BILL ANALYSIS                                                                                                                                                                                                    �



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          ASSEMBLY THIRD READING
          AB 1244 (Chesbro)
          As Amended  May 27, 2011
          Majority vote 

           HUMAN SERVICES      4-2         APPROPRIATIONS      12-5        
           
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          |Ayes:|Beall, Ammiano, Hall,     |Ayes:|Fuentes, Blumenfield,     |
          |     |Portantino                |     |Bradford, Charles         |
          |     |                          |     |Calderon, Campos, Davis,  |
          |     |                          |     |Gatto, Hall, Hill, Lara,  |
          |     |                          |     |Mitchell, Solorio         |
          |     |                          |     |                          |
          |-----+--------------------------+-----+--------------------------|
          |Nays:|Jones, Grove              |Nays:|Harkey, Donnelly,         |
          |     |                          |     |Nielsen, Norby, Wagner    |
          |     |                          |     |                          |
           ----------------------------------------------------------------- 
           SUMMARY  :  Establishes the Self-Determination Program providing 
          individuals with developmental disabilities with an individual 
          funding allocation to give them greater control over the 
          purchase of services and supports needed to implement their 
          individual program plans.  Specifically,  this bill  :

          1)Strikes existing statutory provisions establishing the 
            Self-Directed Services Program (SDS Program) (Welfare & 
            Institutions (W&I) Code Section 4685.7) and, instead, 
            contingent upon the approval of federal Medicaid matching 
            funding, establishes the Self-Determination Program (SD 
            Program), which makes available to individuals with 
            developmental disabilities receiving services under the 
            Lanterman Developmental Disabilities Services Act (Lanterman 
            Act) a capitated individual funding allocation, computed in a 
            fair, transparent, and equitable manner based on the 
            individual's characteristics and need, to enable them to 
            exercise their rights to make choices in their lives and 
            access services and supports they choose to implement their 
            individual program plans (IPPs).

          2)Provides that participation in the SD Program is voluntary, 
            that a participant may choose to participate or leave at any 
            time, and that participation may not be a condition placed on 
            the receipt of services and supports otherwise available under 








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            the Lanterman Act.

          3)Provides that, in its first year, the SD Program shall be 
            available only in the five regional centers (RCs) that are 
            part of an existing self-determination pilot program and that, 
            in the second year, all RCs shall be required to implement an 
            SD Program as a term of their contract.

          4)Provides that the individual allocation shall equal 90% of the 
            annual per capita purchase of service costs for the previous 
            fiscal year for consumers with similar characteristics who do 
            not receive services through the SD Program;

          5)Prohibits the use of individual allocations to purchase 
            services from the following:

             a)   A licensed long-term health facility, or a residential 
               facility;

             b)   A day program or habilitation services program, except 
               for:

               i)     Specific periodic or one time services; and,

               ii)    Job development and job coaching services for 
                 Individual Placement Supported Employment.

          6)Provides that an RC may not prohibit the purchase of any 
            service or support otherwise allowable under the SD Program in 
            order to implement an individual's IPP.

          7)Requires the Department of Developmental Services (DDS) to 
            establish and administer a risk pool to meet the unanticipated 
            needs of participants in the SD Program.

          8)Requires the risk pool to be funded at the equivalent of 2.5% 
            of the historical annual purchase of service costs for 
            consumers participating in the SD Program, as determined for 
            consumers of similar characteristics.

          9)Requires DDS to use 7.5% of the historical annual purchased of 
            service costs for consumers in the SD Program toward 
            offsetting SD Program state costs, with the remainder to be 
            returned as savings to the General Fund (GF).








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          10)Exempts SD Program participants from the Family Cost 
            Participation Program, and recent cost savings measures 
            placing restrictions on purchases of services enacted through 
            the budget process.

          11)Provides that SD Program participants have the right to 
            employ, supervise, direct, schedule, evaluate, train and 
            terminate SD Support Workers, who are with limited exceptions 
            not deemed to be State employees, of their choice;

          12)Requires the state to establish a base compensation package 
            to ensure decent pay standards for SD Support Workers, and 
            authorizes individuals to pay SD Support Workers above the 
            base established by the state, to develop job descriptions, 
            and otherwise organize and incentivize their SD Support 
            Workers;

          13)Authorizes SD Support Workers to form, join, and participate 
            in labor organizations in order to engage in collective 
            negotiations with DDS;

          14)Prohibits the designated negotiating representative for SD 
            Support Workers from calling or directing a strike or other 
            form of work stoppage.

          15)Requires DDS to establish a statewide SD Program Advisory 
            Committee and,   
          commencing January 10, 2013, to annually provide specified 
            information and data on implementation of the SD Program to 
            the Advisory Committee and to the policy and fiscal committees 
            of the Legislature.

          16)States the intent of the Legislature that the purchase of 
            services and supports through the SD Program be eligible for 
            federal Medicaid match funds, and requires that DDS:

             a)   Take all steps necessary to ensure the availability of 
               federal matching funds for the SD Program by applying for 
               amendments to the current home and community-based waiver 
               for people with developmental disabilities or for a new 
               Medicaid waiver; and,

             b)   Apply for an enhanced federal match through the federal 








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               Community First Choice Option. 

