BILL NUMBER: ACR 51	INTRODUCED
	BILL TEXT


INTRODUCED BY   Assembly Member Perea

                        APRIL 12, 2011

   Relative to Neurofibromatosis Awareness Month.


	LEGISLATIVE COUNSEL'S DIGEST


   ACR 51, as introduced, Perea. Neurofibromatosis Awareness Month.
   This measure would proclaim the month of May 2011 as
Neurofibromatosis Awareness Month in California.
   Fiscal committee: no.



   WHEREAS, Neurofibromatosis (NF) is a neurological disorder
affecting one in every 3,000 births. NF is more prevalent than cystic
fibrosis, Duchenne muscular dystrophy, and Huntington's disease
combined. NF affects people of all races and ethnic origins, and both
sexes equally; and
   WHEREAS, The Children's Tumor Foundation leads efforts to promote
and financially sponsor world-class medical research aimed at finding
effective treatments and ultimately a cure for NF. The foundation
also works to improve access to quality patient health care and
provides patient and family support; and
   WHEREAS, Much remains to be done in raising public awareness of NF
to help promote early diagnosis, proper management and treatment,
prevention of complications, and support for research; and
   WHEREAS, Research has directly linked NF to cancer, brain tumors,
memory loss, learning disabilities, heart disease, blindness,
deafness, and orthopedic problems; and
   WHEREAS, Increased public knowledge of NF may bring hope to NF
patients and families, and support essential research; and
   WHEREAS, Since the discovery of the genes causing NF in the 1990s,
researchers have made progress in understanding NF and creating
drugs to combat it; and
   WHEREAS, The Children's Tumor Foundation is observing May 2011 as
Neurofibromatosis Awareness Month to educate the public about this
common genetic disorder; now, therefore, be it
   Resolved by the Assembly of the State of California, the Senate
thereof concurring, That the Legislature hereby proclaims the month
of May 2011 as Neurofibromatosis Awareness Month in California; and
be it further
   Resolved, That the Chief Clerk of the Assembly transmit copies of
this resolution to the author for appropriate distribution.