BILL ANALYSIS AB 891 Page 1 Date of Hearing: April 20, 1999 ASSEMBLY COMMITTEE ON JUDICIARY Sheila James Kuehl, Chair AB 891 (Alquist) - As Amended: April 15, 1999 SUBJECT : HEALTH CARE DECISIONS FOR ADULTS WITHOUT DECISIONMAKING CAPACITY KEY ISSUE : SHOULD A NEW HEALTH CARE DECISIONS LAW BE ENACTED TO PROMOTE THE USE AND RECOGNITION OF ADVANCE DIRECTIVES AND TO BETTER EFFECTUATE PATIENTS' WISHES ONCE THEY BECOME INCAPABLE OF MAKING THEIR OWN DECISIONS? SUMMARY : Streamlines and updates the provisions governing health care decisions for adults without decisionmaking capacity. Specifically, this bill repeals the provisions governing durable powers of attorney for health care and the Natural Death Act, and revises and recasts these provisions as part of a new Health Care Decisions Law which, among other things, does the following: 1)Creates a new advance health care directives scheme which authorizes an adult having capacity to either make an oral or written "individual health care instruction" which provides direction concerning a health care decision for the patient, or to appoint an agent through a power of attorney for health care, or both. The individual instruction may be limited by the patient to take effect only if specified conditions arise. 2)Creates a new "power of attorney for health care" (PAHC) mechanism which continues many of the existing provisions governing durable powers of attorney for health care, except for the following key changes: a) Witnesses are recommended, but not required, in order to execute the instrument (unless the individual is a patient in a skilled nursing facility at the time the advance directive is executed, in which case the existing requirement for either two witnesses or notarization is maintained). b) The statutory requirement that the PAHC state the date of its execution is deleted, consistent with the laws governing wills and trusts. AB 891 Page 2 c) Statutorily required warnings are deleted in favor of an introductory explanation of the purpose and effect of an advance health care directive, which is contained on the new optional statutory form. d) Rules regarding revocation are relaxed by providing that a later advance directive revokes a prior advance directive only to the extent of the conflict, rather than having the effect of revoking the prior directive in its entirety as required under current law. e) Authorizes the principal (patient) in a PAHC to grant authority to make decisions relating to the personal care of the patient, including, but not limited to, determining where the patient will live, providing meals, hiring household employees, providing transportation, handling mail, and arranging recreation and entertainment. 3)Specifies that the authority of an agent becomes effective only on a determination that the patient lacks capacity and ceases to be effective on a determination that the patient has recovered capacity. Also specifies that the primary physician is to make these capacity determinations unless otherwise specified in the PAHC or other written advance health care directive. 4)Requires the primary physician to make determinations whether other conditions exist that may affect an individual health care instruction (e.g., an individual might specify that withdrawal or withholding of treatment that keeps the individual alive may only occur if the individual has an incurable or irreversible condition that will result in the individual's death within a relatively short time), unless the patient specifies otherwise in the instrument. 5)Establishes a uniform standard of decisionmaking for adults without decisionmaking capacity so that the same rules apply whether the decisionmaker is an agent under a PAHC, another surrogate appointed by the patient, a conservator or a court. In each instance, the surrogate is required to make decisions in accordance with the patient's individual health care instructions, if any, and other wishes of the patient to the extent known to the surrogate. Otherwise, the surrogate shall make the decision in accordance with the best interests of the AB 891 Page 3 patient. In determining the patient's best interest, the surrogate shall consider the patient's personal values to the extent known to the surrogate. 6)Defines the following key terms for the purposes of the new law: a) "Advance health care directive" or "advance directive" means either an individual health care instruction or a power of attorney for health care. b) "Agent" means an individual designated in a power of attorney for health care to make a health care decision for the principal, including a successor or alternate agent. c) "Capacity" means a patient's ability to understand the nature and consequences of proposed health care, including its significant benefits, risks, and alternatives, and to make and communicate a health care decision. d) "Health care" means any care, treatment, service, or procedure to maintain, diagnose, or otherwise affect a patient's physical or mental condition. e) "Health care decision" means a decision made by the patient or the patient's agent, conservator, or surrogate, regarding the patient's health care, including the following: (i) selection and discharge of health care providers and institutions; (ii) approval or disapproval of diagnostic tests, surgical procedures, and programs of medication; and, (iii) directions to provide, withhold, or withdraw artificial nutrition and hydration and all other forms of health care, including cardiopulmonary resuscitation. f) "Individual health care instruction" or "individual instruction" means a patient's written or oral direction concerning a health care decision for the patient. g) "Patient" means an adult whose health care is under consideration, and includes a principal under a power of attorney for health care and an adult who has given an individual health care instruction or designated a surrogate. AB 891 Page 4 h) "Principal" means an adult who executes a power of attorney for health care. 7)Creates a new optional statutory advance health care directives form which can be used to either appoint an agent or make individual health care instructions, or both. 8)Establishes judicial review procedures pertaining to PAHCs and advance directives similar to those contained in current law, but indicates that judicial intervention is disfavored. 