BILL ANALYSIS                                                                                                                                                                                                    �



                                                                  ACR 109
                                                                  Page  1

          Date of Hearing:   February 23, 2012

                             ASSEMBLY COMMITTEE ON RULES
                                Nancy Skinner, Chair
                  ACR 109 (Pan) - As Introduced:  February 14, 2012
           
          SUBJECT  :   Rare Disease Day.

           SUMMARY  :   Proclaims February 29, 2012, as Rare Disease Day in 
          California.  Specifically,  this resolution  makes the following 
          legislative findings:

          1)There are nearly 7,000 diseases and conditions considered 
            rare; and, rare diseases as a group affect almost 30 million 
            Americans.

          2)Many rare diseases are serious and debilitating conditions 
            that have a significant impact on the lives of those affected; 
            and, individuals and their families affected by rare diseases 
            struggle with obtaining an accurate and timely diagnosis, few, 
            if any treatment options, and problems related to accessing or 
            being reimbursed for treatment.

          3)Research into rare diseases builds greater understanding of 
            the nature of disease and serves as a foundation for 
            innovation in the United States.

          4)Because nearly one in 10 Americans has a rare disease, 
            Californians are among those affected by those diseases; and, 
            the National Organization for Rare Disorders (NORD) is 
            organizing a nationwide observance of Rare Disease Day on 
            February 29, 2012.  

           FISCAL EFFECT  :   None

           REGISTERED SUPPORT / OPPOSITION  :   

           Support 
          
          None on file.

           Opposition 
           
          None on file.









                                                                  ACR 109
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          Analysis Prepared by  :    Anna McCabe / RLS. / (916) 319-2800