BILL ANALYSIS �
ACR 109
Page 1
ASSEMBLY THIRD READING
ACR 109 (Pan)
As Introduced February 14, 2012
Majority vote
RULES 9-0
-----------------------------------------------------------------
|Ayes:|Skinner, Silva, Alejo, | | |
| |Butler, Carter, Donnelly, | | |
| |Hagman, Knight, Williams | | |
| | | | |
-----------------------------------------------------------------
SUMMARY : Proclaims February 29, 2012, as Rare Disease Day in
California. Specifically, this resolution makes the following
legislative findings:
1)There are nearly 7,000 diseases and conditions considered
rare; and, rare diseases as a group affect almost 30 million
Americans.
2)Many rare diseases are serious and debilitating conditions
that have a significant impact on the lives of those affected;
and, individuals and their families affected by rare diseases
struggle with obtaining an accurate and timely diagnosis, few,
if any treatment options, and problems related to accessing or
being reimbursed for treatment.
3)Research into rare diseases builds greater understanding of
the nature of disease and serves as a foundation for
innovation in the United States.
4)Because nearly one in 10 Americans has a rare disease,
Californians are among those affected by those diseases; and,
the National Organization for Rare Disorders (NORD) is
organizing a nationwide observance of Rare Disease Day on
February 29, 2012.
FISCAL EFFECT : None
Analysis Prepared by : Anna McCabe / RLS. / (916) 319-2800
ACR 109
Page 2
FN: 0003137