9)Expands the scope of the scheme for obtaining court authorization for medical treatment of adults without conservators who lack decisionmaking capacity by broadening the types of health care decisions covered, including, but not limited to, decisions to withdraw or withhold life sustaining treatment. It also expands the list of persons eligible to petition for such court authorization to include the patient's agent under a PAHC. 10)Makes various technical, conforming changes in related code provisions. 11)Makes the above provisions operative on July 1, 2000, but does not affect the validity of an advance health care directive or durable power of attorney for health care previously executed that was valid under prior law. EXISTING LAW : 1)Recognizes the right of a competent adult to direct or refuse medical treatment. (See e.g., Cruzan v. Director, Mo. Dept. of Health (1990) 497 U.S. 261; Thor v. Superior Court (1993) 5 Cal.4th 725; Cobbs v. Grant (1970) 8 Cal.3d 229.) 2)Authorizes an adult of sound mind to appoint an attorney-in-fact (agent) to make health care decisions for that individual in the event of his or her incapacity pursuant to a durable power of attorney for health care. (Probate Code Section 4600 et seq .) 3)Authorizes, under the Natural Death Act, an adult of sound mind to execute a declaration governing the withholding or withdrawal of life sustaining treatment. (Health and Safety Code Section 7185 et seq .) AB 891 Page 5 4)Provides for court appointment of a guardian (in the case of minors) or conservator (in the case of adults) for individuals who are unable to take care of their basic needs and/or are unable to resist fraud or undue influence. (Probate Code Section 1400 et seq .) 5)Establishes a special procedure for court-authorized medical treatment for certain adults without conservators. (Probate Code Section 3200 et seq .) FISCAL EFFECT : Unknown COMMENTS : This bill, which is sponsored by the California Law Revision Commission, proposes a new Health Care Decisions Law which consolidates the Natural Death Act and the durable power of attorney for health care. Drawing heavily on the Uniform Health-Care Decisions Act of 1993, the bill includes new rules governing individual health care instructions, and provides a new optional statutory form for advance health care directives. According to the sponsor, conforming changes in the procedures for obtaining court authorizations for medical treatment would make clear that courts in proper cases have the same authority as other surrogates to make health care decisions, including withholding or withdrawal of life-sustaining treatment. Similarly, the statute governing decisionmaking by conservators for patients who have been adjudicated to lack the capacity to make health care decisions are conformed to the standards governing other health care surrogates. The sponsor states that the bill would unify the standards governing health care decisionmaking for adults without decisionmaking capacity so that the same rules apply whether the surrogate decisionmaker is an agent named in the patient's advance directive, a public guardian or conservator, or a court making health care decisions as a last resort. According to the sponsor, "[t]he guiding principal is to effectuate the stated desires of the patient, as set out in an advance directive or, in the absence of such a directive, as expressed by the patient to authorized surrogate decisionmakers. If the patient has not made his or her wishes known, health care decisions are to be made in the patient's best interest, as determined by the appropriate surrogate, taking into account the patient's personal values known to the surrogate. The Health Care AB 891 Page 6 Decision Law is intended to fulfill the incapacitated patient's desires and best interest without resort to judicial proceedings, except as a last resort." According to the sponsor, "[r]ules concerning duties and liabilities of surrogates are provided, consistent with existing rules applicable to durable powers of attorney for health care. In addition, existing limitations on the authority of agents and the prohibition on mercy killing and euthanasia are continued and applied to all surrogate decisionmakers." The bill is discussed in detail in the sponsor's printed recommendation entitled Health Care Decisions for Adults Without Decisionmaking Capacity, 29 Cal. L. Revision Comm'n Reports 1 (1999)("Health Care Decisions"). Recent amendments removed controversial provisions . The bill, as introduced, contained several new provisions governing decisionmaking for adults without capacity who had neither appointed an agent nor executed an advance health care directive, which had generated some controversy. After Committee staff raised concerns regarding these provisions with the author and the sponsor, they concurred the best approach is to limit the bill at this time to the