BILL NUMBER: SB 1659 CHAPTERED BILL TEXT CHAPTER 1025 FILED WITH SECRETARY OF STATE SEPTEMBER 29, 1996 APPROVED BY GOVERNOR SEPTEMBER 27, 1996 PASSED THE SENATE AUGUST 30, 1996 PASSED THE ASSEMBLY AUGUST 30, 1996 AMENDED IN ASSEMBLY AUGUST 28, 1996 AMENDED IN ASSEMBLY AUGUST 19, 1996 AMENDED IN ASSEMBLY AUGUST 5, 1996 AMENDED IN SENATE JUNE 24, 1996 AMENDED IN SENATE JUNE 11, 1996 INTRODUCED BY Senators Peace and Calderon FEBRUARY 21, 1996 An act to amend Section 128735 of the Health and Safety Code, relating to privacy. LEGISLATIVE COUNSEL'S DIGEST SB 1659, Peace. Personal rights: privacy. (1) Existing law, the California Constitution, provides that all people have certain inalienable rights, including the right to privacy. This bill would create the Joint Task Force on Personal Information and Privacy to make recommendations as to what changes to existing laws relating to the use or distribution of personal information about individuals by public and private entities are necessary to ensure that state law adequately protects the right of privacy and addresses the issues raised by the rapidly changing nature of information technology and systems. The bill would require the Legislative Analyst to compile the task force findings and recommendations on or before March 1, 1998. The bill would include a statement of legislative findings concerning the right to privacy. This bill would repeal these provisions as of January 1, 1999. (2) Existing law requires every organization that operates, conducts, or maintains a health facility, and the officers of the organization, to make and file specified reports with the Office of Statewide Health Planning and Development. This bill would state the intent of the Legislature that the patient's rights of confidentiality shall not be violated in any manner, and would exempt patient social security numbers and other specified information from the disclosure requirements of the California Public Records Act. THE PEOPLE OF THE STATE OF CALIFORNIA DO ENACT AS FOLLOWS: SECTION 1. The Legislature hereby finds and declares the following: (a) All people have an inalienable right to privacy as declared in Section 1 of Article I of the California Constitution. (b) Advances in technology have made it easier to create, acquire, and analyze detailed personal information about an individual. (c) Personal information, including information about a person's financial history, shopping habits, medical history, and travel patterns, is continuously being created. (d) The gathering of information, coupled with advances in technology, can benefit consumers and improve the flow of commerce in the state. SEC. 2. Section 128735 of the Health and Safety Code is amended to read: 128735. Every organization that operates, conducts, or maintains a health facility and the officers thereof, shall make and file with the office, at the times as the office shall require, all of the following reports on forms specified by the office that shall be in accord where applicable with the systems of accounting and uniform reporting required by this part, except the reports required pursuant to subdivision (g) shall be limited to hospitals: (a) A balance sheet detailing the assets, liabilities, and net worth of the health facility at the end of its fiscal year. (b) A statement of income, expenses, and operating surplus or deficit for the annual fiscal period, and a statement of ancillary utilization and patient census. (c) A statement detailing patient revenue by payer, including, but not limited to, Medicare, Medi-Cal, and other payers, and revenue center except that hospitals authorized to report as a group pursuant to subdivision (d) of Section 128760 are not required to report revenue by revenue center. (d) A statement of cash-flows, including, but not limited to, ongoing and new capital expenditures and depreciation. (e) A statement reporting the information required in subdivisions (a), (b), (c), and (d) for each separately licensed health facility operated, conducted, or maintained by the reporting organization, except those hospitals authorized to report as a group pursuant to subdivision (d) of Section 128760. (f) The office shall consult with the County Hospital Committee of the California Hospital Association, the County Supervisors Association of California, and the California Association of Public Hospitals to improve the accuracy of indigent care revenue reporting and shall present legislative or regulatory recommendations for such improvements by March 30, 1985. (g) A Hospital Discharge Abstract Data Record that includes all of the following: (1) Date of birth. (2) Sex. (3) Race. (4) ZIP Code. (5) Patient social security number, if it is contained in the patient's medical record. (6) Prehospital care and resuscitation, if any, including all of the following: (A) "Do not resuscitate" (DNR) order at admission. (B) "Do not resuscitate" (DNR) order after admission. (7) Admission date. (8) Source of admission. (9) Type of admission. (10) Discharge date. (11) Principal diagnosis and