BILL ANALYSIS                                                                                                                                                                                                    Ó



          SENATE COMMITTEE ON APPROPRIATIONS
                             Senator Ricardo Lara, Chair
                            2015 - 2016  Regular  Session

          SB 982 (McGuire) - State Department of Developmental Services:   
          developmental centers
          
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          |Version: April 14, 2016         |Policy Vote: HUMAN S. 4 - 0     |
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          |Urgency: No                     |Mandate: No                     |
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          |Hearing Date: May 2, 2016       |Consultant: Brendan McCarthy    |
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          This bill meets the criteria for referral to the Suspense File.

          Bill  
          Summary:  SB 982 would require the Department of Developmental  
          Services to contract with an independent agency for a  
          longitudinal study of developmental center residents who  
          relocate to the community as a result of developmental center  
          closures.


          Fiscal  
          Impact:  Ongoing costs, likely between $500,000 and $1 million  
          per year, for an independent contractor to undertake the  
          required study (General Fund and federal funds). Under the bill,  
          the contractor would be required to conduct interviews with  
          former developmental center residents and family members and  
          review information held by the Department to assess former  
          resident satisfaction and quality of life. In addition to the  
          requirement for in-person interviews, the contractor will also  
          need to review data from the Department and regional centers,  
          analyze the collected data, and report to the Department.









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          Background:  California provides community-based services to approximately  
          250,000 persons with developmental disabilities and their  
          families through a statewide system of 21 regional centers.  
          Regional centers diagnostic and assessment services to determine  
          eligibility, convene planning teams to develop an Individual  
          Program Plan for each eligible consumer, and either provide or  
          obtain from generic agencies appropriate services for each  
          consumer in accordance with the Individual Program Plan. 

          In addition, the state operates developmental centers for  
          developmentally disabled individuals with significant service  
          needs. At one time, the state operated eight developmental  
          centers with a peak total population of 13,400. Today the state  
          operates three developmental centers with a population of about  
          1,000 residents. The Administration has submitted plans to the  
          Legislature to close Sonoma Developmental Center, Fairview  
          Developmental Center, and the general treatment program at  
          Porterville Developmental Center. 

          Historically, individuals were placed in developmental centers  
          (or state hospitals) because they had health care or support  
          needs that could not be met in a community setting. Over time,  
          services and supports available in the community have grown and  
          today many current developmental center residents or individuals  
          who once would have been developmental center residents are able  
          to reside in community settings with services and supports  
          coordinated by a regional center. The long-run trend is for  
          reduced residency in regional centers. There is a moratorium in  
          place preventing new admissions to developmental centers in most  
          circumstances.





          Proposed Law:  
            SB 982 would require the Department of Developmental Services  
          to contract with an independent agency for a longitudinal study  
          of developmental center residents who relocate to the community  
          as a result of developmental center closures.
          Specific provisions of the bill would:
           Require the Department to contract with an independent agency  
            or organization for a longitudinal study to assess the quality  
            of life and outcomes of residents who relocate to the  








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            community;
           Specify required qualifications for the contractor;
           Require the contractor to measure consumer and family  
            satisfaction with services provided;
           Require the contactor to conduct in-person interviews with  
            former residents and/or family, legal guardians, or  
            conservators, at least once per year;
           Require the contractor to interview staff and friends of the  
            consumer and review records;
           Require the Department to provide the contractor with access  
            to Department records;
           Require the Department to submit interim reports at the end of  
            the first and second years and at the completion of the study.


          Staff  
          Comments:  The study required in the bill is modelled on a study  
          that was required for former residents of the now-closed  
          Stockton Developmental Center. However, many of the former  
          residents from the Stockton Developmental Center moved to other  
          state facilities, which simplified the process for collecting  
          data about those individuals.
          While the intention of the bill seems to be for a three-year  
          longitudinal study, the bill does not specify the deadline for  
          the Department to submit the final study or include a sunset  
          date.




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