BILL ANALYSIS �
ACR 151
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Date of Hearing: May 27, 2014
ASSEMBLY COMMITTEE ON RULES
Richard S. Gordon, Chair
ACR 151 (Wilk) - As Introduced: May 19, 2014
SUBJECT : Diffuse Intrinsic Pontine Glioma (DIPG) Awareness
Week.
SUMMARY : Declare the week of May 25, 2014, to May 31, 2014,
inclusive, as Diffuse Intrinsic Pontine Glioma (DIPG) Awareness
Week to honor those who work to make research and resources a
reality for children suffering from DIPG and their families.
Specifically, this resolution makes the following legislative
findings:
1)Diffuse Intrinsic Pontine Glioma (DIPG) is a malignant brain
tumor that affects the brain stem and only children are
afflicted with DIPG usually diagnosed between five and nine
years of age.
2)Survival rate of those afflicted with DIPG is only about 9
months and to date no therapy has been shown to be effective
and children with DIPG are often treated on early phase 1
clinical trials with a trial-and-error approach.
3)The Jack's Angel Foundation, named after James-William "Jack"
Demeter, who lost the fight against DIGG at the age of three,
is a non-profit corporation that donates all money raised to
the DIPG research fund at the Los Angeles Children's Hospital;
and, they are committed to promoting the most innovative
research and clinical trials to help shed light on the nature
of DIPG and the genetic anomalies that cause it.
FISCAL EFFECT : None
REGISTERED SUPPORT / OPPOSITION :
Support
None on file
Opposition
None on file
ACR 151
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Analysis Prepared by : Nicole Willis / RLS. / (916) 319-2800