           EXISTING LAW  

          1)Establishes, contingent upon approval of a federal waiver, the 
            SDS Program, which, when implemented, provides participants, 
            within a set individual budget amount, greater control over 
            needed services and supports, consistent with the requirements 
            set forth in the statute (W&I Code Section 4685.7).


          2)Requires DDS, in consultation with stakeholders, to develop an 
            alternative service delivery model that provides an Individual 
            Choice Budget (ICB) for obtaining quality services and 
            supports which provides choice and flexibility within a finite 
            budget that in the aggregate reduces regional center purchase 
            of service expenditures, reduces reliance on the state general 
            fund, and maximizes federal financial participation in the 
            delivery of services. Requires the individual budget to be 
            determined using a fair, equitable, transparent standardized 
            process (W&I Code Section 4648.6).


           FISCAL EFFECT  :  According to the Assembly Appropriations 
          Committee, one-time costs potentially in excess of several 
          hundred thousand dollars GF for the workload associated with 
          creating the new SD Program.
          
           COMMENTS  :  "Self-determination," or "self-directed services," 
          represents an alternative model of service delivery, whereby 
          individuals who are eligible for state developmental 
          disabilities services are empowered to gain control over the 
          selection of services and supports that meet their own needs.  
          It is an alternative to the standard service model of the 
          Lanterman Act in which regional centers purchase services 
          directly from approved "vendors" or obtain services from other 
          agencies.  Self-determination is intended to enhance the ability 
          of a consumer and his or her family to control the decisions and 
          resources required to meet all or some of the objectives in the 
          consumer's IPP.  According to DDS' Web site, self-directed 
          service programs are implemented nationwide and have garnered 
          international and bi-partisan support.










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           Prior self-determination/self-directed services initiatives  .


           Self-Determination Pilot Projects  :  SB 1038 (Thompson), Chapter 
          1043, Statutes of 1998, authorizes the planning and 
          implementation of self-determination pilot projects at three 
          RCs:  East Los Angeles Regional Center, Tri-Counties Regional 
          Center, and Redwood Coast Regional Center.  Two other regional 
          centers (Kern Regional Center and San Diego Regional Center) 
          also created independent self-determination pilots through 
          approval of alternative service delivery models pursuant to W&I 
          Code Section 4669.2.  The pilot programs, which vary somewhat 
          among the five participating RCs, were limited to a total of 
          approximately 140 consumers.  These self-determination pilot 
          programs are ongoing and, reportedly, successful, with a high 
          level of participant satisfaction.


           Self-Directed Services Program (SDS Program)  :  AB 131 (Assembly 
          Budget Committee), Chapter 80, Statutes of 2005 (Budget Act 
          2005, omnibus health trailer bill), repeals the statutory 
          section establishing the self-determination pilot projects and 
          added W&I Code Section 4685.7 to establish, contingent upon 
          approval of a federal waiver, self-directed services statewide.  
          DDS filed an SDS Waiver application with the federal Centers for 
          Medicare & Medicaid Services (CMS) on April 2, 2008; however, it 
          has still not been approved.  Therefore, the SDS Program has 
          never been implemented.


           Individual choice budgets (ICB)  :  As part of the 2008-09 and 
          2009-10 budget process, DDS was charged with identifying $334 
          million in GF savings in the developmental disabilities service 
          system.  Those cost savings measures included the suspension of 
          RCs' authority to purchase certain services, including 
          social/recreation activities, camping services, educational 
          services for minor, school-aged children, and non-medical 
          therapies.  The services will be made available once DDS 
          develops and implements an ICB service delivery model and the 
          director of DDS certifies that the ICB has been implemented and 
          will result in state budget savings sufficient to offset the 
          costs of providing those services.  AB 9 X4 (Evans), Chapter 9, 
          Statutes of 2009 4th Extraordinary Session.  The ICB service 








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          delivery model is to provide consumers and families with an 
          "Individual Choice Budget" that gives them the resources to 
          obtain quality services and supports within a defined budget 
          while providing choice and flexibility that, in total, saves 
          money in purchase of service expenditures.  AB 9 X4 requires DDS 
          to develop the ICB model in consultation with stakeholders.  To 
          date, no consensus among stakeholders has been reached on the 
          ICB model and it has not been developed or implemented.


           Cost savings  :  A key feature of the existing SDS Program 
          statute, the ICB model, and the SD Program established by this 
          bill is that individual budget allocations are required to 
          result in a cost savings compared to the current purchase of 
          service model.  This bill requires that the individual 
          allocation amount "shall equal 90% of the annual per capita 
          purchase of service costs for the previous fiscal year for 
          consumers with similar characteristics who do not receive 
          services through the SD Program."  In exchange for the reduced 
          expenditure, consumers would gain far more flexibility and 
          control over the services and supports they receive. 



          The most recent amendments to this bill, taken in the Assembly 
          Appropriations Committee, are intended to ensure cost 
          neutrality.  Among other things, these amendments make 
          implementation of the program contingent on the receipt of 
          federal Medicaid matching funding, and increase from 2.5% to 
          7.5% of historical purchase of service costs the amount that DDS 
          is to set aside to cover the costs to the state to administer 
          the SD Program.


          Please see policy committee analysis for more comprehensive 
          comments and additional details on the provisions of this bill.
           

          Analysis Prepared by  :    Eric Gelber / HUM. S. / (916) 319-2089 


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