noncontroversial provisions described above and to work with Committee staff and other interested parties as the bill progresses in an attempt to achieve consensus on these issues. The recent amendments to the bill deleted these controversial provisions. Overview of key provisions . As noted above, this bill consolidates the Natural Death Act and the durable power of attorney for health care, and promotes the use and recognition of advance directives to improve the effectuation of patients' wishes once they become incapable of making their own health care decisions. A brief summary of some of the bill's key provisions follows. Streamlining Powers of Attorney for Health Care . The original durable power of attorney for health care was subject to a number of restrictions that are now considered to be overly protective. It is currently recognized that overly restrictive execution requirements for powers of attorney for health care unnecessarily impede the effectuation of the patient's intent. The proposed law contains the following streamlining changes. AB 891 Page 7 Witnessing requirements relaxed . The Uniform Health-Care Decisions Act (UHCDA) adopts the principle that no witnesses should be required in a PAHC, although the use of witnesses is encouraged, and places for signatures of witnesses are provided on the statutory form. (UHCDA Section 2(b).) The bill follows the UHCDA in recommending, but not requiring witnesses (in place of the existing requirement of two witnesses or notarization). However, there are circumstances where additional protections are necessary, which is why the bill continues the special rules applicable to execution of a PAHC by patients in skilled nursing facilities. ( Health Care Decisions , supra , 29 Cal. L. Revision Comm'n Reports at pp. 19-21.) Dating of instrument no longer required . The bill also dispenses with the statutory requirement that a PAHC state the date for its execution. As the Commission notes, including a date is certainly the best practice, and the statutory form provides a space for the date. However, requiring a date can defeat accomplishment of the patient's wishes if the consequence of omission is to invalidate the advance directive. Although dating important documents may be desirable, the law does not require either wills or trusts to be dated. ( Id ., at p. 21.) Statutory warnings deleted . Existing law provides a number of "warnings" that must be included depending on whether a form durable power of attorney for health care is on a printed form, drawn from the statutory form, or individually drafted by an attorney or someone else. (See Probate Code Sections 4703, 4704, 4771, 4772, 4774.) According to the sponsor, "[t]he existing warning provisions are confusing and rigid. While there has been an attempt to educate potential users through concise and simple statements, the net effect of the existing scheme may have been to inhibit usage. ? [T]he proposed law no longer attempts to instruct lawyers on how to advise their clients. The Commission expects that those who prepare printed forms will copy the language of the optional form or use a reasonable equivalent without the need to mandate specific language in the statute." ( Id ., at 22.) Revocation rules simplified . A durable power of attorney for health care under existing law can be revoked expressly in writing or by notifying the health care provider orally or in writing, but it is also revoked by operation of law if the principal executes a later power of attorney for health care. (See Probate Code Section 4727(a), (b), (d).) This last rule, AB 891 Page 8 unfortunately, is a potential trap for the unwary since a principal may attempt to amend or clarify an earlier power, or designate a new agent, in ignorance of the rule and inadvertently wipe out important instructions. Following the UHCDA, the bill specifies that a later advance directive revokes a prior directive only to the extent of the conflict, thus promoting the fundamental purpose of implementing the patient's intent. ( Id ., at 22-23.) New authority to execute individual health care instructions . Under current law, California does not authorize what the UHCDA calls an "individual instruction," other than through the mechanism of the Natural Death Act, which applies only to patients in a terminal or permanent unconscious condition. Health care instructions may be given in the context of appointing and instructing an attorney-in-fact under a durable power of attorney for health care. However, health care providers' duties under the existing durable power of attorney for health care focus on the agent's decisions, rather than the principal's instructions. As a practical matter, many individuals do not have someone in their life that they can entrust with making such health care decisions. The bill adopts the UHCDA's broader concept of authorizing individual health care instructions, which makes the law clearer, more direct, and easier to use. The optional statutory form will enable an individual to record his or her preferences concerning health care or to select an agent, or both. ( Id ., at 23-24.) New triggering mechanism for advance directives . Under the existing durable power of attorney for health care scheme, the statute is silent as to when the instrument is to take effect. Rather, it simply provides that the agent is not authorized to make health care decisions if the principal has capacity, without indicating who makes this determination. (See Probate Code Section 4720(a).) The bill specifically provides that, unless otherwise specified in the instrument, the authority of