BILL ANALYSIS                                                                                                                                                                                                    



                                                                       


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          |SENATE RULES COMMITTEE            |                   AB 528|
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                                 THIRD READING


          Bill No:  AB 528
          Author:   Mullin (D), et al
          Amended:  7/22/03 in Senate
          Vote:     21

           
           SENATE HEALTH & HUMAN SERV. COMMITTEE  :  7-3, 6/18/03
          AYES:  Ortiz, Chesbro, Escutia, Figueroa, Kuehl, Romero,  
            Vasconcellos
          NOES:  Aanestad, Ashburn, Battin
          ABSENT/ABSTAINING/NOT VOTING:  Alarcon, Florez, Vincent

           SENATE APPROPRIATIONS COMMITTEE  :  Senate Rule 28.8

           ASSEMBLY FLOOR  :  49-25, 5/22/03 - See last page for vote


           SUBJECT  :    Alzheimers disease:  residential care  
          facilities for the elderly

           SOURCE :     California Senior Legislature


           DIGEST  :    This bill encourages Residential Care Facilities  
          for the Elderly to create activities to mitigate the  
          effects of sundown syndrome.

           ANALYSIS  :    

           Existing Law

           1.Provides for the licensure and regulation of Residential  
            Care Facilities for the Elderly (RCFEs) by the State  
            Department of Social Services (DSS).
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          2.Establishes the Alzheimer's Disease Program, administered  
            by the State Department of Health Services (DHS), which  
            oversees ten Alzheimer's Disease Research Centers of  
            California (ARDCC) at university medical centers  
            throughout California, for the purpose of research into  
            the causes, treatment, cures, coping strategies,  
            prevention, incidence, and prevalence of Alzheimer's  
            disease and related disorders.

          3.Establishes the Alzheimer's Disease and Related Disorders  
            Research Fund, administered by DHS, and establishes a tax  
            check-off option on the State Income Tax return to permit  
            Californians to make contributions.

          This bill:

          1.Makes findings and declarations relating to Alzheimer's  
            disease and related disorders, including:

             A.    Alzheimer's disease and related disorders are  
                responsible for 50 percent of all nursing home  
                admissions and Alzheimer's disease is the fourth  
                leading cause of death in adults.

             B.    It is important to provide for the best quality of  
                life for those affected by this disease by providing  
                activities and programs that are adapted for the  
                unique needs of persons with Alzheimer's disease and  
                other forms of dementia, including activities  
                designed to decrease the effects of "sundown  
                syndrome."

          2.Defines "sundown syndrome" as a condition in which  
            persons with cognitive impairment and elderly people  
            experience recurring confusion, disorientation and  
            increasing levels of agitation that coincide with the  
            onset of late afternoon and early evening.  With less  
            light these individuals lose visual clues that help them  
            compensate for their sensory impairments.

          3.Specifies that RCFE's that serve residents with  
            Alzheimer's disease and other forms of dementia should  
            include information on sundown syndrome as part of the  







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            training for direct care staff, and should include in the  
            plan of operation a brief narrative description  
            explaining activities available for residents to decrease  
            the effects of sundown syndrome, including, but not  
            limited to, increasing outdoor activities in appropriate  
            weather conditions.

           Comments

          Background  .  According to the author's office, sundown  
          syndrome is defined as a syndrome of recurring confusion  
          and increasing levels of agitation, which coincide with the  
          onset of late afternoon and early evening.  It is commonly  
          associated with patients suffering from dementia,  
          particularly Alzheimer's patients.  While the exact cause  
          of sundown syndrome is not known, experts believe there are  
          several contributing factors, including physical and mental  
          exhaustion (after a long day), and a shift in the "internal  
          body clock" caused by the change from daylight to dark.   
          Some people with Alzheimer's disease have trouble sleeping  
          at night, which may contribute to their disorientation.   
          This syndrome can be draining for the person with  
          Alzheimer's disease and his or her caregivers.

          The author's office asserts that various activities can  
          help to decrease the effects of sundown syndrome, including  
          support of activities that promote regular exercise.   
          Frequent walks outdoors in the bright light not only  
          provides exercise, but it also exposes the patient to  
          much-needed sunlight.  Research has shown that patients  
          sleep better and longer if they receive adequate daily  
          sunlight exposure.  Research has also found that many  
          Alzheimer patients have low blood levels of melatonin, so  
          it is even more vital to increase melatonin production by  
          bright light exposure daily.

           Prior Legislation

          SB 639 (Ortiz), Chapter 692, Statutes of 2001  -- Requires  
          the Health and Human Services Agency to develop a strategic  
          plan for improving access to mental health services by  
          persons with Alzheimer's disease or related disorders.

           AB 1753 (Romero), Chapter 434, Statutes of 2000  -- Enacted  







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          the Alzheimer's Training Act of 2000 and included  
          provisions that certain information for special features  
          for persons with dementia be included in an RCFE plan of  
          operation and that the plan be available to the public upon  
          request.

           FISCAL EFFECT  :    Appropriation:  No   Fiscal Com.:  Yes    
          Local:  No

           SUPPORT  :   (Verified  7/23/03)

          California Senior Legislature (source)
          American Federation of State, County, and Municipal  
          Employees
          Congress of California Seniors
          Gray Panthers California
          San Joaquin County Commission on Aging

           OPPOSITION  :    (Verified  7/23/03) 

          The following groups opposed the prior version:

          California Association of Homes and Services for the Aging
          California Commission on Aging

           ARGUMENTS IN SUPPORT  :    Proponents applaud the author's  
          effort to provide better services for elders that reside in  
          residential care facilities.  Social workers practicing in  
          this area note that caring for a person with Alzheimer's  
          disease or other forms of dementia can be a particularly  
          distressful experience, especially when the caregiver is  
          confronted with agitated or anxious behaviors.  Unlike  
          purely physiological ailments, dementia is experienced by  
          many as behavior within a social context, which a caregiver  
          may react to with feelings of frustration, hurt, anger, or  
          insult.  This bill encourages discussion of some behaviors  
          associated with Alzheimer's disease and other dementia in  
          the context of the disease itself.  By framing the  
          discussion in this manner, and by exploring strategies that  
          mitigate distressful behaviors, caregivers can become  
          better equipped to care for those with dementia, and the  
          elderly can benefit from these interventions.

           ARGUMENTS IN OPPOSITION  :    The State Commission on Aging  







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          writes, in opposition to the prior version, that the bill  
          lacks research and supporting evidence that these programs  
          are appropriate care for treatment of Alzheimer's.  
           

           ASSEMBLY FLOOR  : 
          AYES:  Berg, Bermudez, Calderon, Canciamilla, Chan, Chavez,  
            Chu, Cohn, Corbett, Correa, Diaz, Dutra, Dymally,  
            Firebaugh, Frommer, Goldberg, Hancock, Jerome Horton,  
            Jackson, Kehoe, Koretz, Laird, Leno, Levine, Lieber, Liu,  
            Longville, Lowenthal, Maldonado, Matthews, Montanez,  
            Mullin, Nakano, Nation, Negrete McLeod, Nunez, Oropeza,  
            Parra, Pavley, Reyes, Ridley-Thomas, Salinas, Simitian,  
            Steinberg, Vargas, Wiggins, Wolk, Yee, Wesson
          NOES:  Aghazarian, Benoit, Bogh, Campbell, Cogdill, Cox,  
            Dutton, Garcia, Harman, Haynes, Keene, La Malfa, La Suer,  
            Leslie, Maddox, Maze, McCarthy, Mountjoy, Nakanishi,  
            Pacheco, Plescia, Runner, Samuelian, Strickland, Wyland


          CP:cm  7/23/03   Senate Floor Analyses 

                         SUPPORT/OPPOSITION:  SEE ABOVE

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