whether the condition was present at admission. (12) Other diagnoses and whether the conditions were present at admission. (13) External cause of injury. (14) Principal procedure and date. (15) Other procedures and dates. (16) Total charges. (17) Disposition of patient. (18) Expected source of payment. It is the expressed intent of the Legislature that the patient's rights of confidentiality shall not be violated in any manner. Patient social security numbers and any other data elements that the office believes could be used to determine the identity of an individual patient shall be exempt from the disclosure requirements of the California Public Records Act (Chapter 3.5 (commencing with Section 6250) of Division 7 of Title 1 of the Government Code). (h) No person reporting data pursuant to this section shall be liable for damages in any action based on the use or misuse of patient-identifiable data that has been mailed or otherwise transmitted to the office pursuant to the requirements of subdivision (g). A hospital or its designee shall semiannually file the Hospital Discharge Abstract Data Record not later than six months after the end of each semiannual period, commencing six months after January 1, 1986. A hospital may submit the Hospital Discharge Abstract Data Record in a computer tape format, and a hospital shall use coding from the International Classification of Diseases in reporting diagnoses and procedures. SEC. 3. (a) The Joint Task Force on Personal Information and Privacy is hereby created. The mission of the task force shall be to make recommendations as to what changes, if any, to existing laws relating to the use or distribution of personal information about individuals by public and private entities are necessary to ensure the following: (1) That state law adequately protects the right of privacy guaranteed by Section 1 of Article I of the California Constitution. (2) That state law adequately addresses the issues raised by the rapidly changing nature of information technology and systems. (b) The issues addressed by the task force may include, but need not be limited to, the following: (1) Privacy issues raised by the practices of the direct marketing industry, including the target marketing of consumers who do not wish to have information about them gathered or distributed, or who do not wish to be contacted by direct marketing firms. (2) Privacy issues raised by the practices of the internet industry, including the gathering of information about individuals' patterns of access to internet sites, archival retrieval of messages posted to newsgroups and message boards, access to electronic mail, and encryption and digital signature technologies. (3) Privacy issues related to the finance and credit industries, including the gathering and distribution of data related to consumers' credit transactions, "opt-out" mechanisms for consumers, and identity theft. (4) Privacy issues related to the use of medical records. (5) Privacy issues related to the use and distribution of public records kept by state and local government agencies, including the sale of computerized public records to private information brokers and others. (6) Issues related to the mechanisms in place to enforce privacy laws, including the issues raised by the past defunding of the Office of Information Practices. (c) The task force shall be comprised of six members. Three members shall be Members of the Senate appointed by the Senate Rules Committee, one of whom shall be appointed as the chairperson. Three members shall be Members of the Assembly appointed by the Speaker of the Assembly. The task force shall conduct its work in close consultation with an advisory committee, and any subcommittees of that advisory committee deemed appropriate by the task force. The task force shall appoint the members of the advisory committee. The composition of the membership of the advisory committee shall, to the extent feasible, be balanced, with an equal number of industry and consumer representatives on the committee. The advisory committee shall include at least one representative of each of the following: (1) The direct marketing industry. (2) The credit reporting industry. (3) The banking and finance industry. (4) The insurance industry. (5) The telecommunications industry. (6) The internet industry. (7) Print and broadcast media. (8) The retail sales industry. (9) The private investigation industry. (10) The health care industry. (11) Consumer organizations. (12) Civil rights and privacy rights groups. (13) Other appropriate public interest groups. (14) State agencies. (15) Local agencies. (16) Law enforcement. (17) Nonprofit membership organizations. (d) The Legislative Analyst shall compile the task force findings and recommendations, including any dissenting opinions, into a report on or before March 1, 1998. (e) This section shall remain in effect only until January 1, 1999, and as of that date is repealed, unless a later enacted statute, that is enacted before January 1, 1999, deletes or extends that date.