BILL ANALYSIS SENATE JUDICIARY COMMITTEE Adam B. Schiff, Chairman 1999-2000 Regular Session AB 891 A Assembly Member Alquist B As Amended July 8, 1999 Hearing Date: July 13, 1999 8 Government Code; Health and Safety Code; 9 Probate Code; Welfare and Institutions Code 1 GMO:cjt SUBJECT Health Care Decisions: Durable Power of Attorney DESCRIPTION This bill would repeal provisions of the codes related to durable powers of attorney for health care and would repeal the Natural Death Act which provides that a person has the right to instruct his or her physician to withhold or withdraw life-sustaining treatment in the event of a terminal condition or permanent unconscious condition in a written declaration (the so-called "living will"). The repeal would take effect on July 1, 2000. The bill would enact the Health Care Decisions Law, which would provide for the creation, form, and revocation of advance health care directives, and for the manner of making health care decisions for patients without surrogates. BACKGROUND The California Law Revision Commission is the sponsor of this bill. Because there is no existing statutory law that provides general rules governing decisionmaking relative to medical treatment of incapacitated persons, the medical profession and the bar have crafted guidelines now widely used in the state. However, recent case law resulting from the application of those guidelines has brought to light the obvious need to create uniform statutory rules for (more) AB 891 (Alquist) Page 2 determining succession to decisionmaking in the case of the incapacitated person, especially one who has no appointed surrogate. The provisions of the proposed Health Care Decisions Law (HCDL) are drawn heavily from the Uniform Health Care Decisions Act (1993), and implements major parts of the Commission's recommendation on Health Care Decisions for Adults Without Decisionmaking Capacity. The new HCDL consolidates the Natural Death Act and the durable power of attorney for health care in a simplified and reorganized statute. It includes new rules governing individual health care instructions, and provides a new optional statutory form of an advance health care directive. CHANGES TO EXISTING LAW 1. Existing law provides for the creation of durable powers of attorney for health care. A durable power of attorney is a designation, made in advance of incapacity by a competent person, of a person or persons who would make decisions regarding specified matters, among them health care decisions, that the person, if competent, could and would make. The Natural Death Act recognizes the right of a person to make a written declaration, in advance of incapacity to make health care decisions, instructing his or her physician to withhold or withdraw life-sustaining treatment in the event of a terminal condition or permanent unconscious condition if that person is unable to make those decisions for himself or herself. This bill would repeal the above statutes. 2. Existing case law has provided, on a case-by-case basis, guidelines for choosing who should make health care decisions for those who did not make advance directives, and how a surrogate chosen by the court or the family or the treating physicians ought to be guided in making those health care decisions. This bill would enact the Health Care Decisions Law. Specifically, this bill would: AB 891 (Alquist) Page 3 a) recast and reorganize provisions of the Natural Death Act and durable powers of attorney for health care and other related statutes; b) specify that an individual having capacity may give an advance health care instruction, as defined and may execute a power of attorney that defines what decisionmaking authority is granted and what limitations there may be to such authority granted; c) define a legally sufficient health care directive, specify how a power of attorney that suffices as a health care directive is to be limited, and specifies the powers of an agent appointed by the principal of a power of attorney for health care; d) specify that an agent shall make a health care decision in accordance with the principal's individual health care instructions, if any, and other wishes to the extent known to the agent, or otherwise in the best interest of the principal, considering the principal's personal values known to the agent; e) specify that the agent designated by such power of attorney to make health care decisions who is known to the health care provider to be available and willing to make such decisions shall have priority over any other person in making health care decisions for the principal; f) codify a number of duties of health care providers and institutions to comply with health care instructions and to keep records relating to capacity determinations, surrogates, and instructions; g) continue existing limitations on the authority of agents and the prohibition on mercy killing; h) make conforming changes in the procedure for obtaining court authorization for medical treatment, clarifying that courts in proper cases have the same authority as other surrogates to make health care decisions, including withholding or withdrawal of life-sustaining treatment; i) make conforming changes to conservatorship statutes AB 891 (Alquist) Page 4 that govern health care decisions; and j) unify the standards governing health care decisionmaking for adults without decisionmaking capacity so that the same rules apply whether the surrogate decisionmaker is (i) an agent named in the patient's advance directive; (ii) a family member or friend acting as a surrogate decisionmaker; (iii) a public guardian, or (iv) a court making health care decisions