BILL ANALYSIS                                                                                                                                                                                                    �






                                  SENATE HUMAN
                               SERVICES COMMITTEE
                            Senator Jim Beall, Chair


          BILL NO:       AB 1687                                      
          A
          AUTHOR:        Conway                                       
          B
          VERSION:       March 26, 2014
          HEARING DATE:  June 24, 2014                                
          1
          FISCAL:        No                                           
          6
                                                                      
          8
          CONSULTANT:    Mareva Brown                                 
          7

                                        
                                     SUBJECT
                                         
             Persons with Developmental Disabilities Bill of Rights

                                     SUMMARY  

          This bill would recast statutory rights that exist  
          currently in the Lanterman Developmental Disabilities  
          Services Act as the "Persons with Developmental  
          Disabilities Bill of Rights." The bill would add to those  
          rights the right to a prompt investigation of any alleged  
          abuse.

                                     ABSTRACT  
           Existing law:

              1)   The Lanterman Developmental Disabilities Services  
               Act, enacted in 1977, sets forth the rights of  
               individuals with developmental disabilities in  
               California and the responsibilities of the state to  
               provide services and supports. (WIC 4500 et seq.)

             2)   Establishes that persons with developmental  
               disabilities have the same legal rights and  
               responsibilities guaranteed all other individuals by  
               the Constitution and laws of the United States the  
                                                         Continued---



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               State of California. (WIC 4502)

             3)   States Legislative intent that persons with  
               developmental disabilities have rights, including but  
               not limited to:

                  a.        A right to treatment and habilitation  
                    services and supports in the least restrictive  
                    environment. Treatment and habilitation services  
                    and supports should foster the developmental  
                    potential of the person and be directed toward  
                    the achievement of the most independent,  
                    productive, and normal lives possible. Such  
                    services shall protect the personal liberty of  
                    the individual and shall be provided with the  
                    least restrictive conditions necessary to achieve  
                    the purposes of the treatment, services, or  
                    supports.
                  b.        A right to dignity, privacy, and humane  
                    care. To the maximum extent possible, treatment,  
                    services, and supports shall be provided in  
                    natural community settings.
                  c.        A right to participate in an appropriate  
                    program of publicly supported education,  
                    regardless of degree of disability.
                  d.        A right to prompt medical care and  
                    treatment.
                  e.        A right to religious freedom and  
                    practice.
                  f.        A right to social interaction and  
                    participation in community activities.
                  g.        A right to physical exercise and  
                    recreational opportunities.
                  h.        A right to be free from harm, including  
                    unnecessary physical restraint, or isolation,  
                    excessive medication, abuse, or neglect.
                  i.        A right to be free from hazardous  
                    procedures.
                  j.        A right to make choices in their own  
                    lives, including, but not limited to, where and  
                    with whom they live, their relationships with  
                    people in their community, the way they spend  
                    their time, including education, employment, and  
                    leisure, the pursuit of their personal future,  
                    and program planning and implementation. (WIC  




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                    4502)

             4)   Establishes Legislative intent that all victims of  
               crimes are treated with dignity, respect, courtesy,  
               and sensitivity and that the rights of victims are  
               honored and protected by law enforcement agencies,  
               prosecutors, and judges. (PC 679)

             5)   Establishes a victim's right to an expeditious  
               disposition of the criminal action. (PC 679.02 (a)  
               (10))

             6)   Requires a state developmental center to  
               immediately, but no later than within two hours of  
               observing, obtaining knowledge of, or suspecting  
               abuse, report specified incidents involving a resident  
               to the local law enforcement agency, as defined. (WIC  
               4427.5. (a) (1))

             7)   Requires mandated reporters, as specified, in a  
               variety of care settings to report suspected abuse of  
               an elder or dependent adult to local law enforcement,  
               the local ombudsman, or other authorities as  
               appropriate to the setting, immediately or as soon as  
               practicably possible, as specified. Requires that if  
               the report is made by telephone, a written report  
               shall be sent, or an Internet report shall be made  
               through the confidential Internet reporting tool  
               established in Section 15658, within two working days.  
               (WIC 15630)

           This bill:


              1)   Renames the heading of WIC 4502, to "Persons With  
               Developmental Disabilities Bill of Rights"


             2)   Adds to the list of rights, "A right to a prompt  
               investigation of any alleged abuse against them."

                                  FISCAL IMPACT  

          This bill was not identified as having a fiscal impact by  
          the Office of Legislative Counsel.




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                            BACKGROUND AND DISCUSSION  

           Purpose of the bill:
           
          According to the author, AB 1687 renames the heading of  
          Welfare and Institutions Code 4502 to read "Persons with  
          Developmental Disabilities Bill of Rights," and moreover,  
          adds a right that a person with developmental disabilities  
          receive a prompt investigation into any alleged abuse.

           Developmental Disabilities

           A developmental disability is defined as a disability that  
          originates before an individual attains 18 years of age, is  
          expected to continue indefinitely, and constitutes a  
          substantial disability for that individual.  It includes  
          intellectual disabilities, cerebral palsy, epilepsy, and  
          autism spectrum disorders, among others.
           
           California's 21 regional centers are nonprofit  
          organizations that provide local services and supports to  
          more than 275,000 consumers statewide, as of May 2014.  
          Regional centers, through contracts with the state  
          Department of Developmental Services (DDS), provide  
          diagnosis and assessment of eligibility and help plan,  
          access, coordinate and monitor the services and supports  
          that are needed because of an individual's developmental  
          disability. Services for consumers are determined through  
          an individual program plan (IPP).  In addition, as of June  
          11, 2014, there were about 1,250 individuals living in  
          developmental centers, including approximately 400 at  
          Porterville Developmental Center, which is in the author's  
          district, about 440 at Sonoma, about 315 individuals at  
          Fairview and 50 in-center consumers at Lanterman  
          Developmental Center, which is in the process of closure.  
          The overall number of consumers residing in developmental  
          centers has decreased by approximately 550 since March  
          2012.
           
          The Lanterman Act

           Established in statute in 1969, California's Lanterman  
          Developmental Disabilities Act (WIC 4500 et seq.) provides  
          an entitlement to services for individuals who are  




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          diagnosed with developmental disabilities. Under the act,  
          the Legislative intent stated services and supports should  
          be available to enable persons with developmental  
          disabilities to approximate the pattern of everyday living  
          available to people without disabilities of the same age.  
          The Act's intention and structure requires that consumers  
          of services and supports, and where appropriate, their  
          parents, legal guardian, or conservator, should be  
          empowered to make choices in all life areas. These include  
          promoting opportunities for individuals with developmental  
          disabilities to be integrated into mainstream society in  
          their home communities, including supported living and  
          other appropriate community living arrangements, and more  
          recently, to be included in employment. 

           Related legislation:


           AB 1688 (Conway) 2014 would have required that a local law  
          enforcement agency be reimbursed for costs to investigate  
          crimes in developmental centers in which an employee is  
          accused of committing a crime against a consumer. That bill  
          was held in the Assembly Appropriations committee. 
                                     COMMENTS
           
          This bill is one of two that were introduced by the author  
          out of concerns for residents of Porterville Developmental  
          Center, in her district, and other individuals living with  
          developmental disabilities. While there are ongoing  
          concerns about the adequacy of criminal investigations  
          within the developmental centers, it is unclear that this  
          bill has any practical effect.

                                   PRIOR VOTES  

          Assembly Floor      76 - 0
          Assembly Human Services    6 - 0

                                    POSITIONS  

          Support:       California Psychological Association

          Oppose:   None received.






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