BILL NUMBER: AB 2034	AMENDED
	BILL TEXT

	AMENDED IN SENATE  AUGUST 21, 2012
	AMENDED IN SENATE  JUNE 15, 2012
	AMENDED IN ASSEMBLY  MAY 25, 2012
	AMENDED IN ASSEMBLY  MARCH 29, 2012
	AMENDED IN ASSEMBLY  MARCH 14, 2012

INTRODUCED BY   Assembly Member Fuentes
   (Principal coauthor: Assembly Member Bonilla)

                        FEBRUARY 23, 2012

   An act to add  and repeal  Section 125191.5  to
  of  the Health and Safety Code, relating to
health services.



	LEGISLATIVE COUNSEL'S DIGEST


   AB 2034, as amended, Fuentes. Medical care: genetically
handicapping conditions.
   Existing law, the Holden-Moscone-Garamendi Genetically Handicapped
Persons Program (GHPP), requires the Director of Health Care
Services to establish and administer a program for the medical care
of persons with specified genetically handicapping conditions and for
persons with specified hereditary metabolic disorders.
   Existing law, the federal Patient Protection and Affordable Care
Act (PPACA), among other provisions, reformed certain aspects of the
private health insurance industry and public health insurance
programs.
   This bill would require the State Department of Health Care
Services to  develop a plan for the administration of
  prepare a report on the coverage needs of the
population served by  the GHPP after the implementation of the
PPACA. This bill would require the  plan  
report  to address, among other things, preservation of the
availability of wrap-around services that would otherwise not be
available through the PPACA and the  addition of 
 extent to which a person with  genetic amyotrophic lateral
sclerosis  to the list of conditions covered under the GHPP
or any subsequent care model developed   will continue
to have unmet medical needs  after implementation of the PPACA.
This bill would require the department to submit the  plan
  report  to the relevant fiscal and policy
committees of the Legislature by  July 1, 2013  
January 1, 2015  .
   Vote: majority. Appropriation: no. Fiscal committee: yes.
State-mandated local program: no.


THE PEOPLE OF THE STATE OF CALIFORNIA DO ENACT AS FOLLOWS:

  SECTION 1.  Section 125191.5 is added to the Health and Safety
Code, to read:
   125191.5.  (a) The department  , in consultation with the
California Health Benefit Exchange, shall develop a plan for
  shall prepare a report on the coverage needs of the
population served by  the Genetically Handicapped Persons
Program after implementation of the federal Patient Protection and
Affordable Care Act (Public Law 111-148). The  plan 
 report  shall address all of the following:
   (1) Wrap-around services that will not be available, in the
absence of the Genetically Handicapped Persons Program, after
implementation of the federal Patient Protection and Affordable Care
Act.
   (2) Continued coverage for any residual services and populations.
   (3)  Adding   The extent to which a person
with  genetic amyotrophic lateral sclerosis (ALS)  to
the Genetically Handicapped Persons Program list of conditions, as
described in Section 125130 or any subsequent care model developed
  will continue to have unmet medical needs  after
implementation of the federal Patient Protection and Affordable Care
Act.  Care and treatment provided for genetic ALS under the
Genetically Handicapped Persons Program, pursuant to the addition of
genetic ALS to the Genetically Handicapped Persons Program list of
conditions, shall be consistent with the principles described in
Section 104323. 
   (b) In developing the  plan   report 
described in subdivision (a), the department may consult with
stakeholders, representatives of Genetically Handicapped Persons
Program providers, persons with genetically handicapped conditions,
special care centers, genetic disease medical experts, and other
interested persons.
   (c) The department shall submit  , in accordance with Section
9795 of the Government Code,  the  plan  
report  described in subdivision (a) to the relevant fiscal and
policy committees of the Legislature by  July 1, 2013
  January 1, 2015  . 
   (d) This section shall remain in effect only until January 1,
2019, and as of that date is repealed, unless a later enacted
statute, that is enacted before January 1, 2019, deletes or extends
that date.