BILL ANALYSIS �
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THIRD READING
Bill No: ACR 151
Author: Wilk (R), et al.
Amended: 6/12/14 in Assembly
Vote: 21
ASSEMBLY FLOOR : Read and adopted, 6/12/14
SUBJECT : Diffuse Intrinsic Pontine Glioma Awareness Week
SOURCE : Author
DIGEST : This resolution declares the week of May 25, 2014, to
May 31, 2014, inclusive, Diffuse Intrinsic Pontine Glioma (DIPG)
Awareness Week to honor those who work to make research and
resources a reality for children suffering from DIPG and their
families.
ANALYSIS : This resolution makes the following legislative
findings:
1.DIPG is a malignant brain tumor that affects the brain stem.
Only children are afflicted with DIPG and it is usually
diagnosed between five and nine years of age.
2.There are essentially no long-term survivors and median
survival is only about nine months. Progress has been
hampered by the perceived risk of biopsy of these tumors. To
date, no therapy has been shown to be effective and children
with DIPG are often treated on early phase 1 clinical trials
with a trial-and-error approach.
CONTINUED
ACR 151
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3.The Jack's Angels Foundation is a nonprofit corporation that
donates all money raised to establish a new DIPG research fund
at the Los Angeles Children's Hospital. The Foundation also
actively researches cures for DIPG through medical trials and
scientific research.
4.The mission of the Jack's Angels Foundation is also to support
the quality of life for patients diagnosed with DIPG patients
and their families, increasing public awareness and
understanding of DIPG, potentially increasing the protocol for
pediatric brain tumor research, and increasing investment by
pharmaceutical companies in research pertaining to DIPG.
5.James-William "Jack" Demeter, the namesake of the Jack's
Angels Foundation, lost the fight against DIPG at the age of
three.
6.It is the intent of the Legislature to call attention to
organizations, like the Jack's Angels Foundation, that serve
to bring people together for the united purpose of actively
pursuing improvements in their communities.
This resolution declares the week of May 25, 2014, to May 31,
2014, inclusive, as DIPG Awareness Week to honor those who work
to make research and resources a reality for children suffering
from DIPG and their families.
FISCAL EFFECT : Fiscal Com.: No
JL:e 6/18/14 Senate Floor Analyses
SUPPORT/OPPOSITION: NONE RECEIVED
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