BILL ANALYSIS                                                                                                                                                                                                    �



                                                                  ACR 151
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          ASSEMBLY THIRD READING
          ACR 151 (Wilk)
          As Introduced  May 19, 2014
          Majority vote 

           RULES               9-0                                         
           
           -------------------------------- 
          |Ayes:|Gordon, Wilk, Brown,      |
          |     |Ch�vez, Dababneh,         |
          |     |Gonzalez, Hagman, Quirk,  |
          |     |Ridley-Thomas             |
          |     |                          |
           -------------------------------- 
           SUMMARY  :  Declares the week of May 25, 2014, to May 31, 2014,  
          inclusive, as Diffuse Intrinsic Pontine Glioma (DIPG) Awareness  
          Week to honor those who work to make research and resources a  
          reality for children suffering from DIPG and their families.   
          Specifically,  this resolution  makes the following legislative  
          findings:

          1)DIPG is a malignant brain tumor that affects the brain stem  
            and only children are afflicted with DIPG usually diagnosed  
            between five and nine years of age.

          2)Survival rate of those afflicted with DIPG is only about nine  
            months and to date, no therapy has been shown to be effective  
            and children with DIPG are often treated on early Phase 1  
            clinical trials with a trial-and-error approach.

          3)The Jack's Angel Foundation, named after James-William "Jack"  
            Demeter, who lost the fight against DIPG at the age of three,  
            is a non-profit corporation that donates all money raised to  
            the DIPG research fund at the Los Angeles Children's Hospital;  
            and, they are committed to promoting the most innovative  
            research and clinical trials to help shed light on the nature  
            of DIPG and the genetic anomalies that cause it.

           FISCAL EFFECT  :  None

           
          Analysis Prepared by  :    Nicole Willis / RLS. / (916) 319-2800 










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