as a last resort. COMMENT 1. Stated need for the bill According to the California Law Revision Commission, the bill's guiding principle is to effectuate the stated desires of the patient, as set out in an advance directive or, in the absence of an advance directive, as expressed to authorized surrogate decisionmakers. If the patient has not made his or her wishes known, health care decisions are to be made in the patient's best interest, as determined by the appropriate surrogate decisionmaker, taking into account the patient's personal values known to the surrogate. The Health Care Decisions Law is intended to fulfill the incapacitated patient's desires and best interest without resort to judicial proceedings, except as a last resort. [Letter from California Law Revision Commission, 7/8/99.] A series of cases dealing with health care decisions, made by health care providers with guidance from surrogates or family members or despite directives from surrogates or family members, has brought the issue of uniform standards or guidelines in implementing health care directives and surrogate decisionmaking to the forefront. [ See, for example, Duarte v. Chino Community Hospital (1999) Daily Journal D.A.R. 5407; Barber v. Superior Court (1983) 147 Cal. App. 3d 1006; Cobbs v. Grant (1972) 8 Cal. 3d 229.] Further, in light of the brewing potential conflict between advances in medical treatment and care and demands for efficiencies by managed health care systems, decisions regarding life-sustaining treatment or other non-critical or non-invasive treatment and care, left largely to the so AB 891 (Alquist) Page 5 far ad hoc application of consent guidelines developed by health care providers and attorneys, have to be governed by more consistent, statewide rules. [ For example, in the 1980's, the Joint Committee on Biomedical Ethics of the Los Angeles Medical Association (LACMA) and the Los Angeles County Bar Association (LACBA) issued and has since updated a pamphlet entitled "Guidelines: Forgoing Life-Sustaining Treatment for Adult Patients."] This bill is, therefore, necessary to create an organized scheme to these rules, clarify the court's role in appropriate cases, and assure a more consistent application of these rules against the backdrop of advances in medical treatment and care and managed health care. 2. New advance health care directive: transitional rules The bill provides a new Advance Health Care Directive form that would replace the current Statutory Form Durable Power of Attorney for Health Care in use since 1985 [ Keene Health Care Agent Act, Ch. 307, Stats. 1984] and the declaration under the Natural Death Act (commonly known as the "living will"] regarding withholding or withdrawal of life-sustaining treatment. Under this bill, all valid advance health care directives executed before July 1, 2000 would remain valid. The validity of durable powers of attorney for health care executed on a printed form that was valid under prior law would not be affected by this bill, whether or not the durable power of attorney was executed prior to or after July 1, 2000. The Statutory Form provided in the bill would have fout parts, and would provide an explanation of each part at the beginning of the form, as well as instructions on signing the form, acknowledgement by two witnesses or a notary public, and providing copies to the person's physician, health care providers, or other health care agents. Part One of the form would designate the person's agent for making health care decisions, as well as alternates in the event the agent's authority is revoked or the AB 891 (Alquist) Page 6 agent is not willing to make the health care decisions authorized. It would state any limitations to the health care decisions that the agent could make, the effective date of such authorization, enumerates the agent's obligations, and any authorizations to the agent for post-death anatomical gifts. It would also allow the person to nominate a conservator, if one were needed. Part Two of the form would provide specific instructions regarding health care, e.g., choice not to prolong/prolong life, treatment for relief of pain, other wishes. Part Three of the form would provide for donation of organs at death. This is an optional part, which, if the person leaves blank, would mean no anatomical gifts would be permitted. Part Four of the form would be the designation of primary physician and alternates. The bill would require either two witnesses to the signing of the Statutory Form, or an acknowledgement by a notary public. A witness would be required to sign specific statements that: 1) the person signing the Form appears to be of sound mind and not to be under duress, 2) the witness is not appointed as an agent by the directive, 3) the witness is not the person's health care provider or employee of the health care provider or of the residential care facility for the elderly where the person is residing. In addition, at least one of the witnesses would be required to declare that he or she is not related to the person executing the directive by blood or marriage or adoption, and would not be entitled to receive any part of the person's estate upon his or her death under an existing will or by operation of law. For those persons who are patients in a skilled nursing facility, the facility's patient advocate or ombudsman who would witness the Statutory Form would be required to sign a statement that he or she is a patient advocate or ombudsman as designated by the Department of Aging. AB 891 (Alquist) Page 7 These requirements for witness statements parallel what is currently in Probate Code Section 4771 (Statutory Form Durable Power of Attorney for Health Care). 3. Health care surrogates In the absence of an advance health care directive or an executed durable power of attorney for health care appointing an agent, this bill would allow a patient to designate an adult as a surrogate to make health care decisions, by personally informing the supervising health care provider. If the designation is made orally, the designation is good only during the course of treatment or illness or during the stay in the health care facility when the designation was made. For oral designations of a surrogate, there is no requirement that the supervising health care provider make a contemporaneous recordation of the designation, whether in writing (in the patient's medical file, for example) or by recording (tape recording). SHOULD THIS REQUIREMENT BE IMPOSED? The surrogate appointed by the patient in this case would be required to make health care decisions in accordance with the patient's individual health care instructions, if known, and other wishes known to the surrogate. Otherwise, the surrogate would be bound to make these decisions on the basis of the patient's best interest, considering the patient's personal values known to the surrogate. This provision would, proponents state, ensure that as much as possible the incapacitated patient's desires and values are considered. In addition, this bill would allow a patient with capacity to disqualify another person, including a member of the patient's family, from acting as a surrogate by a signed writing or by personally informing the supervising health care provider of the disqualification. Again, this would extend the goal of fulfilling the wishes of AB 891 (Alquist) Page 8 the patient, including removing those who might not be in the patient's good graces at the time, from any position of making health care decisions. 4. Codifying health care provider duties and responsibilities; recordkeeping This bill would codify rules and practices currently followed by health care providers relating to health care decisions and recordkeeping of advance health care directives, agent designations, surrogate disqualifications, patient capacity recoveries, power of attorney revocations and other relevant observations or information. It would also require health care providers to comply with patients' health care instruction with reasonable interpretation of that instruction by the patient's designated agent, and to comply with a health care decision made by the patient's authorized agent as if the decision was made by the patient while having capacity. A health care provider could decline to comply only for reasons of conscience, and a health care institution could decline to comply only if the instruction or decision is contrary to the institution's expressed policy and if the policy was timely communicated to the patient or the person authorized to make the health care decision for the patient. 5. New civil liability Under this bill, a health care provider or institution that intentionally violates the Uniform Health Care Decisions Act would be subject to liability to an aggrieved person for damages of $2,500 or actual damages resulting from the violation, whichever is greater, plus attorney's fees. It is not clear who an "aggrieved person" may be. The person could be the patient himself or herself, or the agent, or any other surrogate or surrogates. In addition, the bill would provide that these damages are cumulative and not exclusive of any other remedies provided by law. Thus, a whole family of 10 aggrieved by AB 891 (Alquist) Page 9 the health provider's intentional violation could, under this bill, each sue for $2,500 and then sue again for something like "intentional infliction of emotional distress" damages. The bill would also subject anyone who intentionally falsifies, forges, conceals, alters, obliterates, or defaces an individual's health care directive without the individual's consent, or who fraudulently induces such individual to give, revoke, or not to give an advance health care directive, to damages of $10,000 or actual damages resulting from the action, whichever is greater, plus reasonable attorney's fees. These damages would be cumulative and not exclusive of any other remedies provided by law. 6. The court as surrogate The bill would continue existing law relating to the court's role as health care decisionmaker, in the absence of surrogates, or in petitions filed in the event of a dispute about the health care decision made by a person with a durable power of attorney, or the authority of an attorney in fact under such durable power of attorney. 7. Issues to be addressed later When introduced, this bill contained the commission's original recommendations which included two additional elements: (1) a "family consent" statute and (2) a surrogate committee procedure for making necessary health care decisions where the patient does not have an agent, conservator, or other health care surrogate. These sections were deleted at the suggestion of the Assembly Committee on Judiciary, for further study and recommendations. Essentially the problem raised was a one-size-fits-all approach to health care decisions for patients with no surrogates or agents, whether the decision is for a life threatening condition or a routine treatment or care. Support: None Known Opposition: None Known AB 891 (Alquist) Page 10 HISTORY Source: California Law Revision Commission Related Pending Legislation: None Known Prior Legislation: None Known Prior Vote: Asm. Jud. (Ayes 10. Noes 3.) Asm. Appr. (Ayes 17. Noes 4.) Asm. Flr. (Ayes 62. Noes 17.) **************