an agent becomes effective only on a determination that the principal lacks capacity, and ceases to be effective on a determination that the principal has recovered capacity. (Proposed Probate Code Section 4682, p. 43, lines 8-12.) It also provides that the primary physician makes these capacity determinations, unless otherwise specified in the PAHC or other written advance health care directive. In addition, the primary physician is responsible for making determinations whether other conditions exist that may affect an individual health care AB 891 Page 9 instruction (e.g., an individual might specify that withdrawal or withholding of treatment that keeps the individual alive may only occur if the individual has an incurable or irreversible condition that will result in the individual's death within a relatively short time), unless the patient specifies otherwise in the instrument. (Proposed Probate Code Section 4658, p. 36, lines 19-25.) Uniform standards for surrogate decisionmaking . The existing power of attorney for health care law requires the attorney-in-fact to "act consistent with the desires of the principal as expressed in the durable power of attorney or otherwise made known to the attorney-in-fact at any time or, if the principal's desires are unknown, to act in the best interests of the principal." (Probate Code Section 4720(c).) The UHCDA adopts the same rule as a general standard for all surrogates. This bill, like the UHCDA, applies these standards throughout the statute. Thus, the same fundamental standard will apply to all decisionmakers: agents under a PAHC, surrogates designated by the patient, guardians and conservators, and courts deciding cases under the court-authorized health care procedures. ( Id ., at 40-41.) In each instance, the surrogate is required to make decisions in accordance with the patient's individual health care instructions, if any, and other wishes of the patient, to the extent known to the surrogate. Otherwise, the surrogate shall make the decision in accordance with the best interests of the patient. In determining the patient's best interest, the surrogate shall consider the patient's personal values to the extent known to the surrogate. New powers to address principal's personal needs . The existing durable power of attorney for health care scheme is silent on the question of whether the principal can authorize the agent to make a variety of decisions regarding the principal's personal care needs that may fall outside the scope of "health care" decisions. This bill, paralelling the general power of attorney mechanism, allows (but does not require) the principal in a PAHC to grant authority to make decisions relating to the personal care of the principal, including, but not limited to, determining where the principal will live, providing meals, hiring household employees, providing transportation, handling mail, and arranging recreation and entertainment. Proposed author's amendments . The author has notified Committee AB 891 Page 10 staff that she will be proposing the following three amendments in Committee: 1) Principal's right to object . In the existing law governing durable powers of attorney for health care, there is a specific prohibition on the power of the attorney-in-fact to consent to any health care decision when the principal objects. (Probate Code Section 4724.) The current version of the bill does not contain a similar provision. The author has agreed, at the request of Committee staff, to amend the bill in order to make the principal's right to object explicit. The following amendment would accomplish this purpose: On page 44, between lines 16 and 17, add new Section 4689, which would read as follows: "Nothing in this division authorizes an agent under a power of attorney for health care to make a health care decision if the principal objects to the decision. In this case, the matter is governed by the law that would apply if there were no power of attorney for health care." 2) Health care surrogates . In the recent amendments to the bill, the provision which authorizes a patient to designate an individual as a surrogate to make health care decisions (without having to go through the formalities of executing a PAHC) by personally informing the supervising health care provider was inadvertently deleted. The following amendment would reinsert this provision: On page 53, line 28, insert the following: "Chapter 3. Health Care Surrogates. 4711. A patient may designate an adult as a surrogate to make health care decisions by personally informing the supervising health care provider. An oral designation of a surrogate is effective only during the course of treatment or illness or during the stay in the health care institution when the designation is made." 3) Clarifying the immunity provision . At the request of Consumer Attorneys of California, the author has agreed to take the following amendment to clarify the immunity provision in proposed Probate Code Section 4740(a), consistent with the good faith standard in current law: AB 891 Page 11 On page 61, lines 7-10, amend subdivision (a) of Probate Code Section 4740 to read as follows: "(a) Complying with a health care decision of a personapparently havingthe health care provider or health care institution believes in good faith has authority to make a health care decision for a patient, including a decision to withhold or withdraw health care. REGISTERED SUPPORT / OPPOSITION : Support California Law Revision Commission (sponsor) California Healthcare Association Opposition None on file Analysis Prepared by : Daniel Pone / JUD. / (916) 319-2334