BILL ANALYSIS                                                                                                                                                                                                    �






                             SENATE COMMITTEE ON HEALTH
                          Senator Ed Hernandez, O.D., Chair

          BILL NO:       AB 2029
          AUTHOR:        Cooley
          AMENDED:       June 17, 2014
          HEARING DATE:  June 25, 2014
          CONSULTANT:    Diaz

           SUBJECT :  Inquests: sudden unexplained death in childhood.
           
          SUMMARY  :  Requires a coroner to investigate, among other deaths,  
          a sudden and unexpected death of a child aged one or older, but  
          younger than 18, or a death suspected to be caused by sudden  
          unexplained death in childhood (SUDC), as defined. Requires a  
          coroner to perform specified activities when a death is  
          suspected to be caused by SUDC. Provides an exemption to a  
          coroner's investigation of a death suspected to be caused by  
          SUDC, as specified.

          Existing law:
          1.Requires a coroner to investigate the circumstances, manner,  
            and cause of specified types of deaths, including violent,  
            sudden, or unusual deaths; unattended deaths; and deaths where  
            the deceased has not been attended to by a physician within 20  
            days before the death occurred.  Affords the coroner the  
            discretion to determine the extent of the inquiry into a death  
            occurring under natural circumstances, and allows the coroner  
            to authorize a physician to sign the certificate of death if  
            the physician has sufficient knowledge to reasonably state the  
            cause of a death occurring under natural circumstances. 
             
          2.Requires a coroner to, within 24 hours or a soon as feasible  
            thereafter, where the suspected cause of death is sudden  
            infant death syndrome (SIDS), take possession of the body and  
            make or cause to be made a postmortem examination or autopsy.  
            Requires the detailed medical findings resulting from an  
            examination of the body or autopsy by an examining physician  
            to either be reduced to writing or permanently preserved, as  
            specified. Defines SIDS as the sudden death of an infant that  
            is unexpected by the history of the infant and where a  
            thorough postmortem fails to demonstrate an adequate cause of  
            death.  

          3.Requires that an autopsy, when the suspected cause of death is  
            SIDS, be conducted pursuant to a standardized protocol  
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          AB 2029 | Page 2




            developed by the Department of Public Health. Requires that  
            all coroners throughout the state follow the established  
            protocol when conducting autopsies where the death is  
            suspected to be caused by SIDS. Requires a coroner to state on  
            the certificate of death that SIDS was the cause of death when  
            the findings are consistent with the definition. 
          
          This bill:
          1.Requires a coroner to investigate the sudden and unexpected  
            death of a child aged one year or older, but younger than 18,  
            or a death in which the suspected cause is SUDC. Defines SUDC  
            as the sudden death of a child aged one year or older, but  
            younger than 18, that is unexplained by the history of the  
            child and where a thorough postmortem examination fails to  
            demonstrate an adequate cause of death.

          2.Requires a coroner to perform an autopsy as soon as feasible  
            in any death caused by SUDC. Affords discretion to a coroner  
            to perform an autopsy in a case where an attending physician  
            desires to certify that the cause of death is SUDC. Requires  
            the coroner to certify the cause of death if an autopsy is  
            performed in this case.

          3.Allows a coroner to take tissue samples for research purposes  
            from children who have died from SUDC without consent of the  
            responsible adult if the tissue removal is not likely to  
            result in any visible disfigurement. Requires the coroner to  
            notify the parent or responsible adult of the child about the  
            importance of taking tissue samples.

          4.Prohibits a coroner from being liable for damages in a civil  
            action for any act or omission in compliance with performing  
            autopsies on or taking tissue samples from children who have  
            died from SUDC. Provides that consent is not required from any  
            person prior to a coroner undertaking the autopsy required on  
            children who died from SUDC. 

          5.Provides an exemption to the SUDC autopsy and taking of tissue  
            samples in a case where a conflict arises with a parent or  
            guardian's sincerely held religious beliefs or practices,  
            unless there is an overriding public health concern or a law  
            enforcement officer reasonably suspects that a crime was  
            committed.

           FISCAL EFFECT  :  According to the Assembly Appropriations  
          Committee:  




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             1.   Unknown minor local costs to the extent coroners opt to  
               take tissue samples for research purposes.

             2.   Unknown, likely minor potentially reimbursable local  
               costs to conduct additional autopsies when the suspected  
               cause of death is SUDC.

           PRIOR VOTES  :  
          Assembly Public Safety:  6 - 0
          Assembly Appropriations:13 - 0
          Assembly Floor:     64 - 0
           
          COMMENTS  :  
           1.Author's statement. According to the author, though there is  
            existing law that outlines the procedures for investigating  
            deaths caused by SIDS, there is no existing law outlining the  
            procedures for cases where the suspected cause of death is  
            SUDC. As a result, parents whose children die under these  
            circumstances are often left with little or no information on  
            how to process the death of their children or how to address  
            further investigation.
            
          2.SUDC. According to the Sudden Unexplained Death in Childhood  
            Program's (SUDCP) Web site, SUDC is a rare condition that  
            occurs in children over the age of 12 months. According to the  
            SUDCP, SUDC is a diagnosis of exclusion that is given when all  
            known and possible causes of death have been ruled out, and  
            when deaths go unexplained after an autopsy, a death scene  
            investigation, and a medical history review. The SUDCP states  
            that the incidence of SUCD is approximately 1.2 deaths per  
            100,000 children, compared to 54 deaths per 100,000 live  
            births for SIDS. The SUDCP further states that most SUDC  
            deaths occur in children between the ages of one and three but  
            that researchers have looked at cases in children as old as  
            15.
            
          3.Support. Supporters state that it is critical to examine all  
            child deaths to determine if they are intentional or  
            unintentional and to what causes they are attributable. They  
            further state that unexplained deaths in children are rare and  
            poorly understood in the U.S.
               
          4.Opposition. Taxpayers for Improving Public Safety argues that  
            this bill fails to respect religious beliefs, including  




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            interment of the entire body. 
               
          5.Oppose unless amended. The California State Coroners'  
            Association argues that this bill is redundant in nature and  
            that adding SUDC to statute suggests it is a syndrome, like  
            SIDS, when it has not been scientifically vetted or validated.  
            

          6.Amendments. The author intends to take amendments to address  
            concerns over language that allows a coroner to take tissue  
            samples without consent of the responsible adult.
               
           SUPPORT AND OPPOSITION  :
          Support:  Child Abuse Prevention Center
                    Safe Kids California
                    Sudden Unexplained Death in Childhood Program
                    6 individuals

          Oppose:   Taxpayers for Improving Public Safety
                    California State Coroners Association (unless amended)
                    Agudath Israel of California (prior version)





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