BILL ANALYSIS                                                                                                                                                                                                    



                                                                  SB 1064
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          SENATE THIRD READING
          SB 1064 (Alquist)
          As Amended June 17, 2010
          70% vote requirement

           SENATE VOTE  :33-0  
           
           HEALTH              19-0        APPROPRIATIONS      17-0        
           
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          |Ayes:|Monning, Fletcher,        |Ayes:|Fuentes, Conway,          |
          |     |Ammiano, Carter, Conway,  |     |Bradford,                 |
          |     |De La Torre, De Leon,     |     |Huffman, Coto, Davis, De  |
          |     |Eng, Gaines, Hayashi,     |     |Leon, Gatto, Hall,        |
          |     |Hernandez, Jones, Bonnie  |     |Harkey, Miller, Nielsen,  |
          |     |Lowenthal, Nava,          |     |Norby, Skinner, Solorio,  |
          |     |V. Manuel Perez, Salas,   |     |Torlakson, Torrico        |
          |     |Smyth, Audra Strickland,  |     |                          |
          |     |Silva                     |     |                          |
          |     |                          |     |                          |
           ----------------------------------------------------------------- 
          SUMMARY  :  Imposes additional oversight and transparency  
          requirements on the California Institute for Regenerative  
          Medicine (CIRM), revises CIRM's intellectual property (IP)  
          standards with regard to licensing revenue and drug discount  
          access plans for low income and uninsured Californians, and  
          requires revenues from CIRM's IP agreements to be deposited in  
          the state General Fund, as specified.  Specifically,  this bill  :   
           

          1)Requires CIRM to commission a performance audit every three  
            years, as specified.  Requires the initial audit to include:  
            a) policies and procedures for the issuance of contracts and  
            grants and a review of a representative sample of contracts,  
            grants, and loans executed by CIRM; and, b) policies and  
            procedures relating to the protection or treatment of IP  
            rights associated with CIRM-funded or commissioned research.

          2)Specifies that all administrative costs associated with the  
            triennial audits must be paid by CIRM.

          3)Requires all meeting minutes of CIRM's Independent Citizen's  
            Oversight Committee (ICOC) to include a summary of vote  
            tallies and disclosure of each board member's votes and  








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            recusals on all action items.

          4)Requires the existing IP agreements developed by the ICOC to  
            at least include a requirement that CIRM grantees, other than  
            loan recipients and facilities grant recipients, share a  
            fraction of the revenue they receive from licensing or  
            self-commercializing an invention or technology that arises  
            from CIRM-funded research, according to specific formulas  
            prescribed in this bill.

          5)Confers authority upon the ICOC to adopt regulations to  
            implement and modify the formulas specified in 4) above and  
            requires the ICOC to notify the Legislature as specified  
            before exercising its authority to vote on the modification of  
            these formulas.

          6)Requires all revenues received through the IP agreements to be  
            deposited into the General Fund.

          7)Requires the ICOC's existing IP standards to include a  
            requirement that each grantee or exclusive licensee submit a  
            plan to CIRM to afford uninsured Californians access to any  
            drug that is entirely or partly the result of CIRM-funded  
            research, as specified.

          8)Requires the grantee or exclusive licensee, with regard to the  
            drug discount access plan required by 7) above, to either  
            submit the plan to CIRM, seek an extension from CIRM, or  
            notify CIRM of its intention to seek a waiver, within 10  
            business days following final approval of the drug by the  
            federal Food and Drug Administration (FDA).  Specifies that,  
            if the grantee seeks an extension, the plan must be submitted  
            within 30 business days following the drug's final FDA  
            approval.

          9)Requires the plan in 7) above to be subject to the approval of  
            CIRM but permits the ICOC to waive the requirement in 7)  
            above, under specified conditions, after a public hearing and  
            opportunity for public comment.

          10)Requires a request for a waiver to be posted on CIRM's  
            Internet Web site for at least 10 business days in advance of  
            the public hearing and directs CIRM to notify the Legislature  
            if the ICOC grants a waiver request, including the reasons  








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            justifying the request. 

          11)Requires the ICOC to develop procedures to protect  
            proprietary information submitted by grantees and exclusive  
            licensees pursuant to 7) above from public disclosure.

          12)Directs CIRM, under the guidance of the ICOC, to establish a  
            succession plan with regard to changes in leadership of both  
            CIRM and the ICOC that includes specified information, and, by  
            January 31, 2012, a transition plan addressing the expiration  
            of current bond funding.  Requires a copy of both of these  
            plans to be transmitted to the Governor, Controller, and the  
            Legislature within 30 days of completion. 

          13)Deletes the existing cap of 50 authorized CIRM employees and  
            eliminates the existing cap of 15 scientist members of CIRM's  
            Scientific and Medical Research Funding Group that is  
            responsible for processing grant and local applications.

          14)Requires the competitive evaluation process used in the  
            awarding of grants and loans to include a peer review panel of  
            both scientists and patient advocates.  Limits the number of  
            scientists on a peer review panel to 15.  Clarifies that only  
            the scientist members of the Scientific and Medical Research  
            Funding Group must score grant and loan award applications for  
            scientific merit.

           FISCAL EFFECT  :   According to the Assembly Appropriations  
          Committee, audit costs of $200,000 to $400,000 every three years  
          to be paid by the bond funding that supports CIRM, additional  
          unknown bond-fund supported increases in salaries and overhead  
          to the extent CIRM increases staffing above current levels, and  
          unknown future General Fund (GF) revenues to the extent the  
          requirement for GF deposits related to IP agreements established  
          by this bill increases state revenues.  

           COMMENTS  :  According to the author, when California voters  
          approved Proposition 71 in 2004 to create CIRM, they opted to  
          invest $3 billion of general obligation bond funds in stem cell  
          research.  The author argues that in the six years since  
          Proposition 71 passed, it has become clear that additional  
          oversight and transparency is needed to ensure that Proposition  
          71 is operating as intended.  The author maintains that this  
          bill will clarify the processes by which CIRM and the ICOC will  








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          ensure transparency, provide appropriate oversight, and  
          guarantee a return on the public's investment by providing a  
          payback to the General Fund and equal access to any of the stem  
          cell treatments developed by CIRM.

          In June 2009, the Little Hoover Commission (LHC) issued a report  
          identifying several recommendations to more adequately guide the  
          state's unique investment in stem cell science and improve  
          CIRM's efficiency in meeting the goals of Proposition 71.  To  
          enhance CIRM's ability to fulfill its mission, LHC made a number  
          of recommendations, many of which are incorporated in this bill,  
          including eliminating the 50-person cap on CIRM staffing and the  
          15-person limit on outside scientific peer reviewers; requiring  
          all past and future meeting minutes to specify votes and  
          recusals; and, requiring CIRM and ICOC to begin formal planning  
          for leadership transition, and to develop a transition plan for  
          expiration of bond funds.

          Stem cell research projects funded with Proposition 71 monies  
          are expected to generate many types of IP, such as new research  
          tools, new stem cell lines, and, ultimately, stem cell  
          treatments and drugs.  In many cases, grantees will be able to  
          use the rights to these inventions or license them to other  
          entities in order to develop other stem cell products and  
          research tools.  To date, the ICOC has adopted IP and  
          revenue-sharing regulations for for-profit and non-profit  
          grantees.  These regulations incorporate requirements that would  
          be codified in this bill, including: a requirement for grantees  
          that commercialize a drug to submit a plan to CIRM that affords  
          uninsured Californians' access to the drug in accordance with  
          industry standards; a requirement for grantees that  
          commercialize a drug to sell the drug at specified benchmark  
          prices; revenue sharing requirements that require grantees to  
          share a portion of revenues with the State of California without  
          specifying how or where those funds will be deposited; and, a  
          requirement to pay royalties to the State of California to be  
          deposited in the General Fund.    

          CIRM writes in support of this bill, stating that it would  
          ensure that the State of California has the opportunity to  
          benefit from voters' investment in stem cell research while  
          providing CIRM with the operational flexibility it needs to  
          carry out its mission of providing therapies to California  
          patients.  The State Controller supports this bill because it  








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          would make practical changes to the operation of CIRM, including  
          succession planning for the end of its bond funding, and  
          flexibility in staffing, and ensure optimal performance by  
          requiring recurring performance audits.  The LHC notes in  
          support that CIRM is a frequently studied agency that has been  
          responsive to many suggestions for improvement from outside  
          entities. Consumer Watchdog adds that this bill is a thoughtful  
          measure that makes necessary adjustments to help ensure that the  
          promises of Proposition 71 are kept.


           Analysis Prepared by  :    Cassie Rafanan / HEALTH / (916)  
          319-2097 


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