BILL ANALYSIS                                                                                                                                                                                                    



                                                                  AB 528
                                                                  Page  1

          CONCURRENCE IN SENATE AMENDMENTS
          AB 528 (Mullin)
          As Amended August 20, 2003
          Majority vote
           
           ----------------------------------------------------------------- 
          |ASSEMBLY:  |49-25|(May 22, 2003)  |SENATE: |23-14|(August 27,    |
          |           |     |                |        |     |2003)          |
           ----------------------------------------------------------------- 
            
           Original Committee Reference:    HUM. S.  

           SUMMARY  :  Provides that Residential Care Facilities for the  
          Elderly (RCFEs) serving residents with Alzheimer's disease and  
          other forms of dementia train direct care staff on "sundown  
          syndrome" and describe activities available for residents to  
          decrease the effects of the syndrome.

           The Senate amendments:  

          1)Replace the term "sundown syndrome" with the word  
            "sundowning."

          2)Include other forms of dementia along with Alzheimer's disease  
            as conditions for which information and activities relating to  
            sundowning should be provided.

          3)Refine the definition of "sundowning" to include "cognitive  
            impairment," and "disorientation" experienced by any person  
            whether elderly or not.

          4)Remove language relating to the loss of visual clues due to  
            poor lighting and places this language in the uncodified  
            section of the bill.

          5)Require the provision of information to direct care staff  
            about sundowning and the inclusion in the facility's plan of  
            operation a description of activities available for residents  
            to decrease the effects of sundown syndrome.

           EXISTING LAW  :

          1)Provides for the licensure and regulation of RCFEs by the  
            Department of Social Services (DSS).









                                                                  AB 528
                                                                  Page  2

          2)Establishes the Alzheimer's Disease Program, administered by  
            the Department of Health Services (DHS), which oversees 10  
            Alzheimer's Disease Research Centers of California (ARDCC) at  
            university medical centers throughout California, for the  
            purpose of research into the causes, treatment, cures, coping  
            strategies, prevention, incidence, and prevalence of  
            Alzheimer's disease and related disorders.

          3)Establishes the Alzheimer's Disease and Related Disorders  
            Research Fund, administered by DHS, and establishes a tax  
            check-off option on the State Income Tax return to permit  
            Californians to make contributions.

           AS PASSED BY THE ASSEMBLY  , this bill:  

          1)Made findings and declarations relating to Alzheimer's disease  
            and related disorders.

          2)Defined "sundown syndrome" as "recurring confusion and  
            increasing levels of agitation that coincide with the onset of  
            late afternoon and early evening."

          3)Required DSS to "encourage residential care facilities for the  
            elderly that serve Alzheimer's patients to create activities  
            and programs that are designed to decrease the effects of  
            sundown syndrome by creating more activities in the late  
            afternoon and evening hours."

           FISCAL EFFECT  :  According to the Senate Appropriations  
          Committee; negligible costs.  Costs are borne by RCFEs.

           COMMENTS  :  According to the author, "Sundown syndrome or  
          sundowning is defined as a syndrome of recurring confusion and  
          increasing levels of agitation, which coincide with the onset of  
          late afternoon and early evening.  It is commonly associated  
          with patients suffering from dementia, commonly, Alzheimer's  
          patients.  While the exact cause of sundown syndrome is not  
          known, experts believe there are several contributing factors.   
          These include physical and mental exhaustion (after a long day),  
          and a shift in the 'internal body clock' caused by the change  
          from daylight to dark.  Some people with Alzheimer's disease  
          have trouble sleeping at night, which may contribute to their  
          disorientation.  Sundown syndrome can be draining for the person  
          with Alzheimer's disease and his or her caregivers."









                                                                  AB 528
                                                                  Page  3

          Representatives of caregivers support this effort to "provide  
          better services for elders that reside in residential care  
          facilities."  Social workers practicing in this area note that  
          caring for a person with Alzheimer's disease or other forms of  
          dementia can be a particularly distressful experience,  
          especially when the caregiver is confronted with agitated or  
          anxious behaviors.  Unlike purely physiological ailments,  
          dementia is experienced by many as behaviors within a social  
          context, which a caregiver may react to with feelings of  
          frustration, hurt, anger, or insult.  

           
          Analysis Prepared by  :    John Boisa/Casey McKeever / HUM. S. /  
          (916) 319-2089 


                                                                FN: 0002992