhances that caregiver's ability to advocate on behalf of his or her loved one. The author concludes, caregiver tasks at home, especially paramedical tasks such as tube feeding and wound care, can be complex, and caregivers often require more information and demonstration before they are in the home setting and must perform these tasks by themselves. SB 675 Page 6 2)BACKGROUND. According to the Select Committee on Aging and Long-Term Care's 2014 report, A Shattered System: Reforming Long Term Care in California, one of the critical areas needing reform is hospital-to-home transitions. The report states, inadequate planning and lack of access to services and supports in the home setting often lead to repeat hospitalizations and a greater likelihood of long-term institutional placement, identifying and meeting the needs of California's caregivers can help ensure that individuals remain at home and avoid institutionalization. The report contends, family caregivers should be an integral part of the discharge and transition process because, properly supported, caregivers play a critical role in keeping consumers out of costly institutions and help to reduce preventable readmissions. The report recommends California enact legislation requiring hospitals to: record the name of the family caregiver when a loved one is admitted to a hospital or rehabilitation facility; notify the family caregiver when the loved one is to be discharged to another facility or home; provide an explanation and instruction of the medical tasks that the family caregiver would perform; and, provide telephonic technical assistance to the caregiver when questions arise. 3)SUPPORT. AARP and the American Federation of State, County and Municipal Employees, AFL-CIO support this bill because it will provide a family caregiver with an opportunity to be engaged in a patient's discharge planning process and obtain instruction for post-discharge care, the obvious benefit being that the caregiver will have a better understanding of the tasks required once home. The Biotechnology Industry Organization, BIOCOM, and the California Life Sciences Association support this bill, stating, as hospital stays become shorter and caregiving in the home becomes more complicated, it is extremely important that caregivers are given the tools necessary to keep their family members or loved ones health to avoid prolonged SB 675 Page 7 recovery or readmissions to the hospital. The organizations also note, medication adherence is necessary to guarantee a positive recovery and to assure patients remain as health as possible in their home or LTC facility. 4)RELATED LEGISLATION. ACR 38 (Brown) establishes a task force on family caregiving with twenty members appointed by the Senate and Assembly. Requires the task force to consider issues relating to family caregivers and report to the Legislature on those issues no later than July 1, 2018. ACR 38 is currently pending on the Senate Appropriations Committee suspense file. 5)PREVIOUS LEGISLATION. a) AB 1744 (Brown) of 2014, would have required California Department of Aging (CDA) to establish a blue-ribbon task force comprised of at least 13 members to make legislative recommendations to improve services for unpaid and family caregivers in California if CDA received sufficient non-state funds to implement these provisions; would have required the task force report to the Legislature on or before July 1, 2017; and, would have sunset the task force on January 1, 2014. AB 1744 was vetoed by the Governor, who stated: "The California State Plan on Aging, the California Plan for Alzheimer's Disease, the significant reports and action plans developed by the 33 Area Agencies on Aging, the Alzheimer's Association, the AARP and so many others have produced ample evidence for knowledgeable and caring people to recommend ways to improve support for family caregivers. Establishing another task force in state law simply isn't necessary." b) SB 633 (Dymally), Chapter 472, Statutes of 2007, requires hospitals to provide every patient anticipated to be in need of LTC, at the time of discharge, with contact information of entities providing information or referral SB 675 Page 8 services relating to community-based options. 6)SUGGESTED AMENDMENT. In order to ensure state law remains consistent with federal regulations, the Committee may wish to amend the bill to re-insert language deleted in previous amendments as follows: On page 3, line 35 of the bill, section (b) should read: The policy required by subdivision (a) shall require that appropriate arrangements for posthospital care, including, but not limited to, care at home, in a skilled nursing or intermediate care facility, or from a hospice, are made prior to discharge for those patients who are likely to suffer adverse health consequences upon discharge if there is no adequate discharge planning. If the hospital determines that the patient and family members or interested persons need to be counseled to prepare them for posthospital care, the hospital shall provide for that counseling. REGISTERED SUPPORT / OPPOSITION: Support AARP American Federation of State, County and Municipal Employees, AFL-CIO SB 675 Page 9 Arthritis Foundation BIOCOM Biotechnology Industry Organization California Black Health Network California Association for Nurse Practitioners California Association of Public Authorities for IHSS California Life Sciences Association Health Access California National Association of Social Workers - California Chapter Opposition None on file. Analysis Prepared by:Lara Flynn / HEALTH / (916) 319-2097