BILL ANALYSIS                                                                                                                                                                                                    






                 SENATE JUDICIARY COMMITTEE
                  Adam B. Schiff, Chairman
                 1999-2000 Regular Session


AB 891                                                 A
Assembly Member Alquist                                B
As Amended July 8, 1999
Hearing Date:  July 13, 1999                           8
Government Code; Health and Safety Code;               9
Probate Code; Welfare and Institutions Code            1
GMO:cjt                                                

                           SUBJECT
                               
     Health Care Decisions:  Durable Power of Attorney


                         DESCRIPTION  

This bill would repeal provisions of the codes related to  
durable powers of attorney for health care and would repeal  
the Natural Death Act which provides that a person has the  
right to instruct his or her physician to withhold or  
withdraw life-sustaining treatment in the event of a  
terminal condition or permanent unconscious condition in a  
written declaration (the so-called "living will"). The  
repeal would take effect on July 1, 2000.

The bill would enact the Health Care Decisions Law, which  
would provide for the creation, form, and revocation of  
advance health care directives, and for the manner of  
making health care decisions for patients without  
surrogates.

                          BACKGROUND  

The California Law Revision Commission is the sponsor of  
this bill.  Because there is no existing statutory law that  
provides general rules governing decisionmaking relative to  
medical treatment of incapacitated persons, the medical  
profession and the bar have crafted guidelines now widely  
used in the state.  However, recent case law resulting from  
the application of those guidelines has brought to light  
the obvious need to create uniform statutory rules for  
                                                       
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determining succession to decisionmaking in the case of the  
incapacitated person, especially one who has no appointed  
surrogate.

The provisions of the proposed Health Care Decisions Law  
(HCDL) are drawn heavily from the Uniform Health Care  
Decisions Act (1993), and implements major parts of the  
Commission's recommendation on Health Care Decisions for  
Adults Without Decisionmaking Capacity.  The new HCDL  
consolidates the Natural Death Act and the durable power of  
attorney for health care in a simplified and reorganized  
statute.  It includes new rules governing individual health  
care instructions, and provides a new optional statutory  
form of an advance health care directive.

                   CHANGES TO EXISTING LAW
  
1.   Existing law  provides for the creation of durable  
powers of attorney for health care.  A durable power of  
attorney is a designation, made in advance of incapacity by  
a competent person, of a person or persons who would make  
decisions regarding specified matters, among them health  
care decisions, that the person, if competent, could and  
would make.  

The  Natural Death Act  recognizes the right of a person to  
make a written declaration, in advance of incapacity to  
make health care decisions, instructing his or her  
physician to withhold or withdraw life-sustaining treatment  
in the event of a terminal condition or permanent  
unconscious condition if that person is unable to make  
those decisions for himself or herself.  

This bill would repeal the above statutes.

2.   Existing case law  has provided, on a case-by-case  
basis, guidelines for choosing who should make health care  
decisions for those who did not make advance directives,  
and how a surrogate chosen by the court or the family or  
the treating physicians ought to be guided in making those  
health care decisions.  

This bill would enact the Health Care Decisions Law. 

Specifically, this bill would:
                                                             




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a)  recast and reorganize provisions of the Natural Death  
Act and durable powers of attorney for health care and  
other related statutes;

b)  specify that an individual having capacity may give an  
advance health care instruction, as defined and may execute  
a power of attorney that defines what decisionmaking  
authority is granted and what limitations there may be to  
such authority granted;

c)   define a legally sufficient health care directive,  
specify how a power of attorney that suffices as a health  
care directive is to be limited, and specifies the powers  
of an agent appointed by the principal of a power of  
attorney for health care;

d)  specify that an agent shall make a health care decision  
in accordance with the principal's individual health care  
instructions, if any, and other wishes to the extent known  
to the agent, or otherwise in the best interest of the  
principal, considering the principal's personal values  
known to the agent;

e)  specify that the agent designated by such power of  
attorney to make health care decisions who is known to the  
health care provider to be available and willing to make  
such decisions shall have priority over any other person in  
making health care decisions for the principal;

f)  codify a number of duties of health care providers and  
institutions to comply with health care instructions and to  
keep records relating to capacity determinations,  
surrogates, and instructions;

g)  continue existing limitations on the authority of  
agents and the prohibition on mercy killing;

h)  make conforming changes in the procedure for obtaining  
court authorization for medical treatment, clarifying that  
courts in proper cases have the same authority as other  
surrogates to make health care decisions, including  
withholding or withdrawal of life-sustaining treatment;

i)  make conforming changes to conservatorship statutes  
                                                             




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that govern health care decisions; and

j) unify the standards governing health care decisionmaking  
for adults without decisionmaking capacity so that the same  
rules apply whether the surrogate decisionmaker is (i) an  
agent named in the patient's advance directive; (ii) a  
family member or friend acting as a surrogate  
decisionmaker; (iii) a public guardian, or (iv) a court  
making health care decisions as a last resort.


                           COMMENT
  
1.   Stated need for the bill  

  According to the California Law Revision Commission, the  
  bill's guiding principle is to effectuate the stated  
  desires of the patient, as set out in an advance  
  directive or, in the absence of an advance directive, as  
  expressed to authorized surrogate decisionmakers.  If the  
  patient has not made his or her wishes known, health care  
  decisions are to be made in the patient's best interest,  
  as determined by the appropriate surrogate decisionmaker,  
  taking into account the patient's personal values known  
  to the surrogate.  The Health Care Decisions Law is  
  intended to fulfill the incapacitated patient's desires  
  and best interest without resort to judicial proceedings,  
  except as a last resort.  [Letter from California Law  
  Revision Commission, 7/8/99.]

  A series of cases dealing with health care decisions,  
  made by health care providers with guidance from  
  surrogates or family members or despite directives from  
  surrogates or family members, has brought the issue of  
  uniform standards or guidelines in implementing health  
  care directives and surrogate decisionmaking to the  
  forefront. [ See, for example, Duarte v. Chino Community  
  Hospital (1999) Daily Journal D.A.R. 5407;  Barber v.  
  Superior Court (1983) 147 Cal. App. 3d 1006;  Cobbs v.  
  Grant (1972) 8 Cal. 3d 229.]  Further, in light of the  
  brewing potential conflict between advances in medical  
  treatment and care and demands for efficiencies by  
  managed health care systems, decisions regarding  
  life-sustaining treatment or other non-critical or  
  non-invasive treatment and care, left largely to the so  
                                                             




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  far ad hoc application of consent guidelines developed by  
  health care providers and attorneys, have to be governed  
  by more consistent, statewide rules. [ For example, in  
  the 1980's, the Joint Committee on Biomedical Ethics of  
  the Los Angeles Medical Association (LACMA) and the Los  
  Angeles County Bar Association (LACBA) issued and has  
  since updated a pamphlet entitled "Guidelines: Forgoing  
  Life-Sustaining Treatment for Adult Patients."]

  This bill is, therefore, necessary to create an organized  
  scheme to these rules, clarify the court's role in  
  appropriate cases, and assure a more consistent  
  application of these rules against the backdrop of  
  advances in medical treatment and care and managed health  
  care.

2.    New advance health care directive:  transitional rules

   The bill provides a new Advance Health Care Directive  
  form that would replace the current Statutory Form  
  Durable Power of Attorney for Health Care in use since  
  1985 [ Keene Health Care Agent Act, Ch. 307, Stats. 1984]  
  and the declaration under the Natural Death Act (commonly  
  known as the "living will"] regarding withholding or  
  withdrawal of life-sustaining treatment.

  Under this bill, all valid advance health care directives  
  executed before July 1, 2000 would remain valid.  The  
  validity of durable powers of attorney for health care  
  executed on a printed form that was valid under prior law  
  would not be affected by this bill, whether or not the  
  durable power of attorney was executed prior to or after  
  July 1, 2000.

  The Statutory Form provided in the bill would have fout  
  parts, and would provide an explanation of each part at  
  the beginning of the form, as well as instructions on  
  signing the form, acknowledgement by two witnesses or a  
  notary public, and providing copies to the person's  
  physician, health care providers, or other health care  
  agents.

  Part One of the form would designate the person's agent  
  for making health care decisions, as well as alternates  
  in the event the agent's authority is revoked or the  
                                                             




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  agent is not willing to make the health care decisions  
  authorized.  It would state any limitations to the health  
  care decisions that the agent could make, the effective  
  date of such authorization, enumerates the agent's  
  obligations, and any authorizations to the agent for  
  post-death anatomical gifts.  It would also allow the  
  person to nominate a conservator, if one were needed.

  Part Two of the form would provide specific instructions  
  regarding health care, e.g., choice not to  
  prolong/prolong life, treatment for relief of pain, other  
  wishes.

  Part Three of the form would provide for donation of  
  organs at death. This is an optional part, which, if the  
  person leaves blank, would mean no anatomical gifts would  
  be permitted.

  Part Four of the form would be the designation of primary  
  physician and alternates.

  The bill would require either two witnesses to the  
  signing of the Statutory Form, or an acknowledgement by a  
  notary public.  A witness would be required to sign  
  specific statements that: 1) the person signing the Form  
  appears to be of sound mind and not to be under duress,  
  2) the witness is not appointed as an agent by the  
  directive, 3) the witness is not the person's health care  
  provider or employee of the health care provider or of  
  the residential care facility for the elderly where the  
  person is residing.

  In addition, at least one of the witnesses would be  
  required to declare that he or she is not related to the  
  person executing the directive by blood or marriage or  
  adoption, and would not be entitled to receive any part  
  of the person's estate upon his or her death under an  
  existing will or by operation of law.

  For those persons who are patients in a skilled nursing  
  facility, the facility's patient advocate or ombudsman  
  who would witness the Statutory Form would be required to  
  sign a statement that he or she is a patient advocate or  
  ombudsman as designated by the Department of Aging.

                                                             




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  These requirements for witness statements parallel what  
  is currently in Probate Code Section 4771 (Statutory Form  
  Durable Power of Attorney for Health Care).



3.    Health care surrogates

   In the absence of an advance health care directive or an  
  executed durable power of attorney for health care  
  appointing an agent, this bill would allow a patient to  
  designate an adult as a surrogate to make health care  
  decisions, by personally informing the supervising health  
  care provider.  If the designation is made orally, the  
  designation is good only during the course of treatment  
  or illness or during the stay in the health care facility  
  when the designation was made.

  For oral designations of a surrogate, there is no  
  requirement that the supervising health care provider  
  make a contemporaneous recordation of the designation,  
  whether in writing (in the patient's medical file, for  
  example) or by recording (tape recording).  

  SHOULD THIS REQUIREMENT BE IMPOSED?

  The surrogate appointed by the patient in this case would  
  be required to make health care decisions in accordance  
  with the patient's individual health care instructions,  
  if known, and other wishes known to the surrogate.   
  Otherwise, the surrogate would be bound to make these  
  decisions on the basis of the patient's best interest,  
  considering the patient's personal values known to the  
  surrogate.

  This provision would, proponents state, ensure that as  
  much as possible the incapacitated patient's desires and  
  values are considered.

  In addition, this bill would allow a patient with  
  capacity to disqualify another person, including a member  
  of the patient's family, from acting as a surrogate by a  
  signed writing or by personally informing the supervising  
  health care provider of the disqualification.  Again,  
  this would extend the goal of fulfilling the wishes of  
                                                             




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  the patient, including removing those who might not be in  
  the patient's good graces at the time, from any position  
  of making health care decisions.

4.    Codifying health care provider duties and  
responsibilities; recordkeeping  

  This bill would codify rules and practices currently  
  followed by health care providers relating to health care  
  decisions and recordkeeping of advance health care  
  directives, agent designations, surrogate  
  disqualifications, patient capacity recoveries, power of  
  attorney revocations and other relevant observations or  
  information.

  It would also require health care providers to comply  
  with patients' health care instruction with reasonable  
  interpretation of that instruction by the patient's  
  designated agent, and to comply with a health care  
  decision made by the patient's authorized agent as if the  
  decision was made by the patient while having capacity.

  A health care provider could decline to comply only for  
  reasons of conscience, and a health care institution  
  could decline to comply only if the instruction or  
  decision is contrary to the institution's expressed  
  policy and if the policy was timely communicated to the  
  patient or the person authorized to make the health care  
  decision for the patient.

5.    New civil liability

   Under this bill, a health care provider or institution  
  that intentionally violates the Uniform Health Care  
  Decisions Act would be subject to liability to an  
  aggrieved person for damages of $2,500 or actual damages  
  resulting from the violation, whichever is greater, plus  
  attorney's fees.  It is not clear who an "aggrieved  
  person" may be.  The person could be the patient himself  
  or herself, or the agent, or any other surrogate or  
  surrogates.

  In addition, the bill would provide that these damages  
  are cumulative and not exclusive of any other remedies  
  provided by law.  Thus, a whole family of 10 aggrieved by  
                                                             




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  the health provider's intentional violation could, under  
  this bill, each sue for $2,500 and then sue again for  
  something like "intentional infliction of emotional  
  distress" damages.  

  The bill would also subject anyone who intentionally  
  falsifies, forges, conceals, alters, obliterates, or  
  defaces an individual's health care directive without the  
  individual's consent, or who fraudulently induces such  
  individual to give, revoke, or not to give an advance  
  health care directive, to damages of $10,000 or actual  
  damages resulting from the action, whichever is greater,  
  plus reasonable attorney's fees.  These damages would be  
  cumulative and not exclusive of any other remedies  
  provided by law.

6.    The court as surrogate  

  The bill would continue existing law relating to the  
  court's role as health care decisionmaker, in the absence  
  of surrogates, or in petitions filed in the event of a  
  dispute about the health care decision made by a person  
  with a durable power of attorney, or the authority of an  
  attorney in fact under such durable power of attorney.

7.    Issues to be addressed later

   When introduced, this bill contained the commission's  
  original recommendations which included two additional  
  elements: (1) a "family consent" statute and (2) a  
  surrogate committee procedure for making necessary health  
  care decisions where the patient does not have an agent,  
  conservator, or other health care surrogate.  These  
  sections were deleted at the suggestion of the Assembly  
  Committee on Judiciary, for further study and  
  recommendations.  Essentially the problem raised was a  
  one-size-fits-all approach to health care decisions for  
  patients with no surrogates or agents, whether the  
  decision is for a life threatening condition or a routine  
  treatment or care.


Support:  None Known

Opposition:  None Known
                                                             




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                           HISTORY
  
Source:  California Law Revision Commission

Related Pending Legislation:  None Known

Prior Legislation:  None Known

Prior Vote:  Asm. Jud. (Ayes 10. Noes 3.)
                      Asm. Appr. (Ayes 17. Noes 4.)
               Asm. Flr. (Ayes 62. Noes